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Parent-observed thematic data on quality of life in children with autism spectrum disorder / A. EPSTEIN in Autism, 23-1 (January 2019)
[article]
Titre : Parent-observed thematic data on quality of life in children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : A. EPSTEIN, Auteur ; Andrew J. O. WHITEHOUSE, Auteur ; K. WILLIAMS, Auteur ; N. MURPHY, Auteur ; H. LEONARD, Auteur ; E. DAVIS, Auteur ; D. REDDIHOUGH, Auteur ; J. DOWNS, Auteur Article en page(s) : p.71-80 Langues : Anglais (eng) Mots-clés : autism spectrum disorders intellectual disability neurodevelopmental disability qualitative research quality of life well-being cerebral-palsy health adolescents symptoms youth proxy Psychology Index. décimale : PER Périodiques Résumé : Domains of quality of life in children with autism spectrum disorder have not previously been explored and there has been no quality of life measure developed for this population. Our study investigated parent observations to identify the domains important to children with autism spectrum disorder who also had an intellectual disability. In all, 21 parents (19 mothers, 2 fathers) of children with autism spectrum disorder (aged 6-17 years) participated in a qualitative study to discuss their child's quality of life. Thematic analysis using a grounded theory framework was conducted and 10 domains emerged in relation to health and well-being, capacity to perform and develop skills in daily life, and connections with the community and environment. Unique aspects of quality of life included varying levels of social desire, consistency of routines, and time spent in nature and the outdoors, which are not comprehensively captured in existing measures. Parent observations provide an initial framework for understanding quality of life in autism spectrum disorder and support the development of a new measure for this population. En ligne : http://dx.doi.org/10.1177/1362361317722764 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=379
in Autism > 23-1 (January 2019) . - p.71-80[article] Parent-observed thematic data on quality of life in children with autism spectrum disorder [Texte imprimé et/ou numérique] / A. EPSTEIN, Auteur ; Andrew J. O. WHITEHOUSE, Auteur ; K. WILLIAMS, Auteur ; N. MURPHY, Auteur ; H. LEONARD, Auteur ; E. DAVIS, Auteur ; D. REDDIHOUGH, Auteur ; J. DOWNS, Auteur . - p.71-80.
Langues : Anglais (eng)
in Autism > 23-1 (January 2019) . - p.71-80
Mots-clés : autism spectrum disorders intellectual disability neurodevelopmental disability qualitative research quality of life well-being cerebral-palsy health adolescents symptoms youth proxy Psychology Index. décimale : PER Périodiques Résumé : Domains of quality of life in children with autism spectrum disorder have not previously been explored and there has been no quality of life measure developed for this population. Our study investigated parent observations to identify the domains important to children with autism spectrum disorder who also had an intellectual disability. In all, 21 parents (19 mothers, 2 fathers) of children with autism spectrum disorder (aged 6-17 years) participated in a qualitative study to discuss their child's quality of life. Thematic analysis using a grounded theory framework was conducted and 10 domains emerged in relation to health and well-being, capacity to perform and develop skills in daily life, and connections with the community and environment. Unique aspects of quality of life included varying levels of social desire, consistency of routines, and time spent in nature and the outdoors, which are not comprehensively captured in existing measures. Parent observations provide an initial framework for understanding quality of life in autism spectrum disorder and support the development of a new measure for this population. En ligne : http://dx.doi.org/10.1177/1362361317722764 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=379