[article] 
inResearch in Autism Spectrum Disorders > 3-3 (July-September 2009) . - p.670-684

Titre :	“My greatest joy and my greatest heart ache:” Parents’ own words on how having a child in the autism spectrum has affected their lives and their families’ lives
Type de document :	Texte imprimé et/ou numérique
Auteurs :	Barbara J. MYERS, Auteur ; Robin P. GOIN-KOCHEL, Auteur ; Virginia H. MACKINTOSH, Auteur
Année de publication :	2009
Article en page(s) :	p.670-684
Langues :	Anglais (eng)
Mots-clés :	Parent Family Qualitative-method Themes Online-questionnaire
Index. décimale :	PER Périodiques
Résumé :	Parents of children in the autism spectrum wrote an open-ended answer via an online questionnaire to the question, “How has your child in the autism spectrum affected your life and your family's life?” (N = 493). Using a qualitative content analysis, 15 negative themes and 9 positive themes were identified. Themes are subsumed into five clusters: Stress; Child's behavior; Parents’ personal well being, work, and marital relationship; Impact on the whole family; and Social isolation. The mix of negative and positive themes is interpreted as a dialectical viewpoint of finding positive meaning to life even while acknowledging the stress and difficulties of having a child with autism.
En ligne :	http://dx.doi.org/10.1016/j.rasd.2009.01.004
Permalink :	https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=729

[article] “My greatest joy and my greatest heart ache:” Parents’ own words on how having a child in the autism spectrum has affected their lives and their families’ lives [Texte imprimé et/ou numérique] / Barbara J. MYERS, Auteur ; Robin P. GOIN-KOCHEL, Auteur ; Virginia H. MACKINTOSH, Auteur . - 2009 . - p.670-684.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 3-3 (July-September 2009) . - p.670-684

Mots-clés :	Parent Family Qualitative-method Themes Online-questionnaire
Index. décimale :	PER Périodiques
Résumé :	Parents of children in the autism spectrum wrote an open-ended answer via an online questionnaire to the question, “How has your child in the autism spectrum affected your life and your family's life?” (N = 493). Using a qualitative content analysis, 15 negative themes and 9 positive themes were identified. Themes are subsumed into five clusters: Stress; Child's behavior; Parents’ personal well being, work, and marital relationship; Impact on the whole family; and Social isolation. The mix of negative and positive themes is interpreted as a dialectical viewpoint of finding positive meaning to life even while acknowledging the stress and difficulties of having a child with autism.
En ligne :	http://dx.doi.org/10.1016/j.rasd.2009.01.004
Permalink :	https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=729