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Differences in Cognition and Behaviour in Multiplex and Simplex Autism: Does Prior Experience Raising a Child with Autism Matter? / D. BERENDS in Journal of Autism and Developmental Disorders, 49-8 (August 2019)
[article]
Titre : Differences in Cognition and Behaviour in Multiplex and Simplex Autism: Does Prior Experience Raising a Child with Autism Matter? Type de document : Texte imprimé et/ou numérique Auteurs : D. BERENDS, Auteur ; Cheryl DISSANAYAKE, Auteur ; L. P. LAWSON, Auteur Article en page(s) : p.3401-3411 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Cognition Multiplex Parent experience Simplex Index. décimale : PER Périodiques Résumé : Previous research has found multiplex (MPX) children have an advantage in cognition compared to simplex (SPX) children. However, MPX parent's previous experience with older diagnosed siblings has not been considered. We used a large database sample to investigate the MPX advantage and contribution of birth order. Children from the Autism Genetic Resource Exchange (AGRE) were stratified into first- (MPX(1), n = 152) and second-affected MPX (MPX(2), n = 143), SPX (n = 111), and only-child SPX (SPX(OC), n = 23) groups. Both MPX groups had higher cognitive scores compared to SPX groups, with no differences between MPX(1) and MPX(2) groups. No differences were found for autism symptoms or adaptive behaviour. These results suggest parent experience due to birth order is an unlikely contributor to the MPX cognitive advantage. En ligne : http://dx.doi.org/10.1007/s10803-019-04052-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403
in Journal of Autism and Developmental Disorders > 49-8 (August 2019) . - p.3401-3411[article] Differences in Cognition and Behaviour in Multiplex and Simplex Autism: Does Prior Experience Raising a Child with Autism Matter? [Texte imprimé et/ou numérique] / D. BERENDS, Auteur ; Cheryl DISSANAYAKE, Auteur ; L. P. LAWSON, Auteur . - p.3401-3411.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 49-8 (August 2019) . - p.3401-3411
Mots-clés : Autism spectrum disorder Cognition Multiplex Parent experience Simplex Index. décimale : PER Périodiques Résumé : Previous research has found multiplex (MPX) children have an advantage in cognition compared to simplex (SPX) children. However, MPX parent's previous experience with older diagnosed siblings has not been considered. We used a large database sample to investigate the MPX advantage and contribution of birth order. Children from the Autism Genetic Resource Exchange (AGRE) were stratified into first- (MPX(1), n = 152) and second-affected MPX (MPX(2), n = 143), SPX (n = 111), and only-child SPX (SPX(OC), n = 23) groups. Both MPX groups had higher cognitive scores compared to SPX groups, with no differences between MPX(1) and MPX(2) groups. No differences were found for autism symptoms or adaptive behaviour. These results suggest parent experience due to birth order is an unlikely contributor to the MPX cognitive advantage. En ligne : http://dx.doi.org/10.1007/s10803-019-04052-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403 Parent reflections of experiences of participating in a randomized controlled trial of a behavioral intervention for infants at risk of autism spectrum disorders / Ashley C. FREULER in Autism, 18-5 (July 2014)
[article]
Titre : Parent reflections of experiences of participating in a randomized controlled trial of a behavioral intervention for infants at risk of autism spectrum disorders Type de document : Texte imprimé et/ou numérique Auteurs : Ashley C. FREULER, Auteur ; Grace T. BARANEK, Auteur ; Christene TASHJIAN, Auteur ; Linda R. WATSON, Auteur ; Elizabeth R. CRAIS, Auteur ; Lauren M. TURNER-BROWN, Auteur Article en page(s) : p.519-528 Langues : Anglais (eng) Mots-clés : autism early intervention parent experience qualitative Index. décimale : PER Périodiques Résumé : Background: Despite the mounting evidence of efficacy of early intervention for children with autism spectrum disorders, there is little research that considers the various perceptions and resources with which parents respond to the pressures and opportunities associated with participation in early intervention. Research is particularly lacking surrounding experiences of parents with infants who are at risk of autism spectrum disorders but do not (yet) have a diagnosed condition.Objectives: This qualitative study aimed to explore the experiences of caregivers following their participation in a randomized controlled trial of Adapted Responsive Teaching, a parent–infant relationship-focused intervention for infants at risk of autism spectrum disorders in a community sample. Parents were randomized into either the treatment group, in which they participated in the Adapted Responsive Teaching intervention, or the community services group, in which they were provided with information regarding local early intervention services and were encouraged, but not required to, seek community services as part of their inclusion in the randomized controlled trial.Methods: Semistructured interviews were conducted with families following the completion of the randomized controlled trial. Participants consisted of 13 mothers and 4 fathers. Five dyads were interviewed together for a total of 14 families. Child ages ranged from 39 to 46 months at the time of interview. Analysis was conducted on 14 interviews from 10 families who were randomized into the treatment group and 4 families randomized into the community services group. Analysis was informed by a thematic analysis approach, which involved a systematic process of coding and theme identification both across and within groups.Results: Themes that emerged across groups included Working against all odds, Value of the personal relationship, Getting the ball rolling, and Getting dad on board. One broad theme represented the data within the groups: Win-win (Adapted Responsive Teaching group) and Navigating amidst ambiguity (community services group).Conclusions: This study illuminates the personal experiences and contextual influences affecting families who are participating in the randomized controlled trial through early identification of “risk” status for autism spectrum disorders in their infants. Insights gained from these interviews may serve to refine and enhance intervention models and to enhance early intervention services for families. En ligne : http://dx.doi.org/10.1177/1362361313483928 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=233
in Autism > 18-5 (July 2014) . - p.519-528[article] Parent reflections of experiences of participating in a randomized controlled trial of a behavioral intervention for infants at risk of autism spectrum disorders [Texte imprimé et/ou numérique] / Ashley C. FREULER, Auteur ; Grace T. BARANEK, Auteur ; Christene TASHJIAN, Auteur ; Linda R. WATSON, Auteur ; Elizabeth R. CRAIS, Auteur ; Lauren M. TURNER-BROWN, Auteur . - p.519-528.
Langues : Anglais (eng)
in Autism > 18-5 (July 2014) . - p.519-528
Mots-clés : autism early intervention parent experience qualitative Index. décimale : PER Périodiques Résumé : Background: Despite the mounting evidence of efficacy of early intervention for children with autism spectrum disorders, there is little research that considers the various perceptions and resources with which parents respond to the pressures and opportunities associated with participation in early intervention. Research is particularly lacking surrounding experiences of parents with infants who are at risk of autism spectrum disorders but do not (yet) have a diagnosed condition.Objectives: This qualitative study aimed to explore the experiences of caregivers following their participation in a randomized controlled trial of Adapted Responsive Teaching, a parent–infant relationship-focused intervention for infants at risk of autism spectrum disorders in a community sample. Parents were randomized into either the treatment group, in which they participated in the Adapted Responsive Teaching intervention, or the community services group, in which they were provided with information regarding local early intervention services and were encouraged, but not required to, seek community services as part of their inclusion in the randomized controlled trial.Methods: Semistructured interviews were conducted with families following the completion of the randomized controlled trial. Participants consisted of 13 mothers and 4 fathers. Five dyads were interviewed together for a total of 14 families. Child ages ranged from 39 to 46 months at the time of interview. Analysis was conducted on 14 interviews from 10 families who were randomized into the treatment group and 4 families randomized into the community services group. Analysis was informed by a thematic analysis approach, which involved a systematic process of coding and theme identification both across and within groups.Results: Themes that emerged across groups included Working against all odds, Value of the personal relationship, Getting the ball rolling, and Getting dad on board. One broad theme represented the data within the groups: Win-win (Adapted Responsive Teaching group) and Navigating amidst ambiguity (community services group).Conclusions: This study illuminates the personal experiences and contextual influences affecting families who are participating in the randomized controlled trial through early identification of “risk” status for autism spectrum disorders in their infants. Insights gained from these interviews may serve to refine and enhance intervention models and to enhance early intervention services for families. En ligne : http://dx.doi.org/10.1177/1362361313483928 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=233 Predicting the Outcomes of Parents of Transition-Age Youth or Young Adults with ASD / Venus WONG in Journal of Autism and Developmental Disorders, 50-8 (August 2020)
[article]
Titre : Predicting the Outcomes of Parents of Transition-Age Youth or Young Adults with ASD Type de document : Texte imprimé et/ou numérique Auteurs : Venus WONG, Auteur ; John MCGREW, Auteur ; Lisa RUBLE, Auteur Article en page(s) : p.2723-2739 Langues : Anglais (eng) Mots-clés : Family outcomes Family-centered support Parent experience Transition-aged adolescents with ASD Young adults with ASD Index. décimale : PER Périodiques Résumé : The transition outcomes for individuals with autism spectrum disorder (ASD) and their families are less than desirable. A survey of parent stressors, resources, coping/appraisals, and adaptation to transition was completed by 226 parents. The mediating mechanisms between stressors and parent outcomes were identified. At the indicator level, three stressors (i.e., autism severity, mental health crisis/challenging behaviors, and filial obligation), four resources (i.e., general social support, transition planning quality, parent-teacher alliance, and parenting efficacy), and three coping styles (i.e., problem-focused coping, avoidance-focused coping, and optimism) predicted parents' outcomes (i.e., burden, transition experience, subjective health, and quality of life). At the structural level, optimism, emotion-coping strategies, and resources mediated the relationships between stressors and parental outcomes. Research and practical applications are discussed. En ligne : http://dx.doi.org/10.1007/s10803-020-04362-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428
in Journal of Autism and Developmental Disorders > 50-8 (August 2020) . - p.2723-2739[article] Predicting the Outcomes of Parents of Transition-Age Youth or Young Adults with ASD [Texte imprimé et/ou numérique] / Venus WONG, Auteur ; John MCGREW, Auteur ; Lisa RUBLE, Auteur . - p.2723-2739.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 50-8 (August 2020) . - p.2723-2739
Mots-clés : Family outcomes Family-centered support Parent experience Transition-aged adolescents with ASD Young adults with ASD Index. décimale : PER Périodiques Résumé : The transition outcomes for individuals with autism spectrum disorder (ASD) and their families are less than desirable. A survey of parent stressors, resources, coping/appraisals, and adaptation to transition was completed by 226 parents. The mediating mechanisms between stressors and parent outcomes were identified. At the indicator level, three stressors (i.e., autism severity, mental health crisis/challenging behaviors, and filial obligation), four resources (i.e., general social support, transition planning quality, parent-teacher alliance, and parenting efficacy), and three coping styles (i.e., problem-focused coping, avoidance-focused coping, and optimism) predicted parents' outcomes (i.e., burden, transition experience, subjective health, and quality of life). At the structural level, optimism, emotion-coping strategies, and resources mediated the relationships between stressors and parental outcomes. Research and practical applications are discussed. En ligne : http://dx.doi.org/10.1007/s10803-020-04362-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428 “We are mama and papa bears”: A qualitative study of parents’ adaptation process during transition to adulthood / Venus WONG in Research in Autism Spectrum Disorders, 79 (November 2020)
[article]
Titre : “We are mama and papa bears”: A qualitative study of parents’ adaptation process during transition to adulthood Type de document : Texte imprimé et/ou numérique Auteurs : Venus WONG, Auteur ; Lisa RUBLE, Auteur ; Laura BROWN, Auteur Article en page(s) : 101650 Langues : Anglais (eng) Mots-clés : Family outcomes Family-centered support Parent experience Transition-aged adolescents with ASD Young adults with ASD Index. décimale : PER Périodiques Résumé : This qualitative study aimed to understand the stressors, external and internal support, coping strategies, and family adaptation outcomes during transition, from a parent’s perspective, using the ABCX model (McCubbin & McCubbin, 1993). Thirteen parents of adolescents and young adults with ASD were interviewed. These parents reported a continually high level of stress due to normative strains and ASD-related demands. They described the tangible, emotional, informational, and internal resources received and needed. Parents, as active agents in their children’s lives, have their own views towards transition, philosophy, and ways of coping. Even though many of them reported negative experiences, these parents also found new meanings and happiness in their lives. This study detailed the adaptation process during transition. En ligne : https://doi.org/10.1016/j.rasd.2020.101650 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434
in Research in Autism Spectrum Disorders > 79 (November 2020) . - 101650[article] “We are mama and papa bears”: A qualitative study of parents’ adaptation process during transition to adulthood [Texte imprimé et/ou numérique] / Venus WONG, Auteur ; Lisa RUBLE, Auteur ; Laura BROWN, Auteur . - 101650.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 79 (November 2020) . - 101650
Mots-clés : Family outcomes Family-centered support Parent experience Transition-aged adolescents with ASD Young adults with ASD Index. décimale : PER Périodiques Résumé : This qualitative study aimed to understand the stressors, external and internal support, coping strategies, and family adaptation outcomes during transition, from a parent’s perspective, using the ABCX model (McCubbin & McCubbin, 1993). Thirteen parents of adolescents and young adults with ASD were interviewed. These parents reported a continually high level of stress due to normative strains and ASD-related demands. They described the tangible, emotional, informational, and internal resources received and needed. Parents, as active agents in their children’s lives, have their own views towards transition, philosophy, and ways of coping. Even though many of them reported negative experiences, these parents also found new meanings and happiness in their lives. This study detailed the adaptation process during transition. En ligne : https://doi.org/10.1016/j.rasd.2020.101650 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434