Adherence to behavioral treatments and parent stress in families of children with ASD / Aimee K. ROVANE in Research in Autism Spectrum Disorders, 77 (September 2020)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 77 (September 2020) . - 101609 Titre : Adherence to behavioral treatments and parent stress in families of children with ASD Type de document : texte imprimé Auteurs : Aimee K. ROVANE, Auteur ; Robert HOCK, Auteur ; Stacy-Ann A. JANUARY, Auteur Article en page(s) : 101609 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Parents  Treatment adherence  Behavior treatment  Treatment demands  Treatment effectiveness  Treatment relevance Index. décimale : PER Périodiques Résumé : Background Recent studies suggest that parent involvement with behavioral treatment for behavior problems may reduce parent stress in families with a child with autism spectrum disorder (ASD). However, it is not known whether high treatment adherence to protocols is associated with reduced parent stress nor what perceptions of treatment may moderate this relation. Method The current study examined the relation between parents’ adherence to behavioral treatments and parent stress, and whether parents’ perceptions toward treatment moderate this association. Participants were 190 mothers, fathers, or caregivers of a child with ASD. A bivariate correlation matrix examined associations between each variable, and three separate linear regression models regressed parent stress on treatment adherence, perceptions of treatment, and the interaction of the two. Covariates included child age and severity of behavior problems. Results Treatment adherence had a significant negative relation with parent stress. Treatment demandingness, but neither treatment relevance nor treatment effectiveness, emerged as a moderator for the association between treatment adherence and parent stress. Conclusions Evidence was found for an association between treatment adherence and parent stress with partial support that perceptions of treatment moderate the association. Specifically, high treatment adherence was associated with lower parent stress, and the effect was most pronounced when treatment demandingness was low. These findings have implications for clinicians and treatment providers who are well-positioned to monitor and address parent attitudes to aid positive treatment outcomes for both the child and the parent. Moreover, clinicians can consider the impact of treatment demandingness on the whole family system. En ligne : https://doi.org/10.1016/j.rasd.2020.101609 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432 [article] Adherence to behavioral treatments and parent stress in families of children with ASD [texte imprimé] / Aimee K. ROVANE, Auteur ; Robert HOCK, Auteur ; Stacy-Ann A. JANUARY, Auteur . - 101609. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 77 (September 2020) . - 101609 Mots-clés : Autism spectrum disorder  Parents  Treatment adherence  Behavior treatment  Treatment demands  Treatment effectiveness  Treatment relevance Index. décimale : PER Périodiques Résumé : Background Recent studies suggest that parent involvement with behavioral treatment for behavior problems may reduce parent stress in families with a child with autism spectrum disorder (ASD). However, it is not known whether high treatment adherence to protocols is associated with reduced parent stress nor what perceptions of treatment may moderate this relation. Method The current study examined the relation between parents’ adherence to behavioral treatments and parent stress, and whether parents’ perceptions toward treatment moderate this association. Participants were 190 mothers, fathers, or caregivers of a child with ASD. A bivariate correlation matrix examined associations between each variable, and three separate linear regression models regressed parent stress on treatment adherence, perceptions of treatment, and the interaction of the two. Covariates included child age and severity of behavior problems. Results Treatment adherence had a significant negative relation with parent stress. Treatment demandingness, but neither treatment relevance nor treatment effectiveness, emerged as a moderator for the association between treatment adherence and parent stress. Conclusions Evidence was found for an association between treatment adherence and parent stress with partial support that perceptions of treatment moderate the association. Specifically, high treatment adherence was associated with lower parent stress, and the effect was most pronounced when treatment demandingness was low. These findings have implications for clinicians and treatment providers who are well-positioned to monitor and address parent attitudes to aid positive treatment outcomes for both the child and the parent. Moreover, clinicians can consider the impact of treatment demandingness on the whole family system. En ligne : https://doi.org/10.1016/j.rasd.2020.101609 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432

Associations between child behavior problems, family management, and depressive symptoms for mothers of children with autism spectrum disorder / Irang KIM in Research in Autism Spectrum Disorders, 26 (June 2016)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 26 (June 2016) . - p.80-90 Titre : Associations between child behavior problems, family management, and depressive symptoms for mothers of children with autism spectrum disorder Type de document : texte imprimé Auteurs : Irang KIM, Auteur ; Naomi V. EKAS, Auteur ; Robert HOCK, Auteur Article en page(s) : p.80-90 Langues : Anglais (eng) Mots-clés : Family management  Depressive symptoms  Behavior problems  Family management style framework Index. décimale : PER Périodiques Résumé : AbstractPurpose The purpose of the current study was to examine the relationships between child behavior problems and mothers’ depressive symptoms and to determine whether family management mediates this relationship. Methods We conducted a cross-sectional survey of parents in a southeastern state. Mothers of children with ASD (n = 234) completed self-reported measures of child behavior problems, depressive symptoms, and family management using ad-hoc questions, CES-D-Boston short form, and family management measure (FaMM), respectively. We used a parallel multiple mediator model to address the study hypotheses. Results Children’s behavior problems were significantly associated with mothers’ depressive symptoms and with all five subscales of the FaMM. However, only the Family Life Difficulty subscale was a significant predictor of parent depressive symptoms, suggesting that Family Life Difficulty was the only mediator of the association between child behavior problems and mothers’ depressive symptoms. After accounting for the mediators, the direct effect of child behavior problems on parent depressive symptoms was non-significant. Conclusion As the severity of child behavior problems increased, mothers of children with ASD perceived a greater impact of ASD on their family life, which in turn increased the levels of the mothers’ depressive symptoms. Family Life Difficulty assesses parent perceptions of the extent to which their child with ASD influences family relationships and routines, suggesting a need for family-centered services that assist the family in maintaining or adapting to their routines. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.03.009 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=285 [article] Associations between child behavior problems, family management, and depressive symptoms for mothers of children with autism spectrum disorder [texte imprimé] / Irang KIM, Auteur ; Naomi V. EKAS, Auteur ; Robert HOCK, Auteur . - p.80-90. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 26 (June 2016) . - p.80-90 Mots-clés : Family management  Depressive symptoms  Behavior problems  Family management style framework Index. décimale : PER Périodiques Résumé : AbstractPurpose The purpose of the current study was to examine the relationships between child behavior problems and mothers’ depressive symptoms and to determine whether family management mediates this relationship. Methods We conducted a cross-sectional survey of parents in a southeastern state. Mothers of children with ASD (n = 234) completed self-reported measures of child behavior problems, depressive symptoms, and family management using ad-hoc questions, CES-D-Boston short form, and family management measure (FaMM), respectively. We used a parallel multiple mediator model to address the study hypotheses. Results Children’s behavior problems were significantly associated with mothers’ depressive symptoms and with all five subscales of the FaMM. However, only the Family Life Difficulty subscale was a significant predictor of parent depressive symptoms, suggesting that Family Life Difficulty was the only mediator of the association between child behavior problems and mothers’ depressive symptoms. After accounting for the mediators, the direct effect of child behavior problems on parent depressive symptoms was non-significant. Conclusion As the severity of child behavior problems increased, mothers of children with ASD perceived a greater impact of ASD on their family life, which in turn increased the levels of the mothers’ depressive symptoms. Family Life Difficulty assesses parent perceptions of the extent to which their child with ASD influences family relationships and routines, suggesting a need for family-centered services that assist the family in maintaining or adapting to their routines. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.03.009 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=285

Psychosocial factors associated with the trajectories of interparental conflict for Australian fathers of autistic children: A longitudinal study across 10 years of child development / Grace MCMAHON ; Ali FOGARTY ; Bridget O'CONNOR ; Mark E. FEINBERG ; Robert HOCK ; Rebecca GIALLO in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1554-1568 Titre : Psychosocial factors associated with the trajectories of interparental conflict for Australian fathers of autistic children: A longitudinal study across 10 years of child development Type de document : texte imprimé Auteurs : Grace MCMAHON, Auteur ; Ali FOGARTY, Auteur ; Bridget O'CONNOR, Auteur ; Mark E. FEINBERG, Auteur ; Robert HOCK, Auteur ; Rebecca GIALLO, Auteur Article en page(s) : p.1554-1568 Langues : Anglais (eng) Mots-clés : autism  fathers  interparental conflict  psychosocial factors  trajectory Index. décimale : PER Périodiques Résumé : Limited research exists on fathers" experiences of interparental conflict (IPC) in families with autistic children. We aimed to identify: (1) the extent to which these fathers report IPC across 10 years of child development (4-14 years) and how this compares to fathers of non-autistic children; (2) distinct trajectories of IPC for fathers of autistic children and (3) factors associated with trajectories of IPC among fathers of autistic children. This is a retrospective study using a national dataset. Participants were 281 fathers of autistic children and 7046 fathers of non-autistic children. Although small effect sizes, fathers of autistic children, on average, reported significantly higher IPC when their child was 4-5, 6-7, 8-9 and 10-12 years of age, compared to fathers of non-autistic children. For fathers of autistic children, longitudinal latent class analysis revealed three profiles reflecting 'low and stable", 'moderate and stable" and 'persistently elevated" levels of IPC over time. Regression analysis revealed a range of predictors (e.g. co-parenting support, father age) for fathers of autistic children experiencing 'moderate and stable" and 'persistently elevated" IPC as compared to fathers who experienced low levels of IPC. There is a significant portion of fathers of autistic children who experience ongoing and heightened IPC, highlighting the need for targeted support.Lay Abstract Not much is known about how fathers experience conflict with their partners (either verbal or physical) while raising an autistic child. This study focused on understanding these experiences over 10 years, following children from the age of 4 to 14 years. The study had two main goals: (1) to track how fathers experience conflict with their partners over this time and identify different patterns to these experiences; and (2) to find psychosocial factors in early childhood that might impact these patterns. The study included 281 fathers of autistic children and 7046 fathers of non-autistic children who took part in 'Growing Up in Australia: Longitudinal Study of Australian Children". Using a statistical method to group fathers based on the partner conflict they reported over the 10 years, results showed that there were three groups: (1) 'low and stable", (2) 'moderate and stable" and (3) 'persistently elevated" experiences of partner conflict. Additional analysis showed that fathers" confidence in their parenting, perceived support from their partners and concerns about their child?s language skills were associated with ongoing moderate levels of partner conflict. On the other hand, fathers who were older, had lower perceived support from their partners, partners experiencing psychological distress and higher parent-reported child social functioning were more likely to experience consistently high levels of conflict over time. In our study, we described different levels of conflict with their partners reported by fathers of autistic children. We also identified some of the factors that were associated with different levels of conflict. These might be used to inform interventions to reduce parental conflict in the future. En ligne : https://dx.doi.org/10.1177/13623613251316014 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Psychosocial factors associated with the trajectories of interparental conflict for Australian fathers of autistic children: A longitudinal study across 10 years of child development [texte imprimé] / Grace MCMAHON, Auteur ; Ali FOGARTY, Auteur ; Bridget O'CONNOR, Auteur ; Mark E. FEINBERG, Auteur ; Robert HOCK, Auteur ; Rebecca GIALLO, Auteur . - p.1554-1568. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1554-1568 Mots-clés : autism  fathers  interparental conflict  psychosocial factors  trajectory Index. décimale : PER Périodiques Résumé : Limited research exists on fathers" experiences of interparental conflict (IPC) in families with autistic children. We aimed to identify: (1) the extent to which these fathers report IPC across 10 years of child development (4-14 years) and how this compares to fathers of non-autistic children; (2) distinct trajectories of IPC for fathers of autistic children and (3) factors associated with trajectories of IPC among fathers of autistic children. This is a retrospective study using a national dataset. Participants were 281 fathers of autistic children and 7046 fathers of non-autistic children. Although small effect sizes, fathers of autistic children, on average, reported significantly higher IPC when their child was 4-5, 6-7, 8-9 and 10-12 years of age, compared to fathers of non-autistic children. For fathers of autistic children, longitudinal latent class analysis revealed three profiles reflecting 'low and stable", 'moderate and stable" and 'persistently elevated" levels of IPC over time. Regression analysis revealed a range of predictors (e.g. co-parenting support, father age) for fathers of autistic children experiencing 'moderate and stable" and 'persistently elevated" IPC as compared to fathers who experienced low levels of IPC. There is a significant portion of fathers of autistic children who experience ongoing and heightened IPC, highlighting the need for targeted support.Lay Abstract Not much is known about how fathers experience conflict with their partners (either verbal or physical) while raising an autistic child. This study focused on understanding these experiences over 10 years, following children from the age of 4 to 14 years. The study had two main goals: (1) to track how fathers experience conflict with their partners over this time and identify different patterns to these experiences; and (2) to find psychosocial factors in early childhood that might impact these patterns. The study included 281 fathers of autistic children and 7046 fathers of non-autistic children who took part in 'Growing Up in Australia: Longitudinal Study of Australian Children". Using a statistical method to group fathers based on the partner conflict they reported over the 10 years, results showed that there were three groups: (1) 'low and stable", (2) 'moderate and stable" and (3) 'persistently elevated" experiences of partner conflict. Additional analysis showed that fathers" confidence in their parenting, perceived support from their partners and concerns about their child?s language skills were associated with ongoing moderate levels of partner conflict. On the other hand, fathers who were older, had lower perceived support from their partners, partners experiencing psychological distress and higher parent-reported child social functioning were more likely to experience consistently high levels of conflict over time. In our study, we described different levels of conflict with their partners reported by fathers of autistic children. We also identified some of the factors that were associated with different levels of conflict. These might be used to inform interventions to reduce parental conflict in the future. En ligne : https://dx.doi.org/10.1177/13623613251316014 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Supporting caregivers within caregiver-mediated interventions: a commentary on Brown et al. (2024) / Robert HOCK in Journal of Child Psychology and Psychiatry, 66-3 (March 2025)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 66-3 (March 2025) . - p.390-393 Titre : Supporting caregivers within caregiver-mediated interventions: a commentary on Brown et al. (2024) Type de document : texte imprimé Auteurs : Robert HOCK, Auteur Article en page(s) : p.390-393 Langues : Anglais (eng) Mots-clés : Autism  caregivers  dissemination  equity  NDBI  parent-mediated interventions Index. décimale : PER Périodiques Résumé : A substantial portion of interventions designed to support autistic children are also designed to be delivered by caregivers (i.e. are ?caregiver-mediated?). Brown et al. (Journal of Child Psychology and Psychiatry, 2024) are one of the first groups to critically examine the baseline skills that caregivers bring as they prepare to learn a class of interventions called Naturalistic Developmental Behavioral Interventions (NDBIs), which are designed to support social communication growth in young autistic children. This commentary commends Brown and colleagues for their focus on caregivers, a linchpin within the increasingly prominent caregiver-mediated process of intervention delivery. However, it is imperative that future research understand the potential adverse effects and supports that are needed to bolster caregivers in this crucial role. We present six recommendations for research on caregiver-mediated interventions that build on Brown and colleagues' work and address these needs, which involve: caregiver supports, equitable samples, community settings, adaptive designs, general principles, and implications for NDBI dissemination. En ligne : https://doi.org/10.1111/jcpp.14073 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=548 [article] Supporting caregivers within caregiver-mediated interventions: a commentary on Brown et al. (2024) [texte imprimé] / Robert HOCK, Auteur . - p.390-393. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 66-3 (March 2025) . - p.390-393 Mots-clés : Autism  caregivers  dissemination  equity  NDBI  parent-mediated interventions Index. décimale : PER Périodiques Résumé : A substantial portion of interventions designed to support autistic children are also designed to be delivered by caregivers (i.e. are ?caregiver-mediated?). Brown et al. (Journal of Child Psychology and Psychiatry, 2024) are one of the first groups to critically examine the baseline skills that caregivers bring as they prepare to learn a class of interventions called Naturalistic Developmental Behavioral Interventions (NDBIs), which are designed to support social communication growth in young autistic children. This commentary commends Brown and colleagues for their focus on caregivers, a linchpin within the increasingly prominent caregiver-mediated process of intervention delivery. However, it is imperative that future research understand the potential adverse effects and supports that are needed to bolster caregivers in this crucial role. We present six recommendations for research on caregiver-mediated interventions that build on Brown and colleagues' work and address these needs, which involve: caregiver supports, equitable samples, community settings, adaptive designs, general principles, and implications for NDBI dissemination. En ligne : https://doi.org/10.1111/jcpp.14073 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=548

Time-Lag Between Diagnosis of Autism Spectrum Disorder and Onset of Publicly-Funded Early Intensive Behavioral Intervention: Do Race-Ethnicity and Neighborhood Matter? / Marissa E. YINGLING in Journal of Autism and Developmental Disorders, 48-2 (February 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-2 (February 2018) . - p.561-571 Titre : Time-Lag Between Diagnosis of Autism Spectrum Disorder and Onset of Publicly-Funded Early Intensive Behavioral Intervention: Do Race-Ethnicity and Neighborhood Matter? Type de document : texte imprimé Auteurs : Marissa E. YINGLING, Auteur ; Robert HOCK, Auteur ; Bethany A. BELL, Auteur Article en page(s) : p.561-571 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Disparities  Early intensive behavioral intervention  Medicaid  Time-lag Index. décimale : PER Périodiques Résumé : Health coverage of early intensive behavioral intervention (EIBI) for children with autism spectrum disorder (ASD) is rapidly expanding across the United States. Yet we know little about the time-lag between diagnosis and treatment onset. We integrated administrative, Medicaid claims, and Census data for children in an EIBI Medicaid waiver (n = 473) to examine the relationship between time-lag and (a) child race-ethnicity and (b) neighborhood racial composition, poverty, affluence, and urbanicity. We explored whether the relationship between child race-ethnicity and time-lag varies by neighborhood characteristics. Average time-lag between diagnosis and treatment onset was nearly 3 years. Child race-ethnicity and neighborhood characteristics did not predict time-lag. Reducing time-lag is critical to ensuring that children with ASD receive treatment as early as possible. En ligne : https://doi.org/10.1007/s10803-017-3354-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=338 [article] Time-Lag Between Diagnosis of Autism Spectrum Disorder and Onset of Publicly-Funded Early Intensive Behavioral Intervention: Do Race-Ethnicity and Neighborhood Matter? [texte imprimé] / Marissa E. YINGLING, Auteur ; Robert HOCK, Auteur ; Bethany A. BELL, Auteur . - p.561-571. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-2 (February 2018) . - p.561-571 Mots-clés : Autism spectrum disorder  Disparities  Early intensive behavioral intervention  Medicaid  Time-lag Index. décimale : PER Périodiques Résumé : Health coverage of early intensive behavioral intervention (EIBI) for children with autism spectrum disorder (ASD) is rapidly expanding across the United States. Yet we know little about the time-lag between diagnosis and treatment onset. We integrated administrative, Medicaid claims, and Census data for children in an EIBI Medicaid waiver (n = 473) to examine the relationship between time-lag and (a) child race-ethnicity and (b) neighborhood racial composition, poverty, affluence, and urbanicity. We explored whether the relationship between child race-ethnicity and time-lag varies by neighborhood characteristics. Average time-lag between diagnosis and treatment onset was nearly 3 years. Child race-ethnicity and neighborhood characteristics did not predict time-lag. Reducing time-lag is critical to ensuring that children with ASD receive treatment as early as possible. En ligne : https://doi.org/10.1007/s10803-017-3354-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=338

Trajectories of psychological distress for Australian fathers parenting a child on the autism spectrum: Evidence from early childhood to adolescence / Monique SEYMOUR in Autism, 29-1 (January 2025)  

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Treatment Utilization Trajectories among Children with Autism Spectrum Disorder: Differences by Race-Ethnicity and Neighborhood / Marissa E. YINGLING in Journal of Autism and Developmental Disorders, 49-5 (May 2019)  

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