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Evaluation of a Records-Review Surveillance System Used to Determine the Prevalence of Autism Spectrum Disorders / Rachel NONKIN AVCHEN in Journal of Autism and Developmental Disorders, 41-2 (February 2011)
[article]
Titre : Evaluation of a Records-Review Surveillance System Used to Determine the Prevalence of Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Rachel NONKIN AVCHEN, Auteur ; Lisa D. WIGGINS, Auteur ; Owen DEVINE, Auteur ; Kim VAN NAARDEN BRAUN, Auteur ; Catherine E. RICE, Auteur ; Nancy C. HOBSON, Auteur ; Diana SCHENDEL, Auteur ; Marshalyn YEARGIN-ALLSOPP, Auteur Année de publication : 2011 Article en page(s) : p.227-236 Langues : Anglais (eng) Mots-clés : Autism Surveillance Sensitivity Specificity Prevalence Index. décimale : PER Périodiques Résumé : We conducted the first study that estimates the sensitivity, specificity, positive predictive value (PPV), and negative predictive value (NPV) of a population-based autism spectrum disorders (ASD) surveillance system developed at the Centers for Disease Control and Prevention. The system employs a records-review methodology that yields ASD classification (case versus non-ASD case) and was compared with classification based on clinical examination. The study enrolled 177 children. Estimated specificity (0.96, [CI.95 = 0.94, 0.99]), PPV (0.79 [CI.95 = 0.66, 0.93]), and NPV (0.91 [CI.95 = 0.87, 0.96]) were high. Sensitivity was lower (0.60 [CI.95 = 0.45, 0.75]). Given diagnostic heterogeneity, and the broad array of ASD in the population, identifying children with ASD is challenging. Records-based surveillance yields a population-based estimate of ASD that is likely conservative. En ligne : http://dx.doi.org/10.1007/s10803-010-1050-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=117
in Journal of Autism and Developmental Disorders > 41-2 (February 2011) . - p.227-236[article] Evaluation of a Records-Review Surveillance System Used to Determine the Prevalence of Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Rachel NONKIN AVCHEN, Auteur ; Lisa D. WIGGINS, Auteur ; Owen DEVINE, Auteur ; Kim VAN NAARDEN BRAUN, Auteur ; Catherine E. RICE, Auteur ; Nancy C. HOBSON, Auteur ; Diana SCHENDEL, Auteur ; Marshalyn YEARGIN-ALLSOPP, Auteur . - 2011 . - p.227-236.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 41-2 (February 2011) . - p.227-236
Mots-clés : Autism Surveillance Sensitivity Specificity Prevalence Index. décimale : PER Périodiques Résumé : We conducted the first study that estimates the sensitivity, specificity, positive predictive value (PPV), and negative predictive value (NPV) of a population-based autism spectrum disorders (ASD) surveillance system developed at the Centers for Disease Control and Prevention. The system employs a records-review methodology that yields ASD classification (case versus non-ASD case) and was compared with classification based on clinical examination. The study enrolled 177 children. Estimated specificity (0.96, [CI.95 = 0.94, 0.99]), PPV (0.79 [CI.95 = 0.66, 0.93]), and NPV (0.91 [CI.95 = 0.87, 0.96]) were high. Sensitivity was lower (0.60 [CI.95 = 0.45, 0.75]). Given diagnostic heterogeneity, and the broad array of ASD in the population, identifying children with ASD is challenging. Records-based surveillance yields a population-based estimate of ASD that is likely conservative. En ligne : http://dx.doi.org/10.1007/s10803-010-1050-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=117 Short report: Improving record–review surveillance of young children with an autism spectrum disorder / Lisa D. WIGGINS in Autism, 17-5 (September 2013)
[article]
Titre : Short report: Improving record–review surveillance of young children with an autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Lisa D. WIGGINS, Auteur ; Diana L. ROBINS, Auteur ; Marshalyn YEARGIN-ALLSOPP, Auteur Article en page(s) : p.623-629 Langues : Anglais (eng) Mots-clés : autism spectrum disorder early identification surveillance Index. décimale : PER Périodiques Résumé : Introduction: Records-based autism spectrum disorder surveillance developed at the Centers for Disease Control and Prevention has been extended to younger cohorts, although the utility of additional record sources has not been examined. We therefore conducted a pilot project to describe whether Centers for Disease Control and Prevention surveillance could identify younger children with an autism spectrum disorder evaluated as part of an ongoing screening study at Georgia State University.Methods: In all, 31 families of children who screened positive for autism spectrum disorder and received a clinical evaluation at Georgia State University agreed to participate in the project. Of these, 10 children lived inside the surveillance area and had records abstracted and reviewed for this project. Centers for Disease Control and Prevention surveillance results (i.e. autism spectrum disorder or non-autism spectrum disorder) were compared with Georgia State University evaluation results (i.e. autism spectrum disorder or non-autism spectrum disorder).Results: In all, 4 of the 10 children were diagnosed with an autism spectrum disorder after the Georgia State University evaluation. None of the 4 children with an autism spectrum disorder were identified by current Centers for Disease Control and Prevention surveillance methods but all 4 children were identified by Centers for Disease Control and Prevention surveillance methods when additional record sources were included (i.e. records from the statewide early intervention program and Georgia State University evaluation).Conclusion: These findings suggest that partnering with early intervention programs and encouraging early autism spectrum disorder screening might improve autism spectrum disorder surveillance among young children. En ligne : http://dx.doi.org/10.1177/1362361312452161 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=211
in Autism > 17-5 (September 2013) . - p.623-629[article] Short report: Improving record–review surveillance of young children with an autism spectrum disorder [Texte imprimé et/ou numérique] / Lisa D. WIGGINS, Auteur ; Diana L. ROBINS, Auteur ; Marshalyn YEARGIN-ALLSOPP, Auteur . - p.623-629.
Langues : Anglais (eng)
in Autism > 17-5 (September 2013) . - p.623-629
Mots-clés : autism spectrum disorder early identification surveillance Index. décimale : PER Périodiques Résumé : Introduction: Records-based autism spectrum disorder surveillance developed at the Centers for Disease Control and Prevention has been extended to younger cohorts, although the utility of additional record sources has not been examined. We therefore conducted a pilot project to describe whether Centers for Disease Control and Prevention surveillance could identify younger children with an autism spectrum disorder evaluated as part of an ongoing screening study at Georgia State University.Methods: In all, 31 families of children who screened positive for autism spectrum disorder and received a clinical evaluation at Georgia State University agreed to participate in the project. Of these, 10 children lived inside the surveillance area and had records abstracted and reviewed for this project. Centers for Disease Control and Prevention surveillance results (i.e. autism spectrum disorder or non-autism spectrum disorder) were compared with Georgia State University evaluation results (i.e. autism spectrum disorder or non-autism spectrum disorder).Results: In all, 4 of the 10 children were diagnosed with an autism spectrum disorder after the Georgia State University evaluation. None of the 4 children with an autism spectrum disorder were identified by current Centers for Disease Control and Prevention surveillance methods but all 4 children were identified by Centers for Disease Control and Prevention surveillance methods when additional record sources were included (i.e. records from the statewide early intervention program and Georgia State University evaluation).Conclusion: These findings suggest that partnering with early intervention programs and encouraging early autism spectrum disorder screening might improve autism spectrum disorder surveillance among young children. En ligne : http://dx.doi.org/10.1177/1362361312452161 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=211 Birth Prevalence of Autism Spectrum Disorders in the San Francisco Bay Area by Demographic and Ascertainment Source Characteristics / Gayle C. WINDHAM in Journal of Autism and Developmental Disorders, 41-10 (October 2011)
[article]
Titre : Birth Prevalence of Autism Spectrum Disorders in the San Francisco Bay Area by Demographic and Ascertainment Source Characteristics Type de document : Texte imprimé et/ou numérique Auteurs : Gayle C. WINDHAM, Auteur ; Meredith C. ANDERSON, Auteur ; Lisa A. CROEN, Auteur ; Karen S. SMITH, Auteur ; John COLLINS, Auteur ; Judith K. GRETHER, Auteur Année de publication : 2011 Article en page(s) : p.1362-1372 Langues : Anglais (eng) Mots-clés : Autism ASD Prevalence Surveillance Demographics Index. décimale : PER Périodiques Résumé : Using standardized methods for multi-source surveillance, we calculated the prevalence of autism spectrum disorders (ASD) among children born in a racially diverse region in 1994 or 1996 as 4.7/1000 live births. Children with ASD before age 9 were identified through chart abstraction at health-related sources; three-quarters were being served by the state-wide Department of Developmental Services. In adjusted models, we found a male:female ratio of 6:1, a doubling of ASD prevalence among children of older mothers (40+), and lower prevalence with lower paternal education. Children of Black or Hispanic mothers had lower prevalence than those of White, non-Hispanic mothers, but these differences were attenuated after adjustment. Prevalence in children of Asian mothers was similar to Whites. Potential under-counting is discussed. En ligne : http://dx.doi.org/10.1007/s10803-010-1160-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=143
in Journal of Autism and Developmental Disorders > 41-10 (October 2011) . - p.1362-1372[article] Birth Prevalence of Autism Spectrum Disorders in the San Francisco Bay Area by Demographic and Ascertainment Source Characteristics [Texte imprimé et/ou numérique] / Gayle C. WINDHAM, Auteur ; Meredith C. ANDERSON, Auteur ; Lisa A. CROEN, Auteur ; Karen S. SMITH, Auteur ; John COLLINS, Auteur ; Judith K. GRETHER, Auteur . - 2011 . - p.1362-1372.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 41-10 (October 2011) . - p.1362-1372
Mots-clés : Autism ASD Prevalence Surveillance Demographics Index. décimale : PER Périodiques Résumé : Using standardized methods for multi-source surveillance, we calculated the prevalence of autism spectrum disorders (ASD) among children born in a racially diverse region in 1994 or 1996 as 4.7/1000 live births. Children with ASD before age 9 were identified through chart abstraction at health-related sources; three-quarters were being served by the state-wide Department of Developmental Services. In adjusted models, we found a male:female ratio of 6:1, a doubling of ASD prevalence among children of older mothers (40+), and lower prevalence with lower paternal education. Children of Black or Hispanic mothers had lower prevalence than those of White, non-Hispanic mothers, but these differences were attenuated after adjustment. Prevalence in children of Asian mothers was similar to Whites. Potential under-counting is discussed. En ligne : http://dx.doi.org/10.1007/s10803-010-1160-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=143 Disparities in Documented Diagnoses of Autism Spectrum Disorder Based on Demographic, Individual, and Service Factors / Lisa D. WIGGINS in Autism Research, 13-3 (March 2020)
[article]
Titre : Disparities in Documented Diagnoses of Autism Spectrum Disorder Based on Demographic, Individual, and Service Factors Type de document : Texte imprimé et/ou numérique Auteurs : Lisa D. WIGGINS, Auteur ; Maureen DURKIN, Auteur ; Amy ESLER, Auteur ; Li-Ching LEE, Auteur ; Walter ZAHORODNY, Auteur ; Catherine RICE, Auteur ; Marshalyn YEARGIN-ALLSOPP, Auteur ; Nicole F. DOWLING, Auteur ; Jennifer HALL-LANDE, Auteur ; Michael J. MORRIER, Auteur ; Deborah CHRISTENSEN, Auteur ; Josephine SHENOUDA, Auteur ; Jon BAIO, Auteur Article en page(s) : p.464-473 Langues : Anglais (eng) Mots-clés : autism diagnosis disparities surveillance Index. décimale : PER Périodiques Résumé : The objectives of our study were to (a) report how many children met an autism spectrum disorder (ASD) surveillance definition but had no clinical diagnosis of ASD in health or education records and (b) evaluate differences in demographic, individual, and service factors between children with and without a documented ASD diagnosis. ASD surveillance was conducted in selected areas of Arizona, Arkansas, Colorado, Georgia, Maryland, Minnesota, Missouri, New Jersey, North Carolina, Tennessee, and Wisconsin. Children were defined as having ASD if sufficient social and behavioral deficits and/or an ASD diagnosis were noted in health and/or education records. Among 4,498 children, 1,135 (25%) had ASD indicators without having an ASD diagnosis. Of those 1,135 children without a documented ASD diagnosis, 628 (55%) were not known to receive ASD services in public school. Factors associated with not having a clinical diagnosis of ASD were non-White race, no intellectual disability, older age at first developmental concern, older age at first developmental evaluation, special education eligibility other than ASD, and need for fewer supports. These results highlight the importance of reducing disparities in the diagnosis of children with ASD characteristics so that appropriate interventions can be promoted across communities. Autism Res 2020, 13: 464-473. (c) 2019 International Society for AutismResearch,Wiley Periodicals, Inc. LAY SUMMARY: Children who did not have a clinical diagnosis of autism spectrum disorder (ASD) documented in health or education records were more likely to be non-White and have fewer developmental problems than children with a clinical diagnosis of ASD. They were brought to the attention of healthcare providers at older ages and needed fewer supports than children with a clinical diagnosis of ASD. All children with ASD symptoms who meet diagnostic criteria should be given a clinical diagnosis so they can receive treatment specific to their needs. En ligne : http://dx.doi.org/10.1002/aur.2255 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=421
in Autism Research > 13-3 (March 2020) . - p.464-473[article] Disparities in Documented Diagnoses of Autism Spectrum Disorder Based on Demographic, Individual, and Service Factors [Texte imprimé et/ou numérique] / Lisa D. WIGGINS, Auteur ; Maureen DURKIN, Auteur ; Amy ESLER, Auteur ; Li-Ching LEE, Auteur ; Walter ZAHORODNY, Auteur ; Catherine RICE, Auteur ; Marshalyn YEARGIN-ALLSOPP, Auteur ; Nicole F. DOWLING, Auteur ; Jennifer HALL-LANDE, Auteur ; Michael J. MORRIER, Auteur ; Deborah CHRISTENSEN, Auteur ; Josephine SHENOUDA, Auteur ; Jon BAIO, Auteur . - p.464-473.
Langues : Anglais (eng)
in Autism Research > 13-3 (March 2020) . - p.464-473
Mots-clés : autism diagnosis disparities surveillance Index. décimale : PER Périodiques Résumé : The objectives of our study were to (a) report how many children met an autism spectrum disorder (ASD) surveillance definition but had no clinical diagnosis of ASD in health or education records and (b) evaluate differences in demographic, individual, and service factors between children with and without a documented ASD diagnosis. ASD surveillance was conducted in selected areas of Arizona, Arkansas, Colorado, Georgia, Maryland, Minnesota, Missouri, New Jersey, North Carolina, Tennessee, and Wisconsin. Children were defined as having ASD if sufficient social and behavioral deficits and/or an ASD diagnosis were noted in health and/or education records. Among 4,498 children, 1,135 (25%) had ASD indicators without having an ASD diagnosis. Of those 1,135 children without a documented ASD diagnosis, 628 (55%) were not known to receive ASD services in public school. Factors associated with not having a clinical diagnosis of ASD were non-White race, no intellectual disability, older age at first developmental concern, older age at first developmental evaluation, special education eligibility other than ASD, and need for fewer supports. These results highlight the importance of reducing disparities in the diagnosis of children with ASD characteristics so that appropriate interventions can be promoted across communities. Autism Res 2020, 13: 464-473. (c) 2019 International Society for AutismResearch,Wiley Periodicals, Inc. LAY SUMMARY: Children who did not have a clinical diagnosis of autism spectrum disorder (ASD) documented in health or education records were more likely to be non-White and have fewer developmental problems than children with a clinical diagnosis of ASD. They were brought to the attention of healthcare providers at older ages and needed fewer supports than children with a clinical diagnosis of ASD. All children with ASD symptoms who meet diagnostic criteria should be given a clinical diagnosis so they can receive treatment specific to their needs. En ligne : http://dx.doi.org/10.1002/aur.2255 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=421 Early markers of autism spectrum disorders in infants and toddlers prospectively identified in the Social Attention and Communication Study / Josephine BARBARO in Autism, 17-1 (January 2013)
[article]
Titre : Early markers of autism spectrum disorders in infants and toddlers prospectively identified in the Social Attention and Communication Study Type de document : Texte imprimé et/ou numérique Auteurs : Josephine BARBARO, Auteur ; Cheryl DISSANAYAKE, Auteur Année de publication : 2013 Article en page(s) : p.64-86 Langues : Anglais (eng) Mots-clés : autism spectrum disorders early markers red flags prospective infants toddlers surveillance screening Index. décimale : PER Périodiques Résumé : The Social Attention and Communication Study involved the successful implementation of developmental surveillance of the early markers of autism spectrum disorders in a community-based setting. The objective in the current study was to determine the most discriminating and predictive markers of autism spectrum disorders used in the Social Attention and Communication Study at 12, 18 and 24 months of age, so that these could be used to identify children with autism spectrum disorders with greater accuracy. The percentage of ‘yes/no’ responses for each behavioural marker was compared between children with autistic disorder (n = 39), autism spectrum disorder (n = 50) and developmental and/or language delay (n = 20) from 12 to 24 months, with a logistic regression also conducted at 24 months. Across all ages, the recurring key markers of both autistic disorder and autism spectrum disorder were deficits in eye contact and pointing, and from 18 months, deficits in showing became an important marker. In combination, these behaviours, along with pretend play, were found to be the best group of predictors for a best estimate diagnostic classification of autistic disorder/autism spectrum disorder at 24 months. It is argued that the identified markers should be monitored repeatedly during the second year of life by community health-care professionals. En ligne : http://dx.doi.org/10.1177/1362361312442597 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=192
in Autism > 17-1 (January 2013) . - p.64-86[article] Early markers of autism spectrum disorders in infants and toddlers prospectively identified in the Social Attention and Communication Study [Texte imprimé et/ou numérique] / Josephine BARBARO, Auteur ; Cheryl DISSANAYAKE, Auteur . - 2013 . - p.64-86.
Langues : Anglais (eng)
in Autism > 17-1 (January 2013) . - p.64-86
Mots-clés : autism spectrum disorders early markers red flags prospective infants toddlers surveillance screening Index. décimale : PER Périodiques Résumé : The Social Attention and Communication Study involved the successful implementation of developmental surveillance of the early markers of autism spectrum disorders in a community-based setting. The objective in the current study was to determine the most discriminating and predictive markers of autism spectrum disorders used in the Social Attention and Communication Study at 12, 18 and 24 months of age, so that these could be used to identify children with autism spectrum disorders with greater accuracy. The percentage of ‘yes/no’ responses for each behavioural marker was compared between children with autistic disorder (n = 39), autism spectrum disorder (n = 50) and developmental and/or language delay (n = 20) from 12 to 24 months, with a logistic regression also conducted at 24 months. Across all ages, the recurring key markers of both autistic disorder and autism spectrum disorder were deficits in eye contact and pointing, and from 18 months, deficits in showing became an important marker. In combination, these behaviours, along with pretend play, were found to be the best group of predictors for a best estimate diagnostic classification of autistic disorder/autism spectrum disorder at 24 months. It is argued that the identified markers should be monitored repeatedly during the second year of life by community health-care professionals. En ligne : http://dx.doi.org/10.1177/1362361312442597 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=192 Research Review: Outcomes of 24- to 36-month-old children with autism spectrum disorder vary by ascertainment strategy: a systematic review and meta-analysis / M. MICHELETTI in Journal of Child Psychology and Psychiatry, 61-1 (January 2020)
PermalinkPredictors of Ascertainment of Autism Spectrum Disorders Across Nine US Communities / Sydney PETTYGROVE in Journal of Autism and Developmental Disorders, 43-8 (August 2013)
PermalinkThe changing prevalence of autism in three regions of Canada / Hélène OUELLETTE-KUNTZ in Journal of Autism and Developmental Disorders, 44-1 (January 2014)
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