[article] 
inJournal of Autism and Developmental Disorders > 46-5 (May 2016) . - p.1793-1805

Titre :	Factors Influencing the Research Participation of Adults with Autism Spectrum Disorders
Type de document :	Texte imprimé et/ou numérique
Auteurs :	Kaaren HAAS, Auteur ; Debra COSTLEY, Auteur ; Marita FALKMER, Auteur ; Amanda RICHDALE, Auteur ; Kate SOFRONOFF, Auteur ; Torbjörn FALKMER, Auteur
Article en page(s) :	p.1793-1805
Langues :	Anglais (eng)
Mots-clés :	Autism  Asperger syndrome  Incentive  Longitudinal studies  Motivation  Research recruitment  Research participation
Index. décimale :	PER Périodiques
Résumé :	Recruiting adults with autism spectrum disorders (ASD) into research poses particular difficulties; longitudinal studies face additional challenges. This paper reports on a mixed methods study to identify factors influencing the participation in longitudinal autism research of adults with ASD, including those with an intellectual disability, and their carers. Common and differentiating factors influencing the research participation of participants are identified and discussed. Factors influencing participation were found to differ both between and within participant categories. We propose a dichotomy whereby factors influencing research participation can be classified as those arising from a participant’s values, which act as either a motivator or a deterrent; and those based on convenience, which act as either an enabler or inhibitor. These findings are applicable to research studies that seek to recruit adults with ASD as participants.
En ligne :	http://dx.doi.org/10.1007/s10803-016-2708-6
Permalink :	https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=288

[article] Factors Influencing the Research Participation of Adults with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Kaaren HAAS, Auteur ; Debra COSTLEY, Auteur ; Marita FALKMER, Auteur ; Amanda RICHDALE, Auteur ; Kate SOFRONOFF, Auteur ; Torbjörn FALKMER, Auteur . - p.1793-1805.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 46-5 (May 2016) . - p.1793-1805

Mots-clés :	Autism  Asperger syndrome  Incentive  Longitudinal studies  Motivation  Research recruitment  Research participation
Index. décimale :	PER Périodiques
Résumé :	Recruiting adults with autism spectrum disorders (ASD) into research poses particular difficulties; longitudinal studies face additional challenges. This paper reports on a mixed methods study to identify factors influencing the participation in longitudinal autism research of adults with ASD, including those with an intellectual disability, and their carers. Common and differentiating factors influencing the research participation of participants are identified and discussed. Factors influencing participation were found to differ both between and within participant categories. We propose a dichotomy whereby factors influencing research participation can be classified as those arising from a participant’s values, which act as either a motivator or a deterrent; and those based on convenience, which act as either an enabler or inhibitor. These findings are applicable to research studies that seek to recruit adults with ASD as participants.
En ligne :	http://dx.doi.org/10.1007/s10803-016-2708-6
Permalink :	https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=288