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Lobbying associatif : l’exemple de l’autisme / Brigitte CHAMAK in Médecine et Philosophie, 2019-1 (Juillet 2019)
[article]
Titre : Lobbying associatif : l’exemple de l’autisme Type de document : Texte imprimé et/ou numérique Auteurs : Brigitte CHAMAK, Auteur Année de publication : 2019 Article en page(s) : p.26-31 Langues : Français (fre) Mots-clés : autisme associations mobilisation activisme lobbying Index. décimale : AUT-B AUT-B - L'Autisme - Ouvrages généraux et scientifiques Résumé : Comment le système associatif contribue-t-il à façonner les représentations et les politiques publiques en matière d’autisme ? Cette question renvoie au rôle plus général des mouvements sociaux. Dans le domaine de la santé, ces mouvements participent de plus en plus à l’action publique et acquièrent une influence grandissante. Les associations de parents d’enfants autistes ont contribué à la prise de conscience du public et ont joué un rôle croissant dans les changements des représentations et des politiques publiques en matière d’autisme mais un fossé s’est creusé entre les positions adoptées par des « experts associatifs » qui pèsent sur les décisions politiques et les situations que vivent au quotidien de nombreux parents. Cet article sur le rôle des associations de parents d’enfants autistes aux États-Unis et en France vise à analyser la montée en puissance d’un lobbying associatif qui influence les autorités politiques afin d’établir de nouvelles normes en matière d’autisme. En ligne : http://medecine-philosophie.com/wp-content/uploads/2019/04/Brigitte-Chamak.pdf Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=412
in Médecine et Philosophie > 2019-1 (Juillet 2019) . - p.26-31[article] Lobbying associatif : l’exemple de l’autisme [Texte imprimé et/ou numérique] / Brigitte CHAMAK, Auteur . - 2019 . - p.26-31.
Langues : Français (fre)
in Médecine et Philosophie > 2019-1 (Juillet 2019) . - p.26-31
Mots-clés : autisme associations mobilisation activisme lobbying Index. décimale : AUT-B AUT-B - L'Autisme - Ouvrages généraux et scientifiques Résumé : Comment le système associatif contribue-t-il à façonner les représentations et les politiques publiques en matière d’autisme ? Cette question renvoie au rôle plus général des mouvements sociaux. Dans le domaine de la santé, ces mouvements participent de plus en plus à l’action publique et acquièrent une influence grandissante. Les associations de parents d’enfants autistes ont contribué à la prise de conscience du public et ont joué un rôle croissant dans les changements des représentations et des politiques publiques en matière d’autisme mais un fossé s’est creusé entre les positions adoptées par des « experts associatifs » qui pèsent sur les décisions politiques et les situations que vivent au quotidien de nombreux parents. Cet article sur le rôle des associations de parents d’enfants autistes aux États-Unis et en France vise à analyser la montée en puissance d’un lobbying associatif qui influence les autorités politiques afin d’établir de nouvelles normes en matière d’autisme. En ligne : http://medecine-philosophie.com/wp-content/uploads/2019/04/Brigitte-Chamak.pdf Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=412 Language profiles in young children with autism spectrum disorder: A community sample using multiple assessment instruments / R. NEVILL in Autism, 23-1 (January 2019)
[article]
Titre : Language profiles in young children with autism spectrum disorder: A community sample using multiple assessment instruments Type de document : Texte imprimé et/ou numérique Auteurs : R. NEVILL, Auteur ; D. HEDLEY, Auteur ; M. ULJAREVIC, Auteur ; E. SAHIN, Auteur ; J. ZADEK, Auteur ; Eric BUTTER, Auteur ; J. A. MULICK, Auteur Article en page(s) : p.141-153 Langues : Anglais (eng) Mots-clés : assessment autism spectrum disorder communication and language development Mullen scales predictors preschool children Preschool Language Scale Vineland diagnostic observation schedule joint attention preschool-children toddlers outcomes growth characterize associations impairments Psychology Index. décimale : PER Périodiques Résumé : This study investigated language profiles in a community-based sample of 104 children aged 1-3 years who had been diagnosed with autism spectrum disorder using Diagnostic and Statistical Manual of Mental Disorders (5th ed.) diagnostic criteria. Language was assessed with the Mullen scales, Preschool Language Scale, fifth edition, and Vineland-II parent-report. The study aimed to determine whether the receptive-to-expressive language profile is independent from the assessment instrument used, and whether nonverbal cognition, early communicative behaviors, and autism spectrum disorder symptoms predict language scores. Receptive-to-expressive language profiles differed between assessment instruments and reporters, and Preschool Language Scale, fifth edition profiles were also dependent on developmental level. Nonverbal cognition and joint attention significantly predicted receptive language scores, and nonverbal cognition and frequency of vocalizations predicted expressive language scores. These findings support the administration of multiple direct assessment and parent-report instruments when evaluating language in young children with autism spectrum disorder, for both research and in clinical settings. Results also support that joint attention is a useful intervention target for improving receptive language skills in young children with autism spectrum disorder. Future research comparing language profiles of young children with autism spectrum disorder to children with non-autism spectrum disorder developmental delays and typical development will add to our knowledge of early language development in children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361317726245 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=379
in Autism > 23-1 (January 2019) . - p.141-153[article] Language profiles in young children with autism spectrum disorder: A community sample using multiple assessment instruments [Texte imprimé et/ou numérique] / R. NEVILL, Auteur ; D. HEDLEY, Auteur ; M. ULJAREVIC, Auteur ; E. SAHIN, Auteur ; J. ZADEK, Auteur ; Eric BUTTER, Auteur ; J. A. MULICK, Auteur . - p.141-153.
Langues : Anglais (eng)
in Autism > 23-1 (January 2019) . - p.141-153
Mots-clés : assessment autism spectrum disorder communication and language development Mullen scales predictors preschool children Preschool Language Scale Vineland diagnostic observation schedule joint attention preschool-children toddlers outcomes growth characterize associations impairments Psychology Index. décimale : PER Périodiques Résumé : This study investigated language profiles in a community-based sample of 104 children aged 1-3 years who had been diagnosed with autism spectrum disorder using Diagnostic and Statistical Manual of Mental Disorders (5th ed.) diagnostic criteria. Language was assessed with the Mullen scales, Preschool Language Scale, fifth edition, and Vineland-II parent-report. The study aimed to determine whether the receptive-to-expressive language profile is independent from the assessment instrument used, and whether nonverbal cognition, early communicative behaviors, and autism spectrum disorder symptoms predict language scores. Receptive-to-expressive language profiles differed between assessment instruments and reporters, and Preschool Language Scale, fifth edition profiles were also dependent on developmental level. Nonverbal cognition and joint attention significantly predicted receptive language scores, and nonverbal cognition and frequency of vocalizations predicted expressive language scores. These findings support the administration of multiple direct assessment and parent-report instruments when evaluating language in young children with autism spectrum disorder, for both research and in clinical settings. Results also support that joint attention is a useful intervention target for improving receptive language skills in young children with autism spectrum disorder. Future research comparing language profiles of young children with autism spectrum disorder to children with non-autism spectrum disorder developmental delays and typical development will add to our knowledge of early language development in children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361317726245 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=379 Petite histoire de la prévention en Normandie / Annick GADOIS in Rééducation Orthophonique, 277 (Mars 2019)
[article]
Titre : Petite histoire de la prévention en Normandie Type de document : Texte imprimé et/ou numérique Auteurs : Annick GADOIS, Auteur Année de publication : 2019 Article en page(s) : p.31-38 Langues : Français (fre) Mots-clés : prévention organisation associations partage Index. décimale : PER Périodiques Résumé : Témoignage sur l’évolution de la prévention en Normandie des années soixante-dix à maintenant, montrant l’importance de l’organisation en association et la richesse du partage. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=387
in Rééducation Orthophonique > 277 (Mars 2019) . - p.31-38[article] Petite histoire de la prévention en Normandie [Texte imprimé et/ou numérique] / Annick GADOIS, Auteur . - 2019 . - p.31-38.
Langues : Français (fre)
in Rééducation Orthophonique > 277 (Mars 2019) . - p.31-38
Mots-clés : prévention organisation associations partage Index. décimale : PER Périodiques Résumé : Témoignage sur l’évolution de la prévention en Normandie des années soixante-dix à maintenant, montrant l’importance de l’organisation en association et la richesse du partage. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=387 Psychosocial and behavioural factors associated with self injurious behaviour (SIB) in individuals with autism spectrum disorders (ASD) / Katie VANDEWALLE in Research in Autism Spectrum Disorders, 81 (March 2021)
[article]
Titre : Psychosocial and behavioural factors associated with self injurious behaviour (SIB) in individuals with autism spectrum disorders (ASD) Type de document : Texte imprimé et/ou numérique Auteurs : Katie VANDEWALLE, Auteur ; Yvonne MELIA, Auteur Article en page(s) : 101713 Langues : Anglais (eng) Mots-clés : Autism ASD Self-injurious behaviour Associations Review Index. décimale : PER Périodiques Résumé : Background Self-injurious behaviour (SIB) is a persistent and distressing difficulty which may be more prevalent and enduring for individuals with an Autism Spectrum Disorder (ASD). SIB has been largely conceptualised in research as a challenging behaviour or a repetitive and restricted behaviour, rather than a unique construct to research. As its own construct, the aetiology of SIB has been conceptualised from a neurobiological perspective, however there remains a need to explore psychosocial and behavioural factors associated with SIB and ASD. A review was conducted to compile evidence and establish current understanding of this behaviour. Method 6 databases were systematically searched for research exploring factors relating specifically to SIB limited to ASD populations. Studies were critically appraised using a tool developed for the purpose of this review, adapted from the CASP, AXIS and STROBE quality appraisal tools. Results 15 studies met the eligibility criteria. SIB was found to be associated with impairments in adaptive ability, communicative ability, IQ, sleep, atypical sensory processing, and impulsivity/over-activity. There were mixed findings supporting an association between autism severity and self-injury. Conclusions The development of SIB in ASD populations is complex. The range of factors associated with SIB and ASD imply a clinical need for a robust assessment and a multi-disciplinary approach to intervention. Theoretical perspectives regarding the role of impaired behavioural inhibition, communication, and sensory processing difficulties are considered. Limitations and future research are discussed. En ligne : https://doi.org/10.1016/j.rasd.2020.101713 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=440
in Research in Autism Spectrum Disorders > 81 (March 2021) . - 101713[article] Psychosocial and behavioural factors associated with self injurious behaviour (SIB) in individuals with autism spectrum disorders (ASD) [Texte imprimé et/ou numérique] / Katie VANDEWALLE, Auteur ; Yvonne MELIA, Auteur . - 101713.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 81 (March 2021) . - 101713
Mots-clés : Autism ASD Self-injurious behaviour Associations Review Index. décimale : PER Périodiques Résumé : Background Self-injurious behaviour (SIB) is a persistent and distressing difficulty which may be more prevalent and enduring for individuals with an Autism Spectrum Disorder (ASD). SIB has been largely conceptualised in research as a challenging behaviour or a repetitive and restricted behaviour, rather than a unique construct to research. As its own construct, the aetiology of SIB has been conceptualised from a neurobiological perspective, however there remains a need to explore psychosocial and behavioural factors associated with SIB and ASD. A review was conducted to compile evidence and establish current understanding of this behaviour. Method 6 databases were systematically searched for research exploring factors relating specifically to SIB limited to ASD populations. Studies were critically appraised using a tool developed for the purpose of this review, adapted from the CASP, AXIS and STROBE quality appraisal tools. Results 15 studies met the eligibility criteria. SIB was found to be associated with impairments in adaptive ability, communicative ability, IQ, sleep, atypical sensory processing, and impulsivity/over-activity. There were mixed findings supporting an association between autism severity and self-injury. Conclusions The development of SIB in ASD populations is complex. The range of factors associated with SIB and ASD imply a clinical need for a robust assessment and a multi-disciplinary approach to intervention. Theoretical perspectives regarding the role of impaired behavioural inhibition, communication, and sensory processing difficulties are considered. Limitations and future research are discussed. En ligne : https://doi.org/10.1016/j.rasd.2020.101713 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=440