Centre d'Information et de documentation du CRA Rhône-Alpes
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Information, Advocacy and Signposting as a Low-Level Support for Adults with High-Functioning Autism Spectrum Disorder: An Example from the UK / K. SOUTHBY in Journal of Autism and Developmental Disorders, 48-2 (February 2018)
[article]
Titre : Information, Advocacy and Signposting as a Low-Level Support for Adults with High-Functioning Autism Spectrum Disorder: An Example from the UK Type de document : Texte imprimé et/ou numérique Auteurs : K. SOUTHBY, Auteur ; O. ROBINSON, Auteur Article en page(s) : p.511-519 Langues : Anglais (eng) Mots-clés : Adults Autism spectrum disorder Health and social care High functioning Support Index. décimale : PER Périodiques Résumé : 'Low-level' support is championed to support adults with high functioning autism spectrum disorder (HFASD) to achieve good quality health and social care, yet research in the area is sparse. Drawing on semi-structured interview data, this paper considers the efficacy of an intervention to provide low-level support to adults with HFASD with little or no funded support. The intervention led to a number of perceived positive outcomes for adults with HFASD, their families, and service providers in the city, including increased access to education, volunteering, support and information, socialising, improved health and wellbeing, and managing day-to-day. Although many of life's difficulties still persisted, the intervention helped service users overcome barriers to availing further support, possibly leading to beneficial outcomes down the line. En ligne : https://doi.org/10.1007/s10803-017-3331-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=337
in Journal of Autism and Developmental Disorders > 48-2 (February 2018) . - p.511-519[article] Information, Advocacy and Signposting as a Low-Level Support for Adults with High-Functioning Autism Spectrum Disorder: An Example from the UK [Texte imprimé et/ou numérique] / K. SOUTHBY, Auteur ; O. ROBINSON, Auteur . - p.511-519.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-2 (February 2018) . - p.511-519
Mots-clés : Adults Autism spectrum disorder Health and social care High functioning Support Index. décimale : PER Périodiques Résumé : 'Low-level' support is championed to support adults with high functioning autism spectrum disorder (HFASD) to achieve good quality health and social care, yet research in the area is sparse. Drawing on semi-structured interview data, this paper considers the efficacy of an intervention to provide low-level support to adults with HFASD with little or no funded support. The intervention led to a number of perceived positive outcomes for adults with HFASD, their families, and service providers in the city, including increased access to education, volunteering, support and information, socialising, improved health and wellbeing, and managing day-to-day. Although many of life's difficulties still persisted, the intervention helped service users overcome barriers to availing further support, possibly leading to beneficial outcomes down the line. En ligne : https://doi.org/10.1007/s10803-017-3331-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=337 “This may be a really good opportunity to make the world a more autism friendly place”: Professionals’ perspectives on the effects of COVID-19 on autistic individuals / Debbie SPAIN in Research in Autism Spectrum Disorders, 83 (May 2021)
[article]
Titre : “This may be a really good opportunity to make the world a more autism friendly place”: Professionals’ perspectives on the effects of COVID-19 on autistic individuals Type de document : Texte imprimé et/ou numérique Auteurs : Debbie SPAIN, Auteur ; David MASON, Auteur ; Simone J CAPP, Auteur ; Laura STOPPELBEIN, Auteur ; Susan W. WHITE, Auteur ; Francesca HAPPE, Auteur Article en page(s) : 101747 Langues : Anglais (eng) Mots-clés : Autism COVID-19 Health professionals Health and social care Telehealth Index. décimale : PER Périodiques Résumé : Background The COVID-19 (C-19) pandemic affects everyone. Autistic individuals may be at increased risk of experiencing difficulties coping with the impact of C-19 (e.g. due to unexpected changes to usual activities and routines, and the general sense of uncertainty). This preliminary study gathered the perspectives of health and social care professionals, and researchers, about: (1) vulnerability factors for coping with the pandemic; (2) the impact of the pandemic; (3) service provision during the pandemic; and (4) interventions to support reintegration during and post the pandemic. Method We conducted an online survey, comprising Likert-scale and free text responses. Quantitative data were analysed descriptively, and qualitative data thematically. Results Thirty-seven participants, working in clinical, education and academic settings with autistic individuals, completed the survey. C-19 had substantially impacted service provision, causing major disruption or loss of services. Thematic analysis indicated six overarching themes: (1) vulnerability factors for coping with C-19 and lockdown; (2) positive and negative impact of lockdown (for autistic individuals, families and professionals); (3) public health response to C-19; (4) service provision during the pandemic; (5) inequalities; and (6) looking to the future. Conclusions Professionals, across disciplines and settings, must now work together with autistic individuals and their families, to understand the impact of these extraordinary circumstances and develop ways everyone can be supported more effectively. En ligne : https://doi.org/10.1016/j.rasd.2021.101747 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=446
in Research in Autism Spectrum Disorders > 83 (May 2021) . - 101747[article] “This may be a really good opportunity to make the world a more autism friendly place”: Professionals’ perspectives on the effects of COVID-19 on autistic individuals [Texte imprimé et/ou numérique] / Debbie SPAIN, Auteur ; David MASON, Auteur ; Simone J CAPP, Auteur ; Laura STOPPELBEIN, Auteur ; Susan W. WHITE, Auteur ; Francesca HAPPE, Auteur . - 101747.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 83 (May 2021) . - 101747
Mots-clés : Autism COVID-19 Health professionals Health and social care Telehealth Index. décimale : PER Périodiques Résumé : Background The COVID-19 (C-19) pandemic affects everyone. Autistic individuals may be at increased risk of experiencing difficulties coping with the impact of C-19 (e.g. due to unexpected changes to usual activities and routines, and the general sense of uncertainty). This preliminary study gathered the perspectives of health and social care professionals, and researchers, about: (1) vulnerability factors for coping with the pandemic; (2) the impact of the pandemic; (3) service provision during the pandemic; and (4) interventions to support reintegration during and post the pandemic. Method We conducted an online survey, comprising Likert-scale and free text responses. Quantitative data were analysed descriptively, and qualitative data thematically. Results Thirty-seven participants, working in clinical, education and academic settings with autistic individuals, completed the survey. C-19 had substantially impacted service provision, causing major disruption or loss of services. Thematic analysis indicated six overarching themes: (1) vulnerability factors for coping with C-19 and lockdown; (2) positive and negative impact of lockdown (for autistic individuals, families and professionals); (3) public health response to C-19; (4) service provision during the pandemic; (5) inequalities; and (6) looking to the future. Conclusions Professionals, across disciplines and settings, must now work together with autistic individuals and their families, to understand the impact of these extraordinary circumstances and develop ways everyone can be supported more effectively. En ligne : https://doi.org/10.1016/j.rasd.2021.101747 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=446