Looking back and moving forward: The experiences of canadian parents raising an adolescent with autism spectrum disorder / Hilda S.W. HO in Research in Autism Spectrum Disorders, 52 (August 2018)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 52 (August 2018) . - p.12-22 Titre : Looking back and moving forward: The experiences of canadian parents raising an adolescent with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Hilda S.W. HO, Auteur ; Karen FERGUS, Auteur ; Adrienne PERRY, Auteur Article en page(s) : p.12-22 Langues : Anglais (eng) Mots-clés : Parent-professional  Canada  Qualitative research  Adolescents Index. décimale : PER Périodiques Résumé : Background The aim of this study was to investigate parent experiences of raising a child with autism spectrum disorder (ASD) from early childhood and into adolescence. Method Semi-structured in-depth interviews were conducted with nine families of adolescents diagnosed with ASD with a range of cognitive ability. Thematic analysis was used to analyze the parents’ narratives. Findings Four themes were constructed to represent the parents’ narratives of their caregiving journey: 1) Rippling Effect of Loss; 2) Becoming a Parent-Professional; 3) One Size Fits None; and 4) Preparing for “The Future”. Parental narratives reflect the tension they experience with the school system and the frustration with dealing with services that do not grow with their child’s needs. Findings also indicate that, over the years, parents develop a specialized skill set that helps them navigate the ever-changing ASD landscape. Discussion The results of this study have several important implications, including the need for service and education providers to actively involve parents in the treatment of their child, as well as to increase appropriate services for adolescents that target both ASD and comorbid mental health challenges. En ligne : https://doi.org/10.1016/j.rasd.2018.05.004 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=368 [article] Looking back and moving forward: The experiences of canadian parents raising an adolescent with autism spectrum disorder [Texte imprimé et/ou numérique] / Hilda S.W. HO, Auteur ; Karen FERGUS, Auteur ; Adrienne PERRY, Auteur . - p.12-22. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 52 (August 2018) . - p.12-22 Mots-clés : Parent-professional  Canada  Qualitative research  Adolescents Index. décimale : PER Périodiques Résumé : Background The aim of this study was to investigate parent experiences of raising a child with autism spectrum disorder (ASD) from early childhood and into adolescence. Method Semi-structured in-depth interviews were conducted with nine families of adolescents diagnosed with ASD with a range of cognitive ability. Thematic analysis was used to analyze the parents’ narratives. Findings Four themes were constructed to represent the parents’ narratives of their caregiving journey: 1) Rippling Effect of Loss; 2) Becoming a Parent-Professional; 3) One Size Fits None; and 4) Preparing for “The Future”. Parental narratives reflect the tension they experience with the school system and the frustration with dealing with services that do not grow with their child’s needs. Findings also indicate that, over the years, parents develop a specialized skill set that helps them navigate the ever-changing ASD landscape. Discussion The results of this study have several important implications, including the need for service and education providers to actively involve parents in the treatment of their child, as well as to increase appropriate services for adolescents that target both ASD and comorbid mental health challenges. En ligne : https://doi.org/10.1016/j.rasd.2018.05.004 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=368

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