Evidence from the Autism Transitions Research Project (2017-2022): Capstone review and services research recommendations / Anne M. ROUX in Autism Research, 16-3 (March 2023)  

Public ISBD [article]  inAutism Research > 16-3 (March 2023) . - p.480-496 Titre : Evidence from the Autism Transitions Research Project (2017-2022): Capstone review and services research recommendations Type de document : Texte imprimé et/ou numérique Auteurs : Anne M. ROUX, Auteur ; Lindsay L. SHEA, Auteur ; Hillary STEINBERG, Auteur ; Jessica E. RAST, Auteur ; Kristy A. ANDERSON, Auteur ; Emily HOTEZ, Auteur ; Kashia ROSENAU, Auteur ; Alice KUO, Auteur ; Evva ASSING-MURRAY, Auteur ; Paul T. SHATTUCK, Auteur Article en page(s) : p.480-496 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract Few funding sources have explicitly supported systems-wide research to identify mechanisms for improving access, service delivery, outcomes and wellbeing for autistic transition-age youth and young adults. We aimed to integrate findings from research produced through a five-year federal Autism Transition Research Project (ATRP) cooperative agreement. This capstone review sought to: (1) map the body of scientific evidence that emerged from this federal award, and (2) identify remaining evidence gaps to inform future autism transition services research. We used scoping review methods to assess 31 ATRP-funded published scientific studies. We charted study characteristics, topical domains, socio-ecological levels of variables, focus on equity, and inclusion of autistic participants. We evaluated how these topics were addressed across studies to identify continued gaps in the evidence base. Compared to prior published reviews and research agendas, we found improvements in characterization of study participants, broader examination of socio-ecological correlates, and examination of multiple outcome domains. However, we also identified continued deficits in inclusion of autistic study participants, use of multisectoral data, and research with a strong focus on equity. Our recommended priorities for autism transition services research to facilitate healthy life outcomes and wellbeing included: continued analysis of population-level data and improved data infrastructure; development of service delivery methods and interventions that target marginalized groups; expanded research to inform improvements in the performance and coordination of complex service ecosystems that interface with autistic youth; and bolstering the roles of autistic research participants. En ligne : https://doi.org/10.1002/aur.2890 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=498 [article] Evidence from the Autism Transitions Research Project (2017-2022): Capstone review and services research recommendations [Texte imprimé et/ou numérique] / Anne M. ROUX, Auteur ; Lindsay L. SHEA, Auteur ; Hillary STEINBERG, Auteur ; Jessica E. RAST, Auteur ; Kristy A. ANDERSON, Auteur ; Emily HOTEZ, Auteur ; Kashia ROSENAU, Auteur ; Alice KUO, Auteur ; Evva ASSING-MURRAY, Auteur ; Paul T. SHATTUCK, Auteur . - p.480-496. Langues : Anglais (eng) in Autism Research > 16-3 (March 2023) . - p.480-496 Index. décimale : PER Périodiques Résumé : Abstract Few funding sources have explicitly supported systems-wide research to identify mechanisms for improving access, service delivery, outcomes and wellbeing for autistic transition-age youth and young adults. We aimed to integrate findings from research produced through a five-year federal Autism Transition Research Project (ATRP) cooperative agreement. This capstone review sought to: (1) map the body of scientific evidence that emerged from this federal award, and (2) identify remaining evidence gaps to inform future autism transition services research. We used scoping review methods to assess 31 ATRP-funded published scientific studies. We charted study characteristics, topical domains, socio-ecological levels of variables, focus on equity, and inclusion of autistic participants. We evaluated how these topics were addressed across studies to identify continued gaps in the evidence base. Compared to prior published reviews and research agendas, we found improvements in characterization of study participants, broader examination of socio-ecological correlates, and examination of multiple outcome domains. However, we also identified continued deficits in inclusion of autistic study participants, use of multisectoral data, and research with a strong focus on equity. Our recommended priorities for autism transition services research to facilitate healthy life outcomes and wellbeing included: continued analysis of population-level data and improved data infrastructure; development of service delivery methods and interventions that target marginalized groups; expanded research to inform improvements in the performance and coordination of complex service ecosystems that interface with autistic youth; and bolstering the roles of autistic research participants. En ligne : https://doi.org/10.1002/aur.2890 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=498

National and State Trends in autistic Adult Supplemental Security Income Awardees: 2005-2019 / Kristy A. ANDERSON in Journal of Autism and Developmental Disorders, 52-8 (August 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3547-3559 Titre : National and State Trends in autistic Adult Supplemental Security Income Awardees: 2005-2019 Type de document : Texte imprimé et/ou numérique Auteurs : Kristy A. ANDERSON, Auteur ; Jeffrey HEMMETER, Auteur ; David WITTENBURG, Auteur ; Julia BALLER, Auteur ; Anne M. ROUX, Auteur ; Jessica E. RAST, Auteur ; Paul T. SHATTUCK, Auteur Article en page(s) : p.3547-3559 Langues : Anglais (eng) Mots-clés : Adolescent  Adult  Autism Spectrum Disorder  Autistic Disorder/epidemiology  Humans  Income  Social Security  United States/epidemiology  United States Social Security Administration  Young Adult  Adults  Autism  Policy  Poverty  Supplemental Security Income (SSI) Index. décimale : PER Périodiques Résumé : This paper used Social Security Administration program data from 2005 to 2019 to examine national- and state-level changes in the number of new adult supplemental security income (SSI) awardees on the autism spectrum relative to awardees with intellectual disability and other mental health disorders. We identified three main findings: the number of autistic awards increased between 2005 and 2019 when awards for all other mental health disorders declined; roughly nine out of every 10 autistic adult awardees were between ages 18-25 years; there was variation in the growth of autistic awards across states. These findings support the need to consider geographic and age differences in SSI program participation among autistic adults and determine the underlying causes. En ligne : http://dx.doi.org/10.1007/s10803-021-05215-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485 [article] National and State Trends in autistic Adult Supplemental Security Income Awardees: 2005-2019 [Texte imprimé et/ou numérique] / Kristy A. ANDERSON, Auteur ; Jeffrey HEMMETER, Auteur ; David WITTENBURG, Auteur ; Julia BALLER, Auteur ; Anne M. ROUX, Auteur ; Jessica E. RAST, Auteur ; Paul T. SHATTUCK, Auteur . - p.3547-3559. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3547-3559 Mots-clés : Adolescent  Adult  Autism Spectrum Disorder  Autistic Disorder/epidemiology  Humans  Income  Social Security  United States/epidemiology  United States Social Security Administration  Young Adult  Adults  Autism  Policy  Poverty  Supplemental Security Income (SSI) Index. décimale : PER Périodiques Résumé : This paper used Social Security Administration program data from 2005 to 2019 to examine national- and state-level changes in the number of new adult supplemental security income (SSI) awardees on the autism spectrum relative to awardees with intellectual disability and other mental health disorders. We identified three main findings: the number of autistic awards increased between 2005 and 2019 when awards for all other mental health disorders declined; roughly nine out of every 10 autistic adult awardees were between ages 18-25 years; there was variation in the growth of autistic awards across states. These findings support the need to consider geographic and age differences in SSI program participation among autistic adults and determine the underlying causes. En ligne : http://dx.doi.org/10.1007/s10803-021-05215-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485

Postsecondary Expectations of High-School Students With Autism Spectrum Disorders / Kristy A. ANDERSON in Focus on Autism and Other Developmental Disabilities, 31-1 (March 2016)  

Public ISBD [article]  inFocus on Autism and Other Developmental Disabilities > 31-1 (March 2016) . - p.16-26 Titre : Postsecondary Expectations of High-School Students With Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Kristy A. ANDERSON, Auteur ; T. A. MCDONALD, Auteur ; Deirdre EDSALL, Auteur ; Leann E. SMITH, Auteur ; Julie LOUNDS TAYLOR, Auteur Article en page(s) : p.16-26 Langues : Anglais (eng) Mots-clés : autism  adolescence  transition  emerging adulthood Index. décimale : PER Périodiques Résumé : This study examined the perceptions of adulthood among 31 high-school students with autism spectrum disorder (ASD). We had two research aims: (a) to report students’ postsecondary expectations in terms of school, work, friendships, and living arrangement and (b) to describe how our sample defined adulthood. To better compare our sample’s criteria of adulthood with the criteria traditionally endorsed in secondary schools, we used a directed content analysis approach. Data were derived from a semi-structured interview that questioned students about friendships, activities, and the transition to adulthood. The majority of students expected to attain traditional markers of adulthood after high school. For some the pathways to achieving these outcomes were narrowly defined and perceived as a linear process. Independence, maturity, and personal responsibility were the most highly endorsed characteristics of adulthood, followed by chronological age and traditional markers. Implications for transition planning and adult services are discussed. En ligne : http://dx.doi.org/10.1177/1088357615610107 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=282 [article] Postsecondary Expectations of High-School Students With Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Kristy A. ANDERSON, Auteur ; T. A. MCDONALD, Auteur ; Deirdre EDSALL, Auteur ; Leann E. SMITH, Auteur ; Julie LOUNDS TAYLOR, Auteur . - p.16-26. Langues : Anglais (eng) in Focus on Autism and Other Developmental Disabilities > 31-1 (March 2016) . - p.16-26 Mots-clés : autism  adolescence  transition  emerging adulthood Index. décimale : PER Périodiques Résumé : This study examined the perceptions of adulthood among 31 high-school students with autism spectrum disorder (ASD). We had two research aims: (a) to report students’ postsecondary expectations in terms of school, work, friendships, and living arrangement and (b) to describe how our sample defined adulthood. To better compare our sample’s criteria of adulthood with the criteria traditionally endorsed in secondary schools, we used a directed content analysis approach. Data were derived from a semi-structured interview that questioned students about friendships, activities, and the transition to adulthood. The majority of students expected to attain traditional markers of adulthood after high school. For some the pathways to achieving these outcomes were narrowly defined and perceived as a linear process. Independence, maturity, and personal responsibility were the most highly endorsed characteristics of adulthood, followed by chronological age and traditional markers. Implications for transition planning and adult services are discussed. En ligne : http://dx.doi.org/10.1177/1088357615610107 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=282

Prevalence and correlates of postsecondary residential status among young adults with an autism spectrum disorder / Kristy A. ANDERSON in Autism, 18-5 (July 2014)  

Public ISBD [article]  inAutism > 18-5 (July 2014) . - p.562-570 Titre : Prevalence and correlates of postsecondary residential status among young adults with an autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Kristy A. ANDERSON, Auteur ; Paul T. SHATTUCK, Auteur ; Benjamin P. COOPER, Auteur ; Anne M. ROUX, Auteur ; Mary WAGNER, Auteur Article en page(s) : p.562-570 Langues : Anglais (eng) Mots-clés : adult  autism  residence  transition Index. décimale : PER Périodiques Résumé : This study examined the prevalence and correlates of three living arrangements (with a parent or guardian, independently or with a roommate, or in a supervised setting) among a nationally representative sample of postsecondary young adults with an autism spectrum disorder. We assessed living arrangements since leaving high school. Compared with young adults with other disability types (learning disabilities, intellectual disabilities, or emotional disturbances), those with an autism spectrum disorder were more likely to have lived with a parent or guardian and least likely ever to have lived independently since leaving high school. Members of the autism spectrum disorder group were less likely to have ever lived elsewhere and more likely to live under supervision since leaving high school compared to persons with emotional disturbances and learning disabilities. Group differences persisted after controlling for functional ability and demographic characteristics. Correlates of residential independence included being White, having better conversation ability and functional skills, and having a higher household income. Further research is needed to investigate how these residential trends relate to the quality of life among families and young adults. En ligne : http://dx.doi.org/10.1177/1362361313481860 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=233 [article] Prevalence and correlates of postsecondary residential status among young adults with an autism spectrum disorder [Texte imprimé et/ou numérique] / Kristy A. ANDERSON, Auteur ; Paul T. SHATTUCK, Auteur ; Benjamin P. COOPER, Auteur ; Anne M. ROUX, Auteur ; Mary WAGNER, Auteur . - p.562-570. Langues : Anglais (eng) in Autism > 18-5 (July 2014) . - p.562-570 Mots-clés : adult  autism  residence  transition Index. décimale : PER Périodiques Résumé : This study examined the prevalence and correlates of three living arrangements (with a parent or guardian, independently or with a roommate, or in a supervised setting) among a nationally representative sample of postsecondary young adults with an autism spectrum disorder. We assessed living arrangements since leaving high school. Compared with young adults with other disability types (learning disabilities, intellectual disabilities, or emotional disturbances), those with an autism spectrum disorder were more likely to have lived with a parent or guardian and least likely ever to have lived independently since leaving high school. Members of the autism spectrum disorder group were less likely to have ever lived elsewhere and more likely to live under supervision since leaving high school compared to persons with emotional disturbances and learning disabilities. Group differences persisted after controlling for functional ability and demographic characteristics. Correlates of residential independence included being White, having better conversation ability and functional skills, and having a higher household income. Further research is needed to investigate how these residential trends relate to the quality of life among families and young adults. En ligne : http://dx.doi.org/10.1177/1362361313481860 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=233

Social Participation Among Young Adults with an Autism Spectrum Disorder / Gael I. ORSMOND in Journal of Autism and Developmental Disorders, 43-11 (November 2013)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 43-11 (November 2013) . - p.2710-2719 Titre : Social Participation Among Young Adults with an Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Gael I. ORSMOND, Auteur ; Paul T. SHATTUCK, Auteur ; Benjamin P. COOPER, Auteur ; Paul R. STERZING, Auteur ; Kristy A. ANDERSON, Auteur Article en page(s) : p.2710-2719 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Social participation  Young adulthood Index. décimale : PER Périodiques Résumé : Investigating social participation of young adults with an autism spectrum disorder (ASD) is important given the increasing number of youth aging into young adulthood. Social participation is an indicator of life quality and overall functioning. Using data from the National Longitudinal Transition Study 2, we examined rates of participation in social activities among young adults who received special education services for autism (ASD group), compared to young adults who received special education for intellectual disability, emotional/behavioral disability, or a learning disability. Young adults with an ASD were significantly more likely to never see friends, never get called by friends, never be invited to activities, and be socially isolated. Among those with an ASD, lower conversation ability, lower functional skills, and living with a parent were predictors of less social participation. En ligne : http://dx.doi.org/10.1007/s10803-013-1833-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=217 [article] Social Participation Among Young Adults with an Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Gael I. ORSMOND, Auteur ; Paul T. SHATTUCK, Auteur ; Benjamin P. COOPER, Auteur ; Paul R. STERZING, Auteur ; Kristy A. ANDERSON, Auteur . - p.2710-2719. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 43-11 (November 2013) . - p.2710-2719 Mots-clés : Autism spectrum disorder  Social participation  Young adulthood Index. décimale : PER Périodiques Résumé : Investigating social participation of young adults with an autism spectrum disorder (ASD) is important given the increasing number of youth aging into young adulthood. Social participation is an indicator of life quality and overall functioning. Using data from the National Longitudinal Transition Study 2, we examined rates of participation in social activities among young adults who received special education services for autism (ASD group), compared to young adults who received special education for intellectual disability, emotional/behavioral disability, or a learning disability. Young adults with an ASD were significantly more likely to never see friends, never get called by friends, never be invited to activities, and be socially isolated. Among those with an ASD, lower conversation ability, lower functional skills, and living with a parent were predictors of less social participation. En ligne : http://dx.doi.org/10.1007/s10803-013-1833-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=217

Vocational Rehabilitation Service Utilization and Employment Outcomes Among Secondary Students on the Autism Spectrum / Anne M ROUX in Journal of Autism and Developmental Disorders, 51-1 (January 2021)  

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