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Faire une suggestionAffiliate Stigma and Parental Stress Among Parents of Children With Autism Spectrum Disorder: The Mediating Role of Shame / Dejan STEVANOVIĆ ; Violeta ENEA in Focus on Autism and Other Developmental Disabilities, 39-2 (June 2024)
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Titre : Affiliate Stigma and Parental Stress Among Parents of Children With Autism Spectrum Disorder: The Mediating Role of Shame Type de document : texte imprimé Auteurs : Dejan STEVANOVIĆ, Auteur ; Violeta ENEA, Auteur Article en page(s) : p.127-135 Langues : Anglais (eng) Mots-clés : parental stress autism spectrum disorder affiliate stigma shame Index. décimale : PER Périodiques Résumé : Parental stress among parents of children with autism spectrum disorder (ASD) is well-documented in the literature. This study used the mediation model to investigate the relationship between the phenomenon of affiliate stigma and parental stress among parents of children diagnosed with ASD. This cross-sectional study involved 196 parents between 22 and 65 years of age with a child diagnosed with ASD whose age was between 2 and 22 years. The correlations between affiliate stigma, shame, and parental stress were confirmed. Therefore, affiliate stigma was positively associated with shame and parental stress. The results also indicated that the relationship between the phenomenon of affiliate stigma and parental stress is mediated by shame. A practical implication of our findings is that parents of children with ASD participating in stress-reducing interventions should be trained on how to cope with feelings of shame. En ligne : https://dx.doi.org/10.1177/10883576231221751 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=528
in Focus on Autism and Other Developmental Disabilities > 39-2 (June 2024) . - p.127-135[article] Affiliate Stigma and Parental Stress Among Parents of Children With Autism Spectrum Disorder: The Mediating Role of Shame [texte imprimé] / Dejan STEVANOVIĆ, Auteur ; Violeta ENEA, Auteur . - p.127-135.
Langues : Anglais (eng)
in Focus on Autism and Other Developmental Disabilities > 39-2 (June 2024) . - p.127-135
Mots-clés : parental stress autism spectrum disorder affiliate stigma shame Index. décimale : PER Périodiques Résumé : Parental stress among parents of children with autism spectrum disorder (ASD) is well-documented in the literature. This study used the mediation model to investigate the relationship between the phenomenon of affiliate stigma and parental stress among parents of children diagnosed with ASD. This cross-sectional study involved 196 parents between 22 and 65 years of age with a child diagnosed with ASD whose age was between 2 and 22 years. The correlations between affiliate stigma, shame, and parental stress were confirmed. Therefore, affiliate stigma was positively associated with shame and parental stress. The results also indicated that the relationship between the phenomenon of affiliate stigma and parental stress is mediated by shame. A practical implication of our findings is that parents of children with ASD participating in stress-reducing interventions should be trained on how to cope with feelings of shame. En ligne : https://dx.doi.org/10.1177/10883576231221751 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=528 An examination of sleep problems and parental well-being, comparing families with and without autistic children / Sally WHELAN ; Geraldine LEADER in Research in Autism Spectrum Disorders, 117 (September 2024)
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Titre : An examination of sleep problems and parental well-being, comparing families with and without autistic children Type de document : texte imprimé Auteurs : Sally WHELAN, Auteur ; Geraldine LEADER, Auteur Article en page(s) : p.102462 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Sleep quality Parental stress Actigraphy Maternal well-being Maternal quality of life Family medical history Autoimmune disease Index. décimale : PER Périodiques Résumé : Background Sleep problems are a common comorbidity in autistic children and adolescents. Little is known about the role of sleep problems in parental well-being in the context of autism. Method The current study utilised actigraphy and questionnaire-based measures in mothers of autistic children and adolescents (n = 11), and mothers of typically developing (TD) children and adolescents (n = 11). Actigraphy is an objective, non-intrusive method for examining sleep. It involves wearing a wristwatch-like microcomputer that records motion. Measures included the Pittsburgh Sleep Quality Index, Autoimmune Disease in Family Members Questionnaire, Parenting Stress Index-Short Form, World Health Organization Quality of Life Abbreviated Version (WHOQOL-BREF), Hospital Anxiety and Depression Scale, and the Multidimensional Scale of Perceived Social Support. Results Mothers of autistic children had significantly greater difficulties with subjective sleep quality, sleep duration, sleep efficiency, and daytime dysfunction, than mothers of TD children. In mothers of autistic children, parental use of sleep medication on the PSQI was positively associated with objective sleep onset latency using actigraphy, with a large effect size. Families with an autistic child had significantly more family members with osteoarthritis and rheumatoid arthritis than did families of TD children. Families of autistic children had significantly more autistic family members than did families of TD children. Conclusions Mothers of autistic children had significantly higher levels of stress, anxiety, depression, and lower levels of quality of life and perceived social support, than parents of TD children. Sleep problems identified via actigraphy were associated with parental stress, anxiety and depression, and quality of life. En ligne : https://doi.org/10.1016/j.rasd.2024.102462 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=534
in Research in Autism Spectrum Disorders > 117 (September 2024) . - p.102462[article] An examination of sleep problems and parental well-being, comparing families with and without autistic children [texte imprimé] / Sally WHELAN, Auteur ; Geraldine LEADER, Auteur . - p.102462.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 117 (September 2024) . - p.102462
Mots-clés : Autism spectrum disorder Sleep quality Parental stress Actigraphy Maternal well-being Maternal quality of life Family medical history Autoimmune disease Index. décimale : PER Périodiques Résumé : Background Sleep problems are a common comorbidity in autistic children and adolescents. Little is known about the role of sleep problems in parental well-being in the context of autism. Method The current study utilised actigraphy and questionnaire-based measures in mothers of autistic children and adolescents (n = 11), and mothers of typically developing (TD) children and adolescents (n = 11). Actigraphy is an objective, non-intrusive method for examining sleep. It involves wearing a wristwatch-like microcomputer that records motion. Measures included the Pittsburgh Sleep Quality Index, Autoimmune Disease in Family Members Questionnaire, Parenting Stress Index-Short Form, World Health Organization Quality of Life Abbreviated Version (WHOQOL-BREF), Hospital Anxiety and Depression Scale, and the Multidimensional Scale of Perceived Social Support. Results Mothers of autistic children had significantly greater difficulties with subjective sleep quality, sleep duration, sleep efficiency, and daytime dysfunction, than mothers of TD children. In mothers of autistic children, parental use of sleep medication on the PSQI was positively associated with objective sleep onset latency using actigraphy, with a large effect size. Families with an autistic child had significantly more family members with osteoarthritis and rheumatoid arthritis than did families of TD children. Families of autistic children had significantly more autistic family members than did families of TD children. Conclusions Mothers of autistic children had significantly higher levels of stress, anxiety, depression, and lower levels of quality of life and perceived social support, than parents of TD children. Sleep problems identified via actigraphy were associated with parental stress, anxiety and depression, and quality of life. En ligne : https://doi.org/10.1016/j.rasd.2024.102462 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=534 Associations between caregiver and child factors and parental self-efficacy in mothers and fathers of autistic children in Canada / Rita ABDEL-BAKI in Research in Autism, 132 (April 2026)
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Titre : Associations between caregiver and child factors and parental self-efficacy in mothers and fathers of autistic children in Canada Type de document : texte imprimé Auteurs : Rita ABDEL-BAKI, Auteur ; Katelyn FRANKIEWICZ, Auteur ; Kristel THOMASSIN, Auteur Article en page(s) : 202867 Langues : Anglais (eng) Mots-clés : Parental self-efficacy Parent sex differences Caregiver stress Résumé : This study explored parental self-efficacy in Canadian mothers (n = 102) and fathers (n = 17) of an autistic child (aged 6–18 years old) and examined associations between caregiver and child factors and parental self-efficacy. Parental self-efficacy was assessed using two measures, one focusing on caregivers of children with developmental disabilities and the other assessing self-efficacy more broadly, to capture conceptual differences. Primary caregivers completed online questionnaires about their parental self-efficacy, parenting stress, internalizing symptoms, child emotional and behavioral problems, and child restricted and repetitive behaviors and interests. Mothers and fathers self-reported similar levels of parental self-efficacy, with only slight differences between measures. Parental self-efficacy was correlated with all caregiver and child factors, including caregiver stress and internalizing symptoms, and child emotional and behavioral problems and restricted and repetitive behaviors. However, when included together, only parenting stress emerged as a unique correlate of parental self-efficacy, as measured by both self-efficacy measures, and internalizing symptoms also emerged as a unique correlate of self-efficacy specific to the domain specific measure of self-efficacy in children with developmental disabilities. This suggests that caregiver factors, particularly parental stress, may be especially meaningful for supporting parental self-efficacy, above and beyond child behaviors. The implications of these findings, including the importance of supporting caregivers’ own wellbeing, are discussed. En ligne : https://doi.org/10.1016/j.reia.2026.202867 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=583
in Research in Autism > 132 (April 2026) . - 202867[article] Associations between caregiver and child factors and parental self-efficacy in mothers and fathers of autistic children in Canada [texte imprimé] / Rita ABDEL-BAKI, Auteur ; Katelyn FRANKIEWICZ, Auteur ; Kristel THOMASSIN, Auteur . - 202867.
Langues : Anglais (eng)
in Research in Autism > 132 (April 2026) . - 202867
Mots-clés : Parental self-efficacy Parent sex differences Caregiver stress Résumé : This study explored parental self-efficacy in Canadian mothers (n = 102) and fathers (n = 17) of an autistic child (aged 6–18 years old) and examined associations between caregiver and child factors and parental self-efficacy. Parental self-efficacy was assessed using two measures, one focusing on caregivers of children with developmental disabilities and the other assessing self-efficacy more broadly, to capture conceptual differences. Primary caregivers completed online questionnaires about their parental self-efficacy, parenting stress, internalizing symptoms, child emotional and behavioral problems, and child restricted and repetitive behaviors and interests. Mothers and fathers self-reported similar levels of parental self-efficacy, with only slight differences between measures. Parental self-efficacy was correlated with all caregiver and child factors, including caregiver stress and internalizing symptoms, and child emotional and behavioral problems and restricted and repetitive behaviors. However, when included together, only parenting stress emerged as a unique correlate of parental self-efficacy, as measured by both self-efficacy measures, and internalizing symptoms also emerged as a unique correlate of self-efficacy specific to the domain specific measure of self-efficacy in children with developmental disabilities. This suggests that caregiver factors, particularly parental stress, may be especially meaningful for supporting parental self-efficacy, above and beyond child behaviors. The implications of these findings, including the importance of supporting caregivers’ own wellbeing, are discussed. En ligne : https://doi.org/10.1016/j.reia.2026.202867 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=583 Being the mother of an autistic child: A comprehensive study of mother–child relationships / Zeynep ERTEKIN in Research in Autism, 130 (February 2026)
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Titre : Being the mother of an autistic child: A comprehensive study of mother–child relationships Type de document : texte imprimé Auteurs : Zeynep ERTEKIN, Auteur ; Carole-Anne LEBLANC, Auteur ; Delphine PÉRIARD-LARIVÉE, Auteur ; Karine DUBOIS-COMTOIS, Auteur ; Annie STIPANICIC, Auteur ; Chantal CYR, Auteur ; Mélanie M. COUTURE, Auteur ; Eve-Line BUSSIERES, Auteur Article en page(s) : p.202753 Langues : Anglais (eng) Mots-clés : Autism Interactions Mother–child relationship Parental stress Index. décimale : PER Périodiques Résumé : Aims This study examines mother–child relationships and parenting stress in the context of autism using self-report and observed measures. It compares dyads of mothers with autistic and mothers with non-autistic children in terms of perceived conflict and closeness, parenting stress, and observed mother–child interaction quality. It also examines the role of autism characteristics and the moderating role of parenting stress within these groups on mother–child relationships. Method The sample included 66 autistic and 55 non-autistic preschoolers and their mothers. Questionnaires were administered online and through structured phone interviews to assess autism characteristics, and interactions were video-recorded via Zoom. Results Dyads including autistic children exhibited higher levels of perceived conflict and lower perceived closeness and observed interaction quality compared to dyads with non-autistic children. Mothers with autistic children reported significantly higher levels of parenting stress across all three subscales of the Parental Stress Index (parental distress, dysfunctional interaction, and difficult child) compared to mothers with non-autistic children. Parenting stress moderated the group difference in perceived closeness: parents with low stress and an autistic child reported less closeness than those with a non-autistic child, whereas at high stress levels this difference was not observed. Parenting stress was positively associated with perceived conflict regardless of group. Additionally, autism characteristics were negatively associated with perceived closeness and positively associated with dysfunctional interactions. Conclusion This study suggests that perceived relationships and observed interaction quality vary between dyads with and without an autistic child. In addition, autism characteristics and parenting stress play roles in understanding mother–child relationships. En ligne : https://doi.org/10.1016/j.reia.2025.202753 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=579
in Research in Autism > 130 (February 2026) . - p.202753[article] Being the mother of an autistic child: A comprehensive study of mother–child relationships [texte imprimé] / Zeynep ERTEKIN, Auteur ; Carole-Anne LEBLANC, Auteur ; Delphine PÉRIARD-LARIVÉE, Auteur ; Karine DUBOIS-COMTOIS, Auteur ; Annie STIPANICIC, Auteur ; Chantal CYR, Auteur ; Mélanie M. COUTURE, Auteur ; Eve-Line BUSSIERES, Auteur . - p.202753.
Langues : Anglais (eng)
in Research in Autism > 130 (February 2026) . - p.202753
Mots-clés : Autism Interactions Mother–child relationship Parental stress Index. décimale : PER Périodiques Résumé : Aims This study examines mother–child relationships and parenting stress in the context of autism using self-report and observed measures. It compares dyads of mothers with autistic and mothers with non-autistic children in terms of perceived conflict and closeness, parenting stress, and observed mother–child interaction quality. It also examines the role of autism characteristics and the moderating role of parenting stress within these groups on mother–child relationships. Method The sample included 66 autistic and 55 non-autistic preschoolers and their mothers. Questionnaires were administered online and through structured phone interviews to assess autism characteristics, and interactions were video-recorded via Zoom. Results Dyads including autistic children exhibited higher levels of perceived conflict and lower perceived closeness and observed interaction quality compared to dyads with non-autistic children. Mothers with autistic children reported significantly higher levels of parenting stress across all three subscales of the Parental Stress Index (parental distress, dysfunctional interaction, and difficult child) compared to mothers with non-autistic children. Parenting stress moderated the group difference in perceived closeness: parents with low stress and an autistic child reported less closeness than those with a non-autistic child, whereas at high stress levels this difference was not observed. Parenting stress was positively associated with perceived conflict regardless of group. Additionally, autism characteristics were negatively associated with perceived closeness and positively associated with dysfunctional interactions. Conclusion This study suggests that perceived relationships and observed interaction quality vary between dyads with and without an autistic child. In addition, autism characteristics and parenting stress play roles in understanding mother–child relationships. En ligne : https://doi.org/10.1016/j.reia.2025.202753 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=579 Brief Parent-Mediated Intervention for Children with Autism Spectrum Disorder: A Feasibility Study from South India / Harshini MANOHAR in Journal of Autism and Developmental Disorders, 49-8 (August 2019)
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Titre : Brief Parent-Mediated Intervention for Children with Autism Spectrum Disorder: A Feasibility Study from South India Type de document : texte imprimé Auteurs : Harshini MANOHAR, Auteur ; Preeti KANDASAMY, Auteur ; Venkatesh CHANDRASEKARAN, Auteur ; Ravi Philip RAJKUMAR, Auteur Article en page(s) : p.3146-3158 Langues : Anglais (eng) Mots-clés : Asd Autism spectrum disorder India Intervention Low-resource Parent-mediated Parental stress Index. décimale : PER Périodiques Résumé : The study assesses the acceptability and feasibility of a brief parent-mediated home-based intervention for children with autism spectrum disorder (ASD), deliverable in resource-limited settings, with an emphasis on addressing parental stress from a socio-cultural perspective. 50 children (2-6 years), with a DSM 5 diagnosis of ASD were randomized to intervention (n = 26) or active control group (n = 24). The intervention based on naturalistic developmental behavioral approach, focusing on joint attention, imitation, social and adaptive skills was structured to be delivered in five outpatient sessions over 12 weeks. All children were followed up at 4, 8 and 12 weeks. Parents of children randomized to the intervention group reported more improvements across parental stress and child outcome measures compared to those in the control group. The intervention was found to be acceptable and feasible, with high fidelity measures and retention rates. En ligne : http://dx.doi.org/10.1007/s10803-019-04032-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403
in Journal of Autism and Developmental Disorders > 49-8 (August 2019) . - p.3146-3158[article] Brief Parent-Mediated Intervention for Children with Autism Spectrum Disorder: A Feasibility Study from South India [texte imprimé] / Harshini MANOHAR, Auteur ; Preeti KANDASAMY, Auteur ; Venkatesh CHANDRASEKARAN, Auteur ; Ravi Philip RAJKUMAR, Auteur . - p.3146-3158.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 49-8 (August 2019) . - p.3146-3158
Mots-clés : Asd Autism spectrum disorder India Intervention Low-resource Parent-mediated Parental stress Index. décimale : PER Périodiques Résumé : The study assesses the acceptability and feasibility of a brief parent-mediated home-based intervention for children with autism spectrum disorder (ASD), deliverable in resource-limited settings, with an emphasis on addressing parental stress from a socio-cultural perspective. 50 children (2-6 years), with a DSM 5 diagnosis of ASD were randomized to intervention (n = 26) or active control group (n = 24). The intervention based on naturalistic developmental behavioral approach, focusing on joint attention, imitation, social and adaptive skills was structured to be delivered in five outpatient sessions over 12 weeks. All children were followed up at 4, 8 and 12 weeks. Parents of children randomized to the intervention group reported more improvements across parental stress and child outcome measures compared to those in the control group. The intervention was found to be acceptable and feasible, with high fidelity measures and retention rates. En ligne : http://dx.doi.org/10.1007/s10803-019-04032-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403 Brief Report: Impact of Challenging Behavior on Parenting Stress in Mothers and Fathers of Children with Autism Spectrum Disorders / Malena ARGUMEDES in Journal of Autism and Developmental Disorders, 48-7 (July 2018)
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PermalinkBrief Report: Stress and Perceived Social Support in Parents of Children with ASD / Kateryna DROGOMYRETSKA in Journal of Autism and Developmental Disorders, 50-11 (November 2020)
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PermalinkBrief Report: What Drives Parental Concerns About Their 18-Month-Olds at Familial Risk for Autism Spectrum Disorder? / Elizabeth A. KARP in Journal of Autism and Developmental Disorders, 47-5 (May 2017)
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PermalinkComparing Fathers' and Mothers' Perspectives About Their Child's Autism Spectrum Disorder / Stacey C. GREBE in Journal of Autism and Developmental Disorders, 52-4 (April 2022)
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PermalinkDetailed Assessment of Incontinence, Psychological Problems and Parental Stress in Children with Autism Spectrum Disorder / Justine NIEMCZYK in Journal of Autism and Developmental Disorders, 49-5 (May 2019)
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