Family navigation to increase evaluation for autism spectrum disorder in toddlers: Screening and Linkage to Services for Autism pragmatic randomized trial / Carolyn G. DIGUISEPPI in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.946-957 Titre : Family navigation to increase evaluation for autism spectrum disorder in toddlers: Screening and Linkage to Services for Autism pragmatic randomized trial Type de document : texte imprimé Auteurs : Carolyn G. DIGUISEPPI, Auteur ; Steven A. ROSENBERG, Auteur ; Margaret A. TOMCHO, Auteur ; Kathryn COLBORN, Auteur ; Kristina HIGHTSHOE, Auteur ; Silvia GUTIERREZ-RAGHUNATH, Auteur ; Jeanette M. CORDOVA, Auteur ; Jodi K. DOOLING-LITFIN, Auteur ; Cordelia ROBINSON ROSENBERG, Auteur Article en page(s) : p.946-957 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  diagnosis  early intervention  education services  patient navigation  toddlers  underserved populations Index. décimale : PER Périodiques Résumé : Young children with autism spectrum disorder can benefit from early detection and intervention to moderate autism spectrum disorder's effect on their development. Routine screening with standardized instruments facilitates early identification. However, many screen-positive children do not receive referrals for evaluation, complete diagnostic evaluations, or engage in services. This is especially true for children of color and those from less educated or low-income families. The Screening and Linkage to Services for Autism trial evaluated the effect of family navigation on referral and evaluation for autism spectrum disorder in screen-positive toddlers. The trial was conducted in an urban, low-income population. It was designed to test "real-world" implementation of family navigation. We randomly assigned 275 children aged 16-30 months with an initial positive autism spectrum disorder screen to receive navigation if indicated or usual care. Navigation increased the number of at-risk toddlers who were evaluated for autism spectrum disorder. It also improved the quality of autism spectrum disorder screening in primary care clinics. However, many children failed to receive indicated referrals for evaluation. Navigation did not improve referral rates. Furthermore, nearly half of families who were potentially eligible for navigation could not be contacted. Other ways of structuring the navigation program may be necessary to improve families' access to and acceptance of navigation, especially in the setting of financial, cultural, and linguistic barriers. Our trial nevertheless showed that family navigation may be an important tool for reducing systemic inequalities in the early identification and treatment of young children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361320974175 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Family navigation to increase evaluation for autism spectrum disorder in toddlers: Screening and Linkage to Services for Autism pragmatic randomized trial [texte imprimé] / Carolyn G. DIGUISEPPI, Auteur ; Steven A. ROSENBERG, Auteur ; Margaret A. TOMCHO, Auteur ; Kathryn COLBORN, Auteur ; Kristina HIGHTSHOE, Auteur ; Silvia GUTIERREZ-RAGHUNATH, Auteur ; Jeanette M. CORDOVA, Auteur ; Jodi K. DOOLING-LITFIN, Auteur ; Cordelia ROBINSON ROSENBERG, Auteur . - p.946-957. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.946-957 Mots-clés : autism spectrum disorders  diagnosis  early intervention  education services  patient navigation  toddlers  underserved populations Index. décimale : PER Périodiques Résumé : Young children with autism spectrum disorder can benefit from early detection and intervention to moderate autism spectrum disorder's effect on their development. Routine screening with standardized instruments facilitates early identification. However, many screen-positive children do not receive referrals for evaluation, complete diagnostic evaluations, or engage in services. This is especially true for children of color and those from less educated or low-income families. The Screening and Linkage to Services for Autism trial evaluated the effect of family navigation on referral and evaluation for autism spectrum disorder in screen-positive toddlers. The trial was conducted in an urban, low-income population. It was designed to test "real-world" implementation of family navigation. We randomly assigned 275 children aged 16-30 months with an initial positive autism spectrum disorder screen to receive navigation if indicated or usual care. Navigation increased the number of at-risk toddlers who were evaluated for autism spectrum disorder. It also improved the quality of autism spectrum disorder screening in primary care clinics. However, many children failed to receive indicated referrals for evaluation. Navigation did not improve referral rates. Furthermore, nearly half of families who were potentially eligible for navigation could not be contacted. Other ways of structuring the navigation program may be necessary to improve families' access to and acceptance of navigation, especially in the setting of financial, cultural, and linguistic barriers. Our trial nevertheless showed that family navigation may be an important tool for reducing systemic inequalities in the early identification and treatment of young children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361320974175 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Mothers’ Ideas About Causes of Autism Spectrum Disorder (ASD): Differences Over Time and by Household Experience with ASD / Chyrise B. BRADLEY in Journal of Autism and Developmental Disorders, 56-11 (November 2026)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 56-11 (November 2026) . - p.4438-4450 Titre : Mothers’ Ideas About Causes of Autism Spectrum Disorder (ASD): Differences Over Time and by Household Experience with ASD Type de document : texte imprimé Auteurs : Chyrise B. BRADLEY, Auteur ; Marissa C. ASHNER, Auteur ; Marti W. KEPNER, Auteur ; Tanya P. GARCIA, Auteur ; Kyle F. GROSSER, Auteur ; Kristina HIGHTSHOE, Auteur ; Eric J. MOODY, Auteur ; Nuri REYES, Auteur ; Steven A. ROSENBERG, Auteur ; Amanda L. TAPIA, Auteur ; Julie L. DANIELS, Auteur Article en page(s) : p.4438-4450 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : To understand trends in mothers’ causal ideas about autism spectrum disorder (ASD) that may be important in targeting education efforts for parents and healthcare providers, as these may be associated with healthcare choices. Data from the Study to Explore Early Development (SEED) was used to examine the causal ideas mothers had, sociodemographic characteristics associated with causal ideas, and whether reported ideas differed over time. SEED included 8307 mothers of pre-school children, with and without ASD, who completed a maternal phone interview between 2007 and 2020. Less than half of mothers (39.3%) offered a causal idea. The most frequently offered causal ideas were genetics, vaccines, environment, parent lifestyle issues, pre/peri-pregnancy maternal medical issues, labor/delivery experiences, and child diet. Some aspects of sociodemographic characteristics, particularly ethno-cultural background, were significantly associated with reporting several causal ideas. Odds of reporting vaccines decreased over time while odds of reporting genetics, parent lifestyle, maternal medical, or labor/delivery issues increased over time. There were significant differences in odds of reporting several causal ideas between those with and those without a child with ASD in the household. Causal ideas reported were consistent with prior research but important differences between those with and those without household ASD as well as significant time trends for certain causes were noted. Implications for public health communication and future research are discussed. En ligne : https://doi.org/10.1007/s10803-025-06862-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=595 [article] Mothers’ Ideas About Causes of Autism Spectrum Disorder (ASD): Differences Over Time and by Household Experience with ASD [texte imprimé] / Chyrise B. BRADLEY, Auteur ; Marissa C. ASHNER, Auteur ; Marti W. KEPNER, Auteur ; Tanya P. GARCIA, Auteur ; Kyle F. GROSSER, Auteur ; Kristina HIGHTSHOE, Auteur ; Eric J. MOODY, Auteur ; Nuri REYES, Auteur ; Steven A. ROSENBERG, Auteur ; Amanda L. TAPIA, Auteur ; Julie L. DANIELS, Auteur . - p.4438-4450. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 56-11 (November 2026) . - p.4438-4450 Index. décimale : PER Périodiques Résumé : To understand trends in mothers’ causal ideas about autism spectrum disorder (ASD) that may be important in targeting education efforts for parents and healthcare providers, as these may be associated with healthcare choices. Data from the Study to Explore Early Development (SEED) was used to examine the causal ideas mothers had, sociodemographic characteristics associated with causal ideas, and whether reported ideas differed over time. SEED included 8307 mothers of pre-school children, with and without ASD, who completed a maternal phone interview between 2007 and 2020. Less than half of mothers (39.3%) offered a causal idea. The most frequently offered causal ideas were genetics, vaccines, environment, parent lifestyle issues, pre/peri-pregnancy maternal medical issues, labor/delivery experiences, and child diet. Some aspects of sociodemographic characteristics, particularly ethno-cultural background, were significantly associated with reporting several causal ideas. Odds of reporting vaccines decreased over time while odds of reporting genetics, parent lifestyle, maternal medical, or labor/delivery issues increased over time. There were significant differences in odds of reporting several causal ideas between those with and those without a child with ASD in the household. Causal ideas reported were consistent with prior research but important differences between those with and those without household ASD as well as significant time trends for certain causes were noted. Implications for public health communication and future research are discussed. En ligne : https://doi.org/10.1007/s10803-025-06862-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=595

Parent and Provider Perspectives on Family Navigation for Early Identification of Children With Autism Spectrum Disorder / Christina CHEUNG in Focus on Autism and Other Developmental Disabilities, 41-1 (March 2026)  

Public ISBD [article]  inFocus on Autism and Other Developmental Disabilities > 41-1 (March 2026) . - p.42-53 Titre : Parent and Provider Perspectives on Family Navigation for Early Identification of Children With Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Christina CHEUNG, Auteur ; Jacqueline JONES, Auteur ; Kristina HIGHTSHOE, Auteur ; Jeanette CÓRDOVA, Auteur ; Yurico GUTIÉRREZ, Auteur ; Jodi K. DOOLING-LITFIN, Auteur ; Margaret M. TOMCHO, Auteur ; Silvia GUTIERREZ-RAGHUNATH, Auteur ; Cordelia Robinson ROSENBERG, Auteur ; Steven A. ROSENBERG, Auteur ; Carolyn DIGUISEPPI, Auteur Article en page(s) : p.42-53 Langues : Anglais (eng) Mots-clés : patient navigation  autism spectrum disorder  health services accessibility  family support systems  early intervention  Hispanic and Latino families  Spanish speaking Index. décimale : PER Périodiques Résumé : Early intervention (EI) can improve developmental outcomes among children with autism spectrum disorder (ASD), but underdiagnosis and undertreatment are common among low-income families and children of racial/ethnic minorities. The Screening and Linkage to Services for Autism (SaLSA) trial (ClinicalTrials.gov Identifier: NCT02374541) demonstrated that autism family navigation (AFN) improved the likelihood that young children at risk for ASD completed a diagnostic evaluation. In a qualitative descriptive U.S. study, we recruited parent participants, health care and EI providers and staff, and project personnel from the SaLSA trial to participate in semi-structured interviews on acceptability and feasibility of AFN services for families seen in urban safety-net clinical settings (i.e., where care is provided regardless of ability to pay). Iterative theme analysis was performed. A community focus group was conducted for triangulation to improve validity. Results demonstrated four main themes: (1) “It’s all in a name: the risk of engagement”; (2) “Community partnerships require authentic trust”; (3) “System interactions and interrelationships”; and (4) “What is an autism family navigator: family navigation or clinical role?” This study adds perspectives of interested parties of AFN within an urban underserved population. Recommendations for navigation program content and delivery can inform future modifications to AFN programs in the context of the communities they serve. En ligne : https://dx.doi.org/10.1177/10883576251396515 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=579 [article] Parent and Provider Perspectives on Family Navigation for Early Identification of Children With Autism Spectrum Disorder [texte imprimé] / Christina CHEUNG, Auteur ; Jacqueline JONES, Auteur ; Kristina HIGHTSHOE, Auteur ; Jeanette CÓRDOVA, Auteur ; Yurico GUTIÉRREZ, Auteur ; Jodi K. DOOLING-LITFIN, Auteur ; Margaret M. TOMCHO, Auteur ; Silvia GUTIERREZ-RAGHUNATH, Auteur ; Cordelia Robinson ROSENBERG, Auteur ; Steven A. ROSENBERG, Auteur ; Carolyn DIGUISEPPI, Auteur . - p.42-53. Langues : Anglais (eng) in Focus on Autism and Other Developmental Disabilities > 41-1 (March 2026) . - p.42-53 Mots-clés : patient navigation  autism spectrum disorder  health services accessibility  family support systems  early intervention  Hispanic and Latino families  Spanish speaking Index. décimale : PER Périodiques Résumé : Early intervention (EI) can improve developmental outcomes among children with autism spectrum disorder (ASD), but underdiagnosis and undertreatment are common among low-income families and children of racial/ethnic minorities. The Screening and Linkage to Services for Autism (SaLSA) trial (ClinicalTrials.gov Identifier: NCT02374541) demonstrated that autism family navigation (AFN) improved the likelihood that young children at risk for ASD completed a diagnostic evaluation. In a qualitative descriptive U.S. study, we recruited parent participants, health care and EI providers and staff, and project personnel from the SaLSA trial to participate in semi-structured interviews on acceptability and feasibility of AFN services for families seen in urban safety-net clinical settings (i.e., where care is provided regardless of ability to pay). Iterative theme analysis was performed. A community focus group was conducted for triangulation to improve validity. Results demonstrated four main themes: (1) “It’s all in a name: the risk of engagement”; (2) “Community partnerships require authentic trust”; (3) “System interactions and interrelationships”; and (4) “What is an autism family navigator: family navigation or clinical role?” This study adds perspectives of interested parties of AFN within an urban underserved population. Recommendations for navigation program content and delivery can inform future modifications to AFN programs in the context of the communities they serve. En ligne : https://dx.doi.org/10.1177/10883576251396515 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=579

Resilience to COVID-19-related challenges in preschool-aged children with and without autism spectrum disorder / Eric J. MOODY in Research in Autism, 128 (October 2025)  

Public ISBD [article]  inResearch in Autism > 128 (October 2025) . - p.202705 Titre : Resilience to COVID-19-related challenges in preschool-aged children with and without autism spectrum disorder Type de document : texte imprimé Auteurs : Eric J. MOODY, Auteur ; Brady HOLST, Auteur ; Haley A. STURGES, Auteur ; Ethan DAHL, Auteur ; Tessa CRUME, Auteur ; Jamie KACZANIUK, Auteur ; Maureen S. DURKIN, Auteur ; Kristina HIGHTSHOE, Auteur ; Cy NADLER, Auteur ; Karen PAZOL, Auteur ; Steven A. ROSENBERG, Auteur ; Lisa WIGGINS, Auteur ; Carolyn G. DIGUISEPPI, Auteur Article en page(s) : p.202705 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  child resilience  maternal mental health  COVID-19 impact Index. décimale : PER Périodiques Résumé : This study examined factors related to resilience in children (46–91 months) with and without autism spectrum disorder (ASD) during the COVID-19 pandemic. From January 2021 to June 2021 a cross-sectional questionnaire measuring the pandemic’s impact on participants was administered to participants from The Study to Explore Early Development (SEED; N = 641). A sum score of items measuring child resilience was computed as an outcome. A Tobit regression was used to model the impact of child’s ASD status, demographic variables, child developmental characteristics, family income, parent work characteristics, and other family and maternal characteristics. There was no association between resilience and ASD status, but it was inversely related to maternal mental health challenges. Resilience was also significantly lower for Asian than non-Hispanic White children and inversely associated with child behavior problems. There was an interaction between loss of work and the family income. Child resilience is a complex phenomenon impacted by child, family, and social factors. Further research is needed to understand how to address factors negatively associated with child resilience and promote factors positively associated with child resilience. Focusing on family and social factors, along with direct child support, may promote resilience in all children. En ligne : https://doi.org/10.1016/j.reia.2025.202705 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=570 [article] Resilience to COVID-19-related challenges in preschool-aged children with and without autism spectrum disorder [texte imprimé] / Eric J. MOODY, Auteur ; Brady HOLST, Auteur ; Haley A. STURGES, Auteur ; Ethan DAHL, Auteur ; Tessa CRUME, Auteur ; Jamie KACZANIUK, Auteur ; Maureen S. DURKIN, Auteur ; Kristina HIGHTSHOE, Auteur ; Cy NADLER, Auteur ; Karen PAZOL, Auteur ; Steven A. ROSENBERG, Auteur ; Lisa WIGGINS, Auteur ; Carolyn G. DIGUISEPPI, Auteur . - p.202705. Langues : Anglais (eng) in Research in Autism > 128 (October 2025) . - p.202705 Mots-clés : Autism spectrum disorder  child resilience  maternal mental health  COVID-19 impact Index. décimale : PER Périodiques Résumé : This study examined factors related to resilience in children (46–91 months) with and without autism spectrum disorder (ASD) during the COVID-19 pandemic. From January 2021 to June 2021 a cross-sectional questionnaire measuring the pandemic’s impact on participants was administered to participants from The Study to Explore Early Development (SEED; N = 641). A sum score of items measuring child resilience was computed as an outcome. A Tobit regression was used to model the impact of child’s ASD status, demographic variables, child developmental characteristics, family income, parent work characteristics, and other family and maternal characteristics. There was no association between resilience and ASD status, but it was inversely related to maternal mental health challenges. Resilience was also significantly lower for Asian than non-Hispanic White children and inversely associated with child behavior problems. There was an interaction between loss of work and the family income. Child resilience is a complex phenomenon impacted by child, family, and social factors. Further research is needed to understand how to address factors negatively associated with child resilience and promote factors positively associated with child resilience. Focusing on family and social factors, along with direct child support, may promote resilience in all children. En ligne : https://doi.org/10.1016/j.reia.2025.202705 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=570

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