[article]
Titre : |
Down's syndrome: is dissatisfaction with disclosure of diagnosis inevitable? |
Type de document : |
Texte imprimé et/ou numérique |
Auteurs : |
C. C. CUNNINGHAM, Auteur ; R. B. MCGUCKEN, Auteur ; P. A. MORGAN, Auteur |
Année de publication : |
1984 |
Article en page(s) : |
p.33-39 |
Langues : |
Anglais (eng) |
Index. décimale : |
PER Périodiques |
Résumé : |
A survey of a representative sample of 62 parents of Down's syndrome infants revealed a high level (58 per cent) of dissatisfaction with the procedure for disclosing the diagnosis and with the immediate counselling services. From the replies and previous reports, a 'model procedure' was set up in one Area Health Authority to test the hypothesis that dissatisfaction is inevitable. Parents receiving the 'model procedure' reported 100 per cent satisfaction, compared with 20 per cent in a control group. It was concluded that dissatisfaction is not inevitable but results directly from organisational difficulties in not providing the necessary service. |
Permalink : |
https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=573 |
in Developmental Medicine & Child Neurology > 26-1 (February 1984) . - p.33-39
[article] Down's syndrome: is dissatisfaction with disclosure of diagnosis inevitable? [Texte imprimé et/ou numérique] / C. C. CUNNINGHAM, Auteur ; R. B. MCGUCKEN, Auteur ; P. A. MORGAN, Auteur . - 1984 . - p.33-39. Langues : Anglais ( eng) in Developmental Medicine & Child Neurology > 26-1 (February 1984) . - p.33-39
Index. décimale : |
PER Périodiques |
Résumé : |
A survey of a representative sample of 62 parents of Down's syndrome infants revealed a high level (58 per cent) of dissatisfaction with the procedure for disclosing the diagnosis and with the immediate counselling services. From the replies and previous reports, a 'model procedure' was set up in one Area Health Authority to test the hypothesis that dissatisfaction is inevitable. Parents receiving the 'model procedure' reported 100 per cent satisfaction, compared with 20 per cent in a control group. It was concluded that dissatisfaction is not inevitable but results directly from organisational difficulties in not providing the necessary service. |
Permalink : |
https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=573 |
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