Brief Report: Fathers’ and Mothers’ Ratings of Behavioral and Emotional Problems in Siblings of Children with Autism Spectrum Disorder / Gemma Maria GRIFFITH in Journal of Autism and Developmental Disorders, 44-5 (May 2014)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 44-5 (May 2014) . - p.1230-1235 Titre : Brief Report: Fathers’ and Mothers’ Ratings of Behavioral and Emotional Problems in Siblings of Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Gemma Maria GRIFFITH, Auteur ; Richard P. HASTINGS, Auteur ; Michael A. PETALAS, Auteur Année de publication : 2014 Article en page(s) : p.1230-1235 Langues : Anglais (eng) Mots-clés : Autism  ASD  Sibling  SDQ  Mother  Father  Behavior Index. décimale : PER Périodiques Résumé : Debate is ongoing about whether typically developing siblings of children with autism spectrum disorder (ASD) are at greater risk of behavioral or emotional problems than siblings of children without ASD. Most data on behavior is provided by mothers, and we do not know whether fathers’ reports differ. The strengths and difficulties questionnaire (Goodman in J Child Psychol Psychiatry 38(5):581–586, 1997) was completed by 168 mothers and 130 fathers. Parents were more likely to rate siblings as having ‘abnormal’ behavior when compared to a normative population. We found moderate correlations between mother–father ratings. More research may be needed to understand any clinical benefits of gathering data about sibling adjustment from more than one parent in the family. Implications for clinical practice and future research are discussed. En ligne : http://dx.doi.org/10.1007/s10803-013-1969-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=232 [article] Brief Report: Fathers’ and Mothers’ Ratings of Behavioral and Emotional Problems in Siblings of Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Gemma Maria GRIFFITH, Auteur ; Richard P. HASTINGS, Auteur ; Michael A. PETALAS, Auteur . - 2014 . - p.1230-1235. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 44-5 (May 2014) . - p.1230-1235 Mots-clés : Autism  ASD  Sibling  SDQ  Mother  Father  Behavior Index. décimale : PER Périodiques Résumé : Debate is ongoing about whether typically developing siblings of children with autism spectrum disorder (ASD) are at greater risk of behavioral or emotional problems than siblings of children without ASD. Most data on behavior is provided by mothers, and we do not know whether fathers’ reports differ. The strengths and difficulties questionnaire (Goodman in J Child Psychol Psychiatry 38(5):581–586, 1997) was completed by 168 mothers and 130 fathers. Parents were more likely to rate siblings as having ‘abnormal’ behavior when compared to a normative population. We found moderate correlations between mother–father ratings. More research may be needed to understand any clinical benefits of gathering data about sibling adjustment from more than one parent in the family. Implications for clinical practice and future research are discussed. En ligne : http://dx.doi.org/10.1007/s10803-013-1969-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=232

“I just don’t fit anywhere”: support experiences and future support needs of individuals with Asperger syndrome in middle adulthood / Gemma Maria GRIFFITH in Autism, 16-5 (September 2012)  

Public ISBD [article]  inAutism > 16-5 (September 2012) . - p.532-546 Titre : “I just don’t fit anywhere”: support experiences and future support needs of individuals with Asperger syndrome in middle adulthood Type de document : Texte imprimé et/ou numérique Auteurs : Gemma Maria GRIFFITH, Auteur ; Vasiliki TOTSIKA, Auteur ; Susie NASH, Auteur ; Richard P. HASTINGS, Auteur Article en page(s) : p.532-546 Langues : Anglais (eng) Mots-clés : Asperger syndrome  support services  qualitative  adults Index. décimale : PER Périodiques Résumé : The experiences of individuals in middle adulthood with Asperger syndrome have been the subject of little previous research, especially in terms of their experience of support services. In the present research, 11 adults with Asperger syndrome were interviewed. Interpretative phenomenological analysis (IPA) was used to interpret the interviews. Four themes emerged from the analysis: living with Asperger syndrome; employment issues; experiences with mainstream support; and future steps towards supporting adults with Asperger syndrome. The findings highlighted the anxiety, depression, and communication difficulties that people with Asperger syndrome may experience. Much of the available support is perceived as unsuitable for individuals with Asperger syndrome. All participants wanted to remain as independent as possible, and believed an individualized approach to support would be greatly beneficial. Recommendations are made for future practice to help support adults with Asperger syndrome. En ligne : http://dx.doi.org/10.1177/1362361311405223 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=182 [article] “I just don’t fit anywhere”: support experiences and future support needs of individuals with Asperger syndrome in middle adulthood [Texte imprimé et/ou numérique] / Gemma Maria GRIFFITH, Auteur ; Vasiliki TOTSIKA, Auteur ; Susie NASH, Auteur ; Richard P. HASTINGS, Auteur . - p.532-546. Langues : Anglais (eng) in Autism > 16-5 (September 2012) . - p.532-546 Mots-clés : Asperger syndrome  support services  qualitative  adults Index. décimale : PER Périodiques Résumé : The experiences of individuals in middle adulthood with Asperger syndrome have been the subject of little previous research, especially in terms of their experience of support services. In the present research, 11 adults with Asperger syndrome were interviewed. Interpretative phenomenological analysis (IPA) was used to interpret the interviews. Four themes emerged from the analysis: living with Asperger syndrome; employment issues; experiences with mainstream support; and future steps towards supporting adults with Asperger syndrome. The findings highlighted the anxiety, depression, and communication difficulties that people with Asperger syndrome may experience. Much of the available support is perceived as unsuitable for individuals with Asperger syndrome. All participants wanted to remain as independent as possible, and believed an individualized approach to support would be greatly beneficial. Recommendations are made for future practice to help support adults with Asperger syndrome. En ligne : http://dx.doi.org/10.1177/1362361311405223 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=182

A national UK census of Applied Behavior Analysis school provision for children with autism / Gemma Maria GRIFFITH in Research in Autism Spectrum Disorders, 6-2 (April-June 2012)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 6-2 (April-June 2012) . - p.798-805 Titre : A national UK census of Applied Behavior Analysis school provision for children with autism Type de document : Texte imprimé et/ou numérique Auteurs : Gemma Maria GRIFFITH, Auteur ; Rosemary FLETCHER, Auteur ; Richard P. HASTINGS, Auteur Année de publication : 2012 Article en page(s) : p.798-805 Langues : Anglais (eng) Mots-clés : Applied Behavior Analysis  Census survey  United kingdom  Autism  Schools Index. décimale : PER Périodiques Résumé : Over more than a decade, specialist Applied Behavior Analysis (ABA) schools or classes for children with autism have developed in the UK and Ireland. However, very little is known internationally about how ABA is defined in practice in school settings, the characteristics of children supported in ABA school settings, and the staffing structures used. To answer these questions, the focus of the present research was a nationwide census of ABA schools throughout the UK. As far as it was possible to ascertain, we achieved a 100% return rate. There were 14 ABA schools and classes throughout the UK, supporting 258 children with autism, and employing 382 staff that supported ABA teaching. The mean ratio for ABA staff to children was 1.4 staff members: 1 child (range 0.7:1–2:1). The majority of all staff members were graduates or had a higher academic qualification (67.7%). This census methodology, if repeated, may help to identify future trends and can provide a baseline for developments in ABA schools/classes in the UK. En ligne : http://dx.doi.org/10.1016/j.rasd.2011.10.014 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=150 [article] A national UK census of Applied Behavior Analysis school provision for children with autism [Texte imprimé et/ou numérique] / Gemma Maria GRIFFITH, Auteur ; Rosemary FLETCHER, Auteur ; Richard P. HASTINGS, Auteur . - 2012 . - p.798-805. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 6-2 (April-June 2012) . - p.798-805 Mots-clés : Applied Behavior Analysis  Census survey  United kingdom  Autism  Schools Index. décimale : PER Périodiques Résumé : Over more than a decade, specialist Applied Behavior Analysis (ABA) schools or classes for children with autism have developed in the UK and Ireland. However, very little is known internationally about how ABA is defined in practice in school settings, the characteristics of children supported in ABA school settings, and the staffing structures used. To answer these questions, the focus of the present research was a nationwide census of ABA schools throughout the UK. As far as it was possible to ascertain, we achieved a 100% return rate. There were 14 ABA schools and classes throughout the UK, supporting 258 children with autism, and employing 382 staff that supported ABA teaching. The mean ratio for ABA staff to children was 1.4 staff members: 1 child (range 0.7:1–2:1). The majority of all staff members were graduates or had a higher academic qualification (67.7%). This census methodology, if repeated, may help to identify future trends and can provide a baseline for developments in ABA schools/classes in the UK. En ligne : http://dx.doi.org/10.1016/j.rasd.2011.10.014 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=150

Receiving an assessment and a potential diagnosis on the autism spectrum: a thematic content analysis of parental experiences / Gemma Maria GRIFFITH in Good Autism Practice - GAP, 14-2 (October 2013)

Public ISBD [article]  inGood Autism Practice - GAP > 14-2 (October 2013) . - p.59-68 Titre : Receiving an assessment and a potential diagnosis on the autism spectrum: a thematic content analysis of parental experiences Type de document : Texte imprimé et/ou numérique Auteurs : Gemma Maria GRIFFITH, Auteur ; Elin WALKER-JONES, Auteur ; Helen FITZPATRICK, Auteur ; Lesley GOODSON, Auteur ; Nia PICKERING, Auteur ; Dawn WIMPORY, Auteur ; Ela CERNYW, Auteur ; Richard Patrick HASTINGS, Auteur Article en page(s) : p.59-68 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Having a child assessed for a possible diagnosis on the autism spectrum is a significant challenge for parents and it is important that research continues to be conducted to evaluate how parents feel about the process and what might be done to enhance this. National guidance on diagnostic assessment and autism have been produced (eg NAPC, 2003 and SIGN, 2007) and the National Institute of Clinical Excellence has also very recently published guidance on this. This paper explores the experiences of eight families living in North Wales on the diagnostic assessment process they experienced by two different teams. They were interviewed two years after the assessment which created the opportunity to ascertain how they felt about the support which followed too. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=219 [article] Receiving an assessment and a potential diagnosis on the autism spectrum: a thematic content analysis of parental experiences [Texte imprimé et/ou numérique] / Gemma Maria GRIFFITH, Auteur ; Elin WALKER-JONES, Auteur ; Helen FITZPATRICK, Auteur ; Lesley GOODSON, Auteur ; Nia PICKERING, Auteur ; Dawn WIMPORY, Auteur ; Ela CERNYW, Auteur ; Richard Patrick HASTINGS, Auteur . - p.59-68. Langues : Anglais (eng) in Good Autism Practice - GAP > 14-2 (October 2013) . - p.59-68 Index. décimale : PER Périodiques Résumé : Having a child assessed for a possible diagnosis on the autism spectrum is a significant challenge for parents and it is important that research continues to be conducted to evaluate how parents feel about the process and what might be done to enhance this. National guidance on diagnostic assessment and autism have been produced (eg NAPC, 2003 and SIGN, 2007) and the National Institute of Clinical Excellence has also very recently published guidance on this. This paper explores the experiences of eight families living in North Wales on the diagnostic assessment process they experienced by two different teams. They were interviewed two years after the assessment which created the opportunity to ascertain how they felt about the support which followed too. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=219

Using Matched Groups to Explore Child Behavior Problems and Maternal Well-Being in Children with Down Syndrome and Autism / Gemma Maria GRIFFITH in Journal of Autism and Developmental Disorders, 40-5 (May 2010)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 40-5 (May 2010) . - p.610-619 Titre : Using Matched Groups to Explore Child Behavior Problems and Maternal Well-Being in Children with Down Syndrome and Autism Type de document : Texte imprimé et/ou numérique Auteurs : Gemma Maria GRIFFITH, Auteur ; Richard P. HASTINGS, Auteur ; Susie NASH, Auteur ; Christopher HILL, Auteur Année de publication : 2010 Article en page(s) : p.610-619 Langues : Anglais (eng) Mots-clés : Autism Down-syndrome Child-behavior Maternal-outcomes Matched-groups Index. décimale : PER Périodiques Résumé : Mothers of children with Down syndrome, autism, and mixed etiology intellectual disabilities, matched on child age, gender, and communication skills (n = 19 in each group) completed measures of their child’s adaptive and problem behaviors, their own parenting stress, and positive perceptions of their child. Children with autism were rated as having more problem behaviors and lower levels of social competence than children with Down syndrome and mixed etiology intellectual disabilities. Mothers of children with autism scored lower on positive perceptions of their child, and higher on stress than the other two groups. After selecting closely matched groups, we found several group differences in child behavior but little evidence of group differences in maternal outcomes. En ligne : http://dx.doi.org/10.1007/s10803-009-0906-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=101 [article] Using Matched Groups to Explore Child Behavior Problems and Maternal Well-Being in Children with Down Syndrome and Autism [Texte imprimé et/ou numérique] / Gemma Maria GRIFFITH, Auteur ; Richard P. HASTINGS, Auteur ; Susie NASH, Auteur ; Christopher HILL, Auteur . - 2010 . - p.610-619. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 40-5 (May 2010) . - p.610-619 Mots-clés : Autism Down-syndrome Child-behavior Maternal-outcomes Matched-groups Index. décimale : PER Périodiques Résumé : Mothers of children with Down syndrome, autism, and mixed etiology intellectual disabilities, matched on child age, gender, and communication skills (n = 19 in each group) completed measures of their child’s adaptive and problem behaviors, their own parenting stress, and positive perceptions of their child. Children with autism were rated as having more problem behaviors and lower levels of social competence than children with Down syndrome and mixed etiology intellectual disabilities. Mothers of children with autism scored lower on positive perceptions of their child, and higher on stress than the other two groups. After selecting closely matched groups, we found several group differences in child behavior but little evidence of group differences in maternal outcomes. En ligne : http://dx.doi.org/10.1007/s10803-009-0906-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=101

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