Hope and worry in mothers of children with an autism spectrum disorder or Down syndrome / Paula L. OGSTON in Research in Autism Spectrum Disorders, 5-4 (October-December 2011)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 5-4 (October-December 2011) . - p.1378-1384 Titre : Hope and worry in mothers of children with an autism spectrum disorder or Down syndrome Type de document : Texte imprimé et/ou numérique Auteurs : Paula L. OGSTON, Auteur ; Virginia H. MACKINTOSH, Auteur ; Barbara J. MYERS, Auteur Année de publication : 2011 Article en page(s) : p.1378-1384 Langues : Anglais (eng) Mots-clés : Hope  Worry  Mothers  Autism spectrum disorder  Down syndrome Index. décimale : PER Périodiques Résumé : Mothers of children with an autism spectrum disorder (n = 199) or Down syndrome (n = 60) responded to an online questionnaire that assessed their hope and worry. Findings support previous research suggesting that hope is a protective factor against psychological distress: mothers with higher hope reported lower worry. Mothers who reported lower worry had more education and older children or children who were higher functioning. Those whose children had Down syndrome reported lower future-related worry and higher hope. In response to an open-ended question regarding what they worried about when they woke up at night, mothers’ responses resulted in themes related to themselves as well as to their children and families. En ligne : http://dx.doi.org/10.1016/j.rasd.2011.01.020 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=125 [article] Hope and worry in mothers of children with an autism spectrum disorder or Down syndrome [Texte imprimé et/ou numérique] / Paula L. OGSTON, Auteur ; Virginia H. MACKINTOSH, Auteur ; Barbara J. MYERS, Auteur . - 2011 . - p.1378-1384. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 5-4 (October-December 2011) . - p.1378-1384 Mots-clés : Hope  Worry  Mothers  Autism spectrum disorder  Down syndrome Index. décimale : PER Périodiques Résumé : Mothers of children with an autism spectrum disorder (n = 199) or Down syndrome (n = 60) responded to an online questionnaire that assessed their hope and worry. Findings support previous research suggesting that hope is a protective factor against psychological distress: mothers with higher hope reported lower worry. Mothers who reported lower worry had more education and older children or children who were higher functioning. Those whose children had Down syndrome reported lower future-related worry and higher hope. In response to an open-ended question regarding what they worried about when they woke up at night, mothers’ responses resulted in themes related to themselves as well as to their children and families. En ligne : http://dx.doi.org/10.1016/j.rasd.2011.01.020 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=125

“My greatest joy and my greatest heart ache:” Parents’ own words on how having a child in the autism spectrum has affected their lives and their families’ lives / Barbara J. MYERS in Research in Autism Spectrum Disorders, 3-3 (July-September 2009)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 3-3 (July-September 2009) . - p.670-684 Titre : “My greatest joy and my greatest heart ache:” Parents’ own words on how having a child in the autism spectrum has affected their lives and their families’ lives Type de document : Texte imprimé et/ou numérique Auteurs : Barbara J. MYERS, Auteur ; Robin P. GOIN-KOCHEL, Auteur ; Virginia H. MACKINTOSH, Auteur Année de publication : 2009 Article en page(s) : p.670-684 Langues : Anglais (eng) Mots-clés : Parent Family Qualitative-method Themes Online-questionnaire Index. décimale : PER Périodiques Résumé : Parents of children in the autism spectrum wrote an open-ended answer via an online questionnaire to the question, “How has your child in the autism spectrum affected your life and your family's life?” (N = 493). Using a qualitative content analysis, 15 negative themes and 9 positive themes were identified. Themes are subsumed into five clusters: Stress; Child's behavior; Parents’ personal well being, work, and marital relationship; Impact on the whole family; and Social isolation. The mix of negative and positive themes is interpreted as a dialectical viewpoint of finding positive meaning to life even while acknowledging the stress and difficulties of having a child with autism. En ligne : http://dx.doi.org/10.1016/j.rasd.2009.01.004 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=729 [article] “My greatest joy and my greatest heart ache:” Parents’ own words on how having a child in the autism spectrum has affected their lives and their families’ lives [Texte imprimé et/ou numérique] / Barbara J. MYERS, Auteur ; Robin P. GOIN-KOCHEL, Auteur ; Virginia H. MACKINTOSH, Auteur . - 2009 . - p.670-684. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 3-3 (July-September 2009) . - p.670-684 Mots-clés : Parent Family Qualitative-method Themes Online-questionnaire Index. décimale : PER Périodiques Résumé : Parents of children in the autism spectrum wrote an open-ended answer via an online questionnaire to the question, “How has your child in the autism spectrum affected your life and your family's life?” (N = 493). Using a qualitative content analysis, 15 negative themes and 9 positive themes were identified. Themes are subsumed into five clusters: Stress; Child's behavior; Parents’ personal well being, work, and marital relationship; Impact on the whole family; and Social isolation. The mix of negative and positive themes is interpreted as a dialectical viewpoint of finding positive meaning to life even while acknowledging the stress and difficulties of having a child with autism. En ligne : http://dx.doi.org/10.1016/j.rasd.2009.01.004 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=729

Parental reports on the efficacy of treatments and therapies for their children with autism spectrum disorders / Robin P. GOIN-KOCHEL in Research in Autism Spectrum Disorders, 3-2 (April-june 2009)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 3-2 (April-june 2009) . - p.528-537 Titre : Parental reports on the efficacy of treatments and therapies for their children with autism spectrum disorders Type de document : Texte imprimé et/ou numérique Auteurs : Robin P. GOIN-KOCHEL, Auteur ; Barbara J. MYERS, Auteur ; Virginia H. MACKINTOSH, Auteur Année de publication : 2009 Article en page(s) : p.528-537 Langues : Anglais (eng) Mots-clés : Asperger's-syndrome PDD-NOS Intervention Efficacy Pharmacotherapy Medication Placebo Parent-report Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorders (ASD) try many and varied interventions and therapies in the hopes of improving their children's outcomes; however, empirical evidence supporting (or opposing) the vast majority of treatments is limited or nonexistent. This study examined caregiver efficacy ratings for a wide range of biological and educational/behavioral treatments commonly used for children with ASD. A web-based questionnaire regarding the development of children with ASD was distributed nationally and internationally through more than 200 autism-support organizations; results were analyzed from 479 parents (91% mothers) who reported on their children with autism, Asperger's syndrome, or PDD-NOS (M age = 8.3 years, 80.2% male). Improvement – whether small or dramatic – was rated for 50–80% of children in each of 9 drug categories, while ratings of “child became worse” were reported for 15–20.3%. Approximately half of children were said to improve while on a special diet; 51% of those on a gluten-free and/or casein-free (GF/CF) diet were reportedly improved, while no observable effects of the GF/CF diet were indicated for about one quarter of participating children. For 10 of the 16 educational/behavioral therapies, parents reported improvement for approximately 70% of children. The most common rating was “child improved somewhat” followed by “child improved dramatically.” Results are discussed relative to the meaning of “improvement” in ASD and in light of both placebo effects and cost of treatments/therapies. En ligne : http://dx.doi.org/10.1016/j.rasd.2008.11.001 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=710 [article] Parental reports on the efficacy of treatments and therapies for their children with autism spectrum disorders [Texte imprimé et/ou numérique] / Robin P. GOIN-KOCHEL, Auteur ; Barbara J. MYERS, Auteur ; Virginia H. MACKINTOSH, Auteur . - 2009 . - p.528-537. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 3-2 (April-june 2009) . - p.528-537 Mots-clés : Asperger's-syndrome PDD-NOS Intervention Efficacy Pharmacotherapy Medication Placebo Parent-report Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorders (ASD) try many and varied interventions and therapies in the hopes of improving their children's outcomes; however, empirical evidence supporting (or opposing) the vast majority of treatments is limited or nonexistent. This study examined caregiver efficacy ratings for a wide range of biological and educational/behavioral treatments commonly used for children with ASD. A web-based questionnaire regarding the development of children with ASD was distributed nationally and internationally through more than 200 autism-support organizations; results were analyzed from 479 parents (91% mothers) who reported on their children with autism, Asperger's syndrome, or PDD-NOS (M age = 8.3 years, 80.2% male). Improvement – whether small or dramatic – was rated for 50–80% of children in each of 9 drug categories, while ratings of “child became worse” were reported for 15–20.3%. Approximately half of children were said to improve while on a special diet; 51% of those on a gluten-free and/or casein-free (GF/CF) diet were reportedly improved, while no observable effects of the GF/CF diet were indicated for about one quarter of participating children. For 10 of the 16 educational/behavioral therapies, parents reported improvement for approximately 70% of children. The most common rating was “child improved somewhat” followed by “child improved dramatically.” Results are discussed relative to the meaning of “improvement” in ASD and in light of both placebo effects and cost of treatments/therapies. En ligne : http://dx.doi.org/10.1016/j.rasd.2008.11.001 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=710

Parental reports on the use of treatments and therapies for children with autism spectrum disorders / Robin P. GOIN-KOCHEL in Research in Autism Spectrum Disorders, 1-3 (July/September 2007)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 1-3 (July/September 2007) . - p.195-209 Titre : Parental reports on the use of treatments and therapies for children with autism spectrum disorders Type de document : Texte imprimé et/ou numérique Auteurs : Robin P. GOIN-KOCHEL, Auteur ; Barbara J. MYERS, Auteur ; Virginia H. MACKINTOSH, Auteur Année de publication : 2007 Article en page(s) : p.195-209 Langues : Anglais (eng) Mots-clés : Autism Asperger's-syndrome PDD-NOS Interventions Drugs Medications Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorders (ASD; N = 479) reported via web-based survey what pharmacological (drug), diet, and behavioral/educational/alternative therapies they had tried and were using now in the treatment of their children with ASD. Depending on type of ASD, children had tried, on average, between seven and nine therapies and were now using between four and six. Children with Asperger's syndrome had tried significantly more drug treatments than had those with autism or PDD-NOS, while those in these latter two groups had tried more behavioral/educational/alternative therapies. Adolescents had a higher prevalence of drug-treatment use compared with those in middle childhood, who, in turn, had a higher frequency of use relative to those in early childhood. For most behavioral/educational/alternative treatments, more children in early and middle childhood had tried them compared with adolescents. Likewise, children in both early and middle childhood were currently using a higher number of behavioral/educational/alternative treatments than were those in the adolescent group. Findings are discussed relative to both the extant literature on treatment use among ASD families and how parents choose among the plethora of available therapies. En ligne : http://dx.doi.org/10.1016/j.rasd.2006.08.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=147 [article] Parental reports on the use of treatments and therapies for children with autism spectrum disorders [Texte imprimé et/ou numérique] / Robin P. GOIN-KOCHEL, Auteur ; Barbara J. MYERS, Auteur ; Virginia H. MACKINTOSH, Auteur . - 2007 . - p.195-209. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 1-3 (July/September 2007) . - p.195-209 Mots-clés : Autism Asperger's-syndrome PDD-NOS Interventions Drugs Medications Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorders (ASD; N = 479) reported via web-based survey what pharmacological (drug), diet, and behavioral/educational/alternative therapies they had tried and were using now in the treatment of their children with ASD. Depending on type of ASD, children had tried, on average, between seven and nine therapies and were now using between four and six. Children with Asperger's syndrome had tried significantly more drug treatments than had those with autism or PDD-NOS, while those in these latter two groups had tried more behavioral/educational/alternative therapies. Adolescents had a higher prevalence of drug-treatment use compared with those in middle childhood, who, in turn, had a higher frequency of use relative to those in early childhood. For most behavioral/educational/alternative treatments, more children in early and middle childhood had tried them compared with adolescents. Likewise, children in both early and middle childhood were currently using a higher number of behavioral/educational/alternative treatments than were those in the adolescent group. Findings are discussed relative to both the extant literature on treatment use among ASD families and how parents choose among the plethora of available therapies. En ligne : http://dx.doi.org/10.1016/j.rasd.2006.08.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=147

Use of complementary and alternative medicine (CAM) treatments by parents of children with autism spectrum disorders / Lillian M. CHRISTON in Research in Autism Spectrum Disorders, 4-2 (April-June 2010)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 4-2 (April-June 2010) . - p.249-259 Titre : Use of complementary and alternative medicine (CAM) treatments by parents of children with autism spectrum disorders Type de document : Texte imprimé et/ou numérique Auteurs : Lillian M. CHRISTON, Auteur ; Barbara J. MYERS, Auteur ; Virginia H. MACKINTOSH, Auteur Année de publication : 2010 Article en page(s) : p.249-259 Langues : Anglais (eng) Mots-clés : Autism Complementary Alternative Medicine Treatments Children Parent-report Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorders (ASDs) may elect to use complementary and alternative medicine (CAM) treatments with their children in place of, or in addition to, conventional treatments. CAM treatments are controversial and understudied and, for most, the efficacy has not been established. The current study (n = 248) examined reports (via an internet survey) from parents of children with an ASD, asking of CAM usage, recommendation sources, expectations, costs, parent-rated assessments of efficacy, and reasons for stopping use of CAMs. Over 70% had tried at least one CAM treatment with their child, and about half were currently using one or more CAMs. Parents entered treatment with high expectations, although they varied considerably in their assessment of whether CAMs helped their child. Odds ratios of parent-rated efficacy give small leaning toward improvement over non-improvement for CAM treatments. The findings highlight the need for methodologically sound research on CAM treatments. Also needed is dissemination about treatment efficacy to help parents and professionals make educated judgments regarding both CAM and routine interventions. En ligne : http://dx.doi.org/10.1016/j.rasd.2009.09.013 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=974 [article] Use of complementary and alternative medicine (CAM) treatments by parents of children with autism spectrum disorders [Texte imprimé et/ou numérique] / Lillian M. CHRISTON, Auteur ; Barbara J. MYERS, Auteur ; Virginia H. MACKINTOSH, Auteur . - 2010 . - p.249-259. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 4-2 (April-June 2010) . - p.249-259 Mots-clés : Autism Complementary Alternative Medicine Treatments Children Parent-report Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorders (ASDs) may elect to use complementary and alternative medicine (CAM) treatments with their children in place of, or in addition to, conventional treatments. CAM treatments are controversial and understudied and, for most, the efficacy has not been established. The current study (n = 248) examined reports (via an internet survey) from parents of children with an ASD, asking of CAM usage, recommendation sources, expectations, costs, parent-rated assessments of efficacy, and reasons for stopping use of CAMs. Over 70% had tried at least one CAM treatment with their child, and about half were currently using one or more CAMs. Parents entered treatment with high expectations, although they varied considerably in their assessment of whether CAMs helped their child. Odds ratios of parent-rated efficacy give small leaning toward improvement over non-improvement for CAM treatments. The findings highlight the need for methodologically sound research on CAM treatments. Also needed is dissemination about treatment efficacy to help parents and professionals make educated judgments regarding both CAM and routine interventions. En ligne : http://dx.doi.org/10.1016/j.rasd.2009.09.013 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=974

“What Do You Like/Dislike About the Treatments You’re Currently Using?” A Qualitative Study of Parents of Children With Autism Spectrum Disorders / Virginia H. MACKINTOSH in Focus on Autism and Other Developmental Disabilities, 27-1 (March 2012)  

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