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Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life / Gray ATHERTON in Journal of Autism and Developmental Disorders, 52-8 (August 2022)
[article]
Titre : Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life Type de document : Texte imprimé et/ou numérique Auteurs : Gray ATHERTON, Auteur ; Emma EDISBURY, Auteur ; Andrea PIOVESAN, Auteur ; Liam CROSS, Auteur Article en page(s) : p.3639-3654 Langues : Anglais (eng) Mots-clés : Adult Age Factors Autism Spectrum Disorder/diagnosis/psychology Autistic Disorder/diagnosis/psychology Humans Mental Health Quality of Life/psychology Adulthood Autism Autism quotient Mixed methods Quality of life Index. décimale : PER Périodiques Résumé : A significant proportion of autistic adults today were not diagnosed until later in life, a group referred to as the 'lost generation,' which may affect mental health. In Study 1 we explored quality of life and autistic trait levels in 420 autistic and TD adults, and in Study 2 we explored the experiences of 8 autistic adults diagnosed as adults. We found that autistic adults had lower quality of life outcomes and higher autistic trait levels which related to age of diagnosis, and qualitative findings indicated that while adults were empowered by their new diagnosis, they still require specialized supports. Our findings are discussed, emphasizing future directions and implications for the current care system in place for autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-021-05235-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485
in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3639-3654[article] Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life [Texte imprimé et/ou numérique] / Gray ATHERTON, Auteur ; Emma EDISBURY, Auteur ; Andrea PIOVESAN, Auteur ; Liam CROSS, Auteur . - p.3639-3654.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3639-3654
Mots-clés : Adult Age Factors Autism Spectrum Disorder/diagnosis/psychology Autistic Disorder/diagnosis/psychology Humans Mental Health Quality of Life/psychology Adulthood Autism Autism quotient Mixed methods Quality of life Index. décimale : PER Périodiques Résumé : A significant proportion of autistic adults today were not diagnosed until later in life, a group referred to as the 'lost generation,' which may affect mental health. In Study 1 we explored quality of life and autistic trait levels in 420 autistic and TD adults, and in Study 2 we explored the experiences of 8 autistic adults diagnosed as adults. We found that autistic adults had lower quality of life outcomes and higher autistic trait levels which related to age of diagnosis, and qualitative findings indicated that while adults were empowered by their new diagnosis, they still require specialized supports. Our findings are discussed, emphasizing future directions and implications for the current care system in place for autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-021-05235-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485 "I Don't Do Much Without Researching Things Myself": A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children / Olivia J. LINDLY in Journal of Autism and Developmental Disorders, 52-8 (August 2022)
[article]
Titre : "I Don't Do Much Without Researching Things Myself": A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children Type de document : Texte imprimé et/ou numérique Auteurs : Olivia J. LINDLY, Auteur ; Jacqueline CABRAL, Auteur ; Ruqayah MOHAMMED, Auteur ; Ivonne GARBER, Auteur ; Kamila B. MISTRY, Auteur ; Karen A. KUHLTHAU, Auteur Article en page(s) : p.3598-3611 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder Autistic Disorder/diagnosis/therapy Child Child, Preschool Educational Status Health Literacy Humans Parents/education Autism Children Decision-making Health literacy Mixed methods Parents Services use United States interests to disclose. Index. décimale : PER Périodiques Résumé : Little is known about how parent health literacy contributes to health-related outcomes for children with autism. This mixed-methods study included 82 U.S. parents of a child with autism 2-5Â years-old and sought to describe (1) health literacy dimensions, (2) how health literacy influences services use, and (3) health literacy improvement strategies. Results showed: autism information was accessed from multiple sources; understanding autism information involved "doing your own research"; autism information empowered decision-making; health literacy facilitated behavioral services use; health literacy influenced medication use; family and system characteristics also affected services use; autism education remains needed; services information is needed across the diagnostic odyssey; and greater scientific information accessibility would increase uptake. Findings demonstrate how parent health literacy affects services use. En ligne : http://dx.doi.org/10.1007/s10803-021-05240-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485
in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3598-3611[article] "I Don't Do Much Without Researching Things Myself": A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children [Texte imprimé et/ou numérique] / Olivia J. LINDLY, Auteur ; Jacqueline CABRAL, Auteur ; Ruqayah MOHAMMED, Auteur ; Ivonne GARBER, Auteur ; Kamila B. MISTRY, Auteur ; Karen A. KUHLTHAU, Auteur . - p.3598-3611.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3598-3611
Mots-clés : Autism Spectrum Disorder Autistic Disorder/diagnosis/therapy Child Child, Preschool Educational Status Health Literacy Humans Parents/education Autism Children Decision-making Health literacy Mixed methods Parents Services use United States interests to disclose. Index. décimale : PER Périodiques Résumé : Little is known about how parent health literacy contributes to health-related outcomes for children with autism. This mixed-methods study included 82 U.S. parents of a child with autism 2-5Â years-old and sought to describe (1) health literacy dimensions, (2) how health literacy influences services use, and (3) health literacy improvement strategies. Results showed: autism information was accessed from multiple sources; understanding autism information involved "doing your own research"; autism information empowered decision-making; health literacy facilitated behavioral services use; health literacy influenced medication use; family and system characteristics also affected services use; autism education remains needed; services information is needed across the diagnostic odyssey; and greater scientific information accessibility would increase uptake. Findings demonstrate how parent health literacy affects services use. En ligne : http://dx.doi.org/10.1007/s10803-021-05240-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485 School based cognitive behavioural therapy targeting anxiety in children with autistic spectrum disorder: a quasi-experimental randomised controlled trail incorporating a mixed methods approach / C. CLARKE in Journal of Autism and Developmental Disorders, 47-12 (December 2017)
[article]
Titre : School based cognitive behavioural therapy targeting anxiety in children with autistic spectrum disorder: a quasi-experimental randomised controlled trail incorporating a mixed methods approach Type de document : Texte imprimé et/ou numérique Auteurs : C. CLARKE, Auteur ; V. HILL, Auteur ; Tony CHARMAN, Auteur Année de publication : 2017 Article en page(s) : p.3883-3895 Langues : Anglais (eng) Mots-clés : Autism Cognitive behavioural therapy Coping behaviours Mixed methods Schools based interventions Index. décimale : PER Périodiques Résumé : Children with a diagnosis of autism are more likely to experience anxiety than their typically developing peers. Research suggests that Cognitive Behavioural Therapy (CBT) could offer a way to help children with autism manage their anxiety but most evidence is based on clinical trials. This study investigated a school-based CBT programme using a quasi-experimental design incorporating the child and parent versions of the Spence Children's Anxiety Scale (Spence, J Abnorm Psy 106(2):280-297, 1997) and the Coping Scale for Children and Youth (Brodzinsky et al., J Appl Dev Psychol 13:195-214, 1992). Interview data was incorporated to help understand the process of change further. Children in the experimental condition had lower levels of anxiety, maintained at follow-up and changes were found in coping behaviours such as lower behavioural avoidance strategies but increased problem solving strategies at follow-up. Limitations of the research together with future directions are also discussed. En ligne : http://dx.doi.org/10.1007/s10803-016-2801-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=326
in Journal of Autism and Developmental Disorders > 47-12 (December 2017) . - p.3883-3895[article] School based cognitive behavioural therapy targeting anxiety in children with autistic spectrum disorder: a quasi-experimental randomised controlled trail incorporating a mixed methods approach [Texte imprimé et/ou numérique] / C. CLARKE, Auteur ; V. HILL, Auteur ; Tony CHARMAN, Auteur . - 2017 . - p.3883-3895.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 47-12 (December 2017) . - p.3883-3895
Mots-clés : Autism Cognitive behavioural therapy Coping behaviours Mixed methods Schools based interventions Index. décimale : PER Périodiques Résumé : Children with a diagnosis of autism are more likely to experience anxiety than their typically developing peers. Research suggests that Cognitive Behavioural Therapy (CBT) could offer a way to help children with autism manage their anxiety but most evidence is based on clinical trials. This study investigated a school-based CBT programme using a quasi-experimental design incorporating the child and parent versions of the Spence Children's Anxiety Scale (Spence, J Abnorm Psy 106(2):280-297, 1997) and the Coping Scale for Children and Youth (Brodzinsky et al., J Appl Dev Psychol 13:195-214, 1992). Interview data was incorporated to help understand the process of change further. Children in the experimental condition had lower levels of anxiety, maintained at follow-up and changes were found in coping behaviours such as lower behavioural avoidance strategies but increased problem solving strategies at follow-up. Limitations of the research together with future directions are also discussed. En ligne : http://dx.doi.org/10.1007/s10803-016-2801-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=326 Associations among sensory hyperresponsiveness, restricted and repetitive behaviors, and anxiety in autism: An integrated systematic review / Kathryn L. WILLIAMS in Research in Autism Spectrum Disorders, 83 (May 2021)
[article]
Titre : Associations among sensory hyperresponsiveness, restricted and repetitive behaviors, and anxiety in autism: An integrated systematic review Type de document : Texte imprimé et/ou numérique Auteurs : Kathryn L. WILLIAMS, Auteur ; Emily CAMPI, Auteur ; Grace T. BARANEK, Auteur Article en page(s) : 101763 Langues : Anglais (eng) Mots-clés : Autism Anxiety Hyperresponsiveness Restricted Repetitive behaviors Systematic review Mixed methods Index. décimale : PER Périodiques Résumé : Background Autistic individuals exhibit core and co-occurring features that can be disabling to daily functioning and impede quality of life. The combined expression of three closely related features: sensory hyperresponsiveness, restricted interests and repetitive behaviors, and anxiety, may be a sign to practitioners that experiences in the environment are particularly challenging. These are investigated through many approaches, including animal modelling, neurological or physiological measures, behavioral observation, and first-hand accounts. However, little work has been done to review evidence across approaches to better understand their expression. Method This study was an integrated systematic review to identify factors that contribute to the collective expression of three constructs of interests (COIs; hyperresponsiveness, restricted interests and repetitive behaviors, and anxiety). Twenty-two articles were analyzed for both structural and thematic patterns. This review is unique in its inclusion of articles from a variety of disciplines and grouping of studies based on similarities over methodological techniques (i.e. quantitative, qualitative, or mixed methods). Results Three overall structural approaches relating the constructs of interest were identified (parallel, relational, and contingent). Three overarching themes also emerged: 1) the broader social context, 2) predictability of environmental factors, and 3) overlap with cognitive and behavioral coping strategies. Conclusions Results highlight clinically relevant information about the combined expression of the three COIs and demonstrate possibilities for increased collaboration across disciplines through common themes and study structures to further understand the experiences of autistic people. En ligne : https://doi.org/10.1016/j.rasd.2021.101763 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445
in Research in Autism Spectrum Disorders > 83 (May 2021) . - 101763[article] Associations among sensory hyperresponsiveness, restricted and repetitive behaviors, and anxiety in autism: An integrated systematic review [Texte imprimé et/ou numérique] / Kathryn L. WILLIAMS, Auteur ; Emily CAMPI, Auteur ; Grace T. BARANEK, Auteur . - 101763.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 83 (May 2021) . - 101763
Mots-clés : Autism Anxiety Hyperresponsiveness Restricted Repetitive behaviors Systematic review Mixed methods Index. décimale : PER Périodiques Résumé : Background Autistic individuals exhibit core and co-occurring features that can be disabling to daily functioning and impede quality of life. The combined expression of three closely related features: sensory hyperresponsiveness, restricted interests and repetitive behaviors, and anxiety, may be a sign to practitioners that experiences in the environment are particularly challenging. These are investigated through many approaches, including animal modelling, neurological or physiological measures, behavioral observation, and first-hand accounts. However, little work has been done to review evidence across approaches to better understand their expression. Method This study was an integrated systematic review to identify factors that contribute to the collective expression of three constructs of interests (COIs; hyperresponsiveness, restricted interests and repetitive behaviors, and anxiety). Twenty-two articles were analyzed for both structural and thematic patterns. This review is unique in its inclusion of articles from a variety of disciplines and grouping of studies based on similarities over methodological techniques (i.e. quantitative, qualitative, or mixed methods). Results Three overall structural approaches relating the constructs of interest were identified (parallel, relational, and contingent). Three overarching themes also emerged: 1) the broader social context, 2) predictability of environmental factors, and 3) overlap with cognitive and behavioral coping strategies. Conclusions Results highlight clinically relevant information about the combined expression of the three COIs and demonstrate possibilities for increased collaboration across disciplines through common themes and study structures to further understand the experiences of autistic people. En ligne : https://doi.org/10.1016/j.rasd.2021.101763 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445 Multisystemic approaches to researching young people?s resilience: Discovering culturally and contextually sensitive accounts of thriving under adversity / Linda THERON ; Michael UNGAR in Development and Psychopathology, 35-5 (December 2023)
[article]
Titre : Multisystemic approaches to researching young people?s resilience: Discovering culturally and contextually sensitive accounts of thriving under adversity Type de document : Texte imprimé et/ou numérique Auteurs : Linda THERON, Auteur ; Michael UNGAR, Auteur Article en page(s) : p.2199-2213 Mots-clés : Resilient Youth in Stressed Environments cultural mixed methods multisystemic resilience Index. décimale : PER Périodiques Résumé : As our understanding of the process of resilience has become more culturally and contextually grounded, researchers have had to seek innovative ways to account for the complex, reciprocal relationship between the many systems that influence young people?s capacity to thrive. This paper briefly traces the history of a more contextualized understanding of resilience and then reviews a social?ecological model to explain multisystemic resilience. A case study is then used to show how a multisystemic understanding of resilience can influence the design and implementation of resilience research. The Resilient Youth in Stressed Environments study is a longitudinal mixed methods investigation of adolescents and emerging adults in communities that depend on oil and gas industries in Canada and South Africa. These communities routinely experience stress at individual, family, and institutional levels from macroeconomic factors related to boom-and-bust economic cycles. Building on the project?s methods and findings, we discuss how to create better studies of resilience which are able to capture both emic and etic accounts of positive developmental processes in ways that avoid the tendency to homogenize children?s experience. Limitations to doing multisystemic resilience research are also highlighted, with special attention to the need for further innovation. En ligne : https://dx.doi.org/10.1017/S0954579423000469 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519
in Development and Psychopathology > 35-5 (December 2023) . - p.2199-2213[article] Multisystemic approaches to researching young people?s resilience: Discovering culturally and contextually sensitive accounts of thriving under adversity [Texte imprimé et/ou numérique] / Linda THERON, Auteur ; Michael UNGAR, Auteur . - p.2199-2213.
in Development and Psychopathology > 35-5 (December 2023) . - p.2199-2213
Mots-clés : Resilient Youth in Stressed Environments cultural mixed methods multisystemic resilience Index. décimale : PER Périodiques Résumé : As our understanding of the process of resilience has become more culturally and contextually grounded, researchers have had to seek innovative ways to account for the complex, reciprocal relationship between the many systems that influence young people?s capacity to thrive. This paper briefly traces the history of a more contextualized understanding of resilience and then reviews a social?ecological model to explain multisystemic resilience. A case study is then used to show how a multisystemic understanding of resilience can influence the design and implementation of resilience research. The Resilient Youth in Stressed Environments study is a longitudinal mixed methods investigation of adolescents and emerging adults in communities that depend on oil and gas industries in Canada and South Africa. These communities routinely experience stress at individual, family, and institutional levels from macroeconomic factors related to boom-and-bust economic cycles. Building on the project?s methods and findings, we discuss how to create better studies of resilience which are able to capture both emic and etic accounts of positive developmental processes in ways that avoid the tendency to homogenize children?s experience. Limitations to doing multisystemic resilience research are also highlighted, with special attention to the need for further innovation. En ligne : https://dx.doi.org/10.1017/S0954579423000469 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519 Experience of mental health diagnosis and perceived misdiagnosis in autistic, possibly autistic and non-autistic adults / S. K. AU-YEUNG in Autism, 23-6 (August 2019)
PermalinkPerspective-taking is two-sided: Misunderstandings between people with Asperger's syndrome and their family members / B. HEASMAN in Autism, 22-6 (August 2018)
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