Characteristics of children who lost the diagnosis of autism: a sample from istanbul, Turkey / Nahit M. MUKADDES in Autism Research and Treatment, 2014 (2014)  

Public ISBD [article]  inAutism Research and Treatment > 2014 (2014) Titre : Characteristics of children who lost the diagnosis of autism: a sample from istanbul, Turkey Type de document : Texte imprimé et/ou numérique Auteurs : Nahit M. MUKADDES, Auteur ; M. D. TUTKUNKARDAS, Auteur ; O. SARI, Auteur ; A. AYDIN, Auteur ; P. KOZANOGLU, Auteur Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Aim. The aim of this study was to describe a group of children who lost a diagnosis of autism following participation in early educational programs. Method. This is a descriptive study reporting the characteristics of children (n: 39) who lost their diagnosis of autism and explaining the educational programs that these children followed. The data were collected by reviewing the participants' files and through examinations. Results. All of the children were placed at regular psychiatric follow-ups. The mean age at referral was 2.39+/-0.75 years, whereas the mean age at the time of optimal outcome reported was 5.11 +/- 1.95 years. Two of the children were in early intensive behavioral intervention (EIBI), and the rest were in a comprehensive naturalistic behavioral program. The childhood autism rating scale (CARS) total scores at baseline and final were 32.75 +/- 3.15 and 18.01 +/- 1.76, respectively. The mean IQ of the group at final examination was 116.70 +/- 18.88. Conclusion. It could be concluded that a group of children with an autism diagnosis could lose the diagnosis of autism upon early intervention. High IQ and the development of communicative and language skills at an early age could be the most powerful factors contributing to an optimal outcome. En ligne : http://dx.doi.org/10.1155/2014/472120 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=332 [article] Characteristics of children who lost the diagnosis of autism: a sample from istanbul, Turkey [Texte imprimé et/ou numérique] / Nahit M. MUKADDES, Auteur ; M. D. TUTKUNKARDAS, Auteur ; O. SARI, Auteur ; A. AYDIN, Auteur ; P. KOZANOGLU, Auteur. Langues : Anglais (eng) in Autism Research and Treatment > 2014 (2014) Index. décimale : PER Périodiques Résumé : Aim. The aim of this study was to describe a group of children who lost a diagnosis of autism following participation in early educational programs. Method. This is a descriptive study reporting the characteristics of children (n: 39) who lost their diagnosis of autism and explaining the educational programs that these children followed. The data were collected by reviewing the participants' files and through examinations. Results. All of the children were placed at regular psychiatric follow-ups. The mean age at referral was 2.39+/-0.75 years, whereas the mean age at the time of optimal outcome reported was 5.11 +/- 1.95 years. Two of the children were in early intensive behavioral intervention (EIBI), and the rest were in a comprehensive naturalistic behavioral program. The childhood autism rating scale (CARS) total scores at baseline and final were 32.75 +/- 3.15 and 18.01 +/- 1.76, respectively. The mean IQ of the group at final examination was 116.70 +/- 18.88. Conclusion. It could be concluded that a group of children with an autism diagnosis could lose the diagnosis of autism upon early intervention. High IQ and the development of communicative and language skills at an early age could be the most powerful factors contributing to an optimal outcome. En ligne : http://dx.doi.org/10.1155/2014/472120 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=332

A new model for recognition, referral, and follow-up of autism spectrum disorder: A nationwide program / Onur Burak DURSUN in Autism Research, 15-10 (October 2022)  

Public ISBD [article]  inAutism Research > 15-10 (October 2022) . - p.1961-1970 Titre : A new model for recognition, referral, and follow-up of autism spectrum disorder: A nationwide program Type de document : Texte imprimé et/ou numérique Auteurs : Onur Burak DURSUN, Auteur ; Bahadir TURAN, Auteur ; Hakan OGUTLU, Auteur ; Nagihan Cevher BINICI, Auteur ; Abdurrahman Cahid ORENGUL, Auteur ; Esra ALATAS, Auteur ; Rabia Madan OZDEMIR, Auteur ; Elif TASLIBEYAZ, Auteur ; Selçuk KARAMAN, Auteur ; Nahit M. MUKADDES, Auteur ; TURKISH AUTISM WORKGROUP, Auteur Article en page(s) : p.1961-1970 Index. décimale : PER Périodiques Résumé : Abstract Early diagnosis of autism certainly stands as one of the most important determinants to ensure a better prognosis of the disorder, it is common that the screening programs to ensure this, end up not being implemented in health systems of many countries. This may stem from the disadvantages of classically suggested scale-based screening (SBS) programs. This study presents a nationwide recognition and referral model for early diagnosis of autism spectrum disorders (ASD), in order to meet the obvious need for new methods. The model consists of interactive video-based training (IVBAT) of health care workers (HCW), a system where family physicians (FPs) record five probable indicators of autism in their family medicine information system; and is therefore, a practical referral system in which the FP may refer a child with any suggestive finding to a child psychiatrist and may well continue to monitor recently diagnosed cases. The autism teams consist of trained child psychiatrists and coordinators, who delivered trainings to 29,612 FPs and 23,511 nurses countrywide. Of 98.8% FPs were trained throughout the country. Total of 1,863,096 children were reported to have a brief examination of autism signs in Family Medicine Units by trained FPs and nurses. A total of 55,314 (2.96%) these children were deemed at risk for ASD and were referred to child psychiatrists. In the evaluation of 55,314 children by child psychiatrists, 10,087 cases were diagnosed with developmental disorders, while 3226 of children at risk were diagnosed with autism. The results of this study, which reached to the largest sample to date, suggest that some other alternative methods, in addition to SBS should also be tested in order to screen ASD. Lay Summary In this study, a nationwide recognition and referral model for early identification of autism spectrum disorders (ASD) is presented. Scale-based screening (SBS) is the most recommended model for autism, however, it is clear that most countries can not implement this model in their health system. The results of this study, which reached to the largest sample to date, suggest that SBS may not be the only me for screening ASD and that alternative methods should be tried, as there is an obvious need for exploratory approaches. En ligne : https://doi.org/10.1002/aur.2813 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] A new model for recognition, referral, and follow-up of autism spectrum disorder: A nationwide program [Texte imprimé et/ou numérique] / Onur Burak DURSUN, Auteur ; Bahadir TURAN, Auteur ; Hakan OGUTLU, Auteur ; Nagihan Cevher BINICI, Auteur ; Abdurrahman Cahid ORENGUL, Auteur ; Esra ALATAS, Auteur ; Rabia Madan OZDEMIR, Auteur ; Elif TASLIBEYAZ, Auteur ; Selçuk KARAMAN, Auteur ; Nahit M. MUKADDES, Auteur ; TURKISH AUTISM WORKGROUP, Auteur . - p.1961-1970. in Autism Research > 15-10 (October 2022) . - p.1961-1970 Index. décimale : PER Périodiques Résumé : Abstract Early diagnosis of autism certainly stands as one of the most important determinants to ensure a better prognosis of the disorder, it is common that the screening programs to ensure this, end up not being implemented in health systems of many countries. This may stem from the disadvantages of classically suggested scale-based screening (SBS) programs. This study presents a nationwide recognition and referral model for early diagnosis of autism spectrum disorders (ASD), in order to meet the obvious need for new methods. The model consists of interactive video-based training (IVBAT) of health care workers (HCW), a system where family physicians (FPs) record five probable indicators of autism in their family medicine information system; and is therefore, a practical referral system in which the FP may refer a child with any suggestive finding to a child psychiatrist and may well continue to monitor recently diagnosed cases. The autism teams consist of trained child psychiatrists and coordinators, who delivered trainings to 29,612 FPs and 23,511 nurses countrywide. Of 98.8% FPs were trained throughout the country. Total of 1,863,096 children were reported to have a brief examination of autism signs in Family Medicine Units by trained FPs and nurses. A total of 55,314 (2.96%) these children were deemed at risk for ASD and were referred to child psychiatrists. In the evaluation of 55,314 children by child psychiatrists, 10,087 cases were diagnosed with developmental disorders, while 3226 of children at risk were diagnosed with autism. The results of this study, which reached to the largest sample to date, suggest that some other alternative methods, in addition to SBS should also be tested in order to screen ASD. Lay Summary In this study, a nationwide recognition and referral model for early identification of autism spectrum disorders (ASD) is presented. Scale-based screening (SBS) is the most recommended model for autism, however, it is clear that most countries can not implement this model in their health system. The results of this study, which reached to the largest sample to date, suggest that SBS may not be the only me for screening ASD and that alternative methods should be tried, as there is an obvious need for exploratory approaches. En ligne : https://doi.org/10.1002/aur.2813 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Posttraumatic Stress Disorder in individuals with diagnosis of Autistic Spectrum Disorders / Mohamad MEHTAR in Research in Autism Spectrum Disorders, 5-1 (January-March 2011)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 5-1 (January-March 2011) . - p.539-546 Titre : Posttraumatic Stress Disorder in individuals with diagnosis of Autistic Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Mohamad MEHTAR, Auteur ; Nahit M. MUKADDES, Auteur Année de publication : 2011 Article en page(s) : p.539-546 Langues : Anglais (eng) Mots-clés : Trauma Posttraumatic-Stress-Disorder Autism Abuse Index. décimale : PER Périodiques Résumé : Although children and adolescents with developmental disabilities are said to have higher risks of abuse than those without, trauma and Posttraumatic Stress Disorder (PTSD) are little examined in those diagnosed with Autistic Spectrum Disorders (ASDs). Our study aims to assess trauma types, prevalence, risk factors and symptoms; and PTSD in individuals with diagnosis of ASD. Participants were 69 children and adolescents (53 males, 16 females) who were consecutively followed-up at our clinic and met DSM-IV criteria for ASD. Assessment was done using semi-structured interview forms. 18 had trauma history and 12 were diagnosed with PTSD. Witnessing or being a victim of accidents/disasters/violence was the most common type of trauma. Interestingly, the rate of sexual and/or physical abuse was less than in the general population. Trauma history and PTSD rates were higher in girls than boys. Deterioration in social and communicative abilities, increase in stereotypes, aggression, distractibility, sleep disorders, agitation, hyperactivity, self-injury, and loss of self-care skills were the most common symptoms detected following trauma. These results underscore the importance of detailed assessment of behavioral and emotional problems in this group by ruling out any trauma history at periods which might otherwise be misdiagnosed as an exacerbation of symptoms of ASD. En ligne : http://dx.doi.org/10.1016/j.rasd.2010.06.020 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=111 [article] Posttraumatic Stress Disorder in individuals with diagnosis of Autistic Spectrum Disorders [Texte imprimé et/ou numérique] / Mohamad MEHTAR, Auteur ; Nahit M. MUKADDES, Auteur . - 2011 . - p.539-546. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 5-1 (January-March 2011) . - p.539-546 Mots-clés : Trauma Posttraumatic-Stress-Disorder Autism Abuse Index. décimale : PER Périodiques Résumé : Although children and adolescents with developmental disabilities are said to have higher risks of abuse than those without, trauma and Posttraumatic Stress Disorder (PTSD) are little examined in those diagnosed with Autistic Spectrum Disorders (ASDs). Our study aims to assess trauma types, prevalence, risk factors and symptoms; and PTSD in individuals with diagnosis of ASD. Participants were 69 children and adolescents (53 males, 16 females) who were consecutively followed-up at our clinic and met DSM-IV criteria for ASD. Assessment was done using semi-structured interview forms. 18 had trauma history and 12 were diagnosed with PTSD. Witnessing or being a victim of accidents/disasters/violence was the most common type of trauma. Interestingly, the rate of sexual and/or physical abuse was less than in the general population. Trauma history and PTSD rates were higher in girls than boys. Deterioration in social and communicative abilities, increase in stereotypes, aggression, distractibility, sleep disorders, agitation, hyperactivity, self-injury, and loss of self-care skills were the most common symptoms detected following trauma. These results underscore the importance of detailed assessment of behavioral and emotional problems in this group by ruling out any trauma history at periods which might otherwise be misdiagnosed as an exacerbation of symptoms of ASD. En ligne : http://dx.doi.org/10.1016/j.rasd.2010.06.020 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=111

Referral pattern and special interests in children and adolescents with Asperger syndrome: a Turkish referred sample / Canan TANIDIR in Autism, 18-2 (February 2014)  

Public ISBD [article]  inAutism > 18-2 (February 2014) . - p.178-184 Titre : Referral pattern and special interests in children and adolescents with Asperger syndrome: a Turkish referred sample Type de document : Texte imprimé et/ou numérique Auteurs : Canan TANIDIR, Auteur ; Nahit M. MUKADDES, Auteur Article en page(s) : p.178-184 Langues : Anglais (eng) Mots-clés : Asperger syndrome  children  diagnosis  interests  referral Index. décimale : PER Périodiques Résumé : Objectives: To investigate the most frequent reasons for referral, the most common special interests, age at first referral to a mental health service, and the age of diagnosis in children and adolescents with Asperger syndrome living in Turkey.Methods: This study includes 61 children and adolescents diagnosed with Asperger syndrome using strict DSM-IV criteria.Results: The mean age at first referral was 7.9 whereas the mean age when Asperger syndrome was diagnosed was 9.9, which is compatible with other studies. The most frequent reasons for the first referral were attention deficits, hyperactivity, and academic failure, and the most common special interest area was “electronic devicess, computer, and technical interests.”Conclusions: The types of special interests and referral reasons in our Asperger syndrome sample are very similar to the interest areas and referral reasons of individuals with Asperger syndrome from developed western countries indicating the universality of symptoms. It could be concluded that children and adolescents with Asperger syndrome may refer to mental health services with a variety of symptoms; therefore, it is important to make a detailed assessment of social difficulties especially in school-age children and adolescents for the differential diagnosis of Asperger syndrome. En ligne : http://dx.doi.org/10.1177/1362361312457716 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=224 [article] Referral pattern and special interests in children and adolescents with Asperger syndrome: a Turkish referred sample [Texte imprimé et/ou numérique] / Canan TANIDIR, Auteur ; Nahit M. MUKADDES, Auteur . - p.178-184. Langues : Anglais (eng) in Autism > 18-2 (February 2014) . - p.178-184 Mots-clés : Asperger syndrome  children  diagnosis  interests  referral Index. décimale : PER Périodiques Résumé : Objectives: To investigate the most frequent reasons for referral, the most common special interests, age at first referral to a mental health service, and the age of diagnosis in children and adolescents with Asperger syndrome living in Turkey.Methods: This study includes 61 children and adolescents diagnosed with Asperger syndrome using strict DSM-IV criteria.Results: The mean age at first referral was 7.9 whereas the mean age when Asperger syndrome was diagnosed was 9.9, which is compatible with other studies. The most frequent reasons for the first referral were attention deficits, hyperactivity, and academic failure, and the most common special interest area was “electronic devicess, computer, and technical interests.”Conclusions: The types of special interests and referral reasons in our Asperger syndrome sample are very similar to the interest areas and referral reasons of individuals with Asperger syndrome from developed western countries indicating the universality of symptoms. It could be concluded that children and adolescents with Asperger syndrome may refer to mental health services with a variety of symptoms; therefore, it is important to make a detailed assessment of social difficulties especially in school-age children and adolescents for the differential diagnosis of Asperger syndrome. En ligne : http://dx.doi.org/10.1177/1362361312457716 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=224

Using the Modified Checklist for Autism in Toddlers in a well-child clinic in Turkey: Adapting the screening method based on culture and setting / Bülent KARA in Autism, 18-3 (April 2014)  

Public ISBD [article]  inAutism > 18-3 (April 2014) . - p.331-338 Titre : Using the Modified Checklist for Autism in Toddlers in a well-child clinic in Turkey: Adapting the screening method based on culture and setting Type de document : Texte imprimé et/ou numérique Auteurs : Bülent KARA, Auteur ; Nahit M. MUKADDES, Auteur ; I??lay ALTINKAYA, Auteur ; Dilek GUNTEPE, Auteur ; Gülbin GOKCAY, Auteur ; Meral OZMEN, Auteur Article en page(s) : p.331-338 Langues : Anglais (eng) Mots-clés : autism  Modified Checklist for Autism in Toddlers  pervasive developmental disorders  screening Index. décimale : PER Périodiques Résumé : We aimed to adapt the Modified Checklist for Autism in Toddlers to Turkish culture. The Modified Checklist for Autism in Toddlers was filled out independently by 191 parents while they were waiting for the well-child examination of their child. A high screen-positive rate was found. Because of this high false-positive rate, a second study was done in which the Modified Checklist for Autism in Toddlers was administered by health-care staff in a short interview with two groups of parents. The first group (the high-risk group) comprised 80 children aged 18–36 months, who were initially diagnosed with pervasive developmental disorders. The second group (the low-risk group) comprised 538 children of the same age, who were followed regularly by the well-child clinic. Two screen positives were found in the low-risk group. These two children, a random sample of 120 children from the low-risk group, and all the high-risk group were invited to a clinical evaluation. The diagnostic power of the Modified Checklist for Autism in Toddlers was assessed against clinical diagnosis and the Childhood Autism Rating Scale. The positive predictive value of the Modified Checklist for Autism in Toddlers was found to be 75%. Our findings led us to conclude that the Modified Checklist for Autism in Toddlers is a useful tool in Turkey for screening of pervasive developmental disorders in primary care, but in our culture, it is completed more accurately when health-care personnel ask the parents the questions. This study shows that Modified Checklist for Autism in Toddlers screening should be adapted based on culture and setting. En ligne : http://dx.doi.org/10.1177/1362361312467864 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=229 [article] Using the Modified Checklist for Autism in Toddlers in a well-child clinic in Turkey: Adapting the screening method based on culture and setting [Texte imprimé et/ou numérique] / Bülent KARA, Auteur ; Nahit M. MUKADDES, Auteur ; I??lay ALTINKAYA, Auteur ; Dilek GUNTEPE, Auteur ; Gülbin GOKCAY, Auteur ; Meral OZMEN, Auteur . - p.331-338. Langues : Anglais (eng) in Autism > 18-3 (April 2014) . - p.331-338 Mots-clés : autism  Modified Checklist for Autism in Toddlers  pervasive developmental disorders  screening Index. décimale : PER Périodiques Résumé : We aimed to adapt the Modified Checklist for Autism in Toddlers to Turkish culture. The Modified Checklist for Autism in Toddlers was filled out independently by 191 parents while they were waiting for the well-child examination of their child. A high screen-positive rate was found. Because of this high false-positive rate, a second study was done in which the Modified Checklist for Autism in Toddlers was administered by health-care staff in a short interview with two groups of parents. The first group (the high-risk group) comprised 80 children aged 18–36 months, who were initially diagnosed with pervasive developmental disorders. The second group (the low-risk group) comprised 538 children of the same age, who were followed regularly by the well-child clinic. Two screen positives were found in the low-risk group. These two children, a random sample of 120 children from the low-risk group, and all the high-risk group were invited to a clinical evaluation. The diagnostic power of the Modified Checklist for Autism in Toddlers was assessed against clinical diagnosis and the Childhood Autism Rating Scale. The positive predictive value of the Modified Checklist for Autism in Toddlers was found to be 75%. Our findings led us to conclude that the Modified Checklist for Autism in Toddlers is a useful tool in Turkey for screening of pervasive developmental disorders in primary care, but in our culture, it is completed more accurately when health-care personnel ask the parents the questions. This study shows that Modified Checklist for Autism in Toddlers screening should be adapted based on culture and setting. En ligne : http://dx.doi.org/10.1177/1362361312467864 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=229

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