ASD Diagnosis and Treatment Experiences Among Mexican Heritage Families / Shana R. COHEN in Journal of Autism and Developmental Disorders, 53-3 (March 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-3 (March 2023) . - p.1017-1033 Titre : ASD Diagnosis and Treatment Experiences Among Mexican Heritage Families Type de document : Texte imprimé et/ou numérique Auteurs : Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur ; Jessica TREJOS, Auteur Article en page(s) : p.1017-1033 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : To understand the ASD diagnosis and treatment pathways for US families, N=38 Mexican-heritage mothers were interviewed about how and when they obtained an ASD diagnosis for their children. Most children (84%) were diagnosed between two and three years old. One-third of mothers reported receiving four to seven referrals before diagnosis. Mothers identified multiple diagnosis circumstances including two diagnoses and services offered before diagnosis. A multiple case study design documented the diagnosis and treatment experiences of four representative participants. As compared to previous studies that utilized a deficit lens to rationalize barriers to diagnosis and treatment (e.g., parents not knowledgeable about ASD), these findings revealed a complex understanding of how structural barriers (e.g., immigration status), initial diagnosis rejection among caregivers, and abrupt service cancellation complicated the diagnosis and treatment process. Implications identified suggestions to optimize and streamline ASD diagnosis and treatment pathways for Mexican heritage families. En ligne : https://doi.org/10.1007/s10803-022-05512-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500 [article] ASD Diagnosis and Treatment Experiences Among Mexican Heritage Families [Texte imprimé et/ou numérique] / Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur ; Jessica TREJOS, Auteur . - p.1017-1033. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-3 (March 2023) . - p.1017-1033 Index. décimale : PER Périodiques Résumé : To understand the ASD diagnosis and treatment pathways for US families, N=38 Mexican-heritage mothers were interviewed about how and when they obtained an ASD diagnosis for their children. Most children (84%) were diagnosed between two and three years old. One-third of mothers reported receiving four to seven referrals before diagnosis. Mothers identified multiple diagnosis circumstances including two diagnoses and services offered before diagnosis. A multiple case study design documented the diagnosis and treatment experiences of four representative participants. As compared to previous studies that utilized a deficit lens to rationalize barriers to diagnosis and treatment (e.g., parents not knowledgeable about ASD), these findings revealed a complex understanding of how structural barriers (e.g., immigration status), initial diagnosis rejection among caregivers, and abrupt service cancellation complicated the diagnosis and treatment process. Implications identified suggestions to optimize and streamline ASD diagnosis and treatment pathways for Mexican heritage families. En ligne : https://doi.org/10.1007/s10803-022-05512-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500

Short report: Perceptions of causes and common beliefs of autism spectrum disorder in the U.S / Anabel CASTILLO in Research in Autism Spectrum Disorders, 70 (February 2020)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 70 (February 2020) . - p.101472 Titre : Short report: Perceptions of causes and common beliefs of autism spectrum disorder in the U.S Type de document : Texte imprimé et/ou numérique Auteurs : Anabel CASTILLO, Auteur ; Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur ; Melissa F. WARSTADT, Auteur Article en page(s) : p.101472 Langues : Anglais (eng) Mots-clés : ASD  Perceptions  Beliefs  Ethnicity/race Index. décimale : PER Périodiques Résumé : A preliminary assessment of public perceptions about autism spectrum disorder (ASD) was conducted across the United States using Mechanical Turk, an online recruitment tool for collecting data anonymously. Participants completed a survey about their beliefs regarding causes, treatments, and general views of ASD. For example, when asked what causes ASD, most participants reported hereditary and neurological factors. Exploratory Factor Analyses (EFAs) revealed two separate two-factor subscales for causes and general views about ASD. Findings revealed ethnic differences in participants’ beliefs about Psychosocial Causes, Symptom Regulation Perceptions, and Common Beliefs. Participants that were diagnosed with or had a family member with ASD were more likely to attribute ASD to External Causes than those without those connections to ASD. Implications for policy and practice discuss how study findings might support the development of targeted ASD public awareness campaigns. En ligne : https://doi.org/10.1016/j.rasd.2019.101472 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414 [article] Short report: Perceptions of causes and common beliefs of autism spectrum disorder in the U.S [Texte imprimé et/ou numérique] / Anabel CASTILLO, Auteur ; Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur ; Melissa F. WARSTADT, Auteur . - p.101472. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 70 (February 2020) . - p.101472 Mots-clés : ASD  Perceptions  Beliefs  Ethnicity/race Index. décimale : PER Périodiques Résumé : A preliminary assessment of public perceptions about autism spectrum disorder (ASD) was conducted across the United States using Mechanical Turk, an online recruitment tool for collecting data anonymously. Participants completed a survey about their beliefs regarding causes, treatments, and general views of ASD. For example, when asked what causes ASD, most participants reported hereditary and neurological factors. Exploratory Factor Analyses (EFAs) revealed two separate two-factor subscales for causes and general views about ASD. Findings revealed ethnic differences in participants’ beliefs about Psychosocial Causes, Symptom Regulation Perceptions, and Common Beliefs. Participants that were diagnosed with or had a family member with ASD were more likely to attribute ASD to External Causes than those without those connections to ASD. Implications for policy and practice discuss how study findings might support the development of targeted ASD public awareness campaigns. En ligne : https://doi.org/10.1016/j.rasd.2019.101472 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414

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