Does camouflaging predict age at autism diagnosis? A comparison of autistic men and women / Victoria MILNER in Autism Research, 17-3 (March 2024)  

Public ISBD [article]  inAutism Research > 17-3 (March 2024) . - p.626-636 Titre : Does camouflaging predict age at autism diagnosis? A comparison of autistic men and women Type de document : Texte imprimé et/ou numérique Auteurs : Victoria MILNER, Auteur ; Emma COLVERT, Auteur ; Laura HULL, Auteur ; Julia COOK, Auteur ; Dorota ALI, Auteur ; William MANDY, Auteur ; Francesca HAPPE, Auteur Article en page(s) : p.626-636 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract It is frequently reported that females are likely to receive an autism diagnosis at a later age than their male counterparts, despite similar levels of autistic traits. It has been suggested that this delay in diagnosis may in part reflect the propensity of females, more than males, to engage in camouflaging behaviors that reduce the appearance of autism-related traits. This article presents two studies which examined the relationship between gender/sex, camouflaging, and age at diagnosis in two samples of (cis-gender) autistic adults. Study 1 included data from three online samples including 242 autistic men and 570 autistic women aged 18-75?years. Study 2 included data from a longitudinal population-based sample including 24 autistic men and 35 autistic women aged 20-24?years. Camouflaging was measured with the self-report Camouflaging Autistic Traits Questionnaire (CAT-Q). Overall, the results showed that, on average, females were diagnosed later than males. There was a stronger relationship between camouflaging and age at autism diagnosis (AaD) for females, compared with males. Within sample one, there was a significant camouflaging-by-sex interaction; high-camouflaging females had a later AaD. The role of autistic traits and changes in attitudes towards female autism and camouflaging need further exploration. These findings highlight the need for greater clinician and key stakeholder awareness and understanding of camouflaging behavior, particularly for females, during the diagnostic process. En ligne : https://doi.org/10.1002/aur.3059 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=525 [article] Does camouflaging predict age at autism diagnosis? A comparison of autistic men and women [Texte imprimé et/ou numérique] / Victoria MILNER, Auteur ; Emma COLVERT, Auteur ; Laura HULL, Auteur ; Julia COOK, Auteur ; Dorota ALI, Auteur ; William MANDY, Auteur ; Francesca HAPPE, Auteur . - p.626-636. Langues : Anglais (eng) in Autism Research > 17-3 (March 2024) . - p.626-636 Index. décimale : PER Périodiques Résumé : Abstract It is frequently reported that females are likely to receive an autism diagnosis at a later age than their male counterparts, despite similar levels of autistic traits. It has been suggested that this delay in diagnosis may in part reflect the propensity of females, more than males, to engage in camouflaging behaviors that reduce the appearance of autism-related traits. This article presents two studies which examined the relationship between gender/sex, camouflaging, and age at diagnosis in two samples of (cis-gender) autistic adults. Study 1 included data from three online samples including 242 autistic men and 570 autistic women aged 18-75?years. Study 2 included data from a longitudinal population-based sample including 24 autistic men and 35 autistic women aged 20-24?years. Camouflaging was measured with the self-report Camouflaging Autistic Traits Questionnaire (CAT-Q). Overall, the results showed that, on average, females were diagnosed later than males. There was a stronger relationship between camouflaging and age at autism diagnosis (AaD) for females, compared with males. Within sample one, there was a significant camouflaging-by-sex interaction; high-camouflaging females had a later AaD. The role of autistic traits and changes in attitudes towards female autism and camouflaging need further exploration. These findings highlight the need for greater clinician and key stakeholder awareness and understanding of camouflaging behavior, particularly for females, during the diagnostic process. En ligne : https://doi.org/10.1002/aur.3059 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=525

"The key to this is not so much the technology. It's the individual who is using the technology": Perspectives on telehealth delivery for autistic adults during the COVID-19 pandemic / Dorota ALI in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.552-564 Titre : "The key to this is not so much the technology. It's the individual who is using the technology": Perspectives on telehealth delivery for autistic adults during the COVID-19 pandemic Type de document : Texte imprimé et/ou numérique Auteurs : Dorota ALI, Auteur ; Sarah O’BRIEN, Auteur ; Laura HULL, Auteur ; Lorcan KENNY, Auteur ; Will MANDY, Auteur Année de publication : 2023 Article en page(s) : p.552-564 Langues : Anglais (eng) Mots-clés : autism  mental health  physical health  service delivery  telehealth Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic prompted a large-scale move to remote delivery of healthcare services. However, little research has directly explored telehealth experiences of autistic adults, a population strongly affected by health inequalities and care access barriers. This study sought telehealth experiences of 11 autistic adults (aged 27 “67 years), seven family members/carers (aged 44 “75) reporting about autistic people and six service providers. In-depth qualitative interviews were conducted with all participants, which were then thematically analysed. Two over-arching themes identified were technology aids communication and access “ except when it doesn’t, and in/flexibility, with a number of sub-themes. The themes, on one hand, highlighted positives of telehealth delivery, including easing some aspects of communication and decreased stress and, on the other hand, negatives, such as increased rigidity of the healthcare system, amplifying pre-existing barriers. Considering autistic people experience barriers to accessing healthcare, this study highlights such barriers could be, in some instances, addressed via remote delivery, as well as possible limitations of telehealth for some autistic adults. En ligne : http://dx.doi.org/10.1177/13623613221108010 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] "The key to this is not so much the technology. It's the individual who is using the technology": Perspectives on telehealth delivery for autistic adults during the COVID-19 pandemic [Texte imprimé et/ou numérique] / Dorota ALI, Auteur ; Sarah O’BRIEN, Auteur ; Laura HULL, Auteur ; Lorcan KENNY, Auteur ; Will MANDY, Auteur . - 2023 . - p.552-564. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.552-564 Mots-clés : autism  mental health  physical health  service delivery  telehealth Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic prompted a large-scale move to remote delivery of healthcare services. However, little research has directly explored telehealth experiences of autistic adults, a population strongly affected by health inequalities and care access barriers. This study sought telehealth experiences of 11 autistic adults (aged 27 “67 years), seven family members/carers (aged 44 “75) reporting about autistic people and six service providers. In-depth qualitative interviews were conducted with all participants, which were then thematically analysed. Two over-arching themes identified were technology aids communication and access “ except when it doesn’t, and in/flexibility, with a number of sub-themes. The themes, on one hand, highlighted positives of telehealth delivery, including easing some aspects of communication and decreased stress and, on the other hand, negatives, such as increased rigidity of the healthcare system, amplifying pre-existing barriers. Considering autistic people experience barriers to accessing healthcare, this study highlights such barriers could be, in some instances, addressed via remote delivery, as well as possible limitations of telehealth for some autistic adults. En ligne : http://dx.doi.org/10.1177/13623613221108010 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

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