Applying a public health approach to autism research: A framework for action / Diana SCHENDEL in Autism Research, 15-4 (April 2022)  

Public ISBD [article]  inAutism Research > 15-4 (April 2022) . - p.592-601 Titre : Applying a public health approach to autism research: A framework for action Type de document : Texte imprimé et/ou numérique Auteurs : Diana SCHENDEL, Auteur ; Anne M. ROUX, Auteur ; Elizabeth MCGHEE HASSRICK, Auteur ; Kristen LYALL, Auteur ; Lindsay SHEA, Auteur ; Giacomo VIVANTI, Auteur ; Andrea WIECKOWSKI TRUBANOVA, Auteur ; Craig NEWSCHAFFER, Auteur ; Diana L. ROBINS, Auteur Article en page(s) : p.592-601 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Humans  Public Health  Quality of Life  autism spectrum disorder  communication  knowledge Index. décimale : PER Périodiques Résumé : Most published autism research, and the funding that supports it, remains focused on basic and clinical science. However, the public health impact of autism drives a compelling argument for utilizing a public health approach to autism research. Fundamental to the public health perspective is a focus on health determinants to improve quality of life and to reduce the potential for adverse outcomes across the general population, including in vulnerable subgroups. While the public health research process can be conceptualized as a linear, 3-stage path consisting of discovery - testing - translation/dissemination/implementation, in this paper we propose an integrated, cyclical research framework to advance autism public health objectives in a more comprehensive manner. This involves discovery of primary, secondary and tertiary determinants of health in autism; and use of this evidence base to develop and test detection, intervention, and dissemination strategies and the means to implement them in 'real world' settings. The proposed framework serves to facilitate identification of knowledge gaps, translational barriers, and shortfalls in implementation; guides an iterative research cycle; facilitates purposeful integration of stakeholders and interdisciplinary researchers; and may yield more efficient achievement of improved health and well-being among persons on the autism spectrum at the population-level. LAY SUMMARY: Scientists need better ways to identify and address gaps in autism research, conduct research with stakeholders, and use findings to improve the lives of autistic people. We recommend an approach, based in public health science, to guide research in ways that might impact lives more quickly. En ligne : https://dx.doi.org/10.1002/aur.2689 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Applying a public health approach to autism research: A framework for action [Texte imprimé et/ou numérique] / Diana SCHENDEL, Auteur ; Anne M. ROUX, Auteur ; Elizabeth MCGHEE HASSRICK, Auteur ; Kristen LYALL, Auteur ; Lindsay SHEA, Auteur ; Giacomo VIVANTI, Auteur ; Andrea WIECKOWSKI TRUBANOVA, Auteur ; Craig NEWSCHAFFER, Auteur ; Diana L. ROBINS, Auteur . - p.592-601. Langues : Anglais (eng) in Autism Research > 15-4 (April 2022) . - p.592-601 Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Humans  Public Health  Quality of Life  autism spectrum disorder  communication  knowledge Index. décimale : PER Périodiques Résumé : Most published autism research, and the funding that supports it, remains focused on basic and clinical science. However, the public health impact of autism drives a compelling argument for utilizing a public health approach to autism research. Fundamental to the public health perspective is a focus on health determinants to improve quality of life and to reduce the potential for adverse outcomes across the general population, including in vulnerable subgroups. While the public health research process can be conceptualized as a linear, 3-stage path consisting of discovery - testing - translation/dissemination/implementation, in this paper we propose an integrated, cyclical research framework to advance autism public health objectives in a more comprehensive manner. This involves discovery of primary, secondary and tertiary determinants of health in autism; and use of this evidence base to develop and test detection, intervention, and dissemination strategies and the means to implement them in 'real world' settings. The proposed framework serves to facilitate identification of knowledge gaps, translational barriers, and shortfalls in implementation; guides an iterative research cycle; facilitates purposeful integration of stakeholders and interdisciplinary researchers; and may yield more efficient achievement of improved health and well-being among persons on the autism spectrum at the population-level. LAY SUMMARY: Scientists need better ways to identify and address gaps in autism research, conduct research with stakeholders, and use findings to improve the lives of autistic people. We recommend an approach, based in public health science, to guide research in ways that might impact lives more quickly. En ligne : https://dx.doi.org/10.1002/aur.2689 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Disability Identification and Self-Efficacy among College Students on the Autism Spectrum / Paul T. SHATTUCK in Autism Research and Treatment, (February 2014)  

Public ISBD [article]  inAutism Research and Treatment > (February 2014) . - 7 p. Titre : Disability Identification and Self-Efficacy among College Students on the Autism Spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Paul T. SHATTUCK, Auteur ; Jessica STEINBERG, Auteur ; Jennifer W. YU, Auteur ; Xin WEI, Auteur ; Benjamin P. COOPER, Auteur ; Lynn NEWMAN, Auteur ; Anne M. ROUX, Auteur Année de publication : 2014 Article en page(s) : 7 p. Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The number of youth on the autism spectrum approaching young adulthood and attending college is growing. Very little is known about the subjective experience of these college students. Disability identification and self-efficacy are two subjective factors that are critical for the developmental and logistical tasks associated with emerging adulthood. This study uses data from the National Longitudinal Transition Study 2 to examine the prevalence and correlates of disability identification and self-efficacy among college students on the autism spectrum. Results indicate nearly one-third of these students do not report seeing themselves as disabled or having a special need. Black race was associated with lower likelihood of both disability identification and self-efficacy. En ligne : http://dx.doi.org/10.1155/2014/924182 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=228 [article] Disability Identification and Self-Efficacy among College Students on the Autism Spectrum [Texte imprimé et/ou numérique] / Paul T. SHATTUCK, Auteur ; Jessica STEINBERG, Auteur ; Jennifer W. YU, Auteur ; Xin WEI, Auteur ; Benjamin P. COOPER, Auteur ; Lynn NEWMAN, Auteur ; Anne M. ROUX, Auteur . - 2014 . - 7 p. Langues : Anglais (eng) in Autism Research and Treatment > (February 2014) . - 7 p. Index. décimale : PER Périodiques Résumé : The number of youth on the autism spectrum approaching young adulthood and attending college is growing. Very little is known about the subjective experience of these college students. Disability identification and self-efficacy are two subjective factors that are critical for the developmental and logistical tasks associated with emerging adulthood. This study uses data from the National Longitudinal Transition Study 2 to examine the prevalence and correlates of disability identification and self-efficacy among college students on the autism spectrum. Results indicate nearly one-third of these students do not report seeing themselves as disabled or having a special need. Black race was associated with lower likelihood of both disability identification and self-efficacy. En ligne : http://dx.doi.org/10.1155/2014/924182 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=228

Evidence from the Autism Transitions Research Project (2017-2022): Capstone review and services research recommendations / Anne M. ROUX in Autism Research, 16-3 (March 2023)  

Public ISBD [article]  inAutism Research > 16-3 (March 2023) . - p.480-496 Titre : Evidence from the Autism Transitions Research Project (2017-2022): Capstone review and services research recommendations Type de document : Texte imprimé et/ou numérique Auteurs : Anne M. ROUX, Auteur ; Lindsay L. SHEA, Auteur ; Hillary STEINBERG, Auteur ; Jessica E. RAST, Auteur ; Kristy A. ANDERSON, Auteur ; Emily HOTEZ, Auteur ; Kashia ROSENAU, Auteur ; Alice KUO, Auteur ; Evva ASSING-MURRAY, Auteur ; Paul T. SHATTUCK, Auteur Article en page(s) : p.480-496 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract Few funding sources have explicitly supported systems-wide research to identify mechanisms for improving access, service delivery, outcomes and wellbeing for autistic transition-age youth and young adults. We aimed to integrate findings from research produced through a five-year federal Autism Transition Research Project (ATRP) cooperative agreement. This capstone review sought to: (1) map the body of scientific evidence that emerged from this federal award, and (2) identify remaining evidence gaps to inform future autism transition services research. We used scoping review methods to assess 31 ATRP-funded published scientific studies. We charted study characteristics, topical domains, socio-ecological levels of variables, focus on equity, and inclusion of autistic participants. We evaluated how these topics were addressed across studies to identify continued gaps in the evidence base. Compared to prior published reviews and research agendas, we found improvements in characterization of study participants, broader examination of socio-ecological correlates, and examination of multiple outcome domains. However, we also identified continued deficits in inclusion of autistic study participants, use of multisectoral data, and research with a strong focus on equity. Our recommended priorities for autism transition services research to facilitate healthy life outcomes and wellbeing included: continued analysis of population-level data and improved data infrastructure; development of service delivery methods and interventions that target marginalized groups; expanded research to inform improvements in the performance and coordination of complex service ecosystems that interface with autistic youth; and bolstering the roles of autistic research participants. En ligne : https://doi.org/10.1002/aur.2890 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=498 [article] Evidence from the Autism Transitions Research Project (2017-2022): Capstone review and services research recommendations [Texte imprimé et/ou numérique] / Anne M. ROUX, Auteur ; Lindsay L. SHEA, Auteur ; Hillary STEINBERG, Auteur ; Jessica E. RAST, Auteur ; Kristy A. ANDERSON, Auteur ; Emily HOTEZ, Auteur ; Kashia ROSENAU, Auteur ; Alice KUO, Auteur ; Evva ASSING-MURRAY, Auteur ; Paul T. SHATTUCK, Auteur . - p.480-496. Langues : Anglais (eng) in Autism Research > 16-3 (March 2023) . - p.480-496 Index. décimale : PER Périodiques Résumé : Abstract Few funding sources have explicitly supported systems-wide research to identify mechanisms for improving access, service delivery, outcomes and wellbeing for autistic transition-age youth and young adults. We aimed to integrate findings from research produced through a five-year federal Autism Transition Research Project (ATRP) cooperative agreement. This capstone review sought to: (1) map the body of scientific evidence that emerged from this federal award, and (2) identify remaining evidence gaps to inform future autism transition services research. We used scoping review methods to assess 31 ATRP-funded published scientific studies. We charted study characteristics, topical domains, socio-ecological levels of variables, focus on equity, and inclusion of autistic participants. We evaluated how these topics were addressed across studies to identify continued gaps in the evidence base. Compared to prior published reviews and research agendas, we found improvements in characterization of study participants, broader examination of socio-ecological correlates, and examination of multiple outcome domains. However, we also identified continued deficits in inclusion of autistic study participants, use of multisectoral data, and research with a strong focus on equity. Our recommended priorities for autism transition services research to facilitate healthy life outcomes and wellbeing included: continued analysis of population-level data and improved data infrastructure; development of service delivery methods and interventions that target marginalized groups; expanded research to inform improvements in the performance and coordination of complex service ecosystems that interface with autistic youth; and bolstering the roles of autistic research participants. En ligne : https://doi.org/10.1002/aur.2890 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=498

Identifying and Addressing the Missing Links Between Research, Policy, and Practice in Autism Research: Lessons From Early Autism Screening and Intervention Research / Anne M. ROUX ; Diana L. ROBINS ; Andrea Trubanova WIECKOWSKI ; Allison S. NAHMAIS ; Kaitlin Koffer MILLER ; Lindsay L. SHEA in Autism Research, 18-6 (June 2025)  

Public ISBD [article]  inAutism Research > 18-6 (June 2025) . - p.1146-1155 Titre : Identifying and Addressing the Missing Links Between Research, Policy, and Practice in Autism Research: Lessons From Early Autism Screening and Intervention Research Type de document : Texte imprimé et/ou numérique Auteurs : Anne M. ROUX, Auteur ; Diana L. ROBINS, Auteur ; Andrea Trubanova WIECKOWSKI, Auteur ; Allison S. NAHMAIS, Auteur ; Kaitlin Koffer MILLER, Auteur ; Lindsay L. SHEA, Auteur Article en page(s) : p.1146-1155 Langues : Anglais (eng) Mots-clés : autism screening  autism spectrum disorder  developmental screening  implementation  policy  translation Index. décimale : PER Périodiques Résumé : ABSTRACT The evidence base on autism diagnosis and intervention has grown exponentially in the past two decades, but there continue to be gaps in the path connecting research, policy, and practice. For example, although standardized autism screening tools have been shown to be helpful for identifying early signs of autism and facilitating early diagnosis, many pediatricians in the United States do not use them as recommended. Similarly, despite the sound evidence supporting Naturalistic Developmental Behavioral Interventions, they are seldom used in early intervention practice. This commentary examines the nature of these gaps using the Exploration, Preparation, Implementation, Sustainment (EPIS) framework, with a focus on the role of ?big P? policies, which include legislation and agency regulations, and ?little p? policies, which include guidelines set by professional organizations. Efforts to bridge the gap between research and practice through policy offer the potential for improving the lives of those on the autism spectrum through early detection and intervention programs and beyond. En ligne : https://doi.org/10.1002/aur.70055 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Identifying and Addressing the Missing Links Between Research, Policy, and Practice in Autism Research: Lessons From Early Autism Screening and Intervention Research [Texte imprimé et/ou numérique] / Anne M. ROUX, Auteur ; Diana L. ROBINS, Auteur ; Andrea Trubanova WIECKOWSKI, Auteur ; Allison S. NAHMAIS, Auteur ; Kaitlin Koffer MILLER, Auteur ; Lindsay L. SHEA, Auteur . - p.1146-1155. Langues : Anglais (eng) in Autism Research > 18-6 (June 2025) . - p.1146-1155 Mots-clés : autism screening  autism spectrum disorder  developmental screening  implementation  policy  translation Index. décimale : PER Périodiques Résumé : ABSTRACT The evidence base on autism diagnosis and intervention has grown exponentially in the past two decades, but there continue to be gaps in the path connecting research, policy, and practice. For example, although standardized autism screening tools have been shown to be helpful for identifying early signs of autism and facilitating early diagnosis, many pediatricians in the United States do not use them as recommended. Similarly, despite the sound evidence supporting Naturalistic Developmental Behavioral Interventions, they are seldom used in early intervention practice. This commentary examines the nature of these gaps using the Exploration, Preparation, Implementation, Sustainment (EPIS) framework, with a focus on the role of ?big P? policies, which include legislation and agency regulations, and ?little p? policies, which include guidelines set by professional organizations. Efforts to bridge the gap between research and practice through policy offer the potential for improving the lives of those on the autism spectrum through early detection and intervention programs and beyond. En ligne : https://doi.org/10.1002/aur.70055 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Mental health hospitalization and readmission in autistic adults in a national U.S. sample / Joseph WRIGHT ; Samuelle VOLTAIRE ; Tamara GARFIELD ; Anne M. ROUX in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202582 Titre : Mental health hospitalization and readmission in autistic adults in a national U.S. sample Type de document : Texte imprimé et/ou numérique Auteurs : Joseph WRIGHT, Auteur ; Samuelle VOLTAIRE, Auteur ; Tamara GARFIELD, Auteur ; Anne M. ROUX, Auteur Article en page(s) : 202582 Langues : Anglais (eng) Mots-clés : Mental health hospitalization  Readmission  Autism  Adults Index. décimale : PER Périodiques Résumé : Objective The objectives of this study were to, 1) estimate U.S. national rates of mental health hospitalization (MHH) and all-cause readmission, and 2) explore characteristics associated with readmissions for autistic and non-autistic adults. Methods This study used the National Readmission Database (NRD) 2019 to examine 30-day all-cause readmissions following MHH in adults with autism, intellectual disability, ADHD, and mental health conditions. Analysis estimated rates of MHH by group, rates and odds of readmission, and factors associated with readmission. Results More than one-third (36 %) of all admissions for autistic adults in 2019 were MHH, with schizophrenia the most common reason. Of all MHH index events in autistic adults, 17 % had a 30-day all-cause readmission. Readmissions were more common in autistic adults with ID (25 %) than in autistic adults without ID (15 %). Readmission was also slightly more common in female autistic adults (20 %) than male autistic adults (16 %), and autistic females had greater odds of readmission (OR 1.30, 95 % CI 1.09, 1.55) than autistic males, which was not true in non-autistic adults. Initial admission for schizophrenia was associated with increased odds of readmission for all groups (OR 1.37, 95 % CI 1.32, 1.42). Conclusions The complexity of mental health conditions and their care in autistic adults underscores the urgent need for accessible and tailored mental health care services. Addressing these challenges will require collaborative efforts across healthcare sectors to create comprehensive, inclusive, and person-centered approaches to mental health care delivery for autistic adults across often disjointed service sectors. En ligne : https://doi.org/10.1016/j.reia.2025.202582 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Mental health hospitalization and readmission in autistic adults in a national U.S. sample [Texte imprimé et/ou numérique] / Joseph WRIGHT, Auteur ; Samuelle VOLTAIRE, Auteur ; Tamara GARFIELD, Auteur ; Anne M. ROUX, Auteur . - 202582. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202582 Mots-clés : Mental health hospitalization  Readmission  Autism  Adults Index. décimale : PER Périodiques Résumé : Objective The objectives of this study were to, 1) estimate U.S. national rates of mental health hospitalization (MHH) and all-cause readmission, and 2) explore characteristics associated with readmissions for autistic and non-autistic adults. Methods This study used the National Readmission Database (NRD) 2019 to examine 30-day all-cause readmissions following MHH in adults with autism, intellectual disability, ADHD, and mental health conditions. Analysis estimated rates of MHH by group, rates and odds of readmission, and factors associated with readmission. Results More than one-third (36 %) of all admissions for autistic adults in 2019 were MHH, with schizophrenia the most common reason. Of all MHH index events in autistic adults, 17 % had a 30-day all-cause readmission. Readmissions were more common in autistic adults with ID (25 %) than in autistic adults without ID (15 %). Readmission was also slightly more common in female autistic adults (20 %) than male autistic adults (16 %), and autistic females had greater odds of readmission (OR 1.30, 95 % CI 1.09, 1.55) than autistic males, which was not true in non-autistic adults. Initial admission for schizophrenia was associated with increased odds of readmission for all groups (OR 1.37, 95 % CI 1.32, 1.42). Conclusions The complexity of mental health conditions and their care in autistic adults underscores the urgent need for accessible and tailored mental health care services. Addressing these challenges will require collaborative efforts across healthcare sectors to create comprehensive, inclusive, and person-centered approaches to mental health care delivery for autistic adults across often disjointed service sectors. En ligne : https://doi.org/10.1016/j.reia.2025.202582 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

National and State Trends in autistic Adult Supplemental Security Income Awardees: 2005-2019 / Kristy A. ANDERSON in Journal of Autism and Developmental Disorders, 52-8 (August 2022)  

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Prevalence and correlates of postsecondary residential status among young adults with an autism spectrum disorder / Kristy A. ANDERSON in Autism, 18-5 (July 2014)  

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The Economic Impacts of COVID-19 on Autistic Children and Their Families / Kristy A. ANDERSON in Journal of Autism and Developmental Disorders, 55-4 (April 2024)  

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