[article]
| Titre : |
Understanding Hong Kong Chinese Families’ Experiences of an Autism/ASD Diagnosis |
| Type de document : |
texte imprimé |
| Auteurs : |
Kathleen TAIT, Auteur ; Francis FUNG, Auteur ; Aihua HU, Auteur ; Naomi SWELLER, Auteur ; Wei WANG, Auteur |
| Année de publication : |
2016 |
| Article en page(s) : |
p.1164-1183 |
| Langues : |
Anglais (eng) |
| Mots-clés : |
Parental information Diagnosis Autism spectrum disorder Hong Kong SAR |
| Index. décimale : |
PER Périodiques |
| Résumé : |
Little is known about the experience of Chinese parents of children diagnosed with autism spectrum disorders (ASD) living in the Hong Kong Special Administrative Region. Seventy-five parents of children (aged 6 months–18 years) with ASD diagnoses completed the Family Quality of Life Scale. Forty-five parents from the original surveyed cohort, also participated in semi-structured interviews. Parents’ perceptions of their child’s disability were influenced both by their cultural background and by the limited and expensive, pre- and post-diagnostic services available. Longer waiting times to diagnosis were associated with lower emotional well-being and perceived disability-related support. Clinicians are encouraged to become part of the support network for parents of children with ASD, to help parents to adjust to caring for their child. |
| En ligne : |
http://dx.doi.org/10.1007/s10803-015-2650-z |
| Permalink : |
https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=284 |
in Journal of Autism and Developmental Disorders > 46-4 (April 2016) . - p.1164-1183
|  |