Beyond an Autism Diagnosis: Children’s Functional Independence and Parents’ Unmet Needs / Hilary K. BROWN in Journal of Autism and Developmental Disorders, 41-10 (October 2011)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 41-10 (October 2011) . - p.1291-1302 Titre : Beyond an Autism Diagnosis: Children’s Functional Independence and Parents’ Unmet Needs Type de document : Texte imprimé et/ou numérique Auteurs : Hilary K. BROWN, Auteur ; Hélène OUELLETTE-KUNTZ, Auteur ; Duncan HUNTER, Auteur ; Elizabeth KELLEY, Auteur ; Virginie COBIGO, Auteur ; Miu LAM, Auteur Année de publication : 2011 Article en page(s) : p.1291-1302 Langues : Anglais (eng) Mots-clés : Autism  Unmet need  Functional independence  Impact on family Index. décimale : PER Périodiques Résumé : High demand has resulted in gaps in autism service provision. Our objective was to explore the association between children’s functioning and parents’ perceived unmet needs. We conducted a cross-sectional study of 97 families of school-aged children with an autism spectrum disorder. Log binomial regression was used to examine the relative risk for unmet need. Families of children with high functional independence had lower unmet need than families of children with moderate functional independence (RR = 0.81, 95% CI = 0.67-0.99). Those who experienced greater impact of the child’s disability had greater unmet need (RR = 1.22, 95% CI = 1.03–1.45). The child’s functioning and its impact on the family provide insight into unmet need which may inform service planning. En ligne : http://dx.doi.org/10.1007/s10803-010-1148-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=143 [article] Beyond an Autism Diagnosis: Children’s Functional Independence and Parents’ Unmet Needs [Texte imprimé et/ou numérique] / Hilary K. BROWN, Auteur ; Hélène OUELLETTE-KUNTZ, Auteur ; Duncan HUNTER, Auteur ; Elizabeth KELLEY, Auteur ; Virginie COBIGO, Auteur ; Miu LAM, Auteur . - 2011 . - p.1291-1302. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 41-10 (October 2011) . - p.1291-1302 Mots-clés : Autism  Unmet need  Functional independence  Impact on family Index. décimale : PER Périodiques Résumé : High demand has resulted in gaps in autism service provision. Our objective was to explore the association between children’s functioning and parents’ perceived unmet needs. We conducted a cross-sectional study of 97 families of school-aged children with an autism spectrum disorder. Log binomial regression was used to examine the relative risk for unmet need. Families of children with high functional independence had lower unmet need than families of children with moderate functional independence (RR = 0.81, 95% CI = 0.67-0.99). Those who experienced greater impact of the child’s disability had greater unmet need (RR = 1.22, 95% CI = 1.03–1.45). The child’s functioning and its impact on the family provide insight into unmet need which may inform service planning. En ligne : http://dx.doi.org/10.1007/s10803-010-1148-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=143

The changing prevalence of autism in three regions of Canada / Hélène OUELLETTE-KUNTZ in Journal of Autism and Developmental Disorders, 44-1 (January 2014)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 44-1 (January 2014) . - p.120-136 Titre : The changing prevalence of autism in three regions of Canada Type de document : Texte imprimé et/ou numérique Auteurs : Hélène OUELLETTE-KUNTZ, Auteur ; Helen COO, Auteur ; Miu LAM, Auteur ; Marlene BREITENBACH, Auteur ; Paula E. HENNESSEY, Auteur ; Paulette D. JACKMAN, Auteur ; M. E. Suzanne LEWIS, Auteur ; Deborah DEWEY, Auteur ; François P. BERNIER, Auteur ; Amy M. CHUNG, Auteur Article en page(s) : p.120-136 Langues : Anglais (eng) Mots-clés : Autism  Surveillance  Canada  NEDSAC Index. décimale : PER Périodiques Résumé : In 2002/2003, the National Epidemiologic Database for the Study of Autism in Canada started capturing information on children diagnosed with autism in different regions of the country. Based on data collected through 2008 in Newfoundland and Labrador and 2010 in Prince Edward Island and Southeastern Ontario, the estimated average annual percent increases in prevalence among children 2–14 years of age ranged from 9.7 % (95 % CI 7.8–11.6) to 14.6 % (95 % CI 11.3–18.0). Differential in-migration and identification of previously undetected cases may have contributed in part to the increases observed, but we cannot rule out the possibility of a true increase in incidence, particularly given the lack of a leveling-off of prevalence among the 6- to 9-year olds. En ligne : http://dx.doi.org/10.1007/s10803-013-1856-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=220 [article] The changing prevalence of autism in three regions of Canada [Texte imprimé et/ou numérique] / Hélène OUELLETTE-KUNTZ, Auteur ; Helen COO, Auteur ; Miu LAM, Auteur ; Marlene BREITENBACH, Auteur ; Paula E. HENNESSEY, Auteur ; Paulette D. JACKMAN, Auteur ; M. E. Suzanne LEWIS, Auteur ; Deborah DEWEY, Auteur ; François P. BERNIER, Auteur ; Amy M. CHUNG, Auteur . - p.120-136. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 44-1 (January 2014) . - p.120-136 Mots-clés : Autism  Surveillance  Canada  NEDSAC Index. décimale : PER Périodiques Résumé : In 2002/2003, the National Epidemiologic Database for the Study of Autism in Canada started capturing information on children diagnosed with autism in different regions of the country. Based on data collected through 2008 in Newfoundland and Labrador and 2010 in Prince Edward Island and Southeastern Ontario, the estimated average annual percent increases in prevalence among children 2–14 years of age ranged from 9.7 % (95 % CI 7.8–11.6) to 14.6 % (95 % CI 11.3–18.0). Differential in-migration and identification of previously undetected cases may have contributed in part to the increases observed, but we cannot rule out the possibility of a true increase in incidence, particularly given the lack of a leveling-off of prevalence among the 6- to 9-year olds. En ligne : http://dx.doi.org/10.1007/s10803-013-1856-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=220

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