Dépouillements

Clinical reflections on the intersections of autism and personality development / Meng-Chuan LAI in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.739-742 Titre : Clinical reflections on the intersections of autism and personality development Type de document : Texte imprimé et/ou numérique Auteurs : Meng-Chuan LAI, Auteur Article en page(s) : p.739-742 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Humans  Personality  Personality Development Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613221088073 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Clinical reflections on the intersections of autism and personality development [Texte imprimé et/ou numérique] / Meng-Chuan LAI, Auteur . - p.739-742. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.739-742 Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Humans  Personality  Personality Development Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613221088073 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Cognitive, social, and behavioral manifestations of the co-occurrence of autism spectrum disorder and attention-deficit/hyperactivity disorder: A systematic review / Rocio ROSELLO in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.743-760 Titre : Cognitive, social, and behavioral manifestations of the co-occurrence of autism spectrum disorder and attention-deficit/hyperactivity disorder: A systematic review Type de document : Texte imprimé et/ou numérique Auteurs : Rocio ROSELLO, Auteur ; Jose MARTINEZ-RAGA, Auteur ; Alvaro MIRA, Auteur ; Juan Carlos PASTOR, Auteur ; Marco SOLMI, Auteur ; Samuele CORTESE, Auteur Article en page(s) : p.743-760 Langues : Anglais (eng) Mots-clés : Adaptation, Psychological  Attention Deficit Disorder with Hyperactivity/complications/psychology  Autism Spectrum Disorder/complications/psychology  Cognition  Humans  Problem Behavior  attention-deficit/hyperactivity disorder  autism spectrum disorder  neurodevelopmental disorders  systematic review Index. décimale : PER Périodiques Résumé : This work aimed to review recent research on the characteristics of individuals who have both autism spectrum disorder and attention-deficit/hyperactivity disorder due to their high co-occurrence. Thirty-four studies were analyzed and main findings summarized in two content domains focusing on areas that could enhance our understanding of the cognitive and behavioral characteristics of individuals with autism spectrum disorder?+?attention-deficit/hyperactivity disorder (ASD+). Most of the results suggested that ASD+ is a co-occurring condition associated with more severe impairments in cognitive functioning, adaptive behavior, and increased likelihood to present more emotional/behavioral problems. These results will be helpful to provide improved care plans for individuals with both attention-deficit/hyperactivity disorder and autism spectrum disorder. En ligne : https://dx.doi.org/10.1177/13623613211065545 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Cognitive, social, and behavioral manifestations of the co-occurrence of autism spectrum disorder and attention-deficit/hyperactivity disorder: A systematic review [Texte imprimé et/ou numérique] / Rocio ROSELLO, Auteur ; Jose MARTINEZ-RAGA, Auteur ; Alvaro MIRA, Auteur ; Juan Carlos PASTOR, Auteur ; Marco SOLMI, Auteur ; Samuele CORTESE, Auteur . - p.743-760. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.743-760 Mots-clés : Adaptation, Psychological  Attention Deficit Disorder with Hyperactivity/complications/psychology  Autism Spectrum Disorder/complications/psychology  Cognition  Humans  Problem Behavior  attention-deficit/hyperactivity disorder  autism spectrum disorder  neurodevelopmental disorders  systematic review Index. décimale : PER Périodiques Résumé : This work aimed to review recent research on the characteristics of individuals who have both autism spectrum disorder and attention-deficit/hyperactivity disorder due to their high co-occurrence. Thirty-four studies were analyzed and main findings summarized in two content domains focusing on areas that could enhance our understanding of the cognitive and behavioral characteristics of individuals with autism spectrum disorder?+?attention-deficit/hyperactivity disorder (ASD+). Most of the results suggested that ASD+ is a co-occurring condition associated with more severe impairments in cognitive functioning, adaptive behavior, and increased likelihood to present more emotional/behavioral problems. These results will be helpful to provide improved care plans for individuals with both attention-deficit/hyperactivity disorder and autism spectrum disorder. En ligne : https://dx.doi.org/10.1177/13623613211065545 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Contingency-based delay to reinforcement following functional communication training for autistic individuals: A multilevel meta-analysis / Reem MUHARIB in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.761-781 Titre : Contingency-based delay to reinforcement following functional communication training for autistic individuals: A multilevel meta-analysis Type de document : Texte imprimé et/ou numérique Auteurs : Reem MUHARIB, Auteur ; Art DOWDY, Auteur ; Adithyan RAJARAMAN, Auteur ; Joshua JESSEL, Auteur Article en page(s) : p.761-781 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Behavior Therapy  Communication  Humans  Reinforcement Schedule  Reinforcement, Psychology  applied behavior analysis  challenging behavior  log response ratio  multilevel meta-analysis  reinforcement schedule thinning Index. décimale : PER Périodiques Résumé : Functional communication training, an intervention for challenging behavior rooted in principles of applied behavior analysis, has copious empirical support dating back to the mid-1980s for autistic individuals. Recently, there has been a concerted effort to thin reinforcement delivery during functional communication training using contingency-based delays that, in turn, are designed to enhance practicality and feasibility while not compromising efficacy. In this synthesis, we meta-analyzed the literature base with the goal of investigating both combined and across type effectiveness of contingency-based delays. We also aimed to investigate moderating variables that might impact intervention outcomes. Findings showed that contingency-based delays were effective for individuals with an autism spectrum disorder diagnosis and most effective when the delay incorporated some form of positive reinforcement. In addition, differential reinforcement of alternative-based delays was overall more effective when compared to differential reinforcement of other behavior-based delays. Noteworthy moderating variables found to impact contingency-based delay efficacy included the intervention dosage and the topography of behavior. We discuss these findings and highlight directions where additional empirical research is warranted to improve our understanding about contingency-based delays for individuals diagnosed with autism spectrum disorder. En ligne : https://dx.doi.org/10.1177/13623613211065540 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Contingency-based delay to reinforcement following functional communication training for autistic individuals: A multilevel meta-analysis [Texte imprimé et/ou numérique] / Reem MUHARIB, Auteur ; Art DOWDY, Auteur ; Adithyan RAJARAMAN, Auteur ; Joshua JESSEL, Auteur . - p.761-781. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.761-781 Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Behavior Therapy  Communication  Humans  Reinforcement Schedule  Reinforcement, Psychology  applied behavior analysis  challenging behavior  log response ratio  multilevel meta-analysis  reinforcement schedule thinning Index. décimale : PER Périodiques Résumé : Functional communication training, an intervention for challenging behavior rooted in principles of applied behavior analysis, has copious empirical support dating back to the mid-1980s for autistic individuals. Recently, there has been a concerted effort to thin reinforcement delivery during functional communication training using contingency-based delays that, in turn, are designed to enhance practicality and feasibility while not compromising efficacy. In this synthesis, we meta-analyzed the literature base with the goal of investigating both combined and across type effectiveness of contingency-based delays. We also aimed to investigate moderating variables that might impact intervention outcomes. Findings showed that contingency-based delays were effective for individuals with an autism spectrum disorder diagnosis and most effective when the delay incorporated some form of positive reinforcement. In addition, differential reinforcement of alternative-based delays was overall more effective when compared to differential reinforcement of other behavior-based delays. Noteworthy moderating variables found to impact contingency-based delay efficacy included the intervention dosage and the topography of behavior. We discuss these findings and highlight directions where additional empirical research is warranted to improve our understanding about contingency-based delays for individuals diagnosed with autism spectrum disorder. En ligne : https://dx.doi.org/10.1177/13623613211065540 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

A systematic review of person-centred adjustments to facilitate magnetic resonance imaging for autistic patients without the use of sedation or anaesthesia / Nikolaos STOGIANNOS in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.782-797 Titre : A systematic review of person-centred adjustments to facilitate magnetic resonance imaging for autistic patients without the use of sedation or anaesthesia Type de document : Texte imprimé et/ou numérique Auteurs : Nikolaos STOGIANNOS, Auteur ; Sarah CARLIER, Auteur ; Jane M. HARVEY-LLOYD, Auteur ; Andrea BRAMMER, Auteur ; Barbara NUGENT, Auteur ; Karen CLEAVER, Auteur ; Jonathan P. MCNULTY, Auteur ; Cláudia Sá DOS REIS, Auteur ; Christina MALAMATENIOU, Auteur Article en page(s) : p.782-797 Langues : Anglais (eng) Mots-clés : Anesthesia  Anxiety  Autism Spectrum Disorder  Autistic Disorder/diagnostic imaging  Humans  Magnetic Resonance Imaging  Mri  adjustment  autism  person-centred  systematic review  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : Autistic patients often undergo magnetic resonance imaging examinations. Within this environment, it is usual to feel anxious and overwhelmed by noises, lights or other people. The narrow scanners, the loud noises and the long examination time can easily cause panic attacks. This review aims to identify any adaptations for autistic individuals to have a magnetic resonance imaging scan without sedation or anaesthesia. Out of 4442 articles screened, 53 more relevant were evaluated and 21 were finally included in this study. Customising communication, different techniques to improve the environment, using technology for familiarisation and distraction have been used in previous studies. The results of this study can be used to make suggestions on how to improve magnetic resonance imaging practice and the autistic patient experience. They can also be used to create training for the healthcare professionals using the magnetic resonance imaging scanners. En ligne : https://dx.doi.org/10.1177/13623613211065542 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] A systematic review of person-centred adjustments to facilitate magnetic resonance imaging for autistic patients without the use of sedation or anaesthesia [Texte imprimé et/ou numérique] / Nikolaos STOGIANNOS, Auteur ; Sarah CARLIER, Auteur ; Jane M. HARVEY-LLOYD, Auteur ; Andrea BRAMMER, Auteur ; Barbara NUGENT, Auteur ; Karen CLEAVER, Auteur ; Jonathan P. MCNULTY, Auteur ; Cláudia Sá DOS REIS, Auteur ; Christina MALAMATENIOU, Auteur . - p.782-797. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.782-797 Mots-clés : Anesthesia  Anxiety  Autism Spectrum Disorder  Autistic Disorder/diagnostic imaging  Humans  Magnetic Resonance Imaging  Mri  adjustment  autism  person-centred  systematic review  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : Autistic patients often undergo magnetic resonance imaging examinations. Within this environment, it is usual to feel anxious and overwhelmed by noises, lights or other people. The narrow scanners, the loud noises and the long examination time can easily cause panic attacks. This review aims to identify any adaptations for autistic individuals to have a magnetic resonance imaging scan without sedation or anaesthesia. Out of 4442 articles screened, 53 more relevant were evaluated and 21 were finally included in this study. Customising communication, different techniques to improve the environment, using technology for familiarisation and distraction have been used in previous studies. The results of this study can be used to make suggestions on how to improve magnetic resonance imaging practice and the autistic patient experience. They can also be used to create training for the healthcare professionals using the magnetic resonance imaging scanners. En ligne : https://dx.doi.org/10.1177/13623613211065542 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Recognition of affective prosody in autism spectrum conditions: A systematic review and meta-analysis / Minyue ZHANG in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.798-813 Titre : Recognition of affective prosody in autism spectrum conditions: A systematic review and meta-analysis Type de document : Texte imprimé et/ou numérique Auteurs : Minyue ZHANG, Auteur ; Suyun XU, Auteur ; Yu CHEN, Auteur ; Yi LIN, Auteur ; Hongwei DING, Auteur ; Yang ZHANG, Auteur Article en page(s) : p.798-813 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/psychology  Autistic Disorder  Emotions  Humans  Recognition, Psychology  Speech  Speech Perception  affective prosody  autism spectrum conditions  emotion recognition  meta-analysis Index. décimale : PER Périodiques Résumé : Differences in understanding others' emotions and attitudes through features in speech (e.g. intonation) have been observed in individuals with autism spectrum conditions, which contribute greatly to their social communication challenges. However, some studies reported that individuals with autism spectrum condition performed comparably to typically developing individuals on affective prosody recognition. Here, we provide a comprehensive review with statistical analysis of 23 existing studies on this topic to examine potential factors that could explain the discrepancies. Compared with typically developing individuals, autism spectrum condition participants generally appeared to encounter more difficulties in affective prosody recognition. But this finding was likely due to the tendency of the existing research to overly focus on deficits in autism. The affective prosody recognition performance in individuals with autism spectrum condition was closely related to the number of answer options offered to them. Moreover, the degree of difficulty in affective prosody recognition encountered by individuals with autism spectrum condition varied across emotions. The findings of this systematic review highlighted the need for further research on affective prosody recognition in autism (e.g. studies that include tonal language speakers and autism spectrum condition individuals with lower cognitive or verbal abilities). En ligne : https://dx.doi.org/10.1177/1362361321995725 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Recognition of affective prosody in autism spectrum conditions: A systematic review and meta-analysis [Texte imprimé et/ou numérique] / Minyue ZHANG, Auteur ; Suyun XU, Auteur ; Yu CHEN, Auteur ; Yi LIN, Auteur ; Hongwei DING, Auteur ; Yang ZHANG, Auteur . - p.798-813. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.798-813 Mots-clés : Autism Spectrum Disorder/psychology  Autistic Disorder  Emotions  Humans  Recognition, Psychology  Speech  Speech Perception  affective prosody  autism spectrum conditions  emotion recognition  meta-analysis Index. décimale : PER Périodiques Résumé : Differences in understanding others' emotions and attitudes through features in speech (e.g. intonation) have been observed in individuals with autism spectrum conditions, which contribute greatly to their social communication challenges. However, some studies reported that individuals with autism spectrum condition performed comparably to typically developing individuals on affective prosody recognition. Here, we provide a comprehensive review with statistical analysis of 23 existing studies on this topic to examine potential factors that could explain the discrepancies. Compared with typically developing individuals, autism spectrum condition participants generally appeared to encounter more difficulties in affective prosody recognition. But this finding was likely due to the tendency of the existing research to overly focus on deficits in autism. The affective prosody recognition performance in individuals with autism spectrum condition was closely related to the number of answer options offered to them. Moreover, the degree of difficulty in affective prosody recognition encountered by individuals with autism spectrum condition varied across emotions. The findings of this systematic review highlighted the need for further research on affective prosody recognition in autism (e.g. studies that include tonal language speakers and autism spectrum condition individuals with lower cognitive or verbal abilities). En ligne : https://dx.doi.org/10.1177/1362361321995725 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Sufficient sleep duration in autistic children and the role of physical activity / Stacey D. ELKHATIB SMIDT in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.814-826 Titre : Sufficient sleep duration in autistic children and the role of physical activity Type de document : Texte imprimé et/ou numérique Auteurs : Stacey D. ELKHATIB SMIDT, Auteur ; Nalaka GOONERATNE, Auteur ; Edward S. BRODKIN, Auteur ; Maja BUCAN, Auteur ; Jonathan A. MITCHELL, Auteur Article en page(s) : p.814-826 Langues : Anglais (eng) Mots-clés : Adolescent  Autism Spectrum Disorder/complications  Autistic Disorder/complications  Child  Exercise  Female  Humans  Sleep  Sleep Wake Disorders/complications/epidemiology  Surveys and Questionnaires  adolescents  autism spectrum disorders  school-age children  sleep  disclose Index. décimale : PER Périodiques Résumé : Higher levels of physical activity may be associated with improved sleep in children, but this relationship is still being determined, especially in autistic children. In this study, we used existing data from the 2018 National Survey of Children's Health. Caregivers of children 6-17?years old, including caregivers of autistic children, completed a questionnaire that included questions about physical activity (days active in the past week) and sleep duration. We then determined if children were obtaining the recommended hours of sleep for their age (i.e. sufficient sleep). We found that higher physical activity levels were associated with sufficient sleep duration, but this finding was weaker in autistic children. In particular, this association was not observed in autistic children with more severe autism spectrum disorder, female autistic children, and autistic children 6-12?years old. In conclusion, physical activity is a promising approach to help children obtain sufficient sleep duration. However, more personalized approaches to improving sleep may be needed for certain groups of autistic children. En ligne : https://dx.doi.org/10.1177/13623613211053671 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Sufficient sleep duration in autistic children and the role of physical activity [Texte imprimé et/ou numérique] / Stacey D. ELKHATIB SMIDT, Auteur ; Nalaka GOONERATNE, Auteur ; Edward S. BRODKIN, Auteur ; Maja BUCAN, Auteur ; Jonathan A. MITCHELL, Auteur . - p.814-826. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.814-826 Mots-clés : Adolescent  Autism Spectrum Disorder/complications  Autistic Disorder/complications  Child  Exercise  Female  Humans  Sleep  Sleep Wake Disorders/complications/epidemiology  Surveys and Questionnaires  adolescents  autism spectrum disorders  school-age children  sleep  disclose Index. décimale : PER Périodiques Résumé : Higher levels of physical activity may be associated with improved sleep in children, but this relationship is still being determined, especially in autistic children. In this study, we used existing data from the 2018 National Survey of Children's Health. Caregivers of children 6-17?years old, including caregivers of autistic children, completed a questionnaire that included questions about physical activity (days active in the past week) and sleep duration. We then determined if children were obtaining the recommended hours of sleep for their age (i.e. sufficient sleep). We found that higher physical activity levels were associated with sufficient sleep duration, but this finding was weaker in autistic children. In particular, this association was not observed in autistic children with more severe autism spectrum disorder, female autistic children, and autistic children 6-12?years old. In conclusion, physical activity is a promising approach to help children obtain sufficient sleep duration. However, more personalized approaches to improving sleep may be needed for certain groups of autistic children. En ligne : https://dx.doi.org/10.1177/13623613211053671 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Caregiver perspectives on the impact of uncertainty on the everyday lives of autistic children and their families / Jane GOODWIN in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.827-838 Titre : Caregiver perspectives on the impact of uncertainty on the everyday lives of autistic children and their families Type de document : Texte imprimé et/ou numérique Auteurs : Jane GOODWIN, Auteur ; Priyanka ROB, Auteur ; Mark FREESTON, Auteur ; Deborah GARLAND, Auteur ; Victoria GRAHAME, Auteur ; Ashleigh KERNOHAN, Auteur ; Marie LABUS, Auteur ; Malcolm OSBORNE, Auteur ; Jeremy R. PARR, Auteur ; Catharine WRIGHT, Auteur ; Jacqui RODGERS, Auteur Article en page(s) : p.827-838 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Caregivers  Child  Humans  Parents  Quality of Life  Uncertainty  anxiety  intolerance of uncertainty  potential conflicts of interest with respect to the research, authorship and/or  publication of this article: Professor J.R., Dr C.W. and Professor M.F. developed  the Coping with Uncertainty in Everyday Situations (CUES(©)) Programme. Data  presented in this article were collected as part of a CUES(©) feasibility and  acceptability study. Professor M.F. declares receiving royalties for books and  honoraria for training in related areas addressing anxiety in neurotypical  populations. Index. décimale : PER Périodiques Résumé : Anxiety is common in autistic children. Research shows that this may be related to intolerance of uncertainty, which is a tendency to react negatively to uncertain situations. Understanding when, why and how autistic children respond to uncertainty is important in the development of anxiety programmes. We asked 53 (including 3 dyads) parents of autistic children about the types of uncertain situations that cause difficulties for their child and how uncertainty impacts on daily life for them and their families. We found that uncertain situations made autistic children and their families feel sad, worried, frustrated and angry through the themes: child's reactions to uncertainty, trying to reduce uncertainty, the impact of difficulties with uncertainty, the impact of uncertainty on parenting and the impact on parents. There are lots of situations that are anxiety provoking for autistic children because of uncertainty, such as school. Programmes to reduce anxiety and increase autistic children's ability to cope with everyday uncertain situations could improve quality of life for autistic children and their families. En ligne : https://dx.doi.org/10.1177/13623613211033757 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Caregiver perspectives on the impact of uncertainty on the everyday lives of autistic children and their families [Texte imprimé et/ou numérique] / Jane GOODWIN, Auteur ; Priyanka ROB, Auteur ; Mark FREESTON, Auteur ; Deborah GARLAND, Auteur ; Victoria GRAHAME, Auteur ; Ashleigh KERNOHAN, Auteur ; Marie LABUS, Auteur ; Malcolm OSBORNE, Auteur ; Jeremy R. PARR, Auteur ; Catharine WRIGHT, Auteur ; Jacqui RODGERS, Auteur . - p.827-838. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.827-838 Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Caregivers  Child  Humans  Parents  Quality of Life  Uncertainty  anxiety  intolerance of uncertainty  potential conflicts of interest with respect to the research, authorship and/or  publication of this article: Professor J.R., Dr C.W. and Professor M.F. developed  the Coping with Uncertainty in Everyday Situations (CUES(©)) Programme. Data  presented in this article were collected as part of a CUES(©) feasibility and  acceptability study. Professor M.F. declares receiving royalties for books and  honoraria for training in related areas addressing anxiety in neurotypical  populations. Index. décimale : PER Périodiques Résumé : Anxiety is common in autistic children. Research shows that this may be related to intolerance of uncertainty, which is a tendency to react negatively to uncertain situations. Understanding when, why and how autistic children respond to uncertainty is important in the development of anxiety programmes. We asked 53 (including 3 dyads) parents of autistic children about the types of uncertain situations that cause difficulties for their child and how uncertainty impacts on daily life for them and their families. We found that uncertain situations made autistic children and their families feel sad, worried, frustrated and angry through the themes: child's reactions to uncertainty, trying to reduce uncertainty, the impact of difficulties with uncertainty, the impact of uncertainty on parenting and the impact on parents. There are lots of situations that are anxiety provoking for autistic children because of uncertainty, such as school. Programmes to reduce anxiety and increase autistic children's ability to cope with everyday uncertain situations could improve quality of life for autistic children and their families. En ligne : https://dx.doi.org/10.1177/13623613211033757 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

A balancing act: An interpretive description of healthcare providers' and families' perspective on the surgical experiences of children with autism spectrum disorder / Stephanie L. SNOW in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.839-848 Titre : A balancing act: An interpretive description of healthcare providers' and families' perspective on the surgical experiences of children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Stephanie L. SNOW, Auteur ; Isabel M. SMITH, Auteur ; Margot LATIMER, Auteur ; Emma STIRLING CAMERON, Auteur ; Jennifer FOX, Auteur ; Jill CHORNEY, Auteur Article en page(s) : p.839-848 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/surgery  Autistic Disorder  Child  Family  Health Personnel  Humans  Parents  Qualitative Research  autism spectrum disorders  family functioning and support  health services  pre-school children  school-age children  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : Children with an autism spectrum disorder (autism) often have negative experiences within the surgical setting. We conducted individual interviews with 8 parents of children with autism who had recently undergone surgery, and 15 healthcare providers (HCPs) with experience caring for children with autism. We asked open-ended questions on the approaches used to support children with autism around the time of surgery, how effective they were, suggestions for improvement, and the barriers and facilitators to improvement. Three main themes emerged within an overarching metaphor of a balancing act. The first theme, finding your footing through an uncertain journey, described individual factors (e.g. anticipatory anxiety) that set the foundation for experiences. The second theme, relationships can help to keep everyone steady, highlighted how personal interactions (e.g. collaboration and empathy) influence the experience. Finally, the systems shape the experience theme captured how systemic factors (e.g. the hospital environment) affected the balancing act. These findings enriched our understanding of the surgical experiences of children with autism, families, and HCPs by demonstrating the importance of individual characteristics, relationships, and systemic factors. Future interventions should consider this complexity and intervene not just with children, but also their parents, healthcare providers, and in policy to improve experiences. En ligne : https://dx.doi.org/10.1177/13623613211034057 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] A balancing act: An interpretive description of healthcare providers' and families' perspective on the surgical experiences of children with autism spectrum disorder [Texte imprimé et/ou numérique] / Stephanie L. SNOW, Auteur ; Isabel M. SMITH, Auteur ; Margot LATIMER, Auteur ; Emma STIRLING CAMERON, Auteur ; Jennifer FOX, Auteur ; Jill CHORNEY, Auteur . - p.839-848. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.839-848 Mots-clés : Autism Spectrum Disorder/surgery  Autistic Disorder  Child  Family  Health Personnel  Humans  Parents  Qualitative Research  autism spectrum disorders  family functioning and support  health services  pre-school children  school-age children  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : Children with an autism spectrum disorder (autism) often have negative experiences within the surgical setting. We conducted individual interviews with 8 parents of children with autism who had recently undergone surgery, and 15 healthcare providers (HCPs) with experience caring for children with autism. We asked open-ended questions on the approaches used to support children with autism around the time of surgery, how effective they were, suggestions for improvement, and the barriers and facilitators to improvement. Three main themes emerged within an overarching metaphor of a balancing act. The first theme, finding your footing through an uncertain journey, described individual factors (e.g. anticipatory anxiety) that set the foundation for experiences. The second theme, relationships can help to keep everyone steady, highlighted how personal interactions (e.g. collaboration and empathy) influence the experience. Finally, the systems shape the experience theme captured how systemic factors (e.g. the hospital environment) affected the balancing act. These findings enriched our understanding of the surgical experiences of children with autism, families, and HCPs by demonstrating the importance of individual characteristics, relationships, and systemic factors. Future interventions should consider this complexity and intervene not just with children, but also their parents, healthcare providers, and in policy to improve experiences. En ligne : https://dx.doi.org/10.1177/13623613211034057 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Cognitive processes in autism: Repetitive thinking in autistic versus non-autistic adults / Kate COOPER in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.849-858 Titre : Cognitive processes in autism: Repetitive thinking in autistic versus non-autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : Kate COOPER, Auteur ; Ailsa RUSSELL, Auteur ; Steph CALLEY, Auteur ; Huilin CHEN, Auteur ; Jaxon KRAMER, Auteur ; Bas VERPLANKEN, Auteur Article en page(s) : p.849-858 Langues : Anglais (eng) Mots-clés : Adult  Anxiety  Anxiety Disorders  Autism Spectrum Disorder  Autistic Disorder/psychology  Cognition  Humans  autism  repetitive behaviours and interests  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : A core feature of autism is the tendency to do the same activity or behaviour repetitively. We wanted to find out if autistic people also experience repetitive thinking, for example, having the same thoughts repeatedly. We thought that there would be a link between repetitive behaviour and repetitive thinking. We asked 54 autistic people and 66 non-autistic people to complete questionnaires measuring repetitive behaviours and obsessive thinking. Next, participants were trained by a researcher to record their thoughts using a structured paper form. They then completed 5 days of thought recording, which they did each time a random alarm sounded on their mobile phone. We found that autistic people had more repetitive thoughts than non-autistic people, but they did not report having more negative or visual thoughts compared with non-autistic people. Autistic people who had more repetitive thoughts during the 5 days of thought recording did not report more repetitive behaviour. However, autistic people who reported more obsessive thinking, for example, more negative and unwanted thoughts, also reported higher levels of repetitive behaviour. We conclude that some repetitive behaviours may be linked to anxiety and that more research is needed to better understand repetitive behaviours in autism. En ligne : https://dx.doi.org/10.1177/13623613211034380 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Cognitive processes in autism: Repetitive thinking in autistic versus non-autistic adults [Texte imprimé et/ou numérique] / Kate COOPER, Auteur ; Ailsa RUSSELL, Auteur ; Steph CALLEY, Auteur ; Huilin CHEN, Auteur ; Jaxon KRAMER, Auteur ; Bas VERPLANKEN, Auteur . - p.849-858. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.849-858 Mots-clés : Adult  Anxiety  Anxiety Disorders  Autism Spectrum Disorder  Autistic Disorder/psychology  Cognition  Humans  autism  repetitive behaviours and interests  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : A core feature of autism is the tendency to do the same activity or behaviour repetitively. We wanted to find out if autistic people also experience repetitive thinking, for example, having the same thoughts repeatedly. We thought that there would be a link between repetitive behaviour and repetitive thinking. We asked 54 autistic people and 66 non-autistic people to complete questionnaires measuring repetitive behaviours and obsessive thinking. Next, participants were trained by a researcher to record their thoughts using a structured paper form. They then completed 5 days of thought recording, which they did each time a random alarm sounded on their mobile phone. We found that autistic people had more repetitive thoughts than non-autistic people, but they did not report having more negative or visual thoughts compared with non-autistic people. Autistic people who had more repetitive thoughts during the 5 days of thought recording did not report more repetitive behaviour. However, autistic people who reported more obsessive thinking, for example, more negative and unwanted thoughts, also reported higher levels of repetitive behaviour. We conclude that some repetitive behaviours may be linked to anxiety and that more research is needed to better understand repetitive behaviours in autism. En ligne : https://dx.doi.org/10.1177/13623613211034380 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Acceptability and feasibility of the World Health Organization's Caregiver Skills Training implemented in the Italian National Health System / Erica SALOMONE in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.859-874 Titre : Acceptability and feasibility of the World Health Organization's Caregiver Skills Training implemented in the Italian National Health System Type de document : Texte imprimé et/ou numérique Auteurs : Erica SALOMONE, Auteur ; Camilla FERRANTE, Auteur ; Arianna SALANDIN, Auteur ; Federica FERRARA, Auteur ; Elisabetta TORCHIO, Auteur ; Giulia FOLETTI, Auteur ; Sabrina GHERSI, Auteur ; CST Italy TEAM, Auteur ; WHO CST TEAM, Auteur ; Laura PACIONE, Auteur ; Chiara SERVILI, Auteur Article en page(s) : p.859-874 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Caregivers/education  Child  Family  Feasibility Studies  Humans  World Health Organization  World Health Organization Caregiver Skills Training  autism spectrum disorders  family functioning and support  interventions ? psychosocial/behavioural  neurodevelopmental disorders  parent-mediated  parenting skills programme  pre-school children  qualitative research Index. décimale : PER Périodiques Résumé : Across the globe, children with neurodevelopmental disorders, including autism, have limited access to care through public services. To improve access to care the World Health Organization developed a novel, open-access programme: the Caregiver Skills Training programme. The Caregiver Skills Training consists of nine group sessions and three individual home visits, focused on training the caregiver on how to use everyday play and home routines as opportunities for learning and development. We implemented Caregiver Skills Training in public child neuropsychiatry services in Italy and examined with questionnaires and focus groups how feasible it was to deliver the programme in public health settings and how acceptable and relevant it was for caregiver users. We found that the Caregiver Skills Training was largely considered acceptable and relevant for families and feasible to deliver. We discuss potential solutions to address the specific implementation challenges that were identified, such as strategies to improve training of interventionists and overcome barriers to caregiver participation. En ligne : https://dx.doi.org/10.1177/13623613211035228 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Acceptability and feasibility of the World Health Organization's Caregiver Skills Training implemented in the Italian National Health System [Texte imprimé et/ou numérique] / Erica SALOMONE, Auteur ; Camilla FERRANTE, Auteur ; Arianna SALANDIN, Auteur ; Federica FERRARA, Auteur ; Elisabetta TORCHIO, Auteur ; Giulia FOLETTI, Auteur ; Sabrina GHERSI, Auteur ; CST Italy TEAM, Auteur ; WHO CST TEAM, Auteur ; Laura PACIONE, Auteur ; Chiara SERVILI, Auteur . - p.859-874. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.859-874 Mots-clés : Autism Spectrum Disorder  Caregivers/education  Child  Family  Feasibility Studies  Humans  World Health Organization  World Health Organization Caregiver Skills Training  autism spectrum disorders  family functioning and support  interventions ? psychosocial/behavioural  neurodevelopmental disorders  parent-mediated  parenting skills programme  pre-school children  qualitative research Index. décimale : PER Périodiques Résumé : Across the globe, children with neurodevelopmental disorders, including autism, have limited access to care through public services. To improve access to care the World Health Organization developed a novel, open-access programme: the Caregiver Skills Training programme. The Caregiver Skills Training consists of nine group sessions and three individual home visits, focused on training the caregiver on how to use everyday play and home routines as opportunities for learning and development. We implemented Caregiver Skills Training in public child neuropsychiatry services in Italy and examined with questionnaires and focus groups how feasible it was to deliver the programme in public health settings and how acceptable and relevant it was for caregiver users. We found that the Caregiver Skills Training was largely considered acceptable and relevant for families and feasible to deliver. We discuss potential solutions to address the specific implementation challenges that were identified, such as strategies to improve training of interventionists and overcome barriers to caregiver participation. En ligne : https://dx.doi.org/10.1177/13623613211035228 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Keeping up with the evidence base: Survey of behavior professionals about Naturalistic Developmental Behavioral Interventions / Lauren H. HAMPTON in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.875-888 Titre : Keeping up with the evidence base: Survey of behavior professionals about Naturalistic Developmental Behavioral Interventions Type de document : Texte imprimé et/ou numérique Auteurs : Lauren H. HAMPTON, Auteur ; Micheal SANDBANK, Auteur Article en page(s) : p.875-888 Langues : Anglais (eng) Mots-clés : Applied Behavior Analysis  Autism Spectrum Disorder/therapy  Behavior Therapy  Child  Child Development Disorders, Pervasive  Child, Preschool  Humans  Surveys and Questionnaires  Behavior Analyst Certification Board  Board Certified Behavior Analyst  Naturalistic Developmental Behavior Intervention  autism  behavior analysis  naturalistic  survey Index. décimale : PER Périodiques Résumé : Primary service providers for young children on the autism spectrum and developmentally delayed children use many strategies under the umbrella of applied behavior analysis therapy. The evidence supporting interventions for children on the autism spectrum has changed last decade, and powerful research supports the relative effectiveness of Naturalistic Developmental Behavior Interventions, yet a few professionals serving young children on the autism spectrum receive training in this category of interventions. Board Certified Behavior Analysts and related professionals are the primary service providers for this population. The purpose of this survey study is to describe and understand the knowledge and beliefs that Behavior Analyst Certification Board certificants have around Naturalistic Developmental Behavior Interventions. The survey was completed by 901 respondents. Respondents indicated, on average, little to no knowledge of Naturalistic Developmental Behavior Intervention practices and few believe that these practices are effective or appropriate for the field. Recommendations include increasing training opportunities for related professionals, and changing certification requirements to match the current evidence. En ligne : https://dx.doi.org/10.1177/13623613211035233 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Keeping up with the evidence base: Survey of behavior professionals about Naturalistic Developmental Behavioral Interventions [Texte imprimé et/ou numérique] / Lauren H. HAMPTON, Auteur ; Micheal SANDBANK, Auteur . - p.875-888. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.875-888 Mots-clés : Applied Behavior Analysis  Autism Spectrum Disorder/therapy  Behavior Therapy  Child  Child Development Disorders, Pervasive  Child, Preschool  Humans  Surveys and Questionnaires  Behavior Analyst Certification Board  Board Certified Behavior Analyst  Naturalistic Developmental Behavior Intervention  autism  behavior analysis  naturalistic  survey Index. décimale : PER Périodiques Résumé : Primary service providers for young children on the autism spectrum and developmentally delayed children use many strategies under the umbrella of applied behavior analysis therapy. The evidence supporting interventions for children on the autism spectrum has changed last decade, and powerful research supports the relative effectiveness of Naturalistic Developmental Behavior Interventions, yet a few professionals serving young children on the autism spectrum receive training in this category of interventions. Board Certified Behavior Analysts and related professionals are the primary service providers for this population. The purpose of this survey study is to describe and understand the knowledge and beliefs that Behavior Analyst Certification Board certificants have around Naturalistic Developmental Behavior Interventions. The survey was completed by 901 respondents. Respondents indicated, on average, little to no knowledge of Naturalistic Developmental Behavior Intervention practices and few believe that these practices are effective or appropriate for the field. Recommendations include increasing training opportunities for related professionals, and changing certification requirements to match the current evidence. En ligne : https://dx.doi.org/10.1177/13623613211035233 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Special education for students with autism during the COVID-19 pandemic: "Each day brings new challenges" / Sarah HURWITZ in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.889-899 Titre : Special education for students with autism during the COVID-19 pandemic: "Each day brings new challenges" Type de document : Texte imprimé et/ou numérique Auteurs : Sarah HURWITZ, Auteur ; Blaine GARMAN-MCCLAINE, Auteur ; Kane CARLOCK, Auteur Article en page(s) : p.889-899 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Covid-19  Education, Special  Humans  Pandemics  Students  COVID-19 pandemic  Individualized Education Program  Individuals with Disabilities Education Act/free appropriate public education  autistic/autism spectrum disorder  evidence-based practice  implementation science  special education  teachers Index. décimale : PER Périodiques Résumé : The novel coronavirus (COVID-19) disrupted how special educators provided supports and services for students with autism spectrum disorder. School closures and the related pivoting between learning modalities (i.e. virtual, hybrid, and face-to-face) were difficult for all students, but especially for students with autism, who rely on routine and require individualized instruction. In this study, we surveyed 106 special education teachers, behavior specialists, and speech pathologists who work with autistic students to learn about how they adapted instruction to comply with the complex social distancing rules and changing expectations of the pandemic. Participants reported "making the best out of a bad situation" and "constantly using 'trial & error' to find the best way for our students to eLearn." They emphasized the importance of collaboration with parents, who helped deliver intervention and monitor progress across settings. They made alterations to Individualized Education Programs, by adding individualized contingency learning plans, adjusting service minutes, and sometimes eliminating social goals. Participants were surprised that while students with more intense needs struggled, others actually preferred virtual instruction. This raises concerns for what will happen in the future, when social expectations resume. Despite the overwhelming challenges posed by COVID-19, participants demonstrated remarkable resiliency and an innovative ability to adapt instruction. En ligne : https://dx.doi.org/10.1177/13623613211035935 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Special education for students with autism during the COVID-19 pandemic: "Each day brings new challenges" [Texte imprimé et/ou numérique] / Sarah HURWITZ, Auteur ; Blaine GARMAN-MCCLAINE, Auteur ; Kane CARLOCK, Auteur . - p.889-899. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.889-899 Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Covid-19  Education, Special  Humans  Pandemics  Students  COVID-19 pandemic  Individualized Education Program  Individuals with Disabilities Education Act/free appropriate public education  autistic/autism spectrum disorder  evidence-based practice  implementation science  special education  teachers Index. décimale : PER Périodiques Résumé : The novel coronavirus (COVID-19) disrupted how special educators provided supports and services for students with autism spectrum disorder. School closures and the related pivoting between learning modalities (i.e. virtual, hybrid, and face-to-face) were difficult for all students, but especially for students with autism, who rely on routine and require individualized instruction. In this study, we surveyed 106 special education teachers, behavior specialists, and speech pathologists who work with autistic students to learn about how they adapted instruction to comply with the complex social distancing rules and changing expectations of the pandemic. Participants reported "making the best out of a bad situation" and "constantly using 'trial & error' to find the best way for our students to eLearn." They emphasized the importance of collaboration with parents, who helped deliver intervention and monitor progress across settings. They made alterations to Individualized Education Programs, by adding individualized contingency learning plans, adjusting service minutes, and sometimes eliminating social goals. Participants were surprised that while students with more intense needs struggled, others actually preferred virtual instruction. This raises concerns for what will happen in the future, when social expectations resume. Despite the overwhelming challenges posed by COVID-19, participants demonstrated remarkable resiliency and an innovative ability to adapt instruction. En ligne : https://dx.doi.org/10.1177/13623613211035935 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Sociocultural context and autistics' quality of life: A comparison between Québec and France / Vicky CARON in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.900-913 Titre : Sociocultural context and autistics' quality of life: A comparison between Québec and France Type de document : Texte imprimé et/ou numérique Auteurs : Vicky CARON, Auteur ; Nuria JEANNERET, Auteur ; Mathieu GIROUX, Auteur ; Lucila GUERRERO, Auteur ; Mélanie OUIMET, Auteur ; Baudouin FORGEOT D'ARC, Auteur ; Isabelle SOULIERES, Auteur ; Isabelle COURCY, Auteur Article en page(s) : p.900-913 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder/epidemiology  Autistic Disorder  Humans  Interpersonal Relations  Quality of Life  Quebec  adults  autism spectrum  environmental factors  gender  psychiatric comorbidity  stigma  work  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : What is already known about the topic? Quality of life refers to how people perceive aspects of their life such as physical health, material security, and interpersonal relationships. Studies have reported lower quality of life among autistic individuals than in the general population.What does this article contribute? This article contributes to a better understanding of quality of life and its measures from the point of view of autistic adults. By comparing two groups of French-speaking autistic adults from two different places (France and Québec-Canada), this research shows that the perception of quality of life and its determining factors differ for autistic adults living in each country. The Québec group reported a superior quality of life, and some quality of life predictors were different in each group. The social experience of autism-related stigmatization, however, was a powerful predictor of quality of life for all.Implications for practice, research, and policy To promote a higher quality of life for autistic people, it is important to consider the sociocultural context and implement awareness programs and public campaigns aimed at identifying and countering stigmatization processes. En ligne : https://dx.doi.org/10.1177/13623613211035229 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Sociocultural context and autistics' quality of life: A comparison between Québec and France [Texte imprimé et/ou numérique] / Vicky CARON, Auteur ; Nuria JEANNERET, Auteur ; Mathieu GIROUX, Auteur ; Lucila GUERRERO, Auteur ; Mélanie OUIMET, Auteur ; Baudouin FORGEOT D'ARC, Auteur ; Isabelle SOULIERES, Auteur ; Isabelle COURCY, Auteur . - p.900-913. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.900-913 Mots-clés : Adult  Autism Spectrum Disorder/epidemiology  Autistic Disorder  Humans  Interpersonal Relations  Quality of Life  Quebec  adults  autism spectrum  environmental factors  gender  psychiatric comorbidity  stigma  work  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : What is already known about the topic? Quality of life refers to how people perceive aspects of their life such as physical health, material security, and interpersonal relationships. Studies have reported lower quality of life among autistic individuals than in the general population.What does this article contribute? This article contributes to a better understanding of quality of life and its measures from the point of view of autistic adults. By comparing two groups of French-speaking autistic adults from two different places (France and Québec-Canada), this research shows that the perception of quality of life and its determining factors differ for autistic adults living in each country. The Québec group reported a superior quality of life, and some quality of life predictors were different in each group. The social experience of autism-related stigmatization, however, was a powerful predictor of quality of life for all.Implications for practice, research, and policy To promote a higher quality of life for autistic people, it is important to consider the sociocultural context and implement awareness programs and public campaigns aimed at identifying and countering stigmatization processes. En ligne : https://dx.doi.org/10.1177/13623613211035229 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

COVID-19, social isolation and the mental health of autistic people and their families: A qualitative study / Elizabeth PELLICANO in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.914-927 Titre : COVID-19, social isolation and the mental health of autistic people and their families: A qualitative study Type de document : Texte imprimé et/ou numérique Auteurs : Elizabeth PELLICANO, Auteur ; Simon BRETT, Auteur ; Jacquiline DEN HOUTING, Auteur ; Melanie HEYWORTH, Auteur ; Iliana MAGIATI, Auteur ; Robyn STEWARD, Auteur ; Anna URBANOWICZ, Auteur ; Marc STEARS, Auteur Article en page(s) : p.914-927 Langues : Anglais (eng) Mots-clés : Adolescent  Adult  Autism Spectrum Disorder  Autistic Disorder  Covid-19  Child  Communicable Disease Control  Humans  Mental Health  Pandemics  Social Isolation  participatory research  qualitative research Index. décimale : PER Périodiques Résumé : In this study, we show that autistic people and their families have found it very difficult to deal with the lockdowns during the COVID-19 pandemic. Autistic and non-autistic researchers spoke to 144 people, including 44 autistic adults, 84 parents of autistic children and 16 autistic young people (12-18?years old). We asked them about their everyday lives and mental health during lockdown. People told us that they enjoyed having fewer obligations and demands compared to pre-COVID-19 life. They felt that life was quieter and calmer. But people also told us again and again how much they missed meeting people in real life, especially their friends, and their therapists and support workers. People told us that their mental health suffered because they did not have contact with their friends and services. Importantly, many people (including researchers) think that autistic people do not want friends or to be around people. But our results show that is not true. Many autistic people do want friends and to be around other people. Some people's mental health has been damaged by not being able to see people during COVID-19. Autistic people need support in many areas of life so they can keep socialising and seeing their friends even through difficult times, like pandemics. En ligne : https://dx.doi.org/10.1177/13623613211035936 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] COVID-19, social isolation and the mental health of autistic people and their families: A qualitative study [Texte imprimé et/ou numérique] / Elizabeth PELLICANO, Auteur ; Simon BRETT, Auteur ; Jacquiline DEN HOUTING, Auteur ; Melanie HEYWORTH, Auteur ; Iliana MAGIATI, Auteur ; Robyn STEWARD, Auteur ; Anna URBANOWICZ, Auteur ; Marc STEARS, Auteur . - p.914-927. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.914-927 Mots-clés : Adolescent  Adult  Autism Spectrum Disorder  Autistic Disorder  Covid-19  Child  Communicable Disease Control  Humans  Mental Health  Pandemics  Social Isolation  participatory research  qualitative research Index. décimale : PER Périodiques Résumé : In this study, we show that autistic people and their families have found it very difficult to deal with the lockdowns during the COVID-19 pandemic. Autistic and non-autistic researchers spoke to 144 people, including 44 autistic adults, 84 parents of autistic children and 16 autistic young people (12-18?years old). We asked them about their everyday lives and mental health during lockdown. People told us that they enjoyed having fewer obligations and demands compared to pre-COVID-19 life. They felt that life was quieter and calmer. But people also told us again and again how much they missed meeting people in real life, especially their friends, and their therapists and support workers. People told us that their mental health suffered because they did not have contact with their friends and services. Importantly, many people (including researchers) think that autistic people do not want friends or to be around people. But our results show that is not true. Many autistic people do want friends and to be around other people. Some people's mental health has been damaged by not being able to see people during COVID-19. Autistic people need support in many areas of life so they can keep socialising and seeing their friends even through difficult times, like pandemics. En ligne : https://dx.doi.org/10.1177/13623613211035936 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Content validation of common measures of functioning for young children against the International Classification of Functioning, Disability and Health and Code and Core Sets relevant to neurodevelopmental conditions / Emily D'ARCY in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.928-939 Titre : Content validation of common measures of functioning for young children against the International Classification of Functioning, Disability and Health and Code and Core Sets relevant to neurodevelopmental conditions Type de document : Texte imprimé et/ou numérique Auteurs : Emily D'ARCY, Auteur ; Kerry WALLACE, Auteur ; Angela CHAMBERLAIN, Auteur ; Kiah EVANS, Auteur ; Benjamin MILBOURN, Auteur ; Sven BÖLTE, Auteur ; Andrew J. O. WHITEHOUSE, Auteur ; Sonya GIRDLER, Auteur Article en page(s) : p.928-939 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Child  Child, Preschool  Disabled Persons  Family  Humans  International Classification of Functioning, Disability and Health  Neurodevelopmental Disorders/diagnosis  adaptive behavior  attention-deficit/hyperactivity disorder  autism spectrum disorders  behavioral measurement  cerebral palsy  content validity  developmental delay  functioning Index. décimale : PER Périodiques Résumé : Young children who have developmental delay, autism, or other neurodevelopmental conditions can have difficulties doing things in different areas of their life. What they can and cannot do is called their level of functioning. There are lots of assessment measures that aim to assess functioning. But, we are not sure if these measures assess all the things we need to know about these children's functioning. Other research has identified lists of items (codes) that need to be assessed to understand functioning for young children with different neurodevelopmental conditions fully. These lists include body functions (the things a child's body or brain can do), activities and participation (the activities and tasks a child does) and environmental factors (parts of the environment that can influence functioning). In this study, we looked at the items from these lists assessed by different functioning measures to see how they compared to what should be assessed. The measures that we looked at covered 21%-57% of all the codes and 19%-63% of the codes for lists specific to different conditions. Most of the measures focused on activity and participation codes, and they rarely assessed environmental factors. Knowing which codes and how much of the lists the measures assess can help researchers, clinicians and policymakers to choose measures that are more appropriate for young children with neurodevelopmental conditions. En ligne : https://dx.doi.org/10.1177/13623613211036809 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Content validation of common measures of functioning for young children against the International Classification of Functioning, Disability and Health and Code and Core Sets relevant to neurodevelopmental conditions [Texte imprimé et/ou numérique] / Emily D'ARCY, Auteur ; Kerry WALLACE, Auteur ; Angela CHAMBERLAIN, Auteur ; Kiah EVANS, Auteur ; Benjamin MILBOURN, Auteur ; Sven BÖLTE, Auteur ; Andrew J. O. WHITEHOUSE, Auteur ; Sonya GIRDLER, Auteur . - p.928-939. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.928-939 Mots-clés : Autism Spectrum Disorder  Child  Child, Preschool  Disabled Persons  Family  Humans  International Classification of Functioning, Disability and Health  Neurodevelopmental Disorders/diagnosis  adaptive behavior  attention-deficit/hyperactivity disorder  autism spectrum disorders  behavioral measurement  cerebral palsy  content validity  developmental delay  functioning Index. décimale : PER Périodiques Résumé : Young children who have developmental delay, autism, or other neurodevelopmental conditions can have difficulties doing things in different areas of their life. What they can and cannot do is called their level of functioning. There are lots of assessment measures that aim to assess functioning. But, we are not sure if these measures assess all the things we need to know about these children's functioning. Other research has identified lists of items (codes) that need to be assessed to understand functioning for young children with different neurodevelopmental conditions fully. These lists include body functions (the things a child's body or brain can do), activities and participation (the activities and tasks a child does) and environmental factors (parts of the environment that can influence functioning). In this study, we looked at the items from these lists assessed by different functioning measures to see how they compared to what should be assessed. The measures that we looked at covered 21%-57% of all the codes and 19%-63% of the codes for lists specific to different conditions. Most of the measures focused on activity and participation codes, and they rarely assessed environmental factors. Knowing which codes and how much of the lists the measures assess can help researchers, clinicians and policymakers to choose measures that are more appropriate for young children with neurodevelopmental conditions. En ligne : https://dx.doi.org/10.1177/13623613211036809 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Anthropomorphic tendencies in autism: A conceptual replication and extension of White and Remington (2019) and preliminary development of a novel anthropomorphism measure / Rachel A. CLUTTERBUCK in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.940-950 Titre : Anthropomorphic tendencies in autism: A conceptual replication and extension of White and Remington (2019) and preliminary development of a novel anthropomorphism measure Type de document : Texte imprimé et/ou numérique Auteurs : Rachel A. CLUTTERBUCK, Auteur ; Punit SHAH, Auteur ; Hok Sze LEUNG, Auteur ; Mitchell J. CALLAN, Auteur ; Natalia GJERSOE, Auteur ; Lucy A. LIVINGSTON, Auteur Article en page(s) : p.940-950 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder  Autistic Disorder  Emotions  Humans  Reproducibility of Results  anthropomorphism  autism  personification  social cognition  theory of mind  conflicts of interest with respect to the research, authorship and/or publication  of this article. Index. décimale : PER Périodiques Résumé : Anthropomorphism is the tendency to attribute human-like qualities (e.g. thoughts and feelings) to non-human entities (e.g. objects and weather systems). Research by White and Remington (2019) suggested that anthropomorphism is more common in autistic compared to neurotypical adults, which is interesting given that autistic individuals sometimes misunderstand the thoughts and feelings of other people. In this article, we re-examined the link between autism and anthropomorphism in a large sample of adults with varying degrees of autistic traits, with several important methodological advances on previous research. Across two studies, we found that individuals with more autistic traits reported greater anthropomorphic tendencies. As part of these analyses, we had to develop a new, refined measure of anthropomorphism, which showed better reliability and validity than the original measure. This measure will be useful in future autism-related research. Overall, advancing White and Remington's study, these findings help us to better understand individual differences in socially relevant processes, including those that may be enhanced in autism (e.g. anthropomorphism). En ligne : https://dx.doi.org/10.1177/13623613211039387 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Anthropomorphic tendencies in autism: A conceptual replication and extension of White and Remington (2019) and preliminary development of a novel anthropomorphism measure [Texte imprimé et/ou numérique] / Rachel A. CLUTTERBUCK, Auteur ; Punit SHAH, Auteur ; Hok Sze LEUNG, Auteur ; Mitchell J. CALLAN, Auteur ; Natalia GJERSOE, Auteur ; Lucy A. LIVINGSTON, Auteur . - p.940-950. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.940-950 Mots-clés : Adult  Autism Spectrum Disorder  Autistic Disorder  Emotions  Humans  Reproducibility of Results  anthropomorphism  autism  personification  social cognition  theory of mind  conflicts of interest with respect to the research, authorship and/or publication  of this article. Index. décimale : PER Périodiques Résumé : Anthropomorphism is the tendency to attribute human-like qualities (e.g. thoughts and feelings) to non-human entities (e.g. objects and weather systems). Research by White and Remington (2019) suggested that anthropomorphism is more common in autistic compared to neurotypical adults, which is interesting given that autistic individuals sometimes misunderstand the thoughts and feelings of other people. In this article, we re-examined the link between autism and anthropomorphism in a large sample of adults with varying degrees of autistic traits, with several important methodological advances on previous research. Across two studies, we found that individuals with more autistic traits reported greater anthropomorphic tendencies. As part of these analyses, we had to develop a new, refined measure of anthropomorphism, which showed better reliability and validity than the original measure. This measure will be useful in future autism-related research. Overall, advancing White and Remington's study, these findings help us to better understand individual differences in socially relevant processes, including those that may be enhanced in autism (e.g. anthropomorphism). En ligne : https://dx.doi.org/10.1177/13623613211039387 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

The impact of socio-cultural values on autistic women: An interpretative phenomenological analysis / Stella MO in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.951-962 Titre : The impact of socio-cultural values on autistic women: An interpretative phenomenological analysis Type de document : Texte imprimé et/ou numérique Auteurs : Stella MO, Auteur ; Nina VILJOEN, Auteur ; Shivani SHARMA, Auteur Article en page(s) : p.951-962 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Cognition  Female  Humans  Intellectual Disability  Male  autism  culture  identity  interpretative phenomenological analysis  women  conflicts of interest with respect to the research, authorship and/or publication  of this article. Index. décimale : PER Périodiques Résumé : Autistic women with average or above intellectual abilities are often overlooked clinically or identified at older ages compared to autistic males. Their experiences can provide insight into the socio-cultural factors that impact on how they develop and are seen by others. This study asked autistic women to describe the culture around them and explore how this has influenced their lived experiences. Individual semi-structured interviews were conducted with eight autistic women without a co-occurring diagnosis of intellectual disabilities. These were used for interpretative phenomenological analysis. Overall, we found three closely connected themes on the pervasive influence of cultural values on autistic women, how autistic women define themselves and the importance of connecting with society. These findings suggest that dominant cultural beliefs, values and norms effect how autistic women are recognised by others and develop their sense of self. Broadening how people think about autistic women in society and clinically may benefit how we identify and support autistic women. En ligne : https://dx.doi.org/10.1177/13623613211037896 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] The impact of socio-cultural values on autistic women: An interpretative phenomenological analysis [Texte imprimé et/ou numérique] / Stella MO, Auteur ; Nina VILJOEN, Auteur ; Shivani SHARMA, Auteur . - p.951-962. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.951-962 Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Cognition  Female  Humans  Intellectual Disability  Male  autism  culture  identity  interpretative phenomenological analysis  women  conflicts of interest with respect to the research, authorship and/or publication  of this article. Index. décimale : PER Périodiques Résumé : Autistic women with average or above intellectual abilities are often overlooked clinically or identified at older ages compared to autistic males. Their experiences can provide insight into the socio-cultural factors that impact on how they develop and are seen by others. This study asked autistic women to describe the culture around them and explore how this has influenced their lived experiences. Individual semi-structured interviews were conducted with eight autistic women without a co-occurring diagnosis of intellectual disabilities. These were used for interpretative phenomenological analysis. Overall, we found three closely connected themes on the pervasive influence of cultural values on autistic women, how autistic women define themselves and the importance of connecting with society. These findings suggest that dominant cultural beliefs, values and norms effect how autistic women are recognised by others and develop their sense of self. Broadening how people think about autistic women in society and clinically may benefit how we identify and support autistic women. En ligne : https://dx.doi.org/10.1177/13623613211037896 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

The lived experience of gender dysphoria in autistic adults: An interpretative phenomenological analysis / Kate COOPER in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.963-974 Titre : The lived experience of gender dysphoria in autistic adults: An interpretative phenomenological analysis Type de document : Texte imprimé et/ou numérique Auteurs : Kate COOPER, Auteur ; William MANDY, Auteur ; Catherine BUTLER, Auteur ; Ailsa RUSSELL, Auteur Article en page(s) : p.963-974 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder  Autistic Disorder  Female  Gender Dysphoria/psychology  Gender Identity  Humans  Infant, Newborn  Male  Transgender Persons/psychology  autism spectrum disorders  gender diversity  gender dysphoria  transgender healthcare  transgender identities  conflicts of interest with respect to the research, authorship and/or publication  of this article. Index. décimale : PER Périodiques Résumé : Autistic people are more likely to be transgender, which means having a gender identity different to one's sex assigned at birth. Some transgender people experience distress about their gender and sex assigned at birth not matching which is called gender dysphoria. Research has focused on finding out why autistic people are more likely to have gender dysphoria, and less on what the experience of gender dysphoria is like for autistic people. We interviewed 21 autistic adults about their experience of incongruence between their gender identity and sex assigned at birth, and any associated distress. We carefully read the transcripts of the interviews, focusing on how participants understood their experiences. We found a range of themes from the interviews. Participants were distressed because their bodies did not match their gender identities. Participants told us they had to work hard to understand themselves and who they were, and to manage having multiple different needs such as mental health needs. It was upsetting for participants to experience discrimination because of being autistic and/or transgender. Some participants said it was more difficult to get transgender healthcare as an autistic person. Some participants thought being autistic had helped them understand their gender identity more than non-autistic people. Other participants found it was challenging to be both autistic and transgender. For example, most participants wanted to change their bodies to match their gender identity, but some participants were nervous about making changes to themselves and their routine due to being autistic. We conclude that autism can in some ways be helpful and other ways contribute to challenges for transgender autistic people. En ligne : https://dx.doi.org/10.1177/13623613211039113 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] The lived experience of gender dysphoria in autistic adults: An interpretative phenomenological analysis [Texte imprimé et/ou numérique] / Kate COOPER, Auteur ; William MANDY, Auteur ; Catherine BUTLER, Auteur ; Ailsa RUSSELL, Auteur . - p.963-974. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.963-974 Mots-clés : Adult  Autism Spectrum Disorder  Autistic Disorder  Female  Gender Dysphoria/psychology  Gender Identity  Humans  Infant, Newborn  Male  Transgender Persons/psychology  autism spectrum disorders  gender diversity  gender dysphoria  transgender healthcare  transgender identities  conflicts of interest with respect to the research, authorship and/or publication  of this article. Index. décimale : PER Périodiques Résumé : Autistic people are more likely to be transgender, which means having a gender identity different to one's sex assigned at birth. Some transgender people experience distress about their gender and sex assigned at birth not matching which is called gender dysphoria. Research has focused on finding out why autistic people are more likely to have gender dysphoria, and less on what the experience of gender dysphoria is like for autistic people. We interviewed 21 autistic adults about their experience of incongruence between their gender identity and sex assigned at birth, and any associated distress. We carefully read the transcripts of the interviews, focusing on how participants understood their experiences. We found a range of themes from the interviews. Participants were distressed because their bodies did not match their gender identities. Participants told us they had to work hard to understand themselves and who they were, and to manage having multiple different needs such as mental health needs. It was upsetting for participants to experience discrimination because of being autistic and/or transgender. Some participants said it was more difficult to get transgender healthcare as an autistic person. Some participants thought being autistic had helped them understand their gender identity more than non-autistic people. Other participants found it was challenging to be both autistic and transgender. For example, most participants wanted to change their bodies to match their gender identity, but some participants were nervous about making changes to themselves and their routine due to being autistic. We conclude that autism can in some ways be helpful and other ways contribute to challenges for transgender autistic people. En ligne : https://dx.doi.org/10.1177/13623613211039113 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

COVID-19 risk: Adult Medicaid beneficiaries with autism, intellectual disability, and mental health conditions / Whitney SCHOTT in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.975-987 Titre : COVID-19 risk: Adult Medicaid beneficiaries with autism, intellectual disability, and mental health conditions Type de document : Texte imprimé et/ou numérique Auteurs : Whitney SCHOTT, Auteur ; Sha TAO, Auteur ; Lindsay SHEA, Auteur Article en page(s) : p.975-987 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder/epidemiology  Autistic Disorder/epidemiology  COVID-19/epidemiology  Humans  Intellectual Disability/epidemiology  Medicaid  Mental Health  United States/epidemiology  COVID-19 risk  autism  comorbidities  intellectual disability Index. décimale : PER Périodiques Résumé : Autistic adults, adults with intellectual disability, and adults with other mental health conditions may have higher risk of contracting COVID-19 or experiencing more severe illness from COVID-19 if infected. We used data from Medicaid to look at whether autistic adults and other adults with intellectual disability and other mental health conditions were more likely to have risk factors for COVID-19, such as living in a residential facility, receiving services regularly in the home from outside caregivers, having had a long hospitalization, having had avoidable hospitalizations, and having high-risk health conditions. We found that autistic adults had higher odds of living in a residential facility, receiving in-home services from outside caregivers, having had an avoidable hospitalization, and having a high-risk health condition, compared to neurotypical adults without mental health conditions. Adults with intellectual disability had similar odds of having these conditions. Adults with other mental health conditions were also more likely to live in a residential facility, receive services from outside caregivers, and have had avoidable hospitalizations compared to the neurotypical population without mental health conditions. They had three times higher odds of having a high-risk health condition. High risk of COVID-19 among autistic adults and adults with intellectual disability and mental health conditions should be recognized by clinicians, and these groups should be prioritized for vaccine outreach. En ligne : https://dx.doi.org/10.1177/13623613211039662 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] COVID-19 risk: Adult Medicaid beneficiaries with autism, intellectual disability, and mental health conditions [Texte imprimé et/ou numérique] / Whitney SCHOTT, Auteur ; Sha TAO, Auteur ; Lindsay SHEA, Auteur . - p.975-987. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.975-987 Mots-clés : Adult  Autism Spectrum Disorder/epidemiology  Autistic Disorder/epidemiology  COVID-19/epidemiology  Humans  Intellectual Disability/epidemiology  Medicaid  Mental Health  United States/epidemiology  COVID-19 risk  autism  comorbidities  intellectual disability Index. décimale : PER Périodiques Résumé : Autistic adults, adults with intellectual disability, and adults with other mental health conditions may have higher risk of contracting COVID-19 or experiencing more severe illness from COVID-19 if infected. We used data from Medicaid to look at whether autistic adults and other adults with intellectual disability and other mental health conditions were more likely to have risk factors for COVID-19, such as living in a residential facility, receiving services regularly in the home from outside caregivers, having had a long hospitalization, having had avoidable hospitalizations, and having high-risk health conditions. We found that autistic adults had higher odds of living in a residential facility, receiving in-home services from outside caregivers, having had an avoidable hospitalization, and having a high-risk health condition, compared to neurotypical adults without mental health conditions. Adults with intellectual disability had similar odds of having these conditions. Adults with other mental health conditions were also more likely to live in a residential facility, receive services from outside caregivers, and have had avoidable hospitalizations compared to the neurotypical population without mental health conditions. They had three times higher odds of having a high-risk health condition. High risk of COVID-19 among autistic adults and adults with intellectual disability and mental health conditions should be recognized by clinicians, and these groups should be prioritized for vaccine outreach. En ligne : https://dx.doi.org/10.1177/13623613211039662 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Short report: Call to action for autism clinicians in response to anti-Black racism / Diondra STRAITON in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.988-994 Titre : Short report: Call to action for autism clinicians in response to anti-Black racism Type de document : Texte imprimé et/ou numérique Auteurs : Diondra STRAITON, Auteur ; Aksheya SRIDHAR, Auteur Article en page(s) : p.988-994 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy  Autistic Disorder/therapy  Humans  Racism/prevention & control  Black autistic community  racism  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : Black autistic people experience anti-Black racism when interacting with service systems and the clinicians in those systems. In this article, we describe the various steps families take to get services and how anti-Black racism makes that process even harder. We discuss research that shows the negative effects of anti-Black racism in autism assessment, treatment, and quality of care. We then provide five recommendations that clinicians should follow to reduce anti-Black racism in the autism field: (1) find Black autistic people and listen to their opinions about your organization, (2) always keep learning about how your profession promotes anti-Black racism, (3) recognize that the process of a clinician learning to be culturally humble takes time and is never "complete," (4) pay attention to all of the steps that families must take to receive autism services and how these steps are even harder for Black individuals, and (5) advocate for your organization to make systems-level changes in their policies and procedures. En ligne : https://dx.doi.org/10.1177/13623613211043643 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=474 [article] Short report: Call to action for autism clinicians in response to anti-Black racism [Texte imprimé et/ou numérique] / Diondra STRAITON, Auteur ; Aksheya SRIDHAR, Auteur . - p.988-994. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.988-994 Mots-clés : Autism Spectrum Disorder/therapy  Autistic Disorder/therapy  Humans  Racism/prevention & control  Black autistic community  racism  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : Black autistic people experience anti-Black racism when interacting with service systems and the clinicians in those systems. In this article, we describe the various steps families take to get services and how anti-Black racism makes that process even harder. We discuss research that shows the negative effects of anti-Black racism in autism assessment, treatment, and quality of care. We then provide five recommendations that clinicians should follow to reduce anti-Black racism in the autism field: (1) find Black autistic people and listen to their opinions about your organization, (2) always keep learning about how your profession promotes anti-Black racism, (3) recognize that the process of a clinician learning to be culturally humble takes time and is never "complete," (4) pay attention to all of the steps that families must take to receive autism services and how these steps are even harder for Black individuals, and (5) advocate for your organization to make systems-level changes in their policies and procedures. En ligne : https://dx.doi.org/10.1177/13623613211043643 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=474

Short report: A quantitative methodological review of participant characteristics in the literature testing mental health interventions for youth with autism spectrum disorder / Kelsey S. DICKSON in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.995-1000 Titre : Short report: A quantitative methodological review of participant characteristics in the literature testing mental health interventions for youth with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Kelsey S. DICKSON, Auteur ; Megan GALLIGAN LEDOUX, Auteur ; Ho LOK, Auteur Article en page(s) : p.995-1000 Langues : Anglais (eng) Mots-clés : Adolescent  Aged  Autism Spectrum Disorder/psychology/therapy  Caregivers  Child  Female  Humans  Mental Health  autism spectrum disorder  mental health interventions  quantitative methodological review  youth Index. décimale : PER Périodiques Résumé : Previous research has highlighted the importance of mental health treatment for autistic youth. In that research base, most studies focus on demonstrating the efficacy of a particular intervention with a sample of autistic youth. However, understanding the characteristics of samples used within these studies (i.e. demographics) is an important avenue for expanding this research to a more diverse, representative sample of autistic youth in community settings. As such, the current review examined and characterized participants included within mental health treatment research. We coded studies for various demographics among the youth sample, caregivers, and providers participants. Results indicated that while efforts have been made to increase diversity in research, very few studies including transition-aged youth, those identifying as female, and/or those identifying as non-Caucasian. Clinically, a few studies included youth with lower cognitive abilities and/or those with specific mental health problems (e.g. trauma and depression) or more than one co-occurring mental health conditions. Overall, our results highlight several critical gaps in our current evidence base regarding mental health treatment for autistic youth, including the limited clinical representativeness of both provider and child participants. En ligne : https://dx.doi.org/10.1177/13623613211056408 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=474 [article] Short report: A quantitative methodological review of participant characteristics in the literature testing mental health interventions for youth with autism spectrum disorder [Texte imprimé et/ou numérique] / Kelsey S. DICKSON, Auteur ; Megan GALLIGAN LEDOUX, Auteur ; Ho LOK, Auteur . - p.995-1000. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.995-1000 Mots-clés : Adolescent  Aged  Autism Spectrum Disorder/psychology/therapy  Caregivers  Child  Female  Humans  Mental Health  autism spectrum disorder  mental health interventions  quantitative methodological review  youth Index. décimale : PER Périodiques Résumé : Previous research has highlighted the importance of mental health treatment for autistic youth. In that research base, most studies focus on demonstrating the efficacy of a particular intervention with a sample of autistic youth. However, understanding the characteristics of samples used within these studies (i.e. demographics) is an important avenue for expanding this research to a more diverse, representative sample of autistic youth in community settings. As such, the current review examined and characterized participants included within mental health treatment research. We coded studies for various demographics among the youth sample, caregivers, and providers participants. Results indicated that while efforts have been made to increase diversity in research, very few studies including transition-aged youth, those identifying as female, and/or those identifying as non-Caucasian. Clinically, a few studies included youth with lower cognitive abilities and/or those with specific mental health problems (e.g. trauma and depression) or more than one co-occurring mental health conditions. Overall, our results highlight several critical gaps in our current evidence base regarding mental health treatment for autistic youth, including the limited clinical representativeness of both provider and child participants. En ligne : https://dx.doi.org/10.1177/13623613211056408 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=474

The role of parental advocacy in addressing service disparities for transition-aged youth on the autism spectrum / Chung Eun LEE in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.1001-1006 Titre : The role of parental advocacy in addressing service disparities for transition-aged youth on the autism spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Chung Eun LEE, Auteur ; Meghan M. BURKE, Auteur ; Leann S. DAWALT, Auteur ; Chak LI, Auteur ; Julie LOUNDS TAYLOR, Auteur Article en page(s) : p.1001-1006 Langues : Anglais (eng) Mots-clés : Adolescent  Adult  Aged  Autism Spectrum Disorder/therapy  Autistic Disorder  Child  Child Development Disorders, Pervasive  Humans  Intellectual Disability  Parents  autism spectrum disorder  parental advocacy  service access  transition-aged youth Index. décimale : PER Périodiques Résumé : It can be difficult for youth on the autism spectrum to get the services they need after they leave high school. Because of this, many studies have examined the different factors that are related to service access. These studies have shown that youth on the autism spectrum who belong to an underrepresented racial or ethnic group or whose families have lower incomes are less likely to receive the services that they need. However, it is difficult or impossible to change things like race/ethnicity or family income. It is important to also identify factors that might improve service access that we can change. One potential factor that fits into this category is parental advocacy activities. Using data collected from 185 parents of youth on the autism spectrum, we found that more parental advocacy activities were related to youth receiving more services, even after accounting for variables related to the functioning of the youth (e.g. whether they have an intellectual disability, their autism symptom severity) and demographic information about the family (e.g. state in which they live, parental race/ethnicity, and family income). Our findings suggest that building parental advocacy skills may be one important way to increase the number of services that youth on the autism spectrum receive as they transition to adulthood. En ligne : https://dx.doi.org/10.1177/13623613211057660 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=474 [article] The role of parental advocacy in addressing service disparities for transition-aged youth on the autism spectrum [Texte imprimé et/ou numérique] / Chung Eun LEE, Auteur ; Meghan M. BURKE, Auteur ; Leann S. DAWALT, Auteur ; Chak LI, Auteur ; Julie LOUNDS TAYLOR, Auteur . - p.1001-1006. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.1001-1006 Mots-clés : Adolescent  Adult  Aged  Autism Spectrum Disorder/therapy  Autistic Disorder  Child  Child Development Disorders, Pervasive  Humans  Intellectual Disability  Parents  autism spectrum disorder  parental advocacy  service access  transition-aged youth Index. décimale : PER Périodiques Résumé : It can be difficult for youth on the autism spectrum to get the services they need after they leave high school. Because of this, many studies have examined the different factors that are related to service access. These studies have shown that youth on the autism spectrum who belong to an underrepresented racial or ethnic group or whose families have lower incomes are less likely to receive the services that they need. However, it is difficult or impossible to change things like race/ethnicity or family income. It is important to also identify factors that might improve service access that we can change. One potential factor that fits into this category is parental advocacy activities. Using data collected from 185 parents of youth on the autism spectrum, we found that more parental advocacy activities were related to youth receiving more services, even after accounting for variables related to the functioning of the youth (e.g. whether they have an intellectual disability, their autism symptom severity) and demographic information about the family (e.g. state in which they live, parental race/ethnicity, and family income). Our findings suggest that building parental advocacy skills may be one important way to increase the number of services that youth on the autism spectrum receive as they transition to adulthood. En ligne : https://dx.doi.org/10.1177/13623613211057660 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=474

Studies of autistic traits in the general population are not studies of autism / Noah J. SASSON in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.1007-1008 Titre : Studies of autistic traits in the general population are not studies of autism Type de document : Texte imprimé et/ou numérique Auteurs : Noah J. SASSON, Auteur ; Kristen BOTTEMA-BEUTEL, Auteur Article en page(s) : p.1007-1008 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/epidemiology  Autistic Disorder  Humans  autism quotient  autism traits  autistic traits  broad autism phenotype Index. décimale : PER Périodiques Résumé : Studies of autistic traits in the general population are becoming increasingly prevalent. In this letter to the editor, we caution researchers against framing and interpreting studies of autistic traits in the general population as extending to autism and implore them to be clear about when their study sample does and does not include autistic participants. En ligne : https://dx.doi.org/10.1177/13623613211058515 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=474 [article] Studies of autistic traits in the general population are not studies of autism [Texte imprimé et/ou numérique] / Noah J. SASSON, Auteur ; Kristen BOTTEMA-BEUTEL, Auteur . - p.1007-1008. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.1007-1008 Mots-clés : Autism Spectrum Disorder/epidemiology  Autistic Disorder  Humans  autism quotient  autism traits  autistic traits  broad autism phenotype Index. décimale : PER Périodiques Résumé : Studies of autistic traits in the general population are becoming increasingly prevalent. In this letter to the editor, we caution researchers against framing and interpreting studies of autistic traits in the general population as extending to autism and implore them to be clear about when their study sample does and does not include autistic participants. En ligne : https://dx.doi.org/10.1177/13623613211058515 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=474