“Communities” in Community Engagement: Lessons Learned From Autism Research in South Korea and South Africa / Roy Richard GRINKER in Autism Research, 5-3 (June 2012)  

Public ISBD [article]  inAutism Research > 5-3 (June 2012) . - p.201-210 Titre : “Communities” in Community Engagement: Lessons Learned From Autism Research in South Korea and South Africa Type de document : Texte imprimé et/ou numérique Auteurs : Roy Richard GRINKER, Auteur ; Nola J. CHAMBERS, Auteur ; Nono NJONGWE, Auteur ; Adrienne E. LAGMAN, Auteur ; Whitney GUTHRIE, Auteur ; Sheri T. STRONACH, Auteur ; Bonnie O. RICHARD, Auteur ; Shuaib KAUCHALI, Auteur ; Beverley KILLIAN, Auteur ; Meera CHHAGAN, Auteur ; Fikri YUCEL, Auteur ; Mwenda KUDUMU, Auteur ; Christie BARKER-CUMMINGS, Auteur ; Judith K. GRETHER, Auteur ; Amy M. WETHERBY, Auteur Année de publication : 2012 Article en page(s) : p.201-210 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  community engagement  cross-cultural studies  epidemiology  Korea  South Africa Index. décimale : PER Périodiques Résumé : Little research has been conducted on behavioral characteristics of children with autism spectrum disorder (ASD) from diverse cultures within the US, or from countries outside of the US or Europe, with little reliable information yet reported from developing countries. We describe the process used to engage diverse communities in ASD research in two community-based research projects—an epidemiologic investigation of 7- to 12-year olds in South Korea and the Early Autism Project, an ASD detection program for 18- to 36-month-old Zulu-speaking children in South Africa. Despite the differences in wealth between these communities, ASD is underdiagnosed in both settings, and generally not reported in clinical or educational records. Moreover, in both countries, there is low availability of services. In both cases, local knowledge helped researchers to address both ethnographic as well as practical problems. Researchers identified the ways in which these communities generate and negotiate the cultural meanings of developmental disorders. Researchers incorporated that knowledge, as they engaged communities in a research protocol, adapted and translated screening and diagnostic tools, and developed methods for screening, evaluating, and diagnosing children with ASD. En ligne : http://dx.doi.org/10.1002/aur.1229 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163 [article] “Communities” in Community Engagement: Lessons Learned From Autism Research in South Korea and South Africa [Texte imprimé et/ou numérique] / Roy Richard GRINKER, Auteur ; Nola J. CHAMBERS, Auteur ; Nono NJONGWE, Auteur ; Adrienne E. LAGMAN, Auteur ; Whitney GUTHRIE, Auteur ; Sheri T. STRONACH, Auteur ; Bonnie O. RICHARD, Auteur ; Shuaib KAUCHALI, Auteur ; Beverley KILLIAN, Auteur ; Meera CHHAGAN, Auteur ; Fikri YUCEL, Auteur ; Mwenda KUDUMU, Auteur ; Christie BARKER-CUMMINGS, Auteur ; Judith K. GRETHER, Auteur ; Amy M. WETHERBY, Auteur . - 2012 . - p.201-210. Langues : Anglais (eng) in Autism Research > 5-3 (June 2012) . - p.201-210 Mots-clés : autism spectrum disorder  community engagement  cross-cultural studies  epidemiology  Korea  South Africa Index. décimale : PER Périodiques Résumé : Little research has been conducted on behavioral characteristics of children with autism spectrum disorder (ASD) from diverse cultures within the US, or from countries outside of the US or Europe, with little reliable information yet reported from developing countries. We describe the process used to engage diverse communities in ASD research in two community-based research projects—an epidemiologic investigation of 7- to 12-year olds in South Korea and the Early Autism Project, an ASD detection program for 18- to 36-month-old Zulu-speaking children in South Africa. Despite the differences in wealth between these communities, ASD is underdiagnosed in both settings, and generally not reported in clinical or educational records. Moreover, in both countries, there is low availability of services. In both cases, local knowledge helped researchers to address both ethnographic as well as practical problems. Researchers identified the ways in which these communities generate and negotiate the cultural meanings of developmental disorders. Researchers incorporated that knowledge, as they engaged communities in a research protocol, adapted and translated screening and diagnostic tools, and developed methods for screening, evaluating, and diagnosing children with ASD. En ligne : http://dx.doi.org/10.1002/aur.1229 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163

Early detection of autism spectrum disorder in young isiZulu-speaking children in South Africa / Nola J. CHAMBERS in Autism, 21-5 (July 2017)  

Public ISBD [article]  inAutism > 21-5 (July 2017) . - p.518-526 Titre : Early detection of autism spectrum disorder in young isiZulu-speaking children in South Africa Type de document : Texte imprimé et/ou numérique Auteurs : Nola J. CHAMBERS, Auteur ; Amy M. WETHERBY, Auteur ; Sheri T. STRONACH, Auteur ; Nonyameko NJONGWE, Auteur ; Shuaib KAUCHALI, Auteur ; Richard R. GRINKER, Auteur Article en page(s) : p.518-526 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Culturally appropriate tools are needed for detecting symptoms of autism spectrum disorder in young South African children. The objectives of this study were to (1) adapt and translate into isiZulu existing measures for detecting early signs of autism spectrum disorder, (2) use the measures to characterize and compare behavioural profiles of young isiZulu-speaking children with and without autism spectrum disorder and (3) compare symptom profiles across sampling procedures. Measures were translated and adapted into isiZulu and used to evaluate 26 isiZulu-speaking children, 15 children with no reported developmental concerns and 11 referred for suspected autism spectrum disorder. A video-recorded observation of children and caregivers in their home environment was also made. Based on best-estimate diagnoses, 10 children were classified as autism spectrum disorder and 16 as non-autism spectrum disorder. The children with autism spectrum disorder presented with significantly more autism spectrum disorder red flags than the non-autism spectrum disorder group according to parent report and systematic ratings of red flags. Significant correlations between parent report and observational measures of red flags were observed. More red flags were observed during structured evaluations than home observations in the autism spectrum disorder group. Findings provide a foundation for tool translation and adaptation in South Africa and identifying social communication markers to detect autism spectrum disorder in young isiZulu-speaking children. En ligne : http://dx.doi.org/10.1177/1362361316651196 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=310 [article] Early detection of autism spectrum disorder in young isiZulu-speaking children in South Africa [Texte imprimé et/ou numérique] / Nola J. CHAMBERS, Auteur ; Amy M. WETHERBY, Auteur ; Sheri T. STRONACH, Auteur ; Nonyameko NJONGWE, Auteur ; Shuaib KAUCHALI, Auteur ; Richard R. GRINKER, Auteur . - p.518-526. Langues : Anglais (eng) in Autism > 21-5 (July 2017) . - p.518-526 Index. décimale : PER Périodiques Résumé : Culturally appropriate tools are needed for detecting symptoms of autism spectrum disorder in young South African children. The objectives of this study were to (1) adapt and translate into isiZulu existing measures for detecting early signs of autism spectrum disorder, (2) use the measures to characterize and compare behavioural profiles of young isiZulu-speaking children with and without autism spectrum disorder and (3) compare symptom profiles across sampling procedures. Measures were translated and adapted into isiZulu and used to evaluate 26 isiZulu-speaking children, 15 children with no reported developmental concerns and 11 referred for suspected autism spectrum disorder. A video-recorded observation of children and caregivers in their home environment was also made. Based on best-estimate diagnoses, 10 children were classified as autism spectrum disorder and 16 as non-autism spectrum disorder. The children with autism spectrum disorder presented with significantly more autism spectrum disorder red flags than the non-autism spectrum disorder group according to parent report and systematic ratings of red flags. Significant correlations between parent report and observational measures of red flags were observed. More red flags were observed during structured evaluations than home observations in the autism spectrum disorder group. Findings provide a foundation for tool translation and adaptation in South Africa and identifying social communication markers to detect autism spectrum disorder in young isiZulu-speaking children. En ligne : http://dx.doi.org/10.1177/1362361316651196 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=310

Global Prevalence of Autism and Other Pervasive Developmental Disorders / Mayada ELSABBAGH in Autism Research, 5-3 (June 2012)  

Public ISBD [article]  inAutism Research > 5-3 (June 2012) . - p.160-179 Titre : Global Prevalence of Autism and Other Pervasive Developmental Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Mayada ELSABBAGH, Auteur ; Gauri DIVAN, Auteur ; Yun-Joo KOH, Auteur ; Young-Shin KIM, Auteur ; Shuaib KAUCHALI, Auteur ; Carlos MARCIN, Auteur ; Cecilia MONTIEL-NAVA, Auteur ; Vikram PATEL, Auteur ; Cristiane S. DE PAULA, Auteur ; Chongying WANG, Auteur ; Mohammad TAGHI YASAMY, Auteur ; Eric FOMBONNE, Auteur Année de publication : 2012 Article en page(s) : p.160-179 Langues : Anglais (eng) Mots-clés : epidemiology  prevalence  global health  low- and middle-income countries Index. décimale : PER Périodiques Résumé : We provide a systematic review of epidemiological surveys of autistic disorder and pervasive developmental disorders (PDDs) worldwide. A secondary aim was to consider the possible impact of geographic, cultural/ethnic, and socioeconomic factors on prevalence estimates and on clinical presentation of PDD. Based on the evidence reviewed, the median of prevalence estimates of autism spectrum disorders was 62/10 000. While existing estimates are variable, the evidence reviewed does not support differences in PDD prevalence by geographic region nor of a strong impact of ethnic/cultural or socioeconomic factors. However, power to detect such effects is seriously limited in existing data sets, particularly in low-income countries. While it is clear that prevalence estimates have increased over time and these vary in different neighboring and distant regions, these findings most likely represent broadening of the diagnostic concets, diagnostic switching from other developmental disabilities to PDD, service availability, and awareness of autistic spectrum disorders in both the lay and professional public. The lack of evidence from the majority of the world's population suggests a critical need for further research and capacity building in low- and middle-income countries. En ligne : http://dx.doi.org/10.1002/aur.239 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163 [article] Global Prevalence of Autism and Other Pervasive Developmental Disorders [Texte imprimé et/ou numérique] / Mayada ELSABBAGH, Auteur ; Gauri DIVAN, Auteur ; Yun-Joo KOH, Auteur ; Young-Shin KIM, Auteur ; Shuaib KAUCHALI, Auteur ; Carlos MARCIN, Auteur ; Cecilia MONTIEL-NAVA, Auteur ; Vikram PATEL, Auteur ; Cristiane S. DE PAULA, Auteur ; Chongying WANG, Auteur ; Mohammad TAGHI YASAMY, Auteur ; Eric FOMBONNE, Auteur . - 2012 . - p.160-179. Langues : Anglais (eng) in Autism Research > 5-3 (June 2012) . - p.160-179 Mots-clés : epidemiology  prevalence  global health  low- and middle-income countries Index. décimale : PER Périodiques Résumé : We provide a systematic review of epidemiological surveys of autistic disorder and pervasive developmental disorders (PDDs) worldwide. A secondary aim was to consider the possible impact of geographic, cultural/ethnic, and socioeconomic factors on prevalence estimates and on clinical presentation of PDD. Based on the evidence reviewed, the median of prevalence estimates of autism spectrum disorders was 62/10 000. While existing estimates are variable, the evidence reviewed does not support differences in PDD prevalence by geographic region nor of a strong impact of ethnic/cultural or socioeconomic factors. However, power to detect such effects is seriously limited in existing data sets, particularly in low-income countries. While it is clear that prevalence estimates have increased over time and these vary in different neighboring and distant regions, these findings most likely represent broadening of the diagnostic concets, diagnostic switching from other developmental disabilities to PDD, service availability, and awareness of autistic spectrum disorders in both the lay and professional public. The lack of evidence from the majority of the world's population suggests a critical need for further research and capacity building in low- and middle-income countries. En ligne : http://dx.doi.org/10.1002/aur.239 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163

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