Pediatric Quality of Life Inventory (PedsQL) in Fragile X Syndrome / Sarah E. FITZPATRICK in Journal of Autism and Developmental Disorders, 50-3 (March 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-3 (March 2020) . - p.1056-1063 Titre : Pediatric Quality of Life Inventory (PedsQL) in Fragile X Syndrome Type de document : Texte imprimé et/ou numérique Auteurs : Sarah E. FITZPATRICK, Auteur ; Lauren M. SCHMITT, Auteur ; Ryan E. ADAMS, Auteur ; Ernest V. PEDAPATI, Auteur ; Logan K. WINK, Auteur ; Rebecca C. SHAFFER, Auteur ; Jessica SAGE, Auteur ; Jayne DIXON WEBER, Auteur ; Kelli C. DOMINICK, Auteur ; Craig ERICKSON, Auteur Article en page(s) : p.1056-1063 Langues : Anglais (eng) Mots-clés : Developmental disability  Fragile X syndrome  Quality of life Index. décimale : PER Périodiques Résumé : To date, health related quality of life (QoL) has not been systematically evaluated in youth with fragile X syndrome (FXS), the most common single gene cause of autism and the most common inherited form of developmental disability. We describe QoL data gathered using the Pediatric Quality of Life Inventory (PedsQL) completed online by 364 parents of youth with FXS. Parents consistently reported across all gender and age groups that their children experienced the highest QoL in Physical functioning and the lowest QoL in Cognitive functioning. Overall, older children with FXS had increase QoL ratings in the domains of School and Cognitive function. En ligne : http://dx.doi.org/10.1007/s10803-019-04292-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=420 [article] Pediatric Quality of Life Inventory (PedsQL) in Fragile X Syndrome [Texte imprimé et/ou numérique] / Sarah E. FITZPATRICK, Auteur ; Lauren M. SCHMITT, Auteur ; Ryan E. ADAMS, Auteur ; Ernest V. PEDAPATI, Auteur ; Logan K. WINK, Auteur ; Rebecca C. SHAFFER, Auteur ; Jessica SAGE, Auteur ; Jayne DIXON WEBER, Auteur ; Kelli C. DOMINICK, Auteur ; Craig ERICKSON, Auteur . - p.1056-1063. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-3 (March 2020) . - p.1056-1063 Mots-clés : Developmental disability  Fragile X syndrome  Quality of life Index. décimale : PER Périodiques Résumé : To date, health related quality of life (QoL) has not been systematically evaluated in youth with fragile X syndrome (FXS), the most common single gene cause of autism and the most common inherited form of developmental disability. We describe QoL data gathered using the Pediatric Quality of Life Inventory (PedsQL) completed online by 364 parents of youth with FXS. Parents consistently reported across all gender and age groups that their children experienced the highest QoL in Physical functioning and the lowest QoL in Cognitive functioning. Overall, older children with FXS had increase QoL ratings in the domains of School and Cognitive function. En ligne : http://dx.doi.org/10.1007/s10803-019-04292-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=420

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