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Détail de l'auteur
Auteur N. MURPHY |
Documents disponibles écrits par cet auteur (3)
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Autism in Australia: Community Knowledge and Autistic People's Experiences / S. C. JONES in Journal of Autism and Developmental Disorders, 51-10 (October 2021)
[article]
Titre : Autism in Australia: Community Knowledge and Autistic People's Experiences Type de document : Texte imprimé et/ou numérique Auteurs : S. C. JONES, Auteur ; M. AKRAM, Auteur ; C. S. GORDON, Auteur ; N. MURPHY, Auteur ; F. SHARKIE, Auteur Article en page(s) : p.3677-3689 Langues : Anglais (eng) Mots-clés : Attitude Autism Spectrum Disorder Autistic Disorder/epidemiology Humans Parents Surveys and Questionnaires Attitudes Autism Community perceptions Knowledge Understanding Index. décimale : PER Périodiques Résumé : This paper presents two studies that explored community attitudes to autism in Australia; and autistic people and their families' perspectives of community attitudes. In Study One 2424 (primarily non-autistic) people completed a survey on autism-related knowledge and attitudes; identifying a number of misperceptions and knowledge gaps in the general community. In Study Two 1353 people (primarily parents and carers of autistic people) completed a survey on autism-related experiences; identifying that the community's awareness of autism does not appear to extend to understanding how to support autistic people. There is a need for more research which integrates the perspectives of both autistic people and the broader community; and the development of communication and education interventions, with rather than about autistic people. En ligne : http://dx.doi.org/10.1007/s10803-020-04819-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453
in Journal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3677-3689[article] Autism in Australia: Community Knowledge and Autistic People's Experiences [Texte imprimé et/ou numérique] / S. C. JONES, Auteur ; M. AKRAM, Auteur ; C. S. GORDON, Auteur ; N. MURPHY, Auteur ; F. SHARKIE, Auteur . - p.3677-3689.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3677-3689
Mots-clés : Attitude Autism Spectrum Disorder Autistic Disorder/epidemiology Humans Parents Surveys and Questionnaires Attitudes Autism Community perceptions Knowledge Understanding Index. décimale : PER Périodiques Résumé : This paper presents two studies that explored community attitudes to autism in Australia; and autistic people and their families' perspectives of community attitudes. In Study One 2424 (primarily non-autistic) people completed a survey on autism-related knowledge and attitudes; identifying a number of misperceptions and knowledge gaps in the general community. In Study Two 1353 people (primarily parents and carers of autistic people) completed a survey on autism-related experiences; identifying that the community's awareness of autism does not appear to extend to understanding how to support autistic people. There is a need for more research which integrates the perspectives of both autistic people and the broader community; and the development of communication and education interventions, with rather than about autistic people. En ligne : http://dx.doi.org/10.1007/s10803-020-04819-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 Inclusion, Exclusion and Isolation of Autistic People: Community Attitudes and Autistic People's Experiences / S. C. JONES in Journal of Autism and Developmental Disorders, 52-3 (March 2022)
[article]
Titre : Inclusion, Exclusion and Isolation of Autistic People: Community Attitudes and Autistic People's Experiences Type de document : Texte imprimé et/ou numérique Auteurs : S. C. JONES, Auteur ; C. S. GORDON, Auteur ; M. AKRAM, Auteur ; N. MURPHY, Auteur ; F. SHARKIE, Auteur Article en page(s) : p.1131-1142 Langues : Anglais (eng) Mots-clés : Adult Attitude Australia Autism Spectrum Disorder Autistic Disorder Humans Parents Education Employment Isolation Lived experience Index. décimale : PER Périodiques Résumé : There is limited research examining the inclusion of autistic people in their local communities. This paper reports on two Australian studies which explored this gap, focusing on both autistic people's experiences and non-autistic people's attitudes towards autistic individuals. Study One was conducted with primarily non-autistic people (n?=?2,383), and Study Two with primarily parents and carers of autistic people (n?=?1,297 people). The majority of non-autistic adults perceived discrimination against autistic people in the community; consistent with the experiences of autistic people and their carers. Of particular concern was more negative attitudes towards, and experiences of, autistic adults. There is an urgent need to improve society's acceptance and inclusion of autistic people of all ages. En ligne : http://dx.doi.org/10.1007/s10803-021-04998-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455
in Journal of Autism and Developmental Disorders > 52-3 (March 2022) . - p.1131-1142[article] Inclusion, Exclusion and Isolation of Autistic People: Community Attitudes and Autistic People's Experiences [Texte imprimé et/ou numérique] / S. C. JONES, Auteur ; C. S. GORDON, Auteur ; M. AKRAM, Auteur ; N. MURPHY, Auteur ; F. SHARKIE, Auteur . - p.1131-1142.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-3 (March 2022) . - p.1131-1142
Mots-clés : Adult Attitude Australia Autism Spectrum Disorder Autistic Disorder Humans Parents Education Employment Isolation Lived experience Index. décimale : PER Périodiques Résumé : There is limited research examining the inclusion of autistic people in their local communities. This paper reports on two Australian studies which explored this gap, focusing on both autistic people's experiences and non-autistic people's attitudes towards autistic individuals. Study One was conducted with primarily non-autistic people (n?=?2,383), and Study Two with primarily parents and carers of autistic people (n?=?1,297 people). The majority of non-autistic adults perceived discrimination against autistic people in the community; consistent with the experiences of autistic people and their carers. Of particular concern was more negative attitudes towards, and experiences of, autistic adults. There is an urgent need to improve society's acceptance and inclusion of autistic people of all ages. En ligne : http://dx.doi.org/10.1007/s10803-021-04998-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455 Parent-observed thematic data on quality of life in children with autism spectrum disorder / A. EPSTEIN in Autism, 23-1 (January 2019)
[article]
Titre : Parent-observed thematic data on quality of life in children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : A. EPSTEIN, Auteur ; Andrew J. O. WHITEHOUSE, Auteur ; K. WILLIAMS, Auteur ; N. MURPHY, Auteur ; H. LEONARD, Auteur ; E. DAVIS, Auteur ; D. REDDIHOUGH, Auteur ; J. DOWNS, Auteur Article en page(s) : p.71-80 Langues : Anglais (eng) Mots-clés : autism spectrum disorders intellectual disability neurodevelopmental disability qualitative research quality of life well-being cerebral-palsy health adolescents symptoms youth proxy Psychology Index. décimale : PER Périodiques Résumé : Domains of quality of life in children with autism spectrum disorder have not previously been explored and there has been no quality of life measure developed for this population. Our study investigated parent observations to identify the domains important to children with autism spectrum disorder who also had an intellectual disability. In all, 21 parents (19 mothers, 2 fathers) of children with autism spectrum disorder (aged 6-17 years) participated in a qualitative study to discuss their child's quality of life. Thematic analysis using a grounded theory framework was conducted and 10 domains emerged in relation to health and well-being, capacity to perform and develop skills in daily life, and connections with the community and environment. Unique aspects of quality of life included varying levels of social desire, consistency of routines, and time spent in nature and the outdoors, which are not comprehensively captured in existing measures. Parent observations provide an initial framework for understanding quality of life in autism spectrum disorder and support the development of a new measure for this population. En ligne : http://dx.doi.org/10.1177/1362361317722764 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=379
in Autism > 23-1 (January 2019) . - p.71-80[article] Parent-observed thematic data on quality of life in children with autism spectrum disorder [Texte imprimé et/ou numérique] / A. EPSTEIN, Auteur ; Andrew J. O. WHITEHOUSE, Auteur ; K. WILLIAMS, Auteur ; N. MURPHY, Auteur ; H. LEONARD, Auteur ; E. DAVIS, Auteur ; D. REDDIHOUGH, Auteur ; J. DOWNS, Auteur . - p.71-80.
Langues : Anglais (eng)
in Autism > 23-1 (January 2019) . - p.71-80
Mots-clés : autism spectrum disorders intellectual disability neurodevelopmental disability qualitative research quality of life well-being cerebral-palsy health adolescents symptoms youth proxy Psychology Index. décimale : PER Périodiques Résumé : Domains of quality of life in children with autism spectrum disorder have not previously been explored and there has been no quality of life measure developed for this population. Our study investigated parent observations to identify the domains important to children with autism spectrum disorder who also had an intellectual disability. In all, 21 parents (19 mothers, 2 fathers) of children with autism spectrum disorder (aged 6-17 years) participated in a qualitative study to discuss their child's quality of life. Thematic analysis using a grounded theory framework was conducted and 10 domains emerged in relation to health and well-being, capacity to perform and develop skills in daily life, and connections with the community and environment. Unique aspects of quality of life included varying levels of social desire, consistency of routines, and time spent in nature and the outdoors, which are not comprehensively captured in existing measures. Parent observations provide an initial framework for understanding quality of life in autism spectrum disorder and support the development of a new measure for this population. En ligne : http://dx.doi.org/10.1177/1362361317722764 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=379