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Factors Influencing the Research Participation of Adults with Autism Spectrum Disorders / Kaaren HAAS in Journal of Autism and Developmental Disorders, 46-5 (May 2016)
[article]
Titre : Factors Influencing the Research Participation of Adults with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Kaaren HAAS, Auteur ; Debra COSTLEY, Auteur ; Marita FALKMER, Auteur ; Amanda RICHDALE, Auteur ; Kate SOFRONOFF, Auteur ; Torbjörn FALKMER, Auteur Article en page(s) : p.1793-1805 Langues : Anglais (eng) Mots-clés : Autism Asperger syndrome Incentive Longitudinal studies Motivation Research recruitment Research participation Index. décimale : PER Périodiques Résumé : Recruiting adults with autism spectrum disorders (ASD) into research poses particular difficulties; longitudinal studies face additional challenges. This paper reports on a mixed methods study to identify factors influencing the participation in longitudinal autism research of adults with ASD, including those with an intellectual disability, and their carers. Common and differentiating factors influencing the research participation of participants are identified and discussed. Factors influencing participation were found to differ both between and within participant categories. We propose a dichotomy whereby factors influencing research participation can be classified as those arising from a participant’s values, which act as either a motivator or a deterrent; and those based on convenience, which act as either an enabler or inhibitor. These findings are applicable to research studies that seek to recruit adults with ASD as participants. En ligne : http://dx.doi.org/10.1007/s10803-016-2708-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=288
in Journal of Autism and Developmental Disorders > 46-5 (May 2016) . - p.1793-1805[article] Factors Influencing the Research Participation of Adults with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Kaaren HAAS, Auteur ; Debra COSTLEY, Auteur ; Marita FALKMER, Auteur ; Amanda RICHDALE, Auteur ; Kate SOFRONOFF, Auteur ; Torbjörn FALKMER, Auteur . - p.1793-1805.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 46-5 (May 2016) . - p.1793-1805
Mots-clés : Autism Asperger syndrome Incentive Longitudinal studies Motivation Research recruitment Research participation Index. décimale : PER Périodiques Résumé : Recruiting adults with autism spectrum disorders (ASD) into research poses particular difficulties; longitudinal studies face additional challenges. This paper reports on a mixed methods study to identify factors influencing the participation in longitudinal autism research of adults with ASD, including those with an intellectual disability, and their carers. Common and differentiating factors influencing the research participation of participants are identified and discussed. Factors influencing participation were found to differ both between and within participant categories. We propose a dichotomy whereby factors influencing research participation can be classified as those arising from a participant’s values, which act as either a motivator or a deterrent; and those based on convenience, which act as either an enabler or inhibitor. These findings are applicable to research studies that seek to recruit adults with ASD as participants. En ligne : http://dx.doi.org/10.1007/s10803-016-2708-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=288