[article]
| Titre : |
"Individualisation is key": Autism intervention professionals' experiences of working with minority ethnic families in Australia |
| Type de document : |
Texte imprimé et/ou numérique |
| Auteurs : |
Kristelle HUDRY, Auteur ; Alexandra AULICH, Auteur ; Catherine BENT, Auteur ; Christos CONSTANTINE, Auteur ; Kathleen FRANKS, Auteur ; Nilushi GOONETILLEKE, Auteur ; Cherie GREEN, Auteur ; Rabia IJAZ, Auteur ; Emily MA, Auteur ; Kanisha PATEL, Auteur ; Helen SAID, Auteur ; Rena WANG, Auteur ; Sarah WOOD, Auteur ; Jodie SMITH, Auteur |
| Article en page(s) : |
p.202655 |
| Langues : |
Anglais (eng) |
| Mots-clés : |
Autism Early Intervention Participatory Research Cultural Diversity Linguistic Diversity |
| Index. décimale : |
PER Périodiques |
| Résumé : |
Introduction Early intervention (EI) professionals play an important role in supporting autistic children and their families. When families come from minority ethnic communities, the early autism journey is often more complex than for native-born families for caregivers and professionals alike. Whilst there is growing awareness about parents' experiences, we have little data from EI professionals on what can be done to improve the experiences, engagement and outcomes for these families. Here, we sought professional insights on their efforts to provide early autism supports for minority ethnic families, namely those from Chinese and South Asian backgrounds. Methods Through a community-partnered participatory approach, we conducted semi-structured interviews with EI professionals who had experience working with autistic children and their families from Chinese and South Asian backgrounds in Australia (n = 18). Data were analysed using inductive reflexive thematic analysis. Results Participating EI professionals described the challenge of developing a common language to talk about autism and supports with families, and often had different intervention priorities when compared to parents. They described observing parents' own unmet mental health and wellbeing needs, which they felt were compounded by shame and stigma associated with autism within their specific communities. Moreover, professionals relayed their powerlessness in effectively supporting parents' wellbeing due to a funding model focused solely on child goals. Participating professionals felt that the best way to work with families was to start by truly understanding the child, the parent and the family dynamics in order to tailor supports, as well as to encourage community connection and belonging. Discussion and implications The insights offered by EI professionals into how early supports can be adapted to better meet the needs of minority ethnic parents and autistic children can inform more equitable policy-level decision-making for service provision. |
| En ligne : |
https://doi.org/10.1016/j.reia.2025.202655 |
| Permalink : |
https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=565 |
in Research in Autism > 126 (August 2025) . - p.202655
[article] "Individualisation is key": Autism intervention professionals' experiences of working with minority ethnic families in Australia [Texte imprimé et/ou numérique] / Kristelle HUDRY, Auteur ; Alexandra AULICH, Auteur ; Catherine BENT, Auteur ; Christos CONSTANTINE, Auteur ; Kathleen FRANKS, Auteur ; Nilushi GOONETILLEKE, Auteur ; Cherie GREEN, Auteur ; Rabia IJAZ, Auteur ; Emily MA, Auteur ; Kanisha PATEL, Auteur ; Helen SAID, Auteur ; Rena WANG, Auteur ; Sarah WOOD, Auteur ; Jodie SMITH, Auteur . - p.202655. Langues : Anglais ( eng) in Research in Autism > 126 (August 2025) . - p.202655
| Mots-clés : |
Autism Early Intervention Participatory Research Cultural Diversity Linguistic Diversity |
| Index. décimale : |
PER Périodiques |
| Résumé : |
Introduction Early intervention (EI) professionals play an important role in supporting autistic children and their families. When families come from minority ethnic communities, the early autism journey is often more complex than for native-born families for caregivers and professionals alike. Whilst there is growing awareness about parents' experiences, we have little data from EI professionals on what can be done to improve the experiences, engagement and outcomes for these families. Here, we sought professional insights on their efforts to provide early autism supports for minority ethnic families, namely those from Chinese and South Asian backgrounds. Methods Through a community-partnered participatory approach, we conducted semi-structured interviews with EI professionals who had experience working with autistic children and their families from Chinese and South Asian backgrounds in Australia (n = 18). Data were analysed using inductive reflexive thematic analysis. Results Participating EI professionals described the challenge of developing a common language to talk about autism and supports with families, and often had different intervention priorities when compared to parents. They described observing parents' own unmet mental health and wellbeing needs, which they felt were compounded by shame and stigma associated with autism within their specific communities. Moreover, professionals relayed their powerlessness in effectively supporting parents' wellbeing due to a funding model focused solely on child goals. Participating professionals felt that the best way to work with families was to start by truly understanding the child, the parent and the family dynamics in order to tailor supports, as well as to encourage community connection and belonging. Discussion and implications The insights offered by EI professionals into how early supports can be adapted to better meet the needs of minority ethnic parents and autistic children can inform more equitable policy-level decision-making for service provision. |
| En ligne : |
https://doi.org/10.1016/j.reia.2025.202655 |
| Permalink : |
https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=565 |
|
"Individualisation is key": Autism intervention professionals' experiences of working with minority ethnic families in Australia in Research in Autism, 126 (August 2025)
