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Titre : Perspectives from the Common Ground Type de document : Texte imprimé et/ou numérique Auteurs : Mayada ELSABBAGH, Auteur Année de publication : 2012 Article en page(s) : p.153-155 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1002/aur.1237 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163
in Autism Research > 5-3 (June 2012) . - p.153-155[article] Perspectives from the Common Ground [Texte imprimé et/ou numérique] / Mayada ELSABBAGH, Auteur . - 2012 . - p.153-155.
Langues : Anglais (eng)
in Autism Research > 5-3 (June 2012) . - p.153-155
Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1002/aur.1237 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163 Autism and the Grand Challenges in Global Mental Health / Naila Z. KHAN ; Lilia ALBORES-GALLO ; Aurora ARGHIR ; Bogdan BUDISTEANU ; Magdalena BUDISTEANU ; Iuliana DOBRESCU ; Kirsty DONALD ; Samia EL-TABARI ; Michelle HOOGENHOUT ; Fidelie KALAMBAYI ; Rafal KAWA ; Isaac LEMUS ESPINOZA ; Rosane LOWENTHAL ; Susan MALCOLM-SMITH ; Cecilia MONTIEL-NAVA ; Jumana ODEH ; Cristiane S. DE PAULA ; Florina RAD ; Adelaide Katerine TARPAN ; Kevin G. F. THOMAS ; Chongying WANG ; Vikram PATEL ; Simon BARON-COHEN ; Mayada ELSABBAGH in Autism Research, 5-3 (June 2012)
Titre : Global Prevalence of Autism and Other Pervasive Developmental Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Mayada ELSABBAGH, Auteur ; Gauri DIVAN, Auteur ; Yun-Joo KOH, Auteur ; Young-Shin KIM, Auteur ; Shuaib KAUCHALI, Auteur ; Carlos MARCIN, Auteur ; Cecilia MONTIEL-NAVA, Auteur ; Vikram PATEL, Auteur ; Cristiane S. DE PAULA, Auteur ; Chongying WANG, Auteur ; Mohammad TAGHI YASAMY, Auteur ; Eric FOMBONNE, Auteur Année de publication : 2012 Article en page(s) : p.160-179 Langues : Anglais (eng) Mots-clés : epidemiology prevalence global health low- and middle-income countries Index. décimale : PER Périodiques Résumé : We provide a systematic review of epidemiological surveys of autistic disorder and pervasive developmental disorders (PDDs) worldwide. A secondary aim was to consider the possible impact of geographic, cultural/ethnic, and socioeconomic factors on prevalence estimates and on clinical presentation of PDD. Based on the evidence reviewed, the median of prevalence estimates of autism spectrum disorders was 62/10 000. While existing estimates are variable, the evidence reviewed does not support differences in PDD prevalence by geographic region nor of a strong impact of ethnic/cultural or socioeconomic factors. However, power to detect such effects is seriously limited in existing data sets, particularly in low-income countries. While it is clear that prevalence estimates have increased over time and these vary in different neighboring and distant regions, these findings most likely represent broadening of the diagnostic concets, diagnostic switching from other developmental disabilities to PDD, service availability, and awareness of autistic spectrum disorders in both the lay and professional public. The lack of evidence from the majority of the world's population suggests a critical need for further research and capacity building in low- and middle-income countries. En ligne : http://dx.doi.org/10.1002/aur.239 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163
in Autism Research > 5-3 (June 2012) . - p.160-179[article] Global Prevalence of Autism and Other Pervasive Developmental Disorders [Texte imprimé et/ou numérique] / Mayada ELSABBAGH, Auteur ; Gauri DIVAN, Auteur ; Yun-Joo KOH, Auteur ; Young-Shin KIM, Auteur ; Shuaib KAUCHALI, Auteur ; Carlos MARCIN, Auteur ; Cecilia MONTIEL-NAVA, Auteur ; Vikram PATEL, Auteur ; Cristiane S. DE PAULA, Auteur ; Chongying WANG, Auteur ; Mohammad TAGHI YASAMY, Auteur ; Eric FOMBONNE, Auteur . - 2012 . - p.160-179.
Langues : Anglais (eng)
in Autism Research > 5-3 (June 2012) . - p.160-179
Mots-clés : epidemiology prevalence global health low- and middle-income countries Index. décimale : PER Périodiques Résumé : We provide a systematic review of epidemiological surveys of autistic disorder and pervasive developmental disorders (PDDs) worldwide. A secondary aim was to consider the possible impact of geographic, cultural/ethnic, and socioeconomic factors on prevalence estimates and on clinical presentation of PDD. Based on the evidence reviewed, the median of prevalence estimates of autism spectrum disorders was 62/10 000. While existing estimates are variable, the evidence reviewed does not support differences in PDD prevalence by geographic region nor of a strong impact of ethnic/cultural or socioeconomic factors. However, power to detect such effects is seriously limited in existing data sets, particularly in low-income countries. While it is clear that prevalence estimates have increased over time and these vary in different neighboring and distant regions, these findings most likely represent broadening of the diagnostic concets, diagnostic switching from other developmental disabilities to PDD, service availability, and awareness of autistic spectrum disorders in both the lay and professional public. The lack of evidence from the majority of the world's population suggests a critical need for further research and capacity building in low- and middle-income countries. En ligne : http://dx.doi.org/10.1002/aur.239 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163
Titre : Screening for Autism in Mexico Type de document : Texte imprimé et/ou numérique Auteurs : Eric FOMBONNE, Auteur ; Carlos MARCIN, Auteur ; Ruth BRUNO, Auteur ; Cecilia MANERO TINOCO, Auteur ; Christian DIAZ MARQUEZ, Auteur Année de publication : 2012 Article en page(s) : p.180-189 Langues : Anglais (eng) Mots-clés : epidemiology screening autism cultural measurement Index. décimale : PER Périodiques Résumé : In order to conduct the screening phase of the first epidemiological survey of autism spectrum disorders (ASDs) in Mexico, we needed a screening tool to detect autistic symptomatology in a large sample of school-age children. We used the Spanish version of the Social Responsiveness Scale (SRS). We recruited a clinical sample of 200 children (81% males; mean age: 7.4 years) with a confirmed diagnosis of ASDs and a sample of 363 control children (59.5% males; mean age: 8.5 years) without ASDs. Three-way analyses of variance (ANOVAs) identified a main effect of clinical status (ASDs vs. controls) for both parent and teacher scales, but no gender or age effect. The mean total and subscale raw scores were significantly different between the clinical and control groups for the parent and for the teacher SRS (P < 0.001). The internal consistency of the SRS was excellent. Receiver operating characteristic (ROC) analyses showed excellent discriminant validity of the SRS in the Mexican sample (area under the curve: 0.962 for the parent, 0.960 for the teacher). ROC curves were also used to determine which cutoff would provide the best trade-off between sensitivity and specificity. Mexican SRS scores were significantly higher than in the U.S. and German population for typically developing children but comparable for clinically referred subjects. The SRS is an acceptable screening instrument for epidemiological studies of ASDs in Mexico. Its psychometric properties are excellent and comparable to those derived from North American and other samples. En ligne : http://dx.doi.org/10.1002/aur.1235 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163
in Autism Research > 5-3 (June 2012) . - p.180-189[article] Screening for Autism in Mexico [Texte imprimé et/ou numérique] / Eric FOMBONNE, Auteur ; Carlos MARCIN, Auteur ; Ruth BRUNO, Auteur ; Cecilia MANERO TINOCO, Auteur ; Christian DIAZ MARQUEZ, Auteur . - 2012 . - p.180-189.
Langues : Anglais (eng)
in Autism Research > 5-3 (June 2012) . - p.180-189
Mots-clés : epidemiology screening autism cultural measurement Index. décimale : PER Périodiques Résumé : In order to conduct the screening phase of the first epidemiological survey of autism spectrum disorders (ASDs) in Mexico, we needed a screening tool to detect autistic symptomatology in a large sample of school-age children. We used the Spanish version of the Social Responsiveness Scale (SRS). We recruited a clinical sample of 200 children (81% males; mean age: 7.4 years) with a confirmed diagnosis of ASDs and a sample of 363 control children (59.5% males; mean age: 8.5 years) without ASDs. Three-way analyses of variance (ANOVAs) identified a main effect of clinical status (ASDs vs. controls) for both parent and teacher scales, but no gender or age effect. The mean total and subscale raw scores were significantly different between the clinical and control groups for the parent and for the teacher SRS (P < 0.001). The internal consistency of the SRS was excellent. Receiver operating characteristic (ROC) analyses showed excellent discriminant validity of the SRS in the Mexican sample (area under the curve: 0.962 for the parent, 0.960 for the teacher). ROC curves were also used to determine which cutoff would provide the best trade-off between sensitivity and specificity. Mexican SRS scores were significantly higher than in the U.S. and German population for typically developing children but comparable for clinically referred subjects. The SRS is an acceptable screening instrument for epidemiological studies of ASDs in Mexico. Its psychometric properties are excellent and comparable to those derived from North American and other samples. En ligne : http://dx.doi.org/10.1002/aur.1235 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163
Titre : Challenges, Coping Strategies, and Unmet Needs of Families with a Child with Autism Spectrum Disorder in Goa, India Type de document : Texte imprimé et/ou numérique Auteurs : Gauri DIVAN, Auteur ; Vivek VAJARATKAR, Auteur ; Miraj U. DESAI, Auteur ; Luisa STRIK-LIEVERS, Auteur ; Vikram PATEL, Auteur Année de publication : 2012 Article en page(s) : p.190-200 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorders India impact qualitative Faire face Index. décimale : PER Périodiques Résumé : Autism Spectrum Disorders (ASD) are increasingly recognized in developing countries like India. However, little is known about the experiences of parents raising a child with ASD. This study aimed to describe the experiences of families in Goa, India with a view to understanding the unmet needs of families raising a child with ASD. Twenty in-depth interviews and nine focus group discussions were carried out with families of children with ASD and key community stakeholders such as special educators, teachers, and parents of typically developing children. This qualitative data was triangulated to explore the experiences, life impact, and unmet needs of raising a child with ASD. Key findings suggest that raising a child with ASD puts a tremendous strain on families due to competing commitments, often leading to initial social withdrawal with later reintegration into social networks. Second, the impact is multidimensional, involving the personal sphere but also extending into the wider community with negative experiences of discrimination. Third, parents actively respond to these challenges through a range of approaches with help from existing and new social support networks and health care providers. Fourth, professionals from the health, education, and religious sectors have a low awareness of the unique needs of families living with ASD which leads to a considerable economic and emotional burden on families. Finally, as a consequence of these experiences, several unmet needs can be identified, notably for supporting increasingly isolated families and the limited access to multidisciplinary evidence-based services for ASD. En ligne : http://dx.doi.org/10.1002/aur.1225 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163
in Autism Research > 5-3 (June 2012) . - p.190-200[article] Challenges, Coping Strategies, and Unmet Needs of Families with a Child with Autism Spectrum Disorder in Goa, India [Texte imprimé et/ou numérique] / Gauri DIVAN, Auteur ; Vivek VAJARATKAR, Auteur ; Miraj U. DESAI, Auteur ; Luisa STRIK-LIEVERS, Auteur ; Vikram PATEL, Auteur . - 2012 . - p.190-200.
Langues : Anglais (eng)
in Autism Research > 5-3 (June 2012) . - p.190-200
Mots-clés : Autism Spectrum Disorders India impact qualitative Faire face Index. décimale : PER Périodiques Résumé : Autism Spectrum Disorders (ASD) are increasingly recognized in developing countries like India. However, little is known about the experiences of parents raising a child with ASD. This study aimed to describe the experiences of families in Goa, India with a view to understanding the unmet needs of families raising a child with ASD. Twenty in-depth interviews and nine focus group discussions were carried out with families of children with ASD and key community stakeholders such as special educators, teachers, and parents of typically developing children. This qualitative data was triangulated to explore the experiences, life impact, and unmet needs of raising a child with ASD. Key findings suggest that raising a child with ASD puts a tremendous strain on families due to competing commitments, often leading to initial social withdrawal with later reintegration into social networks. Second, the impact is multidimensional, involving the personal sphere but also extending into the wider community with negative experiences of discrimination. Third, parents actively respond to these challenges through a range of approaches with help from existing and new social support networks and health care providers. Fourth, professionals from the health, education, and religious sectors have a low awareness of the unique needs of families living with ASD which leads to a considerable economic and emotional burden on families. Finally, as a consequence of these experiences, several unmet needs can be identified, notably for supporting increasingly isolated families and the limited access to multidisciplinary evidence-based services for ASD. En ligne : http://dx.doi.org/10.1002/aur.1225 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163
Titre : “Communities” in Community Engagement: Lessons Learned From Autism Research in South Korea and South Africa Type de document : Texte imprimé et/ou numérique Auteurs : Roy Richard GRINKER, Auteur ; Nola J. CHAMBERS, Auteur ; Nono NJONGWE, Auteur ; Adrienne E. LAGMAN, Auteur ; Whitney GUTHRIE, Auteur ; Sheri T. STRONACH, Auteur ; Bonnie O. RICHARD, Auteur ; Shuaib KAUCHALI, Auteur ; Beverley KILLIAN, Auteur ; Meera CHHAGAN, Auteur ; Fikri YUCEL, Auteur ; Mwenda KUDUMU, Auteur ; Christie BARKER-CUMMINGS, Auteur ; Judith K. GRETHER, Auteur ; Amy M. WETHERBY, Auteur Année de publication : 2012 Article en page(s) : p.201-210 Langues : Anglais (eng) Mots-clés : autism spectrum disorder community engagement cross-cultural studies epidemiology Korea South Africa Index. décimale : PER Périodiques Résumé : Little research has been conducted on behavioral characteristics of children with autism spectrum disorder (ASD) from diverse cultures within the US, or from countries outside of the US or Europe, with little reliable information yet reported from developing countries. We describe the process used to engage diverse communities in ASD research in two community-based research projects—an epidemiologic investigation of 7- to 12-year olds in South Korea and the Early Autism Project, an ASD detection program for 18- to 36-month-old Zulu-speaking children in South Africa. Despite the differences in wealth between these communities, ASD is underdiagnosed in both settings, and generally not reported in clinical or educational records. Moreover, in both countries, there is low availability of services. In both cases, local knowledge helped researchers to address both ethnographic as well as practical problems. Researchers identified the ways in which these communities generate and negotiate the cultural meanings of developmental disorders. Researchers incorporated that knowledge, as they engaged communities in a research protocol, adapted and translated screening and diagnostic tools, and developed methods for screening, evaluating, and diagnosing children with ASD. En ligne : http://dx.doi.org/10.1002/aur.1229 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163
in Autism Research > 5-3 (June 2012) . - p.201-210[article] “Communities” in Community Engagement: Lessons Learned From Autism Research in South Korea and South Africa [Texte imprimé et/ou numérique] / Roy Richard GRINKER, Auteur ; Nola J. CHAMBERS, Auteur ; Nono NJONGWE, Auteur ; Adrienne E. LAGMAN, Auteur ; Whitney GUTHRIE, Auteur ; Sheri T. STRONACH, Auteur ; Bonnie O. RICHARD, Auteur ; Shuaib KAUCHALI, Auteur ; Beverley KILLIAN, Auteur ; Meera CHHAGAN, Auteur ; Fikri YUCEL, Auteur ; Mwenda KUDUMU, Auteur ; Christie BARKER-CUMMINGS, Auteur ; Judith K. GRETHER, Auteur ; Amy M. WETHERBY, Auteur . - 2012 . - p.201-210.
Langues : Anglais (eng)
in Autism Research > 5-3 (June 2012) . - p.201-210
Mots-clés : autism spectrum disorder community engagement cross-cultural studies epidemiology Korea South Africa Index. décimale : PER Périodiques Résumé : Little research has been conducted on behavioral characteristics of children with autism spectrum disorder (ASD) from diverse cultures within the US, or from countries outside of the US or Europe, with little reliable information yet reported from developing countries. We describe the process used to engage diverse communities in ASD research in two community-based research projects—an epidemiologic investigation of 7- to 12-year olds in South Korea and the Early Autism Project, an ASD detection program for 18- to 36-month-old Zulu-speaking children in South Africa. Despite the differences in wealth between these communities, ASD is underdiagnosed in both settings, and generally not reported in clinical or educational records. Moreover, in both countries, there is low availability of services. In both cases, local knowledge helped researchers to address both ethnographic as well as practical problems. Researchers identified the ways in which these communities generate and negotiate the cultural meanings of developmental disorders. Researchers incorporated that knowledge, as they engaged communities in a research protocol, adapted and translated screening and diagnostic tools, and developed methods for screening, evaluating, and diagnosing children with ASD. En ligne : http://dx.doi.org/10.1002/aur.1229 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163
Titre : A Global Public Health Strategy for Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Simon WALLACE, Auteur ; Deborah A. FEIN, Auteur ; Michael ROSANOFF, Auteur ; Geraldine DAWSON, Auteur ; Saima HOSSAIN, Auteur ; Lynn BRENNAN, Auteur ; Ariel COMO, Auteur ; Andy SHIH, Auteur Année de publication : 2012 Article en page(s) : p.211-217 Langues : Anglais (eng) Mots-clés : epidemiology behavioral intervention parent training, clinical psychiatry Index. décimale : PER Périodiques Résumé : In recent years, there has been increasing awareness about autism spectrum disorders (ASD) around the world, including in low and middle income countries. Unlike countries in Western Europe and North America where infrastructure and capacity are available to help meet some of the needs of individuals with ASD, little expertise or capacity exists in most of the developing world. In 2008 Autism Speaks launched the Global Autism Public Health (GAPH) Initiative to facilitate the development of systematic and sustainable solutions for enhancing global autism awareness, research, training and service delivery. In the last 3 years Autism Speaks has established collaboration with stakeholders from over 20 countries who are working alongside dedicated local and international stakeholders to effect change. In this article, the GAPH framework is described, along with a few brief case examples that illustrate how the framework for implementation of the model can occur. GAPH is still in its infancy but has the potential to have significant impact through inclusive collaboration with local and international stakeholders to develop effective and sustainable public health solutions for disseminating best practices and delivering tangible benefits to individuals with ASD and their families. En ligne : http://dx.doi.org/10.1002/aur.1236 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163
in Autism Research > 5-3 (June 2012) . - p.211-217[article] A Global Public Health Strategy for Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Simon WALLACE, Auteur ; Deborah A. FEIN, Auteur ; Michael ROSANOFF, Auteur ; Geraldine DAWSON, Auteur ; Saima HOSSAIN, Auteur ; Lynn BRENNAN, Auteur ; Ariel COMO, Auteur ; Andy SHIH, Auteur . - 2012 . - p.211-217.
Langues : Anglais (eng)
in Autism Research > 5-3 (June 2012) . - p.211-217
Mots-clés : epidemiology behavioral intervention parent training, clinical psychiatry Index. décimale : PER Périodiques Résumé : In recent years, there has been increasing awareness about autism spectrum disorders (ASD) around the world, including in low and middle income countries. Unlike countries in Western Europe and North America where infrastructure and capacity are available to help meet some of the needs of individuals with ASD, little expertise or capacity exists in most of the developing world. In 2008 Autism Speaks launched the Global Autism Public Health (GAPH) Initiative to facilitate the development of systematic and sustainable solutions for enhancing global autism awareness, research, training and service delivery. In the last 3 years Autism Speaks has established collaboration with stakeholders from over 20 countries who are working alongside dedicated local and international stakeholders to effect change. In this article, the GAPH framework is described, along with a few brief case examples that illustrate how the framework for implementation of the model can occur. GAPH is still in its infancy but has the potential to have significant impact through inclusive collaboration with local and international stakeholders to develop effective and sustainable public health solutions for disseminating best practices and delivering tangible benefits to individuals with ASD and their families. En ligne : http://dx.doi.org/10.1002/aur.1236 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163
Titre : Lay Abstracts Type de document : Texte imprimé et/ou numérique Année de publication : 2012 Article en page(s) : p.218-219 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1002/aur.1241 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163
in Autism Research > 5-3 (June 2012) . - p.218-219[article] Lay Abstracts [Texte imprimé et/ou numérique] . - 2012 . - p.218-219.
Langues : Anglais (eng)
in Autism Research > 5-3 (June 2012) . - p.218-219
Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1002/aur.1241 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163
