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A culturally grounded autism parent training program with Black parents / Kim KAISER in Autism, 26-3 (April 2022)
[article]
Titre : A culturally grounded autism parent training program with Black parents Type de document : Texte imprimé et/ou numérique Auteurs : Kim KAISER, Auteur ; Michele E. VILLALOBOS, Auteur ; Jill LOCKE, Auteur ; Iheoma U. IRUKA, Auteur ; Camille PROCTOR, Auteur ; Brian BOYD, Auteur Article en page(s) : p.716-726 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy Autistic Disorder/therapy Child Family Humans Parents Black families autism spectrum disorders disparities family functioning and support health services implementation science interventions?psychosocial/behavioral parent advocacy parent training qualitative research Index. décimale : PER Périodiques Résumé : Parent training programs have been well-studied in Autism Spectrum Disorders and shown to increase a parent's feeling of empowerment, advocacy skills, and treatment enrollment for their child. The majority of parent training interventions have been developed without considering the unique needs of under-represented communities, such as the Black community. Black children with autism are not only misdiagnosed or not diagnosed at all, but are not accessing services equally compared to their White peers. There is an urgent need for culturally adapted interventions in order to decrease the disparity gap. The Color of Autism Foundation developed and ran a parent training program for Black parents of children with autism. The program was grounded in two key features: (1) creating a circle of support for parents to connect and heal from ongoing and historical racial trauma and (2) using parents of Black children with autism as the main facilitators. We believe this increased parent's ability to engage in the educational aspects of the training. Overall, parents reported high levels of satisfaction with the training were highly engaged (attended an average of five of six sessions) and reported high levels of empowerment. Parents also reported continued mistrust in the medical and research community and a need for more Black providers. Further work should examine the relationship of the parent and provider in autism treatment and study the impact of circles of healing for Black families. En ligne : https://dx.doi.org/10.1177/13623613211073373 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473
in Autism > 26-3 (April 2022) . - p.716-726[article] A culturally grounded autism parent training program with Black parents [Texte imprimé et/ou numérique] / Kim KAISER, Auteur ; Michele E. VILLALOBOS, Auteur ; Jill LOCKE, Auteur ; Iheoma U. IRUKA, Auteur ; Camille PROCTOR, Auteur ; Brian BOYD, Auteur . - p.716-726.
Langues : Anglais (eng)
in Autism > 26-3 (April 2022) . - p.716-726
Mots-clés : Autism Spectrum Disorder/therapy Autistic Disorder/therapy Child Family Humans Parents Black families autism spectrum disorders disparities family functioning and support health services implementation science interventions?psychosocial/behavioral parent advocacy parent training qualitative research Index. décimale : PER Périodiques Résumé : Parent training programs have been well-studied in Autism Spectrum Disorders and shown to increase a parent's feeling of empowerment, advocacy skills, and treatment enrollment for their child. The majority of parent training interventions have been developed without considering the unique needs of under-represented communities, such as the Black community. Black children with autism are not only misdiagnosed or not diagnosed at all, but are not accessing services equally compared to their White peers. There is an urgent need for culturally adapted interventions in order to decrease the disparity gap. The Color of Autism Foundation developed and ran a parent training program for Black parents of children with autism. The program was grounded in two key features: (1) creating a circle of support for parents to connect and heal from ongoing and historical racial trauma and (2) using parents of Black children with autism as the main facilitators. We believe this increased parent's ability to engage in the educational aspects of the training. Overall, parents reported high levels of satisfaction with the training were highly engaged (attended an average of five of six sessions) and reported high levels of empowerment. Parents also reported continued mistrust in the medical and research community and a need for more Black providers. Further work should examine the relationship of the parent and provider in autism treatment and study the impact of circles of healing for Black families. En ligne : https://dx.doi.org/10.1177/13623613211073373 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 The creator did not give me more than I can handle: Exploring coping in parents of Black autistic children / Ericka M. LEWIS in Autism, 26-8 (November 2022)
[article]
Titre : The creator did not give me more than I can handle: Exploring coping in parents of Black autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Ericka M. LEWIS, Auteur ; Sarah DABABNAH, Auteur ; Kelley R. HOLLIE, Auteur ; Irang KIM, Auteur ; Yao WANG, Auteur ; Wendy E. SHAIA, Auteur Article en page(s) : p.2015-2025 Langues : Anglais (eng) Mots-clés : Child Humans Autistic Disorder Autism Spectrum Disorder Adaptation, Psychological Parents Parenting Black families Ways of Coping Questionnaire autism autism spectrum disorder coping parenting stress Index. décimale : PER Périodiques Résumé : Parents of Black autistic children use several strategies to cope with daily stressors. These strategies include seeking social support, self-care, and optimism. We asked parents about their experiences receiving treatment services for their autistic child and how they reduce parenting stress. Twenty-two parents completed a coping survey and participated in individual interviews. Few studies have explored the experiences of Black families raising autistic children, and it's important for healthcare and other systems of care to understand the role culture, race, and ethnicity play in the use of coping strategies. In our study, the majority of parents relied on social support to relieve stress and identified partners, family, and community members, as their most useful sources of support. Connecting with other parents of autistic children, through support groups and social media, also helped parents relieve stress. Parents discussed using self-care activities (e.g. church, exercising, listening to music) to cope with stressors. Several parents described how prayer and meditation helped them reframe stressful situations and gain more patience and appreciation for "what's important." The findings of this work demonstrate the need for professionals to have ongoing and deeper conversations about the ways in which parents deal with stressors. In particular, clinicians should leverage the strengths of Black families and promote strategies that are culturally informed and engaged. En ligne : http://dx.doi.org/10.1177/13623613211070865 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488
in Autism > 26-8 (November 2022) . - p.2015-2025[article] The creator did not give me more than I can handle: Exploring coping in parents of Black autistic children [Texte imprimé et/ou numérique] / Ericka M. LEWIS, Auteur ; Sarah DABABNAH, Auteur ; Kelley R. HOLLIE, Auteur ; Irang KIM, Auteur ; Yao WANG, Auteur ; Wendy E. SHAIA, Auteur . - p.2015-2025.
Langues : Anglais (eng)
in Autism > 26-8 (November 2022) . - p.2015-2025
Mots-clés : Child Humans Autistic Disorder Autism Spectrum Disorder Adaptation, Psychological Parents Parenting Black families Ways of Coping Questionnaire autism autism spectrum disorder coping parenting stress Index. décimale : PER Périodiques Résumé : Parents of Black autistic children use several strategies to cope with daily stressors. These strategies include seeking social support, self-care, and optimism. We asked parents about their experiences receiving treatment services for their autistic child and how they reduce parenting stress. Twenty-two parents completed a coping survey and participated in individual interviews. Few studies have explored the experiences of Black families raising autistic children, and it's important for healthcare and other systems of care to understand the role culture, race, and ethnicity play in the use of coping strategies. In our study, the majority of parents relied on social support to relieve stress and identified partners, family, and community members, as their most useful sources of support. Connecting with other parents of autistic children, through support groups and social media, also helped parents relieve stress. Parents discussed using self-care activities (e.g. church, exercising, listening to music) to cope with stressors. Several parents described how prayer and meditation helped them reframe stressful situations and gain more patience and appreciation for "what's important." The findings of this work demonstrate the need for professionals to have ongoing and deeper conversations about the ways in which parents deal with stressors. In particular, clinicians should leverage the strengths of Black families and promote strategies that are culturally informed and engaged. En ligne : http://dx.doi.org/10.1177/13623613211070865 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488