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Auteur Angela CHAMBERLAIN |
Documents disponibles écrits par cet auteur (2)
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Co-occurring intellectual disability and autism: Associations with stress, coping, time use, and quality of life in caregivers / Sharmila VAZ in Research in Autism Spectrum Disorders, 84 (June 2021)
[article]
Titre : Co-occurring intellectual disability and autism: Associations with stress, coping, time use, and quality of life in caregivers Type de document : Texte imprimé et/ou numérique Auteurs : Sharmila VAZ, Auteur ; Allyson THOMSON, Auteur ; Belinda CUOMO, Auteur ; Torbjörn FALKMER, Auteur ; Angela CHAMBERLAIN, Auteur ; Melissa H. BLACK, Auteur Article en page(s) : 101765 Langues : Anglais (eng) Mots-clés : Autism Child Disability Family Routine Intellectual disability Index. décimale : PER Périodiques Résumé : Background Having a child on the autism spectrum (AS) is known to impact caregiver quality of life (QoL), time use, and stress. A co-occurring diagnosis of intellectual disability (ID) is common among children on the autism spectrum, with ID itself impacting caregiver outcomes. Method This study sought to understand how co-occurring ID in children on the autism spectrum may influence caregiver-related outcomes. Secondary analysis of survey data from caregivers of 278 children on the autism spectrum with (n?=?62) and without (n?=?216) co-occurring ID was conducted, exploring impacts on caregiver QoL, stress, coping, and time-use. Results Univariate analysis showed that caregivers of children on the autism spectrum with co-occurring ID reported greater levels of stress due to core symptoms and co-occurring physical conditions, and had different time use patterns then caregivers of children on the autism spectrum without co-occurring ID. Multivariate analysis, however, showed that caregivers of children on the autism spectrum with and without co-occurring ID differed only in the time they spent preparing meals, socialising with friends and accessing in-home respite care. Conclusions The presence of co-occurring ID in children on the autism spectrum had limited impacts on caregiver-related outcomes. Families of children across the entire AS require adequate supports. En ligne : https://doi.org/10.1016/j.rasd.2021.101765 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=446
in Research in Autism Spectrum Disorders > 84 (June 2021) . - 101765[article] Co-occurring intellectual disability and autism: Associations with stress, coping, time use, and quality of life in caregivers [Texte imprimé et/ou numérique] / Sharmila VAZ, Auteur ; Allyson THOMSON, Auteur ; Belinda CUOMO, Auteur ; Torbjörn FALKMER, Auteur ; Angela CHAMBERLAIN, Auteur ; Melissa H. BLACK, Auteur . - 101765.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 84 (June 2021) . - 101765
Mots-clés : Autism Child Disability Family Routine Intellectual disability Index. décimale : PER Périodiques Résumé : Background Having a child on the autism spectrum (AS) is known to impact caregiver quality of life (QoL), time use, and stress. A co-occurring diagnosis of intellectual disability (ID) is common among children on the autism spectrum, with ID itself impacting caregiver outcomes. Method This study sought to understand how co-occurring ID in children on the autism spectrum may influence caregiver-related outcomes. Secondary analysis of survey data from caregivers of 278 children on the autism spectrum with (n?=?62) and without (n?=?216) co-occurring ID was conducted, exploring impacts on caregiver QoL, stress, coping, and time-use. Results Univariate analysis showed that caregivers of children on the autism spectrum with co-occurring ID reported greater levels of stress due to core symptoms and co-occurring physical conditions, and had different time use patterns then caregivers of children on the autism spectrum without co-occurring ID. Multivariate analysis, however, showed that caregivers of children on the autism spectrum with and without co-occurring ID differed only in the time they spent preparing meals, socialising with friends and accessing in-home respite care. Conclusions The presence of co-occurring ID in children on the autism spectrum had limited impacts on caregiver-related outcomes. Families of children across the entire AS require adequate supports. En ligne : https://doi.org/10.1016/j.rasd.2021.101765 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=446 Content validation of common measures of functioning for young children against the International Classification of Functioning, Disability and Health and Code and Core Sets relevant to neurodevelopmental conditions / Emily D'ARCY in Autism, 26-4 (May 2022)
[article]
Titre : Content validation of common measures of functioning for young children against the International Classification of Functioning, Disability and Health and Code and Core Sets relevant to neurodevelopmental conditions Type de document : Texte imprimé et/ou numérique Auteurs : Emily D'ARCY, Auteur ; Kerry WALLACE, Auteur ; Angela CHAMBERLAIN, Auteur ; Kiah EVANS, Auteur ; Benjamin MILBOURN, Auteur ; Sven BÖLTE, Auteur ; Andrew J. O. WHITEHOUSE, Auteur ; Sonya GIRDLER, Auteur Article en page(s) : p.928-939 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder Child Child, Preschool Disabled Persons Family Humans International Classification of Functioning, Disability and Health Neurodevelopmental Disorders/diagnosis adaptive behavior attention-deficit/hyperactivity disorder autism spectrum disorders behavioral measurement cerebral palsy content validity developmental delay functioning Index. décimale : PER Périodiques Résumé : Young children who have developmental delay, autism, or other neurodevelopmental conditions can have difficulties doing things in different areas of their life. What they can and cannot do is called their level of functioning. There are lots of assessment measures that aim to assess functioning. But, we are not sure if these measures assess all the things we need to know about these children's functioning. Other research has identified lists of items (codes) that need to be assessed to understand functioning for young children with different neurodevelopmental conditions fully. These lists include body functions (the things a child's body or brain can do), activities and participation (the activities and tasks a child does) and environmental factors (parts of the environment that can influence functioning). In this study, we looked at the items from these lists assessed by different functioning measures to see how they compared to what should be assessed. The measures that we looked at covered 21%-57% of all the codes and 19%-63% of the codes for lists specific to different conditions. Most of the measures focused on activity and participation codes, and they rarely assessed environmental factors. Knowing which codes and how much of the lists the measures assess can help researchers, clinicians and policymakers to choose measures that are more appropriate for young children with neurodevelopmental conditions. En ligne : https://dx.doi.org/10.1177/13623613211036809 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473
in Autism > 26-4 (May 2022) . - p.928-939[article] Content validation of common measures of functioning for young children against the International Classification of Functioning, Disability and Health and Code and Core Sets relevant to neurodevelopmental conditions [Texte imprimé et/ou numérique] / Emily D'ARCY, Auteur ; Kerry WALLACE, Auteur ; Angela CHAMBERLAIN, Auteur ; Kiah EVANS, Auteur ; Benjamin MILBOURN, Auteur ; Sven BÖLTE, Auteur ; Andrew J. O. WHITEHOUSE, Auteur ; Sonya GIRDLER, Auteur . - p.928-939.
Langues : Anglais (eng)
in Autism > 26-4 (May 2022) . - p.928-939
Mots-clés : Autism Spectrum Disorder Child Child, Preschool Disabled Persons Family Humans International Classification of Functioning, Disability and Health Neurodevelopmental Disorders/diagnosis adaptive behavior attention-deficit/hyperactivity disorder autism spectrum disorders behavioral measurement cerebral palsy content validity developmental delay functioning Index. décimale : PER Périodiques Résumé : Young children who have developmental delay, autism, or other neurodevelopmental conditions can have difficulties doing things in different areas of their life. What they can and cannot do is called their level of functioning. There are lots of assessment measures that aim to assess functioning. But, we are not sure if these measures assess all the things we need to know about these children's functioning. Other research has identified lists of items (codes) that need to be assessed to understand functioning for young children with different neurodevelopmental conditions fully. These lists include body functions (the things a child's body or brain can do), activities and participation (the activities and tasks a child does) and environmental factors (parts of the environment that can influence functioning). In this study, we looked at the items from these lists assessed by different functioning measures to see how they compared to what should be assessed. The measures that we looked at covered 21%-57% of all the codes and 19%-63% of the codes for lists specific to different conditions. Most of the measures focused on activity and participation codes, and they rarely assessed environmental factors. Knowing which codes and how much of the lists the measures assess can help researchers, clinicians and policymakers to choose measures that are more appropriate for young children with neurodevelopmental conditions. En ligne : https://dx.doi.org/10.1177/13623613211036809 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473