Beliefs and Practices Regarding Autism in Indian Families Now Settled Abroad: An Internet Survey / Neeraja RAVINDRAN in Focus on Autism and Other Developmental Disabilities, 28-1 (March 2013)  

Public ISBD [article]  inFocus on Autism and Other Developmental Disabilities > 28-1 (March 2013) . - p.44-53 Titre : Beliefs and Practices Regarding Autism in Indian Families Now Settled Abroad: An Internet Survey Type de document : Texte imprimé et/ou numérique Auteurs : Neeraja RAVINDRAN, Auteur ; Barbara J. MYERS, Auteur Article en page(s) : p.44-53 Mots-clés : autism spectrum disorders  culture  India  beliefs  treatments Index. décimale : PER Périodiques Résumé : Beliefs and practices regarding autism were explored in Indian families living outside India. Parents (N = 24) of children (3 to 15 years) with an autism spectrum disorder wrote open-ended answers in an online questionnaire regarding their beliefs about causes, treatments and services received, use of and preference for Indian medicine and practices, and acculturation. Although two participants did not provide enough answers to be categorized, three groups of parents emerged: Those who were primarily Western (n = 4) in their beliefs and practices concerning autism, those who were primarily Indian (n = 4), and those who endorsed a combination of Western and Indian beliefs and practices (n = 14). Most parents acknowledged traditional beliefs and practices only when specifically asked and did not volunteer this information. Professionals need to avoid assuming there is a universal set of attitudes and practices related to autism when working with culturally diverse families. En ligne : http://dx.doi.org/10.1177/1088357612458970 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=191 [article] Beliefs and Practices Regarding Autism in Indian Families Now Settled Abroad: An Internet Survey [Texte imprimé et/ou numérique] / Neeraja RAVINDRAN, Auteur ; Barbara J. MYERS, Auteur . - p.44-53. in Focus on Autism and Other Developmental Disabilities > 28-1 (March 2013) . - p.44-53 Mots-clés : autism spectrum disorders  culture  India  beliefs  treatments Index. décimale : PER Périodiques Résumé : Beliefs and practices regarding autism were explored in Indian families living outside India. Parents (N = 24) of children (3 to 15 years) with an autism spectrum disorder wrote open-ended answers in an online questionnaire regarding their beliefs about causes, treatments and services received, use of and preference for Indian medicine and practices, and acculturation. Although two participants did not provide enough answers to be categorized, three groups of parents emerged: Those who were primarily Western (n = 4) in their beliefs and practices concerning autism, those who were primarily Indian (n = 4), and those who endorsed a combination of Western and Indian beliefs and practices (n = 14). Most parents acknowledged traditional beliefs and practices only when specifically asked and did not volunteer this information. Professionals need to avoid assuming there is a universal set of attitudes and practices related to autism when working with culturally diverse families. En ligne : http://dx.doi.org/10.1177/1088357612458970 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=191

Family-centered care practices in a multidisciplinary sample of pediatric professionals providing autism spectrum disorder services in the United States / Lillian M. CHRISTON in Research in Autism Spectrum Disorders, 20 (December 2015)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 20 (December 2015) . - p.47-57 Titre : Family-centered care practices in a multidisciplinary sample of pediatric professionals providing autism spectrum disorder services in the United States Type de document : Texte imprimé et/ou numérique Auteurs : Lillian M. CHRISTON, Auteur ; Barbara J. MYERS, Auteur Article en page(s) : p.47-57 Langues : Anglais (eng) Mots-clés : Family-centered care  Pediatric professionals  Autism spectrum disorder  Multidisciplinary  Service delivery  Theory of planned behavior Index. décimale : PER Périodiques Résumé : Family-centered care (FCC) has not been studied extensively in the field of autism spectrum disorders (ASD), but has been highlighted as a critical component of practice with youth with ASD. The aim of this study was to examine predictors (e.g., the theory of planned behavior, [TPB]) of providing family-centered care (FCC) services to youth with ASD in pediatric professionals from a range of disciplines. A multidisciplinary (e.g., medicine, psychology, education, etc.) sample of professionals (N = 709) who endorsed providing services to youth with ASD in the United States was recruited from online provider listings, listservs, etc. Hierarchical multiple regressions examined the relationship of demographic and TPB predictors to professionals' self-reported FCC practices. Professionals reported a high degree of using FCC in their practice with youth with ASD. Attitudes and perceived behavioral control predicted self-reported FCC practices, while subjective norms did not. Experienced practitioners reported using FCC practices in spite of not having necessarily received FCC training. Discipline differences were evident in rates of reported FCC. The Theory of Planned Behavior is helpful in understanding FCC practices and attention should be given to training professionals in FCC as they work with youth with ASD. Implications and future directions are discussed. En ligne : http://dx.doi.org/10.1016/j.rasd.2015.08.004 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270 [article] Family-centered care practices in a multidisciplinary sample of pediatric professionals providing autism spectrum disorder services in the United States [Texte imprimé et/ou numérique] / Lillian M. CHRISTON, Auteur ; Barbara J. MYERS, Auteur . - p.47-57. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 20 (December 2015) . - p.47-57 Mots-clés : Family-centered care  Pediatric professionals  Autism spectrum disorder  Multidisciplinary  Service delivery  Theory of planned behavior Index. décimale : PER Périodiques Résumé : Family-centered care (FCC) has not been studied extensively in the field of autism spectrum disorders (ASD), but has been highlighted as a critical component of practice with youth with ASD. The aim of this study was to examine predictors (e.g., the theory of planned behavior, [TPB]) of providing family-centered care (FCC) services to youth with ASD in pediatric professionals from a range of disciplines. A multidisciplinary (e.g., medicine, psychology, education, etc.) sample of professionals (N = 709) who endorsed providing services to youth with ASD in the United States was recruited from online provider listings, listservs, etc. Hierarchical multiple regressions examined the relationship of demographic and TPB predictors to professionals' self-reported FCC practices. Professionals reported a high degree of using FCC in their practice with youth with ASD. Attitudes and perceived behavioral control predicted self-reported FCC practices, while subjective norms did not. Experienced practitioners reported using FCC practices in spite of not having necessarily received FCC training. Discipline differences were evident in rates of reported FCC. The Theory of Planned Behavior is helpful in understanding FCC practices and attention should be given to training professionals in FCC as they work with youth with ASD. Implications and future directions are discussed. En ligne : http://dx.doi.org/10.1016/j.rasd.2015.08.004 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270

Hope and worry in mothers of children with an autism spectrum disorder or Down syndrome / Paula L. OGSTON in Research in Autism Spectrum Disorders, 5-4 (October-December 2011)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 5-4 (October-December 2011) . - p.1378-1384 Titre : Hope and worry in mothers of children with an autism spectrum disorder or Down syndrome Type de document : Texte imprimé et/ou numérique Auteurs : Paula L. OGSTON, Auteur ; Virginia H. MACKINTOSH, Auteur ; Barbara J. MYERS, Auteur Année de publication : 2011 Article en page(s) : p.1378-1384 Langues : Anglais (eng) Mots-clés : Hope  Worry  Mothers  Autism spectrum disorder  Down syndrome Index. décimale : PER Périodiques Résumé : Mothers of children with an autism spectrum disorder (n = 199) or Down syndrome (n = 60) responded to an online questionnaire that assessed their hope and worry. Findings support previous research suggesting that hope is a protective factor against psychological distress: mothers with higher hope reported lower worry. Mothers who reported lower worry had more education and older children or children who were higher functioning. Those whose children had Down syndrome reported lower future-related worry and higher hope. In response to an open-ended question regarding what they worried about when they woke up at night, mothers’ responses resulted in themes related to themselves as well as to their children and families. En ligne : http://dx.doi.org/10.1016/j.rasd.2011.01.020 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=125 [article] Hope and worry in mothers of children with an autism spectrum disorder or Down syndrome [Texte imprimé et/ou numérique] / Paula L. OGSTON, Auteur ; Virginia H. MACKINTOSH, Auteur ; Barbara J. MYERS, Auteur . - 2011 . - p.1378-1384. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 5-4 (October-December 2011) . - p.1378-1384 Mots-clés : Hope  Worry  Mothers  Autism spectrum disorder  Down syndrome Index. décimale : PER Périodiques Résumé : Mothers of children with an autism spectrum disorder (n = 199) or Down syndrome (n = 60) responded to an online questionnaire that assessed their hope and worry. Findings support previous research suggesting that hope is a protective factor against psychological distress: mothers with higher hope reported lower worry. Mothers who reported lower worry had more education and older children or children who were higher functioning. Those whose children had Down syndrome reported lower future-related worry and higher hope. In response to an open-ended question regarding what they worried about when they woke up at night, mothers’ responses resulted in themes related to themselves as well as to their children and families. En ligne : http://dx.doi.org/10.1016/j.rasd.2011.01.020 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=125

“My greatest joy and my greatest heart ache:” Parents’ own words on how having a child in the autism spectrum has affected their lives and their families’ lives / Barbara J. MYERS in Research in Autism Spectrum Disorders, 3-3 (July-September 2009)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 3-3 (July-September 2009) . - p.670-684 Titre : “My greatest joy and my greatest heart ache:” Parents’ own words on how having a child in the autism spectrum has affected their lives and their families’ lives Type de document : Texte imprimé et/ou numérique Auteurs : Barbara J. MYERS, Auteur ; Robin P. GOIN-KOCHEL, Auteur ; Virginia H. MACKINTOSH, Auteur Année de publication : 2009 Article en page(s) : p.670-684 Langues : Anglais (eng) Mots-clés : Parent Family Qualitative-method Themes Online-questionnaire Index. décimale : PER Périodiques Résumé : Parents of children in the autism spectrum wrote an open-ended answer via an online questionnaire to the question, “How has your child in the autism spectrum affected your life and your family's life?” (N = 493). Using a qualitative content analysis, 15 negative themes and 9 positive themes were identified. Themes are subsumed into five clusters: Stress; Child's behavior; Parents’ personal well being, work, and marital relationship; Impact on the whole family; and Social isolation. The mix of negative and positive themes is interpreted as a dialectical viewpoint of finding positive meaning to life even while acknowledging the stress and difficulties of having a child with autism. En ligne : http://dx.doi.org/10.1016/j.rasd.2009.01.004 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=729 [article] “My greatest joy and my greatest heart ache:” Parents’ own words on how having a child in the autism spectrum has affected their lives and their families’ lives [Texte imprimé et/ou numérique] / Barbara J. MYERS, Auteur ; Robin P. GOIN-KOCHEL, Auteur ; Virginia H. MACKINTOSH, Auteur . - 2009 . - p.670-684. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 3-3 (July-September 2009) . - p.670-684 Mots-clés : Parent Family Qualitative-method Themes Online-questionnaire Index. décimale : PER Périodiques Résumé : Parents of children in the autism spectrum wrote an open-ended answer via an online questionnaire to the question, “How has your child in the autism spectrum affected your life and your family's life?” (N = 493). Using a qualitative content analysis, 15 negative themes and 9 positive themes were identified. Themes are subsumed into five clusters: Stress; Child's behavior; Parents’ personal well being, work, and marital relationship; Impact on the whole family; and Social isolation. The mix of negative and positive themes is interpreted as a dialectical viewpoint of finding positive meaning to life even while acknowledging the stress and difficulties of having a child with autism. En ligne : http://dx.doi.org/10.1016/j.rasd.2009.01.004 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=729

Parental reports on the efficacy of treatments and therapies for their children with autism spectrum disorders / Robin P. GOIN-KOCHEL in Research in Autism Spectrum Disorders, 3-2 (April-june 2009)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 3-2 (April-june 2009) . - p.528-537 Titre : Parental reports on the efficacy of treatments and therapies for their children with autism spectrum disorders Type de document : Texte imprimé et/ou numérique Auteurs : Robin P. GOIN-KOCHEL, Auteur ; Barbara J. MYERS, Auteur ; Virginia H. MACKINTOSH, Auteur Année de publication : 2009 Article en page(s) : p.528-537 Langues : Anglais (eng) Mots-clés : Asperger's-syndrome PDD-NOS Intervention Efficacy Pharmacotherapy Medication Placebo Parent-report Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorders (ASD) try many and varied interventions and therapies in the hopes of improving their children's outcomes; however, empirical evidence supporting (or opposing) the vast majority of treatments is limited or nonexistent. This study examined caregiver efficacy ratings for a wide range of biological and educational/behavioral treatments commonly used for children with ASD. A web-based questionnaire regarding the development of children with ASD was distributed nationally and internationally through more than 200 autism-support organizations; results were analyzed from 479 parents (91% mothers) who reported on their children with autism, Asperger's syndrome, or PDD-NOS (M age = 8.3 years, 80.2% male). Improvement – whether small or dramatic – was rated for 50–80% of children in each of 9 drug categories, while ratings of “child became worse” were reported for 15–20.3%. Approximately half of children were said to improve while on a special diet; 51% of those on a gluten-free and/or casein-free (GF/CF) diet were reportedly improved, while no observable effects of the GF/CF diet were indicated for about one quarter of participating children. For 10 of the 16 educational/behavioral therapies, parents reported improvement for approximately 70% of children. The most common rating was “child improved somewhat” followed by “child improved dramatically.” Results are discussed relative to the meaning of “improvement” in ASD and in light of both placebo effects and cost of treatments/therapies. En ligne : http://dx.doi.org/10.1016/j.rasd.2008.11.001 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=710 [article] Parental reports on the efficacy of treatments and therapies for their children with autism spectrum disorders [Texte imprimé et/ou numérique] / Robin P. GOIN-KOCHEL, Auteur ; Barbara J. MYERS, Auteur ; Virginia H. MACKINTOSH, Auteur . - 2009 . - p.528-537. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 3-2 (April-june 2009) . - p.528-537 Mots-clés : Asperger's-syndrome PDD-NOS Intervention Efficacy Pharmacotherapy Medication Placebo Parent-report Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorders (ASD) try many and varied interventions and therapies in the hopes of improving their children's outcomes; however, empirical evidence supporting (or opposing) the vast majority of treatments is limited or nonexistent. This study examined caregiver efficacy ratings for a wide range of biological and educational/behavioral treatments commonly used for children with ASD. A web-based questionnaire regarding the development of children with ASD was distributed nationally and internationally through more than 200 autism-support organizations; results were analyzed from 479 parents (91% mothers) who reported on their children with autism, Asperger's syndrome, or PDD-NOS (M age = 8.3 years, 80.2% male). Improvement – whether small or dramatic – was rated for 50–80% of children in each of 9 drug categories, while ratings of “child became worse” were reported for 15–20.3%. Approximately half of children were said to improve while on a special diet; 51% of those on a gluten-free and/or casein-free (GF/CF) diet were reportedly improved, while no observable effects of the GF/CF diet were indicated for about one quarter of participating children. For 10 of the 16 educational/behavioral therapies, parents reported improvement for approximately 70% of children. The most common rating was “child improved somewhat” followed by “child improved dramatically.” Results are discussed relative to the meaning of “improvement” in ASD and in light of both placebo effects and cost of treatments/therapies. En ligne : http://dx.doi.org/10.1016/j.rasd.2008.11.001 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=710

Parental reports on the use of treatments and therapies for children with autism spectrum disorders / Robin P. GOIN-KOCHEL in Research in Autism Spectrum Disorders, 1-3 (July/September 2007)  

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Use of complementary and alternative medicine (CAM) treatments by parents of children with autism spectrum disorders / Lillian M. CHRISTON in Research in Autism Spectrum Disorders, 4-2 (April-June 2010)  

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“What Do You Like/Dislike About the Treatments You’re Currently Using?” A Qualitative Study of Parents of Children With Autism Spectrum Disorders / Virginia H. MACKINTOSH in Focus on Autism and Other Developmental Disabilities, 27-1 (March 2012)  

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