Autism in Southeast Europe: A Survey of Caregivers of Children with Autism Spectrum Disorders / Amy M. DANIELS in Journal of Autism and Developmental Disorders, 47-8 (August 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-8 (August 2017) . - p.2314-2325 Titre : Autism in Southeast Europe: A Survey of Caregivers of Children with Autism Spectrum Disorders Type de document : texte imprimé Auteurs : Amy M. DANIELS, Auteur ; Ariel COMO, Auteur ; Sabri HERGUNER, Auteur ; Krasimira KOSTADINOVA, Auteur ; Jasmina STOSIC, Auteur ; Andy SHIH, Auteur Article en page(s) : p.2314-2325 Langues : Anglais (eng) Mots-clés : Southeast  Europe  Caregivers  Diagnosis  Services  Stigma Index. décimale : PER Périodiques Résumé : The aim of this study was to understand the diagnostic, service and lived experiences of families affected by ASD in Southeast Europe. A total of 758 caregivers from Albania, Bulgaria, Croatia and Turkey were surveyed from 2013 to 2015 about characteristics of the child with ASD; service encounters; and caregiver perceptions. The average age at first concern was 24.4 months (SD 11.8) and at diagnosis, 40.0 months (SD 19.0). Psychiatrists were the most common diagnostician; most children received some ASD-related service, most frequently speech and language therapy. Caregivers endorsed challenges in access to care and perceived stigma. Despite country differences, findings relative to age at first concern, disparities in access and service utilization, and stigma speak to common regional needs. En ligne : https://doi.org/10.1007/s10803-017-3145-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=314 [article] Autism in Southeast Europe: A Survey of Caregivers of Children with Autism Spectrum Disorders [texte imprimé] / Amy M. DANIELS, Auteur ; Ariel COMO, Auteur ; Sabri HERGUNER, Auteur ; Krasimira KOSTADINOVA, Auteur ; Jasmina STOSIC, Auteur ; Andy SHIH, Auteur . - p.2314-2325. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-8 (August 2017) . - p.2314-2325 Mots-clés : Southeast  Europe  Caregivers  Diagnosis  Services  Stigma Index. décimale : PER Périodiques Résumé : The aim of this study was to understand the diagnostic, service and lived experiences of families affected by ASD in Southeast Europe. A total of 758 caregivers from Albania, Bulgaria, Croatia and Turkey were surveyed from 2013 to 2015 about characteristics of the child with ASD; service encounters; and caregiver perceptions. The average age at first concern was 24.4 months (SD 11.8) and at diagnosis, 40.0 months (SD 19.0). Psychiatrists were the most common diagnostician; most children received some ASD-related service, most frequently speech and language therapy. Caregivers endorsed challenges in access to care and perceived stigma. Despite country differences, findings relative to age at first concern, disparities in access and service utilization, and stigma speak to common regional needs. En ligne : https://doi.org/10.1007/s10803-017-3145-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=314

Autistic traits in women with polycystic ovary syndrome / Sabri HERGUNER in Research in Autism Spectrum Disorders, 6-3 (July-September 2012)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 6-3 (July-September 2012) . - p.1019-1022 Titre : Autistic traits in women with polycystic ovary syndrome Type de document : texte imprimé Auteurs : Sabri HERGUNER, Auteur ; Hatice HARMANCI, Auteur ; Arzu HERGUNER, Auteur ; Harun TOY, Auteur Année de publication : 2012 Article en page(s) : p.1019-1022 Langues : Anglais (eng) Mots-clés : Polycystic ovary syndrome  Prenatal androgen  Autism spectrum conditions Index. décimale : PER Périodiques Résumé : Several studies suggested that prenatal androgen exposure might contribute to development of polycystic ovary syndrome (PCOS). The androgen theory of autism proposes that autism spectrum conditions (ASC) are in part due to elevated fetal testosterone levels. Furthermore, higher rates of androgen-related conditions including PCOS are reported in women with ASC. In this study, we aimed to measure the autistic traits in women with PCOS. Forty females who had a diagnosis of PCOS were recruited for the study group. For comparison, 40 healthy age – and Body Mass Index (BMI) – matched women who had regular menses were included. All participants completed the Autism-Spectrum Quotient (AQ). There were no significant differences in age, education, and BMI between groups. Total AQ and communication scores were statistically higher in females with PCOS. Although social skills, imagination, attention to detail and attention switching scores were higher in women with PCOS, these did not reach significance. This study showed that autistic traits were higher in women with PCOS than healthy controls which supports that prenatal exposure to high levels of androgen may be involved in development of ASC. En ligne : http://dx.doi.org/10.1016/j.rasd.2012.01.003 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=153 [article] Autistic traits in women with polycystic ovary syndrome [texte imprimé] / Sabri HERGUNER, Auteur ; Hatice HARMANCI, Auteur ; Arzu HERGUNER, Auteur ; Harun TOY, Auteur . - 2012 . - p.1019-1022. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 6-3 (July-September 2012) . - p.1019-1022 Mots-clés : Polycystic ovary syndrome  Prenatal androgen  Autism spectrum conditions Index. décimale : PER Périodiques Résumé : Several studies suggested that prenatal androgen exposure might contribute to development of polycystic ovary syndrome (PCOS). The androgen theory of autism proposes that autism spectrum conditions (ASC) are in part due to elevated fetal testosterone levels. Furthermore, higher rates of androgen-related conditions including PCOS are reported in women with ASC. In this study, we aimed to measure the autistic traits in women with PCOS. Forty females who had a diagnosis of PCOS were recruited for the study group. For comparison, 40 healthy age – and Body Mass Index (BMI) – matched women who had regular menses were included. All participants completed the Autism-Spectrum Quotient (AQ). There were no significant differences in age, education, and BMI between groups. Total AQ and communication scores were statistically higher in females with PCOS. Although social skills, imagination, attention to detail and attention switching scores were higher in women with PCOS, these did not reach significance. This study showed that autistic traits were higher in women with PCOS than healthy controls which supports that prenatal exposure to high levels of androgen may be involved in development of ASC. En ligne : http://dx.doi.org/10.1016/j.rasd.2012.01.003 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=153

Maximizing the Quality and Reporting Standards of Autism Intervention Science / Shannon LAPOINT in Autism Research, 18-11 (November 2025)  

Public ISBD [article]  inAutism Research > 18-11 (November 2025) . - p.2166-2173 Titre : Maximizing the Quality and Reporting Standards of Autism Intervention Science Type de document : texte imprimé Auteurs : Shannon LAPOINT, Auteur ; Claire Brito KLEIN, Auteur ; Micheal SANDBANK, Auteur ; Kristen BOTTEMA-BEUTEL, Auteur ; Sue FLETCHER-WATSON, Auteur ; Gauri DIVAN, Auteur ; Dagmara DIMITRIOU, Auteur ; Evdokia ANAGNOSTOU, Auteur ; Mette Elmose ANDERSEN, Auteur ; Amanda BINNS, Auteur ; Tony CHARMAN, Auteur ; Jasper A. ESTABILLO, Auteur ; Stephanie M. FECTEAU, Auteur ; Anna FERRARI, Auteur ; Marie-Maude GEOFFRAY, Auteur ; Lauren H. HAMPTON, Auteur ; Sabri HERGUNER, Auteur ; Emily S. KUSCHNER, Auteur ; Jia Ying Sarah LEE, Auteur ; Julie SEGERS, Auteur ; Deanna SWAIN, Auteur ; Sarah VEJNOSKA, Auteur ; Giacomo VIVANTI, Auteur ; Chongying WANG, Auteur ; Jonathan GREEN, Auteur Article en page(s) : p.2166-2173 Langues : Anglais (eng) Mots-clés : autism  INSAR  intervention  reporting standards  special interest group  trial Index. décimale : PER Périodiques Résumé : ABSTRACT Although there are clear international standards for intervention science and reporting in healthcare, implementation and uptake have been limited within autism intervention research. To address this concern, a Special Interest Group (SIG) was convened at the International Society for Autism Research (INSAR) Annual Meetings in May 2023 and May 2024. This SIG comprised members of the autistic community, senior clinical scientists, clinicians, advanced researchers, and early career researchers, who discussed and debated quality standards for autism intervention trials. This commentary summarizes relevant literature highlighted by SIG panelists and recommendations generated from small breakout groups and larger group discussions with SIG attendees. We recommend that all journals publishing autism intervention findings, especially autism-focused journals, institute mandatory reporting practices (e.g., trial registration, protocol, analysis plan) to facilitate transparency and rigorous autism intervention science, as well as related education initiatives in support of this goal. Findings from the SIG offer practical, actionable recommendations that we advocate be systematically adopted across autism-focused journals. En ligne : https://doi.org/10.1002/aur.70126 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=571 [article] Maximizing the Quality and Reporting Standards of Autism Intervention Science [texte imprimé] / Shannon LAPOINT, Auteur ; Claire Brito KLEIN, Auteur ; Micheal SANDBANK, Auteur ; Kristen BOTTEMA-BEUTEL, Auteur ; Sue FLETCHER-WATSON, Auteur ; Gauri DIVAN, Auteur ; Dagmara DIMITRIOU, Auteur ; Evdokia ANAGNOSTOU, Auteur ; Mette Elmose ANDERSEN, Auteur ; Amanda BINNS, Auteur ; Tony CHARMAN, Auteur ; Jasper A. ESTABILLO, Auteur ; Stephanie M. FECTEAU, Auteur ; Anna FERRARI, Auteur ; Marie-Maude GEOFFRAY, Auteur ; Lauren H. HAMPTON, Auteur ; Sabri HERGUNER, Auteur ; Emily S. KUSCHNER, Auteur ; Jia Ying Sarah LEE, Auteur ; Julie SEGERS, Auteur ; Deanna SWAIN, Auteur ; Sarah VEJNOSKA, Auteur ; Giacomo VIVANTI, Auteur ; Chongying WANG, Auteur ; Jonathan GREEN, Auteur . - p.2166-2173. Langues : Anglais (eng) in Autism Research > 18-11 (November 2025) . - p.2166-2173 Mots-clés : autism  INSAR  intervention  reporting standards  special interest group  trial Index. décimale : PER Périodiques Résumé : ABSTRACT Although there are clear international standards for intervention science and reporting in healthcare, implementation and uptake have been limited within autism intervention research. To address this concern, a Special Interest Group (SIG) was convened at the International Society for Autism Research (INSAR) Annual Meetings in May 2023 and May 2024. This SIG comprised members of the autistic community, senior clinical scientists, clinicians, advanced researchers, and early career researchers, who discussed and debated quality standards for autism intervention trials. This commentary summarizes relevant literature highlighted by SIG panelists and recommendations generated from small breakout groups and larger group discussions with SIG attendees. We recommend that all journals publishing autism intervention findings, especially autism-focused journals, institute mandatory reporting practices (e.g., trial registration, protocol, analysis plan) to facilitate transparency and rigorous autism intervention science, as well as related education initiatives in support of this goal. Findings from the SIG offer practical, actionable recommendations that we advocate be systematically adopted across autism-focused journals. En ligne : https://doi.org/10.1002/aur.70126 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=571

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