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Auteur Karen A. KUHLTHAU |
Documents disponibles écrits par cet auteur (26)
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Pediatric provider’s perspectives on the transition to adult health care for youth with autism spectrum disorder: Current strategies and promising new directions / Karen A. KUHLTHAU in Autism, 19-3 (April 2015)
[article]
Titre : Pediatric provider’s perspectives on the transition to adult health care for youth with autism spectrum disorder: Current strategies and promising new directions Type de document : Texte imprimé et/ou numérique Auteurs : Karen A. KUHLTHAU, Auteur ; Marji E. WARFIELD, Auteur ; Jill HURSON, Auteur ; Jennifer DELAHAYE, Auteur ; Morgan K. CROSSMAN, Auteur Article en page(s) : p.262-271 Langues : Anglais (eng) Mots-clés : autism transition youth healthcare pediatrics Index. décimale : PER Périodiques Résumé : Few youth with autism spectrum disorder (ASD) nationally report receiving services to help them transition from the pediatric health care system to the adult health care system. For example, only one-fifth (21.1%) of youth with ASD receive any transition planning services. To better understand why the transition from pediatric to adult health care is so difficult, we interviewed pediatric health care providers with extensive experience serving youth with ASD. We gathered information about the strategies and interventions they use to transition their patients with ASD to an adult provider. Five interventions or strategies are currently being used. These include providing families with written medical summaries to give to adult providers, compiling lists of available adult providers or community resources, coordinating care and communication between individual pediatric and adult providers, making transition-specific appointments, and using checklists to track transition progress. Other interventions or strategies were identified as needed but not currently in practice, and these focused on education and training. For example, informational workshops were suggested to train families and youth about transition. Training adult providers and medical students was also seen as important. Several respondents additionally identified the need for a transition center where all services could be coordinated in one place. With large numbers of youth with ASD becoming young adults, it seems that pediatric practices might want to consider some of the activities described here. Some of these activities, such as family educational seminars and written medical summaries, are likely relatively easy for a practice to implement. En ligne : http://dx.doi.org/10.1177/1362361313518125 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=257
in Autism > 19-3 (April 2015) . - p.262-271[article] Pediatric provider’s perspectives on the transition to adult health care for youth with autism spectrum disorder: Current strategies and promising new directions [Texte imprimé et/ou numérique] / Karen A. KUHLTHAU, Auteur ; Marji E. WARFIELD, Auteur ; Jill HURSON, Auteur ; Jennifer DELAHAYE, Auteur ; Morgan K. CROSSMAN, Auteur . - p.262-271.
Langues : Anglais (eng)
in Autism > 19-3 (April 2015) . - p.262-271
Mots-clés : autism transition youth healthcare pediatrics Index. décimale : PER Périodiques Résumé : Few youth with autism spectrum disorder (ASD) nationally report receiving services to help them transition from the pediatric health care system to the adult health care system. For example, only one-fifth (21.1%) of youth with ASD receive any transition planning services. To better understand why the transition from pediatric to adult health care is so difficult, we interviewed pediatric health care providers with extensive experience serving youth with ASD. We gathered information about the strategies and interventions they use to transition their patients with ASD to an adult provider. Five interventions or strategies are currently being used. These include providing families with written medical summaries to give to adult providers, compiling lists of available adult providers or community resources, coordinating care and communication between individual pediatric and adult providers, making transition-specific appointments, and using checklists to track transition progress. Other interventions or strategies were identified as needed but not currently in practice, and these focused on education and training. For example, informational workshops were suggested to train families and youth about transition. Training adult providers and medical students was also seen as important. Several respondents additionally identified the need for a transition center where all services could be coordinated in one place. With large numbers of youth with ASD becoming young adults, it seems that pediatric practices might want to consider some of the activities described here. Some of these activities, such as family educational seminars and written medical summaries, are likely relatively easy for a practice to implement. En ligne : http://dx.doi.org/10.1177/1362361313518125 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=257 Physician Perspectives on Providing Primary Medical Care to Adults with Autism Spectrum Disorders (ASD) / Marji E. WARFIELD in Journal of Autism and Developmental Disorders, 45-7 (July 2015)
[article]
Titre : Physician Perspectives on Providing Primary Medical Care to Adults with Autism Spectrum Disorders (ASD) Type de document : Texte imprimé et/ou numérique Auteurs : Marji E. WARFIELD, Auteur ; Morgan K. CROSSMAN, Auteur ; Jennifer DELAHAYE, Auteur ; Emma DER WEERD, Auteur ; Karen A. KUHLTHAU, Auteur Année de publication : 2015 Article en page(s) : p.2209-2217 Langues : Anglais (eng) Mots-clés : Adults with autism spectrum disorders Health care Physician perspectives Physician training Index. décimale : PER Périodiques Résumé : We conducted in-depth case studies of 10 health care professionals who actively provide primary medical care to adults with autism spectrum disorders. The study sought to understand their experiences in providing this care, the training they had received, the training they lack and their suggestions for encouraging more physicians to provide this care. Qualitative data were gathered by phone using a structured interview guide and analyzed using the framework approach. Challenges to providing care were identified at the systems, practice and provider, and education and training levels. Solutions and interventions targeting needed changes at each level were also proposed. The findings have implications for health care reform, medical school and residency training programs, and the development of best practices. En ligne : http://dx.doi.org/10.1007/s10803-015-2386-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=261
in Journal of Autism and Developmental Disorders > 45-7 (July 2015) . - p.2209-2217[article] Physician Perspectives on Providing Primary Medical Care to Adults with Autism Spectrum Disorders (ASD) [Texte imprimé et/ou numérique] / Marji E. WARFIELD, Auteur ; Morgan K. CROSSMAN, Auteur ; Jennifer DELAHAYE, Auteur ; Emma DER WEERD, Auteur ; Karen A. KUHLTHAU, Auteur . - 2015 . - p.2209-2217.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 45-7 (July 2015) . - p.2209-2217
Mots-clés : Adults with autism spectrum disorders Health care Physician perspectives Physician training Index. décimale : PER Périodiques Résumé : We conducted in-depth case studies of 10 health care professionals who actively provide primary medical care to adults with autism spectrum disorders. The study sought to understand their experiences in providing this care, the training they had received, the training they lack and their suggestions for encouraging more physicians to provide this care. Qualitative data were gathered by phone using a structured interview guide and analyzed using the framework approach. Challenges to providing care were identified at the systems, practice and provider, and education and training levels. Solutions and interventions targeting needed changes at each level were also proposed. The findings have implications for health care reform, medical school and residency training programs, and the development of best practices. En ligne : http://dx.doi.org/10.1007/s10803-015-2386-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=261 Predicting Health Utilities for Children With Autism Spectrum Disorders / Nalin PAYAKACHAT in Autism Research, 7-6 (December 2014)
[article]
Titre : Predicting Health Utilities for Children With Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Nalin PAYAKACHAT, Auteur ; J. Mick TILFORD, Auteur ; Karen A. KUHLTHAU, Auteur ; N. Job VAN EXEL, Auteur ; Erica KOVACS, Auteur ; Jayne BELLANDO, Auteur ; Jeffrey M. PYNE, Auteur ; Werner B. F. BROUWER, Auteur Article en page(s) : p.649-663 Langues : Anglais (eng) Mots-clés : mapping predictive algorithms equating measure autism health utilities clinical measure behavioral measure quality of life measure Index. décimale : PER Périodiques Résumé : Comparative effectiveness of interventions for children with autism spectrum disorders (ASDs) that incorporates costs is lacking due to the scarcity of information on health utility scores or preference-weighted outcomes typically used for calculating quality-adjusted life years (QALYs). This study created algorithms for mapping clinical and behavioral measures for children with ASDs to health utility scores. The algorithms could be useful for estimating the value of different interventions and treatments used in the care of children with ASDs. Participants were recruited from two Autism Treatment Network sites. Health utility data based on the Health Utilities Index Mark 3 (HUI3) for the child were obtained from the primary caregiver (proxy-reported) through a survey (N?=?224). During the initial clinic visit, proxy-reported measures of the Child Behavior Checklist, Vineland II Adaptive Behavior Scales, and the Pediatric Quality of Life Inventory 4.0 (start measures) were obtained and then merged with the survey data. Nine mapping algorithms were developed using the HUI3 scores as dependent variables in ordinary least squares regressions along with the start measures, the Autism Diagnostic Observation Schedule, to measure severity, child age, and cognitive ability as independent predictors. In-sample cross-validation was conducted to evaluate predictive accuracy. Multiple imputation techniques were used for missing data. The average age for children with ASDs in this study was 8.4 (standard deviation?=?3.5) years. Almost half of the children (47%) had cognitive impairment (IQ???70). Total scores for all of the outcome measures were significantly associated with the HUI3 score. The algorithms can be applied to clinical studies containing start measures of children with ASDs to predict QALYs gained from interventions. En ligne : http://dx.doi.org/10.1002/aur.1409 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=256
in Autism Research > 7-6 (December 2014) . - p.649-663[article] Predicting Health Utilities for Children With Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Nalin PAYAKACHAT, Auteur ; J. Mick TILFORD, Auteur ; Karen A. KUHLTHAU, Auteur ; N. Job VAN EXEL, Auteur ; Erica KOVACS, Auteur ; Jayne BELLANDO, Auteur ; Jeffrey M. PYNE, Auteur ; Werner B. F. BROUWER, Auteur . - p.649-663.
Langues : Anglais (eng)
in Autism Research > 7-6 (December 2014) . - p.649-663
Mots-clés : mapping predictive algorithms equating measure autism health utilities clinical measure behavioral measure quality of life measure Index. décimale : PER Périodiques Résumé : Comparative effectiveness of interventions for children with autism spectrum disorders (ASDs) that incorporates costs is lacking due to the scarcity of information on health utility scores or preference-weighted outcomes typically used for calculating quality-adjusted life years (QALYs). This study created algorithms for mapping clinical and behavioral measures for children with ASDs to health utility scores. The algorithms could be useful for estimating the value of different interventions and treatments used in the care of children with ASDs. Participants were recruited from two Autism Treatment Network sites. Health utility data based on the Health Utilities Index Mark 3 (HUI3) for the child were obtained from the primary caregiver (proxy-reported) through a survey (N?=?224). During the initial clinic visit, proxy-reported measures of the Child Behavior Checklist, Vineland II Adaptive Behavior Scales, and the Pediatric Quality of Life Inventory 4.0 (start measures) were obtained and then merged with the survey data. Nine mapping algorithms were developed using the HUI3 scores as dependent variables in ordinary least squares regressions along with the start measures, the Autism Diagnostic Observation Schedule, to measure severity, child age, and cognitive ability as independent predictors. In-sample cross-validation was conducted to evaluate predictive accuracy. Multiple imputation techniques were used for missing data. The average age for children with ASDs in this study was 8.4 (standard deviation?=?3.5) years. Almost half of the children (47%) had cognitive impairment (IQ???70). Total scores for all of the outcome measures were significantly associated with the HUI3 score. The algorithms can be applied to clinical studies containing start measures of children with ASDs to predict QALYs gained from interventions. En ligne : http://dx.doi.org/10.1002/aur.1409 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=256 Quality of life for parents of children with autism spectrum disorders / Karen A. KUHLTHAU in Research in Autism Spectrum Disorders, 8-10 (October 2014)
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Titre : Quality of life for parents of children with autism spectrum disorders Type de document : Texte imprimé et/ou numérique Auteurs : Karen A. KUHLTHAU, Auteur ; Nalin PAYAKACHAT, Auteur ; Jennifer DELAHAYE, Auteur ; Jill HURSON, Auteur ; Jeffrey M. PYNE, Auteur ; Erica KOVACS, Auteur ; J. Mick TILFORD, Auteur Article en page(s) : p.1339-1350 Langues : Anglais (eng) Mots-clés : Health-related quality of life Parent Parent well-being Depression Index. décimale : PER Périodiques Résumé : This project describes health-related quality of life (HRQoL) of parents of children with autism spectrum disorders (ASDs) using mixed methods. Parents of children with ASDs (N = 224) reported on their HRQoL, depression, and caregiving burden using quantitative tools. HRQoL scores were slightly worse than from those in normative populations especially related to stress and mental health. For example, parents reported average HRQoL scores from SF-6D of 0.74, which was clinically significant lower than an average normative U.S. population. 40% of parents reported having clinical depression symptoms. Married parents reported lower depression symptoms than parents who were not. In addition, families with three or more children with special health care needs (CSHCN) reported lower HRQL and higher caregiving burden than families with less CSHCN. In the qualitative study, we conducted five focus groups to gain insight as to the reasons a child's ASD might influence a parent's HRQoL. Qualitative data further supports the notion that parental HRQoL was negatively influenced by their child's ASDs. Studies that seek to quantify the influence of ASDs and to assess the effect of interventions for children with ASDs may consider measuring the effects on family members as well. En ligne : http://dx.doi.org/10.1016/j.rasd.2014.07.002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=239
in Research in Autism Spectrum Disorders > 8-10 (October 2014) . - p.1339-1350[article] Quality of life for parents of children with autism spectrum disorders [Texte imprimé et/ou numérique] / Karen A. KUHLTHAU, Auteur ; Nalin PAYAKACHAT, Auteur ; Jennifer DELAHAYE, Auteur ; Jill HURSON, Auteur ; Jeffrey M. PYNE, Auteur ; Erica KOVACS, Auteur ; J. Mick TILFORD, Auteur . - p.1339-1350.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 8-10 (October 2014) . - p.1339-1350
Mots-clés : Health-related quality of life Parent Parent well-being Depression Index. décimale : PER Périodiques Résumé : This project describes health-related quality of life (HRQoL) of parents of children with autism spectrum disorders (ASDs) using mixed methods. Parents of children with ASDs (N = 224) reported on their HRQoL, depression, and caregiving burden using quantitative tools. HRQoL scores were slightly worse than from those in normative populations especially related to stress and mental health. For example, parents reported average HRQoL scores from SF-6D of 0.74, which was clinically significant lower than an average normative U.S. population. 40% of parents reported having clinical depression symptoms. Married parents reported lower depression symptoms than parents who were not. In addition, families with three or more children with special health care needs (CSHCN) reported lower HRQL and higher caregiving burden than families with less CSHCN. In the qualitative study, we conducted five focus groups to gain insight as to the reasons a child's ASD might influence a parent's HRQoL. Qualitative data further supports the notion that parental HRQoL was negatively influenced by their child's ASDs. Studies that seek to quantify the influence of ASDs and to assess the effect of interventions for children with ASDs may consider measuring the effects on family members as well. En ligne : http://dx.doi.org/10.1016/j.rasd.2014.07.002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=239 Sex differences in restricted repetitive behaviors and interests in children with autism spectrum disorder: An Autism Treatment Network study / J. KNUTSEN in Autism, 23-4 (May 2019)
[article]
Titre : Sex differences in restricted repetitive behaviors and interests in children with autism spectrum disorder: An Autism Treatment Network study Type de document : Texte imprimé et/ou numérique Auteurs : J. KNUTSEN, Auteur ; M. CROSSMAN, Auteur ; J. PERRIN, Auteur ; A. SHUI, Auteur ; Karen A. KUHLTHAU, Auteur Article en page(s) : p.858-868 Langues : Anglais (eng) Mots-clés : autism spectrum disorder restricted repetitive behaviors sex differences Index. décimale : PER Périodiques Résumé : Compared to the social communication domain, considerably less is known about the cause, development, and impact of restricted, repetitive behaviors interests and activities in children with autism spectrum disorder, including possible sex differences. This study examined sex differences in clinically identified (Autism Diagnostic Observation Schedule) restricted and repetitive behavior symptoms using the largest known sample (N = 1024) of age-matched and intelligence quotient-matched female and male children with autism spectrum disorder. More similarities than differences were observed; however, younger higher functioning and older lower functioning females presented reduced rates on the Autism Diagnostic Observation Schedule restricted and repetitive behavior subcategory unusually repetitive/excessive, stereotyped behaviors compared to similar males. These findings identify key restricted and repetitive behavior similarities and differences among young females and males with autism spectrum disorder and emphasize the need for a deeper understanding of the female autism phenotype. En ligne : http://dx.doi.org/10.1177/1362361318786490 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=397
in Autism > 23-4 (May 2019) . - p.858-868[article] Sex differences in restricted repetitive behaviors and interests in children with autism spectrum disorder: An Autism Treatment Network study [Texte imprimé et/ou numérique] / J. KNUTSEN, Auteur ; M. CROSSMAN, Auteur ; J. PERRIN, Auteur ; A. SHUI, Auteur ; Karen A. KUHLTHAU, Auteur . - p.858-868.
Langues : Anglais (eng)
in Autism > 23-4 (May 2019) . - p.858-868
Mots-clés : autism spectrum disorder restricted repetitive behaviors sex differences Index. décimale : PER Périodiques Résumé : Compared to the social communication domain, considerably less is known about the cause, development, and impact of restricted, repetitive behaviors interests and activities in children with autism spectrum disorder, including possible sex differences. This study examined sex differences in clinically identified (Autism Diagnostic Observation Schedule) restricted and repetitive behavior symptoms using the largest known sample (N = 1024) of age-matched and intelligence quotient-matched female and male children with autism spectrum disorder. More similarities than differences were observed; however, younger higher functioning and older lower functioning females presented reduced rates on the Autism Diagnostic Observation Schedule restricted and repetitive behavior subcategory unusually repetitive/excessive, stereotyped behaviors compared to similar males. These findings identify key restricted and repetitive behavior similarities and differences among young females and males with autism spectrum disorder and emphasize the need for a deeper understanding of the female autism phenotype. En ligne : http://dx.doi.org/10.1177/1362361318786490 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=397 The effects of a physical exercise program, LEGOR and Minecraft activities on anxiety in underserved children with autism spectrum disorder / Jean- G. GEHRICKE in Research in Autism Spectrum Disorders, 97 (September 2022)
PermalinkThe relationship between family functioning and behavior problems in children with autism spectrum disorders / Darryn M. SIKORA in Research in Autism Spectrum Disorders, 7-2 (February 2013)
PermalinkThe relationship between Health-Related Quality of Life and sleep problems in children with Autism Spectrum Disorders / Jennifer DELAHAYE in Research in Autism Spectrum Disorders, 8-3 (March 2014)
PermalinkTreatment for Sleep Problems in Children with Autism and Caregiver Spillover Effects / J. Mick TILFORD in Journal of Autism and Developmental Disorders, 45-11 (November 2015)
PermalinkA Virtual Resiliency Intervention for Parents of Children with Autism: A Randomized Pilot Trial / Karen A. KUHLTHAU in Journal of Autism and Developmental Disorders, 50-7 (July 2020)
PermalinkVision care among school-aged children with autism spectrum disorder in North America: Findings from the Autism Treatment Network Registry Call-Back Study / Olivia J. LINDLY in Autism, 25-3 (April 2021)
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