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Auteur Simon M BURY |
Documents disponibles écrits par cet auteur (3)



Lifetime stressor exposure is related to suicidality in autistic adults: A multinational study / Rachel L MOSELEY in Autism, 29-5 (May 2025)
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[article]
Titre : Lifetime stressor exposure is related to suicidality in autistic adults: A multinational study Type de document : Texte imprimé et/ou numérique Auteurs : Rachel L MOSELEY, Auteur ; Darren HEDLEY, Auteur ; Julie M GAMBLE-TURNER, Auteur ; Mirko ULJAREVI?, Auteur ; Simon M BURY, Auteur ; Grant S SHIELDS, Auteur ; Julian N TROLLOR, Auteur ; Mark A STOKES, Auteur ; George M SLAVICH, Auteur Article en page(s) : p.1184-1208 Langues : Anglais (eng) Mots-clés : gender life stress psychopathology STRAIN suicide Index. décimale : PER Périodiques Résumé : Despite very high rates of suicidal thoughts and behaviors (STB) in autistic adults, the key psychosocial drivers of this phenomenon remain unknown. To investigate, we examined how lifetime stressor exposure and severity, which have been found to predict STB in non-autistic populations, related to STB in a multinational dataset of 226 autistic adults from the United Kingdom and Australia (67% female; Mage = 41.8, SD = 13.6, range = 19-73?years old). Results revealed that autistic men and women differ with respect to the count, severity, and type of stressors they experienced over the life course. Whereas autistic men were exposed to more numerous legal/crime-related stressors, autistic women experienced more stressors related to social relationships and chronic humiliation and typically experienced stressors as more severe. In addition, whereas chronic interpersonal loss was related to STB for men, acute stressors involving physical danger and lower exposure to chronic entrapment were related to STB in autistic women. These findings indicate that certain lifetime stressors may be differentially experienced, and relevant to STB, in autistic men versus women. They also suggest that screening for lifetime stressor exposure may help identify autistic individuals at greatest risk of suicide.Lay abstract When we encounter life events that we experience as stressful ("stressors"), it sets off a biological stress response that can impact mental health and contribute to suicidal thoughts and behaviors (STB). Although we know about specific stressors that are associated with STB in the general population, little is known about the kinds of stressors that increase the risk of STB in autistic people and whether these associations differ by gender. To examine this issue, we cataloged the life stressors that autistic men and women experienced over the entire life course and investigated how these stressors were related to STB. Data were derived from a multinational sample of 226 autistic adults from the United Kingdom and Australia who completed the Stress and Adversity Inventory for Adults. We found that autistic men and women differed in terms of both the lifetime stressors they experienced as well as their perceived severity. Whereas men experienced more legal/crime-related stressors, women experienced more stressors related to relationships with other people and more long-lasting stressors associated with humiliation. Autistic women often perceived life stressors as more severe than men, which is important given that it is the perceived severity of stressors that most strongly affects our health. We also found that different stressors may predict STB in autistic men versus women. Whereas loss of loved ones was most strongly associated with STB for men, for women, physically dangerous stressors were most relevant. In addition, women with fewer lifetime stressors involving entrapment had higher lifetime STB. These results suggest that lifetime stressor exposure may be important to assess to understand suicide risk in autistic people. Additional research is needed to confirm these associations and to examine possible mechanisms linking stress and STB. En ligne : https://dx.doi.org/10.1177/13623613241299872 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555
in Autism > 29-5 (May 2025) . - p.1184-1208[article] Lifetime stressor exposure is related to suicidality in autistic adults: A multinational study [Texte imprimé et/ou numérique] / Rachel L MOSELEY, Auteur ; Darren HEDLEY, Auteur ; Julie M GAMBLE-TURNER, Auteur ; Mirko ULJAREVI?, Auteur ; Simon M BURY, Auteur ; Grant S SHIELDS, Auteur ; Julian N TROLLOR, Auteur ; Mark A STOKES, Auteur ; George M SLAVICH, Auteur . - p.1184-1208.
Langues : Anglais (eng)
in Autism > 29-5 (May 2025) . - p.1184-1208
Mots-clés : gender life stress psychopathology STRAIN suicide Index. décimale : PER Périodiques Résumé : Despite very high rates of suicidal thoughts and behaviors (STB) in autistic adults, the key psychosocial drivers of this phenomenon remain unknown. To investigate, we examined how lifetime stressor exposure and severity, which have been found to predict STB in non-autistic populations, related to STB in a multinational dataset of 226 autistic adults from the United Kingdom and Australia (67% female; Mage = 41.8, SD = 13.6, range = 19-73?years old). Results revealed that autistic men and women differ with respect to the count, severity, and type of stressors they experienced over the life course. Whereas autistic men were exposed to more numerous legal/crime-related stressors, autistic women experienced more stressors related to social relationships and chronic humiliation and typically experienced stressors as more severe. In addition, whereas chronic interpersonal loss was related to STB for men, acute stressors involving physical danger and lower exposure to chronic entrapment were related to STB in autistic women. These findings indicate that certain lifetime stressors may be differentially experienced, and relevant to STB, in autistic men versus women. They also suggest that screening for lifetime stressor exposure may help identify autistic individuals at greatest risk of suicide.Lay abstract When we encounter life events that we experience as stressful ("stressors"), it sets off a biological stress response that can impact mental health and contribute to suicidal thoughts and behaviors (STB). Although we know about specific stressors that are associated with STB in the general population, little is known about the kinds of stressors that increase the risk of STB in autistic people and whether these associations differ by gender. To examine this issue, we cataloged the life stressors that autistic men and women experienced over the entire life course and investigated how these stressors were related to STB. Data were derived from a multinational sample of 226 autistic adults from the United Kingdom and Australia who completed the Stress and Adversity Inventory for Adults. We found that autistic men and women differed in terms of both the lifetime stressors they experienced as well as their perceived severity. Whereas men experienced more legal/crime-related stressors, women experienced more stressors related to relationships with other people and more long-lasting stressors associated with humiliation. Autistic women often perceived life stressors as more severe than men, which is important given that it is the perceived severity of stressors that most strongly affects our health. We also found that different stressors may predict STB in autistic men versus women. Whereas loss of loved ones was most strongly associated with STB for men, for women, physically dangerous stressors were most relevant. In addition, women with fewer lifetime stressors involving entrapment had higher lifetime STB. These results suggest that lifetime stressor exposure may be important to assess to understand suicide risk in autistic people. Additional research is needed to confirm these associations and to examine possible mechanisms linking stress and STB. En ligne : https://dx.doi.org/10.1177/13623613241299872 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555 The Suicidal Ideation Attributes Scale-Modified (SIDAS-M): Development and preliminary validation of a new scale for the measurement of suicidal ideation in autistic adults / Darren HEDLEY in Autism, 27-4 (May 2023)
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Titre : The Suicidal Ideation Attributes Scale-Modified (SIDAS-M): Development and preliminary validation of a new scale for the measurement of suicidal ideation in autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : Darren HEDLEY, Auteur ; Philip J BATTERHAM, Auteur ; Simon M BURY, Auteur ; Angela CLAPPERTON, Auteur ; Kathleen DENNEY, Auteur ; Cheryl DISSANAYAKE, Auteur ; Phoenix FOX, Auteur ; Thomas W FRAZIER, Auteur ; Emma GALLAGHER, Auteur ; Susan M HAYWARD, Auteur ; Jo ROBINSON, Auteur ; Ensu SAHIN, Auteur ; Julian TROLLOR, Auteur ; Mirko ULJAREVI?, Auteur ; Mark A STOKES, Auteur Article en page(s) : p.1115-1131 Langues : Anglais (eng) Mots-clés : adults,assessment,autism spectrum disorder,measurement,risk,screening,suicidal behavior,suicidal ideation,suicide Index. décimale : PER Périodiques Résumé : The study describes the development and preliminary psychometric validation of the Suicidal Ideation Attributes Scale-Modified (SIDAS-M), a five-item assessment of suicidal ideation for use with autistic adults. Participants (n=102 autistic adults; 58% women, 34% men, 8% nonbinary; Mage=41.75, SD=12.89) completed an online survey including the SIDAS-M at Time 1 and participated in follow-up interviews at Time 2 (~111?days later). A single factor solution provided good to excellent fit to the data (comparative fit index=0.961, Tucker-Lewis index=0.921; standardized root mean square residual=0.027), with all items showing good to excellent loadings (0.74-0.91). SIDAS-M total score (?=.930, bias-corrected and accelerated 95% confidence interval (BCa 95% CI) [.90, .95]) demonstrated good convergent validity, correlating significantly with existing suicide specific (?=.442-.698, p<.001) and well-being measures (?=.325.-.505, p?.001), and good divergent validity. Logistic regression controlling for age, gender, and relationship status indicated that SIDAS-M scores at Time 1 significantly predicted suicidal behavior at Time 2, ?=0.462, p0.001, [0.032, 0.068]. Receiver operating characteristic curve analysis indicated SIDAS-M has utility discriminating between participants classified at low or above low risk, area under the curve=0.866, [0.767, 0.966], p0.001, with a cutoff score ?1 providing a potentially useful indicator of increased suicidal risk. Overall, SIDAS-M demonstrated good psychometric properties when used with autistic adults without intellectual disability.Lay AbstractAutistic people may be at higher risk of suicidal behavior than people in the general population. Suicidal behavior may include thinking about suicide or attempting to end one?s own life by suicide. It is important to identify autistic people who may be thinking about suicide. People who are at risk of suicidal behavior can be identified by asking questions about whether they have been thinking about suicide. A specially designed questionnaire, or screening instrument, can help someone ask the best questions to find out if someone has been thinking about suicide. This information can help to identify supports to be put in place to prevent suicidal behavior, such as a suicide attempt. However, autistic people may interpret questions differently than non-autistic people. It is important to use screening tools that have been designed with, and for autistic people. In this study, we examined the Suicidal Ideation Attributes Scale (SIDAS). The SIDAS is an existing tool that was developed to screen for suicidal thinking in the general population. We modified SIDAS for use with autistic adults. We involved autistic people in the process of modifying SIDAS. We called the modified instrument the SIDAS-M. The results of our study showed SIDAS-M may be useful for screening for suicidal thinking in autistic adults who do not have an intellectual disability. En ligne : https://doi.org/10.1177/13623613221131234 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499
in Autism > 27-4 (May 2023) . - p.1115-1131[article] The Suicidal Ideation Attributes Scale-Modified (SIDAS-M): Development and preliminary validation of a new scale for the measurement of suicidal ideation in autistic adults [Texte imprimé et/ou numérique] / Darren HEDLEY, Auteur ; Philip J BATTERHAM, Auteur ; Simon M BURY, Auteur ; Angela CLAPPERTON, Auteur ; Kathleen DENNEY, Auteur ; Cheryl DISSANAYAKE, Auteur ; Phoenix FOX, Auteur ; Thomas W FRAZIER, Auteur ; Emma GALLAGHER, Auteur ; Susan M HAYWARD, Auteur ; Jo ROBINSON, Auteur ; Ensu SAHIN, Auteur ; Julian TROLLOR, Auteur ; Mirko ULJAREVI?, Auteur ; Mark A STOKES, Auteur . - p.1115-1131.
Langues : Anglais (eng)
in Autism > 27-4 (May 2023) . - p.1115-1131
Mots-clés : adults,assessment,autism spectrum disorder,measurement,risk,screening,suicidal behavior,suicidal ideation,suicide Index. décimale : PER Périodiques Résumé : The study describes the development and preliminary psychometric validation of the Suicidal Ideation Attributes Scale-Modified (SIDAS-M), a five-item assessment of suicidal ideation for use with autistic adults. Participants (n=102 autistic adults; 58% women, 34% men, 8% nonbinary; Mage=41.75, SD=12.89) completed an online survey including the SIDAS-M at Time 1 and participated in follow-up interviews at Time 2 (~111?days later). A single factor solution provided good to excellent fit to the data (comparative fit index=0.961, Tucker-Lewis index=0.921; standardized root mean square residual=0.027), with all items showing good to excellent loadings (0.74-0.91). SIDAS-M total score (?=.930, bias-corrected and accelerated 95% confidence interval (BCa 95% CI) [.90, .95]) demonstrated good convergent validity, correlating significantly with existing suicide specific (?=.442-.698, p<.001) and well-being measures (?=.325.-.505, p?.001), and good divergent validity. Logistic regression controlling for age, gender, and relationship status indicated that SIDAS-M scores at Time 1 significantly predicted suicidal behavior at Time 2, ?=0.462, p0.001, [0.032, 0.068]. Receiver operating characteristic curve analysis indicated SIDAS-M has utility discriminating between participants classified at low or above low risk, area under the curve=0.866, [0.767, 0.966], p0.001, with a cutoff score ?1 providing a potentially useful indicator of increased suicidal risk. Overall, SIDAS-M demonstrated good psychometric properties when used with autistic adults without intellectual disability.Lay AbstractAutistic people may be at higher risk of suicidal behavior than people in the general population. Suicidal behavior may include thinking about suicide or attempting to end one?s own life by suicide. It is important to identify autistic people who may be thinking about suicide. People who are at risk of suicidal behavior can be identified by asking questions about whether they have been thinking about suicide. A specially designed questionnaire, or screening instrument, can help someone ask the best questions to find out if someone has been thinking about suicide. This information can help to identify supports to be put in place to prevent suicidal behavior, such as a suicide attempt. However, autistic people may interpret questions differently than non-autistic people. It is important to use screening tools that have been designed with, and for autistic people. In this study, we examined the Suicidal Ideation Attributes Scale (SIDAS). The SIDAS is an existing tool that was developed to screen for suicidal thinking in the general population. We modified SIDAS for use with autistic adults. We involved autistic people in the process of modifying SIDAS. We called the modified instrument the SIDAS-M. The results of our study showed SIDAS-M may be useful for screening for suicidal thinking in autistic adults who do not have an intellectual disability. En ligne : https://doi.org/10.1177/13623613221131234 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499 Understanding language preference: Autism knowledge, experience of stigma and autism identity / Simon M BURY in Autism, 27-6 (August 2023)
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Titre : Understanding language preference: Autism knowledge, experience of stigma and autism identity Type de document : Texte imprimé et/ou numérique Auteurs : Simon M BURY, Auteur ; Rachel JELLETT, Auteur ; Alex HASCHEK, Auteur ; Michael WENZEL, Auteur ; Darren HEDLEY, Auteur ; Jennifer R SPOOR, Auteur Article en page(s) : p.1588-1600 Langues : Anglais (eng) Mots-clés : autism;autism identity;label preference;stigma;terminology Index. décimale : PER Périodiques Résumé : Prior research has studied preferences for identity- or person-first language among persons with an autism diagnosis. The current study differs from this previous body of research by specifically examining quantitative predictors of language preferences through a social identity theoretical approach, thereby leading to a better understanding of psychological and social factors that might underlie language use and preference within the autistic community. Australian adults with an autism diagnosis (N=198) completed the measures of autism knowledge, internalised stigma, and autism identity to determine whether these factors predict language preference. Results indicated a stronger autism identity was associated with a preference for identity-first terms (autistic/autistic person) and finding these less offensive. Contrastingly, stigma was associated with finding identity-first language less favourable and more offensive. Person-first terms (e.g. person with autism) were not associated with any of the predictors. Together, these findings suggest decision-making around identity-first language is influenced by a strong sense of autistic identity and experiences of stigma.Lay abstractThere is ongoing discussion around what language is acceptable when talking about someone with an autism diagnosis, especially regarding person-first (e.g. person with autism) or identity-first (e.g. autistic person) language. We asked 198 Australian adults with an autism diagnosis what terminology they prefer and what they find offensive. We also asked questions to understand their experience of stigma, their autism knowledge and how much they endorse an autism identity, to investigate if these factors were associated with their language preferences. Overall, there was no significant association between these three factors and person-first terminology. For identity-first terms, those who endorse a stronger autism identity tended to find identity-first terms more preferable and less offensive, whereas those who reported greater experiences and internalisation of stigma tended to find identity-first terms less preferable and more offensive. Previous research has tended to ask what language participants prefer. The findings of this work help provide some context as to why people prefer or find offensive specific terms, at least for identity-first language. En ligne : http://dx.doi.org/10.1177/13623613221142383 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=509
in Autism > 27-6 (August 2023) . - p.1588-1600[article] Understanding language preference: Autism knowledge, experience of stigma and autism identity [Texte imprimé et/ou numérique] / Simon M BURY, Auteur ; Rachel JELLETT, Auteur ; Alex HASCHEK, Auteur ; Michael WENZEL, Auteur ; Darren HEDLEY, Auteur ; Jennifer R SPOOR, Auteur . - p.1588-1600.
Langues : Anglais (eng)
in Autism > 27-6 (August 2023) . - p.1588-1600
Mots-clés : autism;autism identity;label preference;stigma;terminology Index. décimale : PER Périodiques Résumé : Prior research has studied preferences for identity- or person-first language among persons with an autism diagnosis. The current study differs from this previous body of research by specifically examining quantitative predictors of language preferences through a social identity theoretical approach, thereby leading to a better understanding of psychological and social factors that might underlie language use and preference within the autistic community. Australian adults with an autism diagnosis (N=198) completed the measures of autism knowledge, internalised stigma, and autism identity to determine whether these factors predict language preference. Results indicated a stronger autism identity was associated with a preference for identity-first terms (autistic/autistic person) and finding these less offensive. Contrastingly, stigma was associated with finding identity-first language less favourable and more offensive. Person-first terms (e.g. person with autism) were not associated with any of the predictors. Together, these findings suggest decision-making around identity-first language is influenced by a strong sense of autistic identity and experiences of stigma.Lay abstractThere is ongoing discussion around what language is acceptable when talking about someone with an autism diagnosis, especially regarding person-first (e.g. person with autism) or identity-first (e.g. autistic person) language. We asked 198 Australian adults with an autism diagnosis what terminology they prefer and what they find offensive. We also asked questions to understand their experience of stigma, their autism knowledge and how much they endorse an autism identity, to investigate if these factors were associated with their language preferences. Overall, there was no significant association between these three factors and person-first terminology. For identity-first terms, those who endorse a stronger autism identity tended to find identity-first terms more preferable and less offensive, whereas those who reported greater experiences and internalisation of stigma tended to find identity-first terms less preferable and more offensive. Previous research has tended to ask what language participants prefer. The findings of this work help provide some context as to why people prefer or find offensive specific terms, at least for identity-first language. En ligne : http://dx.doi.org/10.1177/13623613221142383 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=509