“In the Driver’s Seat”: Parent Perceptions of Choice in a Participant-Directed Medicaid Waiver Program for Young Children with Autism / Maria T. TIMBERLAKE in Journal of Autism and Developmental Disorders, 44-4 (April 2014)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 44-4 (April 2014) . - p.903-914 Titre : “In the Driver’s Seat”: Parent Perceptions of Choice in a Participant-Directed Medicaid Waiver Program for Young Children with Autism Type de document : Texte imprimé et/ou numérique Auteurs : Maria T. TIMBERLAKE, Auteur ; Walter N. LEUTZ, Auteur ; Marji E. WARFIELD, Auteur ; Giuseppina CHIRI, Auteur Année de publication : 2014 Article en page(s) : p.903-914 Langues : Anglais (eng) Mots-clés : Participant direction  Choice  Medicaid home and community-based services  Autism waiver Index. décimale : PER Périodiques Résumé : This study investigated families’ experience of choice within a participant-directed Medicaid waiver program for young children with autism. Fourteen parents or grandparents participated in in-depth interviews about their experience of choosing personnel, directing in-home services, and managing the $25,000 annual allocation. Key findings included families’ preference to hire providers with whom they have a prior relationship, parent empowerment and differences of opinion about parents as teachers. Professionals implementing participant directed service models could benefit from understanding the strong value parents’ placed on the personalities and interpersonal skills of providers. Parents’ descriptions of directing rather than merely accepting autism services revealed increased confidence in their ability to choose and manage the multiple components of their children’s HCBS autism waiver program. En ligne : http://dx.doi.org/10.1007/s10803-013-1942-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=228 [article] “In the Driver’s Seat”: Parent Perceptions of Choice in a Participant-Directed Medicaid Waiver Program for Young Children with Autism [Texte imprimé et/ou numérique] / Maria T. TIMBERLAKE, Auteur ; Walter N. LEUTZ, Auteur ; Marji E. WARFIELD, Auteur ; Giuseppina CHIRI, Auteur . - 2014 . - p.903-914. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 44-4 (April 2014) . - p.903-914 Mots-clés : Participant direction  Choice  Medicaid home and community-based services  Autism waiver Index. décimale : PER Périodiques Résumé : This study investigated families’ experience of choice within a participant-directed Medicaid waiver program for young children with autism. Fourteen parents or grandparents participated in in-depth interviews about their experience of choosing personnel, directing in-home services, and managing the $25,000 annual allocation. Key findings included families’ preference to hire providers with whom they have a prior relationship, parent empowerment and differences of opinion about parents as teachers. Professionals implementing participant directed service models could benefit from understanding the strong value parents’ placed on the personalities and interpersonal skills of providers. Parents’ descriptions of directing rather than merely accepting autism services revealed increased confidence in their ability to choose and manage the multiple components of their children’s HCBS autism waiver program. En ligne : http://dx.doi.org/10.1007/s10803-013-1942-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=228

Pediatric provider’s perspectives on the transition to adult health care for youth with autism spectrum disorder: Current strategies and promising new directions / Karen A. KUHLTHAU in Autism, 19-3 (April 2015)  

Public ISBD [article]  inAutism > 19-3 (April 2015) . - p.262-271 Titre : Pediatric provider’s perspectives on the transition to adult health care for youth with autism spectrum disorder: Current strategies and promising new directions Type de document : Texte imprimé et/ou numérique Auteurs : Karen A. KUHLTHAU, Auteur ; Marji E. WARFIELD, Auteur ; Jill HURSON, Auteur ; Jennifer DELAHAYE, Auteur ; Morgan K. CROSSMAN, Auteur Article en page(s) : p.262-271 Langues : Anglais (eng) Mots-clés : autism  transition  youth  healthcare  pediatrics Index. décimale : PER Périodiques Résumé : Few youth with autism spectrum disorder (ASD) nationally report receiving services to help them transition from the pediatric health care system to the adult health care system. For example, only one-fifth (21.1%) of youth with ASD receive any transition planning services. To better understand why the transition from pediatric to adult health care is so difficult, we interviewed pediatric health care providers with extensive experience serving youth with ASD. We gathered information about the strategies and interventions they use to transition their patients with ASD to an adult provider. Five interventions or strategies are currently being used. These include providing families with written medical summaries to give to adult providers, compiling lists of available adult providers or community resources, coordinating care and communication between individual pediatric and adult providers, making transition-specific appointments, and using checklists to track transition progress. Other interventions or strategies were identified as needed but not currently in practice, and these focused on education and training. For example, informational workshops were suggested to train families and youth about transition. Training adult providers and medical students was also seen as important. Several respondents additionally identified the need for a transition center where all services could be coordinated in one place. With large numbers of youth with ASD becoming young adults, it seems that pediatric practices might want to consider some of the activities described here. Some of these activities, such as family educational seminars and written medical summaries, are likely relatively easy for a practice to implement. En ligne : http://dx.doi.org/10.1177/1362361313518125 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=257 [article] Pediatric provider’s perspectives on the transition to adult health care for youth with autism spectrum disorder: Current strategies and promising new directions [Texte imprimé et/ou numérique] / Karen A. KUHLTHAU, Auteur ; Marji E. WARFIELD, Auteur ; Jill HURSON, Auteur ; Jennifer DELAHAYE, Auteur ; Morgan K. CROSSMAN, Auteur . - p.262-271. Langues : Anglais (eng) in Autism > 19-3 (April 2015) . - p.262-271 Mots-clés : autism  transition  youth  healthcare  pediatrics Index. décimale : PER Périodiques Résumé : Few youth with autism spectrum disorder (ASD) nationally report receiving services to help them transition from the pediatric health care system to the adult health care system. For example, only one-fifth (21.1%) of youth with ASD receive any transition planning services. To better understand why the transition from pediatric to adult health care is so difficult, we interviewed pediatric health care providers with extensive experience serving youth with ASD. We gathered information about the strategies and interventions they use to transition their patients with ASD to an adult provider. Five interventions or strategies are currently being used. These include providing families with written medical summaries to give to adult providers, compiling lists of available adult providers or community resources, coordinating care and communication between individual pediatric and adult providers, making transition-specific appointments, and using checklists to track transition progress. Other interventions or strategies were identified as needed but not currently in practice, and these focused on education and training. For example, informational workshops were suggested to train families and youth about transition. Training adult providers and medical students was also seen as important. Several respondents additionally identified the need for a transition center where all services could be coordinated in one place. With large numbers of youth with ASD becoming young adults, it seems that pediatric practices might want to consider some of the activities described here. Some of these activities, such as family educational seminars and written medical summaries, are likely relatively easy for a practice to implement. En ligne : http://dx.doi.org/10.1177/1362361313518125 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=257

Physician Perspectives on Providing Primary Medical Care to Adults with Autism Spectrum Disorders (ASD) / Marji E. WARFIELD in Journal of Autism and Developmental Disorders, 45-7 (July 2015)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 45-7 (July 2015) . - p.2209-2217 Titre : Physician Perspectives on Providing Primary Medical Care to Adults with Autism Spectrum Disorders (ASD) Type de document : Texte imprimé et/ou numérique Auteurs : Marji E. WARFIELD, Auteur ; Morgan K. CROSSMAN, Auteur ; Jennifer DELAHAYE, Auteur ; Emma DER WEERD, Auteur ; Karen A. KUHLTHAU, Auteur Année de publication : 2015 Article en page(s) : p.2209-2217 Langues : Anglais (eng) Mots-clés : Adults with autism spectrum disorders  Health care  Physician perspectives  Physician training Index. décimale : PER Périodiques Résumé : We conducted in-depth case studies of 10 health care professionals who actively provide primary medical care to adults with autism spectrum disorders. The study sought to understand their experiences in providing this care, the training they had received, the training they lack and their suggestions for encouraging more physicians to provide this care. Qualitative data were gathered by phone using a structured interview guide and analyzed using the framework approach. Challenges to providing care were identified at the systems, practice and provider, and education and training levels. Solutions and interventions targeting needed changes at each level were also proposed. The findings have implications for health care reform, medical school and residency training programs, and the development of best practices. En ligne : http://dx.doi.org/10.1007/s10803-015-2386-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=261 [article] Physician Perspectives on Providing Primary Medical Care to Adults with Autism Spectrum Disorders (ASD) [Texte imprimé et/ou numérique] / Marji E. WARFIELD, Auteur ; Morgan K. CROSSMAN, Auteur ; Jennifer DELAHAYE, Auteur ; Emma DER WEERD, Auteur ; Karen A. KUHLTHAU, Auteur . - 2015 . - p.2209-2217. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 45-7 (July 2015) . - p.2209-2217 Mots-clés : Adults with autism spectrum disorders  Health care  Physician perspectives  Physician training Index. décimale : PER Périodiques Résumé : We conducted in-depth case studies of 10 health care professionals who actively provide primary medical care to adults with autism spectrum disorders. The study sought to understand their experiences in providing this care, the training they had received, the training they lack and their suggestions for encouraging more physicians to provide this care. Qualitative data were gathered by phone using a structured interview guide and analyzed using the framework approach. Challenges to providing care were identified at the systems, practice and provider, and education and training levels. Solutions and interventions targeting needed changes at each level were also proposed. The findings have implications for health care reform, medical school and residency training programs, and the development of best practices. En ligne : http://dx.doi.org/10.1007/s10803-015-2386-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=261

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