Assessment of Health-Related Quality of Life Among Primary Caregivers of Children with Autism Spectrum Disorders / Rahul KHANNA in Journal of Autism and Developmental Disorders, 41-9 (September 2011)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 41-9 (September 2011) . - p.1214-1227 Titre : Assessment of Health-Related Quality of Life Among Primary Caregivers of Children with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Rahul KHANNA, Auteur ; S. Suresh MADHAVAN, Auteur ; Michael J. SMITH, Auteur ; Julie H. PATRICK, Auteur ; Cindy TWOREK, Auteur ; Barbara BECKER-COTTRILL, Auteur Année de publication : 2011 Article en page(s) : p.1214-1227 Langues : Anglais (eng) Mots-clés : Autism  Caregiver  Health-related quality of life  Burden Index. décimale : PER Périodiques Résumé : The impact of caring for a child with autism on caregivers’ health-related quality of life (HRQOL) is not fully understood. The objective of this study was to compare the HRQOL scores of caregivers of children with autism to those of the general US population and to identify the factors that influence HRQOL. Caregivers of children with autism had lower HRQOL scores than the general population. Care recipient level of functional impairment, social support, use of maladaptive coping, and burden influenced caregiver mental HRQOL. Care recipient extent of behavioral problems and social support influenced caregiver physical HRQOL. Findings emphasize the use of multi-pronged intervention approach that incorporates components aimed at improving family functioning, increasing support services, and assisting caregivers in developing healthy coping skills. En ligne : http://dx.doi.org/10.1007/s10803-010-1140-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=142 [article] Assessment of Health-Related Quality of Life Among Primary Caregivers of Children with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Rahul KHANNA, Auteur ; S. Suresh MADHAVAN, Auteur ; Michael J. SMITH, Auteur ; Julie H. PATRICK, Auteur ; Cindy TWOREK, Auteur ; Barbara BECKER-COTTRILL, Auteur . - 2011 . - p.1214-1227. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 41-9 (September 2011) . - p.1214-1227 Mots-clés : Autism  Caregiver  Health-related quality of life  Burden Index. décimale : PER Périodiques Résumé : The impact of caring for a child with autism on caregivers’ health-related quality of life (HRQOL) is not fully understood. The objective of this study was to compare the HRQOL scores of caregivers of children with autism to those of the general US population and to identify the factors that influence HRQOL. Caregivers of children with autism had lower HRQOL scores than the general population. Care recipient level of functional impairment, social support, use of maladaptive coping, and burden influenced caregiver mental HRQOL. Care recipient extent of behavioral problems and social support influenced caregiver physical HRQOL. Findings emphasize the use of multi-pronged intervention approach that incorporates components aimed at improving family functioning, increasing support services, and assisting caregivers in developing healthy coping skills. En ligne : http://dx.doi.org/10.1007/s10803-010-1140-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=142

Psychometric properties of the Caregiver Strain Questionnaire (CGSQ) among caregivers of children with autism / Rahul KHANNA in Autism, 16-2 (March 2012)  

Public ISBD [article]  inAutism > 16-2 (March 2012) . - p.179-199 Titre : Psychometric properties of the Caregiver Strain Questionnaire (CGSQ) among caregivers of children with autism Type de document : Texte imprimé et/ou numérique Auteurs : Rahul KHANNA, Auteur ; S. Suresh MADHAVAN, Auteur ; Michael J. SMITH, Auteur ; Cindy TWOREK, Auteur ; Julie H. PATRICK, Auteur ; Barbara BECKER-COTTRILL, Auteur Année de publication : 2012 Article en page(s) : p.179-199 Langues : Anglais (eng) Mots-clés : psychometric properties: CGSQ  autism  caregivers Index. décimale : PER Périodiques Résumé : The purpose of this study was to test the psychometric properties of the Caregiver Strain Questionnaire (CGSQ) among caregivers of children with autism. The CGSQ was originally developed to assess burden experienced by parents of children and adolescents with serious emotional and behavioral disorders. Study data was collected from 304 primary caregivers ofchildren with autism using a cross-sectional survey design. We tested the one-, two-, and three-factor CGSQ model. Though the three-factor CGSQ model fit better than the one- and two-factor model, it was still short of an acceptable fit. Minor modifications were made to the three-factor model by correlating error terms. The modified three-factor CGSQ model with correlated error indicated reasonable fit with the data. The 21-item CGSQ had good convergent validity, as indicated by the correlation of its three subscales with constructs including mental health-related quality of life, maladaptive coping, social support, family functioning, and care recipient level of functional impairment and extent of behavioral problems, respectively. The internal consistency reliability of the instrument was also good, and there were no floor and ceiling effects. The CGSQ was found to be a reliable and valid instrument to assess burden among caregivers of children with autism. En ligne : http://dx.doi.org/10.1177/1362361311406143 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=155 [article] Psychometric properties of the Caregiver Strain Questionnaire (CGSQ) among caregivers of children with autism [Texte imprimé et/ou numérique] / Rahul KHANNA, Auteur ; S. Suresh MADHAVAN, Auteur ; Michael J. SMITH, Auteur ; Cindy TWOREK, Auteur ; Julie H. PATRICK, Auteur ; Barbara BECKER-COTTRILL, Auteur . - 2012 . - p.179-199. Langues : Anglais (eng) in Autism > 16-2 (March 2012) . - p.179-199 Mots-clés : psychometric properties: CGSQ  autism  caregivers Index. décimale : PER Périodiques Résumé : The purpose of this study was to test the psychometric properties of the Caregiver Strain Questionnaire (CGSQ) among caregivers of children with autism. The CGSQ was originally developed to assess burden experienced by parents of children and adolescents with serious emotional and behavioral disorders. Study data was collected from 304 primary caregivers ofchildren with autism using a cross-sectional survey design. We tested the one-, two-, and three-factor CGSQ model. Though the three-factor CGSQ model fit better than the one- and two-factor model, it was still short of an acceptable fit. Minor modifications were made to the three-factor model by correlating error terms. The modified three-factor CGSQ model with correlated error indicated reasonable fit with the data. The 21-item CGSQ had good convergent validity, as indicated by the correlation of its three subscales with constructs including mental health-related quality of life, maladaptive coping, social support, family functioning, and care recipient level of functional impairment and extent of behavioral problems, respectively. The internal consistency reliability of the instrument was also good, and there were no floor and ceiling effects. The CGSQ was found to be a reliable and valid instrument to assess burden among caregivers of children with autism. En ligne : http://dx.doi.org/10.1177/1362361311406143 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=155

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