Health-related quality of life for children with ASD: Associations with behavioral characteristics / Karen A. KUHLTHAU in Research in Autism Spectrum Disorders, 7-9 (September 2013)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 7-9 (September 2013) . - p.1035-1042 Titre : Health-related quality of life for children with ASD: Associations with behavioral characteristics Type de document : Texte imprimé et/ou numérique Auteurs : Karen A. KUHLTHAU, Auteur ; Erica A. KOVACS, Auteur ; Trevor A. HALL, Auteur ; Traci CLEMMONS, Auteur ; Felice ORLICH, Auteur ; Jennifer DELAHAYE, Auteur ; Darryn SIKORA, Auteur Article en page(s) : p.1035-1042 Langues : Anglais (eng) Mots-clés : Health-related quality of life  Behavior Index. décimale : PER Périodiques Résumé : Abstract This paper examines health-related quality of life (HRQoL) of children age 6–11 years with an autism spectrum disorder (ASD) using the Child Health and Illness Profile – Child Edition (CHIP–CE). We further examine associations of HRQoL scores with measures of behavior using regression models. Overall HRQoL scores are lower than those for normative samples. We find that both externalizing and internalizing behaviors (measured with the Child Behavior Checklist) are correlated with HRQoL as are several of the subscales of the aberrant behavior checklist. These results suggest that some potentially modifiable aspects of ASD, in particular ASD-related and aberrant behaviors, are associated with HRQoL. These associations are suggestive of the potential for improvements in behaviors in some domains having the potential to improve HRQoL. Future studies should determine whether improvements in behaviors are associated with improvements in HRQoL. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.04.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=210 [article] Health-related quality of life for children with ASD: Associations with behavioral characteristics [Texte imprimé et/ou numérique] / Karen A. KUHLTHAU, Auteur ; Erica A. KOVACS, Auteur ; Trevor A. HALL, Auteur ; Traci CLEMMONS, Auteur ; Felice ORLICH, Auteur ; Jennifer DELAHAYE, Auteur ; Darryn SIKORA, Auteur . - p.1035-1042. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 7-9 (September 2013) . - p.1035-1042 Mots-clés : Health-related quality of life  Behavior Index. décimale : PER Périodiques Résumé : Abstract This paper examines health-related quality of life (HRQoL) of children age 6–11 years with an autism spectrum disorder (ASD) using the Child Health and Illness Profile – Child Edition (CHIP–CE). We further examine associations of HRQoL scores with measures of behavior using regression models. Overall HRQoL scores are lower than those for normative samples. We find that both externalizing and internalizing behaviors (measured with the Child Behavior Checklist) are correlated with HRQoL as are several of the subscales of the aberrant behavior checklist. These results suggest that some potentially modifiable aspects of ASD, in particular ASD-related and aberrant behaviors, are associated with HRQoL. These associations are suggestive of the potential for improvements in behaviors in some domains having the potential to improve HRQoL. Future studies should determine whether improvements in behaviors are associated with improvements in HRQoL. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.04.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=210

The Autism Impact Measure (AIM): Initial Development of a New Tool for Treatment Outcome Measurement / Stephen M. KANNE in Journal of Autism and Developmental Disorders, 44-1 (January 2014)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 44-1 (January 2014) . - p.168-179 Titre : The Autism Impact Measure (AIM): Initial Development of a New Tool for Treatment Outcome Measurement Type de document : Texte imprimé et/ou numérique Auteurs : Stephen M. KANNE, Auteur ; Micah O. MAZUREK, Auteur ; Darryn SIKORA, Auteur ; Jayne BELLANDO, Auteur ; Lee BRANUM-MARTIN, Auteur ; Benjamin L. HANDEN, Auteur ; Terry KATZ, Auteur ; Brian FREEDMAN, Auteur ; Mary Paige POWELL, Auteur ; Zachary WARREN, Auteur Article en page(s) : p.168-179 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Outcome  Treatment  Symptoms  Impairment Index. décimale : PER Périodiques Résumé : The current study describes the development and psychometric properties of a new measure targeting sensitivity to change of core autism spectrum disorder (ASD) symptoms, the Autism Impact Measure (AIM). The AIM uses a 2-week recall period with items rated on two corresponding 5-point scales (frequency and impact). Psychometric properties were examined using a large sample (n = 440) of children with ASD enrolled in the Autism Treatment Network. The exploratory factor analysis indicated four factors and resulted in a 25-item questionnaire with excellent overall model fit. Test–retest reliability, cross-informant reliability, and convergent validity with other measures of ASD symptoms and overall functioning were strong. The AIM is a reliable and valid measure of frequency and impact of core ASD symptoms. En ligne : http://dx.doi.org/10.1007/s10803-013-1862-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=220 [article] The Autism Impact Measure (AIM): Initial Development of a New Tool for Treatment Outcome Measurement [Texte imprimé et/ou numérique] / Stephen M. KANNE, Auteur ; Micah O. MAZUREK, Auteur ; Darryn SIKORA, Auteur ; Jayne BELLANDO, Auteur ; Lee BRANUM-MARTIN, Auteur ; Benjamin L. HANDEN, Auteur ; Terry KATZ, Auteur ; Brian FREEDMAN, Auteur ; Mary Paige POWELL, Auteur ; Zachary WARREN, Auteur . - p.168-179. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 44-1 (January 2014) . - p.168-179 Mots-clés : Autism spectrum disorder  Outcome  Treatment  Symptoms  Impairment Index. décimale : PER Périodiques Résumé : The current study describes the development and psychometric properties of a new measure targeting sensitivity to change of core autism spectrum disorder (ASD) symptoms, the Autism Impact Measure (AIM). The AIM uses a 2-week recall period with items rated on two corresponding 5-point scales (frequency and impact). Psychometric properties were examined using a large sample (n = 440) of children with ASD enrolled in the Autism Treatment Network. The exploratory factor analysis indicated four factors and resulted in a 25-item questionnaire with excellent overall model fit. Test–retest reliability, cross-informant reliability, and convergent validity with other measures of ASD symptoms and overall functioning were strong. The AIM is a reliable and valid measure of frequency and impact of core ASD symptoms. En ligne : http://dx.doi.org/10.1007/s10803-013-1862-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=220

The relationship between Health-Related Quality of Life and sleep problems in children with Autism Spectrum Disorders / Jennifer DELAHAYE in Research in Autism Spectrum Disorders, 8-3 (March 2014)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 8-3 (March 2014) . - p.292-303 Titre : The relationship between Health-Related Quality of Life and sleep problems in children with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Jennifer DELAHAYE, Auteur ; Erica A. KOVACS, Auteur ; Darryn SIKORA, Auteur ; Trevor A. HALL, Auteur ; Felice ORLICH, Auteur ; Traci E. CLEMONS, Auteur ; Emma VAN DER WEERD, Auteur ; Laura GLICK, Auteur ; Karen A. KUHLTHAU, Auteur Article en page(s) : p.292-303 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorders  Health-Related Quality of Life  Sleep problems  Pediatrics  PedsQL  Children's Sleep Habits Questionnaire Index. décimale : PER Périodiques Résumé : Abstract Although children with Autism Spectrum Disorders (ASD) are thought to experience sleep problems at a much higher rate than typically developing peers, the relationship between sleep disturbance and Health-Related Quality of Life (HRQoL) has not been explored within this pediatric population. Further, little is understood about the HRQoL of children with ASD in general. This study assessed the HRQoL and sleep health of a sample of children with ASD and investigated the relationship between HRQoL and overall sleep problems within the context of key clinical characteristics. Study participants included 86 parents of children with ASD between the ages of 4 and 12 years. Subjects were recruited from 3 autism specialty clinics at large academic medical centers and asked to proxy-report on their children's HRQoL and sleep habits. Adjusted regression models showed a consistent negative relationship between sleep disturbance and HRQoL, with greater overall sleep problems being associated with poorer total, physical, and psychosocial HRQoL. Sleep duration and sleep anxiety were also found to be negatively associated with HRQoL. These findings suggest that treatments that are effective in treating sleep disturbances may improve children's HRQoL. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.12.015 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=224 [article] The relationship between Health-Related Quality of Life and sleep problems in children with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Jennifer DELAHAYE, Auteur ; Erica A. KOVACS, Auteur ; Darryn SIKORA, Auteur ; Trevor A. HALL, Auteur ; Felice ORLICH, Auteur ; Traci E. CLEMONS, Auteur ; Emma VAN DER WEERD, Auteur ; Laura GLICK, Auteur ; Karen A. KUHLTHAU, Auteur . - p.292-303. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 8-3 (March 2014) . - p.292-303 Mots-clés : Autism Spectrum Disorders  Health-Related Quality of Life  Sleep problems  Pediatrics  PedsQL  Children's Sleep Habits Questionnaire Index. décimale : PER Périodiques Résumé : Abstract Although children with Autism Spectrum Disorders (ASD) are thought to experience sleep problems at a much higher rate than typically developing peers, the relationship between sleep disturbance and Health-Related Quality of Life (HRQoL) has not been explored within this pediatric population. Further, little is understood about the HRQoL of children with ASD in general. This study assessed the HRQoL and sleep health of a sample of children with ASD and investigated the relationship between HRQoL and overall sleep problems within the context of key clinical characteristics. Study participants included 86 parents of children with ASD between the ages of 4 and 12 years. Subjects were recruited from 3 autism specialty clinics at large academic medical centers and asked to proxy-report on their children's HRQoL and sleep habits. Adjusted regression models showed a consistent negative relationship between sleep disturbance and HRQoL, with greater overall sleep problems being associated with poorer total, physical, and psychosocial HRQoL. Sleep duration and sleep anxiety were also found to be negatively associated with HRQoL. These findings suggest that treatments that are effective in treating sleep disturbances may improve children's HRQoL. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.12.015 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=224

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