Amor and Social Stigma: ASD Beliefs Among Immigrant Mexican Parents / Shana R. COHEN in Journal of Autism and Developmental Disorders, 48-6 (June 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-6 (June 2018) . - p.1995-2009 Titre : Amor and Social Stigma: ASD Beliefs Among Immigrant Mexican Parents Type de document : texte imprimé Auteurs : Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur Article en page(s) : p.1995-2009 Langues : Anglais (eng) Mots-clés : ASD cause  Beliefs  Latino families  Mexican-heritage parents  Mixed methods analysis Index. décimale : PER Périodiques Résumé : This study examined cultural beliefs about ASD and its causes among Mexican-heritage families. In focus group interviews, we asked 25 immigrant parents of children with ASD to identify words they associated with ASD and its causes. Participants free-listed, ranked, and justified their responses. Mixed methods analyses utilized saliency scores to calculate responses. Deductive interview analyses justified participants' responses. Salient responses for ASD perceptions included specific characteristics about the child (e.g., loving) and perceptions about lack of resources. Salient responses for ASD causes were vaccines, genetics, and a combination of genetics and environment. Inductive analyses revealed distinct beliefs about social stigma, child characteristics, factors supporting development, and parents' emotional stress. Interpretations linked these beliefs to promising adaptations in diagnosis and treatment. En ligne : http://dx.doi.org/10.1007/s10803-017-3457-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=361 [article] Amor and Social Stigma: ASD Beliefs Among Immigrant Mexican Parents [texte imprimé] / Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur . - p.1995-2009. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-6 (June 2018) . - p.1995-2009 Mots-clés : ASD cause  Beliefs  Latino families  Mexican-heritage parents  Mixed methods analysis Index. décimale : PER Périodiques Résumé : This study examined cultural beliefs about ASD and its causes among Mexican-heritage families. In focus group interviews, we asked 25 immigrant parents of children with ASD to identify words they associated with ASD and its causes. Participants free-listed, ranked, and justified their responses. Mixed methods analyses utilized saliency scores to calculate responses. Deductive interview analyses justified participants' responses. Salient responses for ASD perceptions included specific characteristics about the child (e.g., loving) and perceptions about lack of resources. Salient responses for ASD causes were vaccines, genetics, and a combination of genetics and environment. Inductive analyses revealed distinct beliefs about social stigma, child characteristics, factors supporting development, and parents' emotional stress. Interpretations linked these beliefs to promising adaptations in diagnosis and treatment. En ligne : http://dx.doi.org/10.1007/s10803-017-3457-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=361

ASD Diagnosis and Treatment Experiences Among Mexican Heritage Families / Shana R. COHEN in Journal of Autism and Developmental Disorders, 53-3 (March 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-3 (March 2023) . - p.1017-1033 Titre : ASD Diagnosis and Treatment Experiences Among Mexican Heritage Families Type de document : texte imprimé Auteurs : Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur ; Jessica TREJOS, Auteur Article en page(s) : p.1017-1033 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : To understand the ASD diagnosis and treatment pathways for US families, N=38 Mexican-heritage mothers were interviewed about how and when they obtained an ASD diagnosis for their children. Most children (84%) were diagnosed between two and three years old. One-third of mothers reported receiving four to seven referrals before diagnosis. Mothers identified multiple diagnosis circumstances including two diagnoses and services offered before diagnosis. A multiple case study design documented the diagnosis and treatment experiences of four representative participants. As compared to previous studies that utilized a deficit lens to rationalize barriers to diagnosis and treatment (e.g., parents not knowledgeable about ASD), these findings revealed a complex understanding of how structural barriers (e.g., immigration status), initial diagnosis rejection among caregivers, and abrupt service cancellation complicated the diagnosis and treatment process. Implications identified suggestions to optimize and streamline ASD diagnosis and treatment pathways for Mexican heritage families. En ligne : https://doi.org/10.1007/s10803-022-05512-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500 [article] ASD Diagnosis and Treatment Experiences Among Mexican Heritage Families [texte imprimé] / Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur ; Jessica TREJOS, Auteur . - p.1017-1033. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-3 (March 2023) . - p.1017-1033 Index. décimale : PER Périodiques Résumé : To understand the ASD diagnosis and treatment pathways for US families, N=38 Mexican-heritage mothers were interviewed about how and when they obtained an ASD diagnosis for their children. Most children (84%) were diagnosed between two and three years old. One-third of mothers reported receiving four to seven referrals before diagnosis. Mothers identified multiple diagnosis circumstances including two diagnoses and services offered before diagnosis. A multiple case study design documented the diagnosis and treatment experiences of four representative participants. As compared to previous studies that utilized a deficit lens to rationalize barriers to diagnosis and treatment (e.g., parents not knowledgeable about ASD), these findings revealed a complex understanding of how structural barriers (e.g., immigration status), initial diagnosis rejection among caregivers, and abrupt service cancellation complicated the diagnosis and treatment process. Implications identified suggestions to optimize and streamline ASD diagnosis and treatment pathways for Mexican heritage families. En ligne : https://doi.org/10.1007/s10803-022-05512-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500

Child-rearing routines among Mexican-heritage children with autism spectrum disorder / Shana R. COHEN in Autism, 24-1 (January 2020)  

Public ISBD [article]  inAutism > 24-1 (January 2020) . - p.80-94 Titre : Child-rearing routines among Mexican-heritage children with autism spectrum disorder Type de document : texte imprimé Auteurs : Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur ; Alison WISHARD GUERRA, Auteur Article en page(s) : p.80-94 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  daily activities  experienced sampling methods  immigrant families  interventions Index. décimale : PER Périodiques Résumé : This study examined the daily routines and activities of Mexican-heritage mothers and their children with autism spectrum disorder. Experienced sampling methods were used to capture families' current daily routines and activities, how parents valued those activities, and whether the activity was part of the child's autism spectrum disorder intervention. A total of 32 mothers were texted five times per day over five consecutive days for a total of 721 observations. Mothers frequently engaged in Self-Care (e.g. showering), General Caregiving (e.g. cooking), and House Chores (e.g. laundry). Children engaged in activities in which interventions could easily be integrated (e.g. Academics, Self-Care, and Playing with Others). Families spent less than one-third (26.1%) of their activities participating in interventions. Mothers and children jointly spent time in General Caregiving, Playing with Others, and Using Electronics. Practitioners should focus on integrating evidence-based interventions into daily joint routine activities. En ligne : http://dx.doi.org/10.1177/1362361319849244 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414 [article] Child-rearing routines among Mexican-heritage children with autism spectrum disorder [texte imprimé] / Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur ; Alison WISHARD GUERRA, Auteur . - p.80-94. Langues : Anglais (eng) in Autism > 24-1 (January 2020) . - p.80-94 Mots-clés : autism spectrum disorder  daily activities  experienced sampling methods  immigrant families  interventions Index. décimale : PER Périodiques Résumé : This study examined the daily routines and activities of Mexican-heritage mothers and their children with autism spectrum disorder. Experienced sampling methods were used to capture families' current daily routines and activities, how parents valued those activities, and whether the activity was part of the child's autism spectrum disorder intervention. A total of 32 mothers were texted five times per day over five consecutive days for a total of 721 observations. Mothers frequently engaged in Self-Care (e.g. showering), General Caregiving (e.g. cooking), and House Chores (e.g. laundry). Children engaged in activities in which interventions could easily be integrated (e.g. Academics, Self-Care, and Playing with Others). Families spent less than one-third (26.1%) of their activities participating in interventions. Mothers and children jointly spent time in General Caregiving, Playing with Others, and Using Electronics. Practitioners should focus on integrating evidence-based interventions into daily joint routine activities. En ligne : http://dx.doi.org/10.1177/1362361319849244 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414

Short report: Perceptions of causes and common beliefs of autism spectrum disorder in the U.S / Anabel CASTILLO in Research in Autism Spectrum Disorders, 70 (February 2020)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 70 (February 2020) . - p.101472 Titre : Short report: Perceptions of causes and common beliefs of autism spectrum disorder in the U.S Type de document : texte imprimé Auteurs : Anabel CASTILLO, Auteur ; Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur ; Melissa F. WARSTADT, Auteur Article en page(s) : p.101472 Langues : Anglais (eng) Mots-clés : ASD  Perceptions  Beliefs  Ethnicity/race Index. décimale : PER Périodiques Résumé : A preliminary assessment of public perceptions about autism spectrum disorder (ASD) was conducted across the United States using Mechanical Turk, an online recruitment tool for collecting data anonymously. Participants completed a survey about their beliefs regarding causes, treatments, and general views of ASD. For example, when asked what causes ASD, most participants reported hereditary and neurological factors. Exploratory Factor Analyses (EFAs) revealed two separate two-factor subscales for causes and general views about ASD. Findings revealed ethnic differences in participants’ beliefs about Psychosocial Causes, Symptom Regulation Perceptions, and Common Beliefs. Participants that were diagnosed with or had a family member with ASD were more likely to attribute ASD to External Causes than those without those connections to ASD. Implications for policy and practice discuss how study findings might support the development of targeted ASD public awareness campaigns. En ligne : https://doi.org/10.1016/j.rasd.2019.101472 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414 [article] Short report: Perceptions of causes and common beliefs of autism spectrum disorder in the U.S [texte imprimé] / Anabel CASTILLO, Auteur ; Shana R. COHEN, Auteur ; Jessica MIGUEL, Auteur ; Melissa F. WARSTADT, Auteur . - p.101472. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 70 (February 2020) . - p.101472 Mots-clés : ASD  Perceptions  Beliefs  Ethnicity/race Index. décimale : PER Périodiques Résumé : A preliminary assessment of public perceptions about autism spectrum disorder (ASD) was conducted across the United States using Mechanical Turk, an online recruitment tool for collecting data anonymously. Participants completed a survey about their beliefs regarding causes, treatments, and general views of ASD. For example, when asked what causes ASD, most participants reported hereditary and neurological factors. Exploratory Factor Analyses (EFAs) revealed two separate two-factor subscales for causes and general views about ASD. Findings revealed ethnic differences in participants’ beliefs about Psychosocial Causes, Symptom Regulation Perceptions, and Common Beliefs. Participants that were diagnosed with or had a family member with ASD were more likely to attribute ASD to External Causes than those without those connections to ASD. Implications for policy and practice discuss how study findings might support the development of targeted ASD public awareness campaigns. En ligne : https://doi.org/10.1016/j.rasd.2019.101472 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414

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