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Grandparents’ Experience of Autism Spectrum Disorder: Identifying Primary Themes and Needs / Jennifer L. HILLMAN in Journal of Autism and Developmental Disorders, 47-10 (October 2017)
[article]
Titre : Grandparents’ Experience of Autism Spectrum Disorder: Identifying Primary Themes and Needs Type de document : Texte imprimé et/ou numérique Auteurs : Jennifer L. HILLMAN, Auteur ; Michele C. WENTZEL, Auteur ; Connie M. ANDERSON, Auteur Article en page(s) : p.2957-2968 Langues : Anglais (eng) Mots-clés : Grandparents Autism spectrum disorder Grandchildren Resilience Depression Coping Communication Tantrums Inappropriate behavior Index. décimale : PER Périodiques Résumé : Limited information is available regarding the first person perspective of grandparents of children with Autism Spectrum Disorders (ASD). In the present study, 1870 grandparents of a child with ASD participated in a nationwide, online, anonymous, 30-minute survey and responded to open-ended questions including their “greatest challenges and greatest joys” as the grandparent of a child on the autism spectrum. A grounded theory approach to qualitative analysis revealed four overarching categories: a Desire for Connection, Barriers to Care, Celebration of Progress, and Personal Reactions. Despite the presence of significant challenges grandparents often experienced positivity in their role, and engaged in radical acceptance of their grandchild as well as transformative insight and advocacy. Specific recommendations are offered to help address grandparents’ needs and capitalize upon their resilience. En ligne : https://doi.org/10.1007/s10803-017-3211-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=319
in Journal of Autism and Developmental Disorders > 47-10 (October 2017) . - p.2957-2968[article] Grandparents’ Experience of Autism Spectrum Disorder: Identifying Primary Themes and Needs [Texte imprimé et/ou numérique] / Jennifer L. HILLMAN, Auteur ; Michele C. WENTZEL, Auteur ; Connie M. ANDERSON, Auteur . - p.2957-2968.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 47-10 (October 2017) . - p.2957-2968
Mots-clés : Grandparents Autism spectrum disorder Grandchildren Resilience Depression Coping Communication Tantrums Inappropriate behavior Index. décimale : PER Périodiques Résumé : Limited information is available regarding the first person perspective of grandparents of children with Autism Spectrum Disorders (ASD). In the present study, 1870 grandparents of a child with ASD participated in a nationwide, online, anonymous, 30-minute survey and responded to open-ended questions including their “greatest challenges and greatest joys” as the grandparent of a child on the autism spectrum. A grounded theory approach to qualitative analysis revealed four overarching categories: a Desire for Connection, Barriers to Care, Celebration of Progress, and Personal Reactions. Despite the presence of significant challenges grandparents often experienced positivity in their role, and engaged in radical acceptance of their grandchild as well as transformative insight and advocacy. Specific recommendations are offered to help address grandparents’ needs and capitalize upon their resilience. En ligne : https://doi.org/10.1007/s10803-017-3211-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=319 The Role of Grandparents in Supporting Families of Children with Autism Spectrum Disorders: A Family Systems Approach / P. PRENDEVILLE in Journal of Autism and Developmental Disorders, 49-2 (February 2019)
[article]
Titre : The Role of Grandparents in Supporting Families of Children with Autism Spectrum Disorders: A Family Systems Approach Type de document : Texte imprimé et/ou numérique Auteurs : P. PRENDEVILLE, Auteur ; W. KINSELLA, Auteur Article en page(s) : p.738-749 Langues : Anglais (eng) Mots-clés : Autism Family systems approach Family systems theory Grandfathers Grandparents Parents Index. décimale : PER Périodiques Résumé : A family systems approach is required to identify the needs of families of children with autism. This paper explores how grandparents support children with autism and their parents using a family systems perspective. A thematic analysis of eighteen semi-structured interviews was conducted with participants from nine families, capturing experiences of both parents' and grandparents'. Themes identified were family recalibrating; strengthening the family system; and current needs and future concerns of grandparents. The views of families indicated the overwhelming need to acknowledge the grandparental role in supporting families that strengthen the family system by supporting the needs of a child with autism. Findings revealed that grandfathers have a calming role in these families where children have significant behavioural difficulties. En ligne : http://dx.doi.org/10.1007/s10803-018-3753-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=382
in Journal of Autism and Developmental Disorders > 49-2 (February 2019) . - p.738-749[article] The Role of Grandparents in Supporting Families of Children with Autism Spectrum Disorders: A Family Systems Approach [Texte imprimé et/ou numérique] / P. PRENDEVILLE, Auteur ; W. KINSELLA, Auteur . - p.738-749.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 49-2 (February 2019) . - p.738-749
Mots-clés : Autism Family systems approach Family systems theory Grandfathers Grandparents Parents Index. décimale : PER Périodiques Résumé : A family systems approach is required to identify the needs of families of children with autism. This paper explores how grandparents support children with autism and their parents using a family systems perspective. A thematic analysis of eighteen semi-structured interviews was conducted with participants from nine families, capturing experiences of both parents' and grandparents'. Themes identified were family recalibrating; strengthening the family system; and current needs and future concerns of grandparents. The views of families indicated the overwhelming need to acknowledge the grandparental role in supporting families that strengthen the family system by supporting the needs of a child with autism. Findings revealed that grandfathers have a calming role in these families where children have significant behavioural difficulties. En ligne : http://dx.doi.org/10.1007/s10803-018-3753-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=382 Exploring the health of families with a child with autism / Sarah L. SMITH in Autism, 25-5 (July 2021)
[article]
Titre : Exploring the health of families with a child with autism Type de document : Texte imprimé et/ou numérique Auteurs : Sarah L. SMITH, Auteur ; Hannah B. MCQUADE, Auteur Article en page(s) : p.1203-1215 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder Autistic Disorder Child Fathers Female Grandparents Humans Male Parents autism spectrum disorders family functioning and support family health qualitative research Index. décimale : PER Périodiques Résumé : Families are important for the overall growth and development of a child. The health of a family is foundational to the everyday life in which a child and family can blossom. Families with a child with autism have a family life that has challenges for many reasons including that parents can be stressed from trying to figure out how to be a good parent for their child with autism. We wanted to know two things: (1) what is family health for families of a child with autism and (2) what affects families trying to be their healthiest. We wanted to know the answers to these questions from families themselves, including parents (not just moms), children, and children with autism, because they are the best experts. We talked to 16 families including 16 mothers, 8 fathers, and 32 children (18 with autism). Families shared that being a healthy family was a journey with ups and downs and that families were not always perfect. It helped when families knew about themselves as a family such as knowing what they liked and did not like to do, and knowing what the different people in the family needed. Families said that what helped and influenced their family's health was being together, keeping their days not too busy, stress, autism itself, having helpers like friends, grandparents, therapists, and having money to pay for services. We hope that knowing these answers will guide service providers of people with autism to think about healthy families from a holistic perspective. En ligne : http://dx.doi.org/10.1177/1362361320986354 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475
in Autism > 25-5 (July 2021) . - p.1203-1215[article] Exploring the health of families with a child with autism [Texte imprimé et/ou numérique] / Sarah L. SMITH, Auteur ; Hannah B. MCQUADE, Auteur . - p.1203-1215.
Langues : Anglais (eng)
in Autism > 25-5 (July 2021) . - p.1203-1215
Mots-clés : Autism Spectrum Disorder Autistic Disorder Child Fathers Female Grandparents Humans Male Parents autism spectrum disorders family functioning and support family health qualitative research Index. décimale : PER Périodiques Résumé : Families are important for the overall growth and development of a child. The health of a family is foundational to the everyday life in which a child and family can blossom. Families with a child with autism have a family life that has challenges for many reasons including that parents can be stressed from trying to figure out how to be a good parent for their child with autism. We wanted to know two things: (1) what is family health for families of a child with autism and (2) what affects families trying to be their healthiest. We wanted to know the answers to these questions from families themselves, including parents (not just moms), children, and children with autism, because they are the best experts. We talked to 16 families including 16 mothers, 8 fathers, and 32 children (18 with autism). Families shared that being a healthy family was a journey with ups and downs and that families were not always perfect. It helped when families knew about themselves as a family such as knowing what they liked and did not like to do, and knowing what the different people in the family needed. Families said that what helped and influenced their family's health was being together, keeping their days not too busy, stress, autism itself, having helpers like friends, grandparents, therapists, and having money to pay for services. We hope that knowing these answers will guide service providers of people with autism to think about healthy families from a holistic perspective. En ligne : http://dx.doi.org/10.1177/1362361320986354 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 Exploring the health of families with a child with autism / Sarah L. SMITH in Autism, 26-5 (July 2022)
[article]
Titre : Exploring the health of families with a child with autism Type de document : Texte imprimé et/ou numérique Auteurs : Sarah L. SMITH, Auteur ; Hannah B. MCQUADE, Auteur Article en page(s) : p.1203-1215 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder Autistic Disorder Child Fathers Female Grandparents Humans Male Parents autism spectrum disorders family functioning and support family health qualitative research Index. décimale : PER Périodiques Résumé : Families are important for the overall growth and development of a child. The health of a family is foundational to the everyday life in which a child and family can blossom. Families with a child with autism have a family life that has challenges for many reasons including that parents can be stressed from trying to figure out how to be a good parent for their child with autism. We wanted to know two things: (1) what is family health for families of a child with autism and (2) what affects families trying to be their healthiest. We wanted to know the answers to these questions from families themselves, including parents (not just moms), children, and children with autism, because they are the best experts. We talked to 16 families including 16 mothers, 8 fathers, and 32 children (18 with autism). Families shared that being a healthy family was a journey with ups and downs and that families were not always perfect. It helped when families knew about themselves as a family such as knowing what they liked and did not like to do, and knowing what the different people in the family needed. Families said that what helped and influenced their family's health was being together, keeping their days not too busy, stress, autism itself, having helpers like friends, grandparents, therapists, and having money to pay for services. We hope that knowing these answers will guide service providers of people with autism to think about healthy families from a holistic perspective. En ligne : http://dx.doi.org/10.1177/1362361320986354 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483
in Autism > 26-5 (July 2022) . - p.1203-1215[article] Exploring the health of families with a child with autism [Texte imprimé et/ou numérique] / Sarah L. SMITH, Auteur ; Hannah B. MCQUADE, Auteur . - p.1203-1215.
Langues : Anglais (eng)
in Autism > 26-5 (July 2022) . - p.1203-1215
Mots-clés : Autism Spectrum Disorder Autistic Disorder Child Fathers Female Grandparents Humans Male Parents autism spectrum disorders family functioning and support family health qualitative research Index. décimale : PER Périodiques Résumé : Families are important for the overall growth and development of a child. The health of a family is foundational to the everyday life in which a child and family can blossom. Families with a child with autism have a family life that has challenges for many reasons including that parents can be stressed from trying to figure out how to be a good parent for their child with autism. We wanted to know two things: (1) what is family health for families of a child with autism and (2) what affects families trying to be their healthiest. We wanted to know the answers to these questions from families themselves, including parents (not just moms), children, and children with autism, because they are the best experts. We talked to 16 families including 16 mothers, 8 fathers, and 32 children (18 with autism). Families shared that being a healthy family was a journey with ups and downs and that families were not always perfect. It helped when families knew about themselves as a family such as knowing what they liked and did not like to do, and knowing what the different people in the family needed. Families said that what helped and influenced their family's health was being together, keeping their days not too busy, stress, autism itself, having helpers like friends, grandparents, therapists, and having money to pay for services. We hope that knowing these answers will guide service providers of people with autism to think about healthy families from a holistic perspective. En ligne : http://dx.doi.org/10.1177/1362361320986354 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 Grandma knows best: Family structure and age of diagnosis of autism spectrum disorder / N. SICHERMAN in Autism, 22-3 (April 2018)
[article]
Titre : Grandma knows best: Family structure and age of diagnosis of autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : N. SICHERMAN, Auteur ; G. LOEWENSTEIN, Auteur ; Teresa TAVASSOLI, Auteur ; Joseph D. BUXBAUM, Auteur Article en page(s) : p.368-376 Langues : Anglais (eng) Mots-clés : age of diagnosis autism family structure grandparents siblings Index. décimale : PER Périodiques Résumé : This pilot study estimates the effects of family structure on age of diagnosis, with the goal of identifying factors that may accelerate or delay diagnosis. We conducted an online survey with 477 parents of children with autism. In addition, we carried out novel, follow-up surveys of 196 "friends and family," who were referred by parents. Family structure and frequency of interactions with family members have significant effects on age of diagnosis (p < 0.05). In all, 25% of parents report that other individuals indicated that their child might have a serious condition before they themselves suspected it. Moreover, around 50% of friends and family report that they suspected that the child had a serious condition before they were aware that either parent was concerned, suggesting that the clues were there to see, especially for experienced viewers. While half of those individuals shared their concerns with the parents, the other half either did not raise any concern (23%) or just "hinted" at their concern (27%). Among children with siblings, children with an older sibling are diagnosed approximately 10 months earlier (p < 0.01) than those without, and children with no siblings were diagnosed 6-8 months earlier than children with siblings (p < 0.01). Interestingly, frequent interactions with grandparents, especially grandmothers, significantly lowered the age of diagnosis by as much as 5 months (p < 0.05). While this pilot study requires replication, the results identify potential causes for accelerated or delayed diagnosis, which if better understood, could ultimately improve age of diagnosis and treatment, and hence outcomes. En ligne : http://dx.doi.org/10.1177/1362361316679632 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=358
in Autism > 22-3 (April 2018) . - p.368-376[article] Grandma knows best: Family structure and age of diagnosis of autism spectrum disorder [Texte imprimé et/ou numérique] / N. SICHERMAN, Auteur ; G. LOEWENSTEIN, Auteur ; Teresa TAVASSOLI, Auteur ; Joseph D. BUXBAUM, Auteur . - p.368-376.
Langues : Anglais (eng)
in Autism > 22-3 (April 2018) . - p.368-376
Mots-clés : age of diagnosis autism family structure grandparents siblings Index. décimale : PER Périodiques Résumé : This pilot study estimates the effects of family structure on age of diagnosis, with the goal of identifying factors that may accelerate or delay diagnosis. We conducted an online survey with 477 parents of children with autism. In addition, we carried out novel, follow-up surveys of 196 "friends and family," who were referred by parents. Family structure and frequency of interactions with family members have significant effects on age of diagnosis (p < 0.05). In all, 25% of parents report that other individuals indicated that their child might have a serious condition before they themselves suspected it. Moreover, around 50% of friends and family report that they suspected that the child had a serious condition before they were aware that either parent was concerned, suggesting that the clues were there to see, especially for experienced viewers. While half of those individuals shared their concerns with the parents, the other half either did not raise any concern (23%) or just "hinted" at their concern (27%). Among children with siblings, children with an older sibling are diagnosed approximately 10 months earlier (p < 0.01) than those without, and children with no siblings were diagnosed 6-8 months earlier than children with siblings (p < 0.01). Interestingly, frequent interactions with grandparents, especially grandmothers, significantly lowered the age of diagnosis by as much as 5 months (p < 0.05). While this pilot study requires replication, the results identify potential causes for accelerated or delayed diagnosis, which if better understood, could ultimately improve age of diagnosis and treatment, and hence outcomes. En ligne : http://dx.doi.org/10.1177/1362361316679632 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=358