Skin Picking in People with Prader-Willi Syndrome: Phenomenology and Management / Leah E. BULL in Journal of Autism and Developmental Disorders, 51-1 (January 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-1 (January 2021) . - p.286-297 Titre : Skin Picking in People with Prader-Willi Syndrome: Phenomenology and Management Type de document : Texte imprimé et/ou numérique Auteurs : Leah E. BULL, Auteur ; C. OLIVER, Auteur ; Kate Anne WOODCOCK, Auteur Article en page(s) : p.286-297 Langues : Anglais (eng) Mots-clés : Neurodevelopmental disorder  Prader–Willi syndrome  Self-injurious behaviour  Skin picking Index. décimale : PER Périodiques Résumé : Skin picking is highly prevalent in people with Prader-Willi syndrome (PWS). This study addressed the temporal (frequency, duration) and wider characteristics (e.g. type of skin picked, apparent motivations, or management strategies) of skin picking to inform intervention strategies. Nineteen parents/carers who observe skin picking shown by the person they care for completed a semi-structured interview. Results were consistent with previous research but advanced the field by finding that most participants picked skin with an imperfection and that parents/carers most commonly use distraction as a management strategy. Interventions that are behavioural, support emotion regulation and/ or are used in the typically developing population are therefore likely to be beneficial for future research. En ligne : http://dx.doi.org/10.1007/s10803-020-04504-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=437 [article] Skin Picking in People with Prader-Willi Syndrome: Phenomenology and Management [Texte imprimé et/ou numérique] / Leah E. BULL, Auteur ; C. OLIVER, Auteur ; Kate Anne WOODCOCK, Auteur . - p.286-297. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-1 (January 2021) . - p.286-297 Mots-clés : Neurodevelopmental disorder  Prader–Willi syndrome  Self-injurious behaviour  Skin picking Index. décimale : PER Périodiques Résumé : Skin picking is highly prevalent in people with Prader-Willi syndrome (PWS). This study addressed the temporal (frequency, duration) and wider characteristics (e.g. type of skin picked, apparent motivations, or management strategies) of skin picking to inform intervention strategies. Nineteen parents/carers who observe skin picking shown by the person they care for completed a semi-structured interview. Results were consistent with previous research but advanced the field by finding that most participants picked skin with an imperfection and that parents/carers most commonly use distraction as a management strategy. Interventions that are behavioural, support emotion regulation and/ or are used in the typically developing population are therefore likely to be beneficial for future research. En ligne : http://dx.doi.org/10.1007/s10803-020-04504-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=437

The Profiles and Correlates of Psychopathology in Adolescents and Adults with Williams, Fragile X and Prader-Willi Syndromes / R. ROYSTON in Journal of Autism and Developmental Disorders, 50-3 (March 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-3 (March 2020) . - p.893-903 Titre : The Profiles and Correlates of Psychopathology in Adolescents and Adults with Williams, Fragile X and Prader-Willi Syndromes Type de document : Texte imprimé et/ou numérique Auteurs : R. ROYSTON, Auteur ; C. OLIVER, Auteur ; P. HOWLIN, Auteur ; A. DOSSE, Auteur ; P. ARMITAGE, Auteur ; J. MOSS, Auteur ; J. WAITE, Auteur Article en page(s) : p.893-903 Langues : Anglais (eng) Mots-clés : Correlates  Fragile X syndrome  Prader-Willi syndrome  Psychopathology  Williams syndrome Index. décimale : PER Périodiques Résumé : Psychopathology is prevalent in Williams (WS), fragile X (FXS) and Prader-Willi (PWS) syndromes. However, little is known about the potential correlates of psychopathology in these groups. A questionnaire study was completed by 111 caregivers of individuals with WS (n = 35); FXS (n = 50) and PWS (n = 26). Mean age was 26 years (range 12-57 years); 74 (67%) were male. Multiple regression analyses indicated that higher rates of health problems and sensory impairments predicted higher psychopathology in WS (p < .0001). In PWS, poorer adaptive ability predicted higher overall psychiatric disturbance (p = .001), generalised anxiety (p = .006) and hyperactivity (p = .003). There were no significant predictors in FXS. This study highlights dissociations in the potential risk markers of psychopathology between genetic syndromes. Implications for intervention are discussed. En ligne : http://dx.doi.org/10.1007/s10803-019-04317-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=419 [article] The Profiles and Correlates of Psychopathology in Adolescents and Adults with Williams, Fragile X and Prader-Willi Syndromes [Texte imprimé et/ou numérique] / R. ROYSTON, Auteur ; C. OLIVER, Auteur ; P. HOWLIN, Auteur ; A. DOSSE, Auteur ; P. ARMITAGE, Auteur ; J. MOSS, Auteur ; J. WAITE, Auteur . - p.893-903. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-3 (March 2020) . - p.893-903 Mots-clés : Correlates  Fragile X syndrome  Prader-Willi syndrome  Psychopathology  Williams syndrome Index. décimale : PER Périodiques Résumé : Psychopathology is prevalent in Williams (WS), fragile X (FXS) and Prader-Willi (PWS) syndromes. However, little is known about the potential correlates of psychopathology in these groups. A questionnaire study was completed by 111 caregivers of individuals with WS (n = 35); FXS (n = 50) and PWS (n = 26). Mean age was 26 years (range 12-57 years); 74 (67%) were male. Multiple regression analyses indicated that higher rates of health problems and sensory impairments predicted higher psychopathology in WS (p < .0001). In PWS, poorer adaptive ability predicted higher overall psychiatric disturbance (p = .001), generalised anxiety (p = .006) and hyperactivity (p = .003). There were no significant predictors in FXS. This study highlights dissociations in the potential risk markers of psychopathology between genetic syndromes. Implications for intervention are discussed. En ligne : http://dx.doi.org/10.1007/s10803-019-04317-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=419

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