[article]
| Titre : |
Caregiver employment changes and care coordination in families with children with autism |
| Type de document : |
texte imprimé |
| Auteurs : |
Andrea J. JAFFE, Auteur ; Anne M. ROUX, Auteur ; Kristy A. ANDERSON, Auteur ; Vijay VASUDEVAN, Auteur ; Arianna ESPOSITO, Auteur ; Stuart SPIELMAN, Auteur ; Jessica E. RAST, Auteur |
| Année de publication : |
2026 |
| Article en page(s) : |
202930 |
| Langues : |
Anglais (eng) |
| Mots-clés : |
Autism Parental employment Care coordination Children with special health care needs |
| Index. décimale : |
PER Périodiques |
| Résumé : |
Purpose To examine changes in employment of caregivers of children with autism and children with special health care needs (CSHCN). Methods This study used the National Survey of Children’s Health to examine the prevalence of employment changes of caregivers, including reducing hours or stopping work and avoiding changing jobs to maintain insurance. We used multivariable logistic regression to estimate associations of care coordination with both employment outcomes. Finally, we examined differences by age and insurance type, stratified by care coordination status, to examine potential interaction of these variables in children with autism and CSHCN. Results Caregivers of children with autism were more likely to experience changes in their employment than CSHCN. Caregivers who did not receive needed care coordination had 2.21 times the odds of reducing hours or stopping work than those who received needed care coordination (95% CI 1.89, 2.58). Age was also associated with employment changes for caregivers of children and autism and CSHCN. For caregivers of children with autism ages 3–5 years, the rate of reduced hours or stopped working was triple for those who did not receive needed care coordination (59%) compared to those who did (21%). Conclusions Caregivers may reduce employment to support their child in receiving needed care. The findings from this study demonstrate the need for further research to examine the provision of care coordination and the cost-benefit analysis of public funding for care coordination to improve caregiver employment outcomes and create more support for families with a child with autism. |
| En ligne : |
https://doi.org/10.1016/j.reia.2026.202930 |
| Permalink : |
https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=588 |
in Research in Autism > 135 (July 2026) . - 202930
[article] Caregiver employment changes and care coordination in families with children with autism [texte imprimé] / Andrea J. JAFFE, Auteur ; Anne M. ROUX, Auteur ; Kristy A. ANDERSON, Auteur ; Vijay VASUDEVAN, Auteur ; Arianna ESPOSITO, Auteur ; Stuart SPIELMAN, Auteur ; Jessica E. RAST, Auteur . - 2026 . - 202930. Langues : Anglais ( eng) in Research in Autism > 135 (July 2026) . - 202930
| Mots-clés : |
Autism Parental employment Care coordination Children with special health care needs |
| Index. décimale : |
PER Périodiques |
| Résumé : |
Purpose To examine changes in employment of caregivers of children with autism and children with special health care needs (CSHCN). Methods This study used the National Survey of Children’s Health to examine the prevalence of employment changes of caregivers, including reducing hours or stopping work and avoiding changing jobs to maintain insurance. We used multivariable logistic regression to estimate associations of care coordination with both employment outcomes. Finally, we examined differences by age and insurance type, stratified by care coordination status, to examine potential interaction of these variables in children with autism and CSHCN. Results Caregivers of children with autism were more likely to experience changes in their employment than CSHCN. Caregivers who did not receive needed care coordination had 2.21 times the odds of reducing hours or stopping work than those who received needed care coordination (95% CI 1.89, 2.58). Age was also associated with employment changes for caregivers of children and autism and CSHCN. For caregivers of children with autism ages 3–5 years, the rate of reduced hours or stopped working was triple for those who did not receive needed care coordination (59%) compared to those who did (21%). Conclusions Caregivers may reduce employment to support their child in receiving needed care. The findings from this study demonstrate the need for further research to examine the provision of care coordination and the cost-benefit analysis of public funding for care coordination to improve caregiver employment outcomes and create more support for families with a child with autism. |
| En ligne : |
https://doi.org/10.1016/j.reia.2026.202930 |
| Permalink : |
https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=588 |
|  |
Caregiver employment changes and care coordination in families with children with autism in Research in Autism, 135 (July 2026)
