Barriers to healthcare: Instrument development and comparison between autistic adults and adults with and without other disabilities / Dora M. RAYMAKER in Autism, 21-8 (November 2017)  

Public ISBD [article]  inAutism > 21-8 (November 2017) . - p.972-984 Titre : Barriers to healthcare: Instrument development and comparison between autistic adults and adults with and without other disabilities Type de document : texte imprimé Auteurs : Dora M. RAYMAKER, Auteur ; Katherine E. MCDONALD, Auteur ; Elesia ASHKENAZY, Auteur ; Martha GERRITY, Auteur ; Amelia M. BAGGS, Auteur ; Clarissa KRIPKE, Auteur ; Sarah HOURSTON, Auteur ; Christina NICOLAIDIS, Auteur Année de publication : 2017 Article en page(s) : p.972-984 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Our objective was to use a community-based participatory research approach to identify and compare barriers to healthcare experienced by autistic adults and adults with and without other disabilities. To do so, we developed a Long- and Short-Form instrument to assess barriers in clinical and research settings. Using the Barriers to Healthcare Checklist?Long Form, we surveyed 437 participants (209 autistic, 55 non-autistic with disabilities, and 173 non-autistic without disabilities). Autistic participants selected different and greater barriers to healthcare, particularly in areas related to emotional regulation, patient-provider communication, sensory sensitivity, and healthcare navigation. Top barriers were fear or anxiety (35% (n=74)), not being able to process information fast enough to participate in real-time discussions about healthcare (32% (n=67)), concern about cost (30% (n=62)), facilities causing sensory issues 30% ((n=62)), and difficulty communicating with providers (29% (n=61)). The Long Form instrument exhibited good content and construct validity. The items combined to create the Short Form had predominantly high levels of correlation (range 0.2 0.8, p?< 0.001) and showed responsiveness to change. We recommend healthcare providers, clinics, and others working in healthcare settings to be aware of these barriers, and urge more intervention research to explore means for removing them. En ligne : https://doi.org/10.1177/1362361316661261 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=320 [article] Barriers to healthcare: Instrument development and comparison between autistic adults and adults with and without other disabilities [texte imprimé] / Dora M. RAYMAKER, Auteur ; Katherine E. MCDONALD, Auteur ; Elesia ASHKENAZY, Auteur ; Martha GERRITY, Auteur ; Amelia M. BAGGS, Auteur ; Clarissa KRIPKE, Auteur ; Sarah HOURSTON, Auteur ; Christina NICOLAIDIS, Auteur . - 2017 . - p.972-984. Langues : Anglais (eng) in Autism > 21-8 (November 2017) . - p.972-984 Index. décimale : PER Périodiques Résumé : Our objective was to use a community-based participatory research approach to identify and compare barriers to healthcare experienced by autistic adults and adults with and without other disabilities. To do so, we developed a Long- and Short-Form instrument to assess barriers in clinical and research settings. Using the Barriers to Healthcare Checklist?Long Form, we surveyed 437 participants (209 autistic, 55 non-autistic with disabilities, and 173 non-autistic without disabilities). Autistic participants selected different and greater barriers to healthcare, particularly in areas related to emotional regulation, patient-provider communication, sensory sensitivity, and healthcare navigation. Top barriers were fear or anxiety (35% (n=74)), not being able to process information fast enough to participate in real-time discussions about healthcare (32% (n=67)), concern about cost (30% (n=62)), facilities causing sensory issues 30% ((n=62)), and difficulty communicating with providers (29% (n=61)). The Long Form instrument exhibited good content and construct validity. The items combined to create the Short Form had predominantly high levels of correlation (range 0.2 0.8, p?< 0.001) and showed responsiveness to change. We recommend healthcare providers, clinics, and others working in healthcare settings to be aware of these barriers, and urge more intervention research to explore means for removing them. En ligne : https://doi.org/10.1177/1362361316661261 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=320

The health status of adults on the autism spectrum / Lisa A. CROEN in Autism, 19-7 (October 2015)  

Public ISBD [article]  inAutism > 19-7 (October 2015) . - p.814-823 Titre : The health status of adults on the autism spectrum Type de document : texte imprimé Auteurs : Lisa A. CROEN, Auteur ; Ousseny ZERBO, Auteur ; Yinge QIAN, Auteur ; Maria L. MASSOLO, Auteur ; Steve RICH, Auteur ; Stephen SIDNEY, Auteur ; Clarissa KRIPKE, Auteur Année de publication : 2015 Article en page(s) : p.814-823 Langues : Anglais (eng) Mots-clés : adults  autism spectrum disorders  medical comorbidity  psychiatric comorbidity Index. décimale : PER Périodiques Résumé : Compared to the general pediatric population, children with autism have higher rates of co-occurring medical and psychiatric illnesses, yet very little is known about the general health status of adults with autism. The objective of this study was to describe the frequency of psychiatric and medical conditions among a large, diverse, insured population of adults with autism in the United States. Participants were adult members of Kaiser Permanente Northern California enrolled from 2008 to 2012. Autism spectrum disorder cases (N = 1507) were adults with autism spectrum disorder diagnoses (International Classification of Diseases-9-Clinical Modification codes 299.0, 299.8, 299.9) recorded in medical records on at least two separate occasions. Controls (N = 15,070) were adults without any autism spectrum disorder diagnoses sampled at a 10:1 ratio and frequency matched to cases on sex and age. Adults with autism had significantly increased rates of all major psychiatric disorders including depression, anxiety, bipolar disorder, obsessive–compulsive disorder, schizophrenia, and suicide attempts. Nearly all medical conditions were significantly more common in adults with autism, including immune conditions, gastrointestinal and sleep disorders, seizure, obesity, dyslipidemia, hypertension, and diabetes. Rarer conditions, such as stroke and Parkinson’s disease, were also significantly more common among adults with autism. Future research is needed to understand the social, healthcare access, and biological factors underlying these observations. En ligne : http://dx.doi.org/10.1177/1362361315577517 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=269 [article] The health status of adults on the autism spectrum [texte imprimé] / Lisa A. CROEN, Auteur ; Ousseny ZERBO, Auteur ; Yinge QIAN, Auteur ; Maria L. MASSOLO, Auteur ; Steve RICH, Auteur ; Stephen SIDNEY, Auteur ; Clarissa KRIPKE, Auteur . - 2015 . - p.814-823. Langues : Anglais (eng) in Autism > 19-7 (October 2015) . - p.814-823 Mots-clés : adults  autism spectrum disorders  medical comorbidity  psychiatric comorbidity Index. décimale : PER Périodiques Résumé : Compared to the general pediatric population, children with autism have higher rates of co-occurring medical and psychiatric illnesses, yet very little is known about the general health status of adults with autism. The objective of this study was to describe the frequency of psychiatric and medical conditions among a large, diverse, insured population of adults with autism in the United States. Participants were adult members of Kaiser Permanente Northern California enrolled from 2008 to 2012. Autism spectrum disorder cases (N = 1507) were adults with autism spectrum disorder diagnoses (International Classification of Diseases-9-Clinical Modification codes 299.0, 299.8, 299.9) recorded in medical records on at least two separate occasions. Controls (N = 15,070) were adults without any autism spectrum disorder diagnoses sampled at a 10:1 ratio and frequency matched to cases on sex and age. Adults with autism had significantly increased rates of all major psychiatric disorders including depression, anxiety, bipolar disorder, obsessive–compulsive disorder, schizophrenia, and suicide attempts. Nearly all medical conditions were significantly more common in adults with autism, including immune conditions, gastrointestinal and sleep disorders, seizure, obesity, dyslipidemia, hypertension, and diabetes. Rarer conditions, such as stroke and Parkinson’s disease, were also significantly more common among adults with autism. Future research is needed to understand the social, healthcare access, and biological factors underlying these observations. En ligne : http://dx.doi.org/10.1177/1362361315577517 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=269

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