[article] 
inAutism > 24-2 (February 2020) . - p.470-483

Titre :	Coming to understand the child has autism: A process illustrating parents' evolving readiness for engaging in care
Type de document :	Texte imprimé et/ou numérique
Auteurs :	Stephen J. GENTLES, Auteur ; David B NICHOLAS, Auteur ; Susan M JACK, Auteur ; K. Ann MCKIBBON, Auteur ; Peter SZATMARI, Auteur
Article en page(s) :	p.470-483
Langues :	Anglais (eng)
Mots-clés :	caregiver  family-centered care  grounded theory  patient engagement  patient-centered care  pre-diagnosis
Index. décimale :	PER Périodiques
Résumé :	LAY ABSTRACT: What is already known about the topic? Parents of children with autism often learn about their child's autism before diagnosis and can spend long periods seeking care (including assessment) before receiving a diagnosis. Meanwhile, parents' readiness to engage in care at this early stage can vary from parent to parent. What this paper adds? This study revealed how parents come to understand their child has autism-on their own terms, rather than from just talking to professionals. It also explained how parents' growing awareness of their child's autism leads them to feel more motivated to engage in care by seeking information and pursuing services. Four "optional steps" described how parents' growing readiness to engage in care at this early stage can vary, depending on their personal process. Implications for practice, research, or policy The results suggest ways that professionals can be more sensitive (a) to parents' varying awareness of autism and (b) to their varying readiness for being involved in early care. They also suggest ways to tailor parent supports to their individual situation and design care that is more family centered. Not all parents want high levels of involvement. Depending on their personal process, some parents may need care and support that is directed at them before feeling ready for professionals to engage them in care directed at the child.
En ligne :	http://dx.doi.org/10.1177/1362361319874647
Permalink :	https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=415

[article] Coming to understand the child has autism: A process illustrating parents' evolving readiness for engaging in care [Texte imprimé et/ou numérique] / Stephen J. GENTLES, Auteur ; David B NICHOLAS, Auteur ; Susan M JACK, Auteur ; K. Ann MCKIBBON, Auteur ; Peter SZATMARI, Auteur . - p.470-483.
Langues : Anglais (eng)
in Autism > 24-2 (February 2020) . - p.470-483

Mots-clés :	caregiver  family-centered care  grounded theory  patient engagement  patient-centered care  pre-diagnosis
Index. décimale :	PER Périodiques
Résumé :	LAY ABSTRACT: What is already known about the topic? Parents of children with autism often learn about their child's autism before diagnosis and can spend long periods seeking care (including assessment) before receiving a diagnosis. Meanwhile, parents' readiness to engage in care at this early stage can vary from parent to parent. What this paper adds? This study revealed how parents come to understand their child has autism-on their own terms, rather than from just talking to professionals. It also explained how parents' growing awareness of their child's autism leads them to feel more motivated to engage in care by seeking information and pursuing services. Four "optional steps" described how parents' growing readiness to engage in care at this early stage can vary, depending on their personal process. Implications for practice, research, or policy The results suggest ways that professionals can be more sensitive (a) to parents' varying awareness of autism and (b) to their varying readiness for being involved in early care. They also suggest ways to tailor parent supports to their individual situation and design care that is more family centered. Not all parents want high levels of involvement. Depending on their personal process, some parents may need care and support that is directed at them before feeling ready for professionals to engage them in care directed at the child.
En ligne :	http://dx.doi.org/10.1177/1362361319874647
Permalink :	https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=415