Adaptive behavior profiles in young children with autism spectrum disorder diagnosed under DSM-5 criteria / Rose E. NEVILL in Research in Autism Spectrum Disorders, 43-44 (November 2017)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 43-44 (November 2017) . - p.53-66 Titre : Adaptive behavior profiles in young children with autism spectrum disorder diagnosed under DSM-5 criteria Type de document : Texte imprimé et/ou numérique Auteurs : Rose E. NEVILL, Auteur ; Darren HEDLEY, Auteur ; Mirko ULJAREVIC, Auteur ; Eric BUTTER, Auteur ; James A. MULICK, Auteur Article en page(s) : p.53-66 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Vineland-II  Adaptive behavior  Subtype  Severity  Toddlers  Early childhood  Cluster analysis Index. décimale : PER Périodiques Résumé : AbstractBackground This study explored adaptive behavior profiles in a clinical sample of well-characterized children aged one to three years with ASD. Method Profiles were compared to a sample of children with non-ASD developmental delays. Cluster analyses were performed to determine whether differences in adaptive skills effectively distinguished children with ASD from other young children presenting for assessment due to behavioral or other concerns, but who received other non-ASD diagnoses. Results A profile of motor > daily living > socialization > communication skills was found in both children with ASD and children with non-spectrum diagnoses, showing that this profile is not unique to young children with ASD. A two-group cluster solution was found which differentiated children by developmental functioning level rather than by diagnosis. Discussion The results of this study provide support for two developmental profiles for adaptive functioning in children with ASD: an average to borderline delayed profile and a borderline to more severely delayed profile that may remain stable or worsen over time. They additionally highlight the importance of delivering early targeted interventions to children with ASD who have greater deficits in adaptive functioning due to their association with poorer long-term outcomes. En ligne : https://doi.org/10.1016/j.rasd.2017.09.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=327 [article] Adaptive behavior profiles in young children with autism spectrum disorder diagnosed under DSM-5 criteria [Texte imprimé et/ou numérique] / Rose E. NEVILL, Auteur ; Darren HEDLEY, Auteur ; Mirko ULJAREVIC, Auteur ; Eric BUTTER, Auteur ; James A. MULICK, Auteur . - p.53-66. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 43-44 (November 2017) . - p.53-66 Mots-clés : Autism spectrum disorder  Vineland-II  Adaptive behavior  Subtype  Severity  Toddlers  Early childhood  Cluster analysis Index. décimale : PER Périodiques Résumé : AbstractBackground This study explored adaptive behavior profiles in a clinical sample of well-characterized children aged one to three years with ASD. Method Profiles were compared to a sample of children with non-ASD developmental delays. Cluster analyses were performed to determine whether differences in adaptive skills effectively distinguished children with ASD from other young children presenting for assessment due to behavioral or other concerns, but who received other non-ASD diagnoses. Results A profile of motor > daily living > socialization > communication skills was found in both children with ASD and children with non-spectrum diagnoses, showing that this profile is not unique to young children with ASD. A two-group cluster solution was found which differentiated children by developmental functioning level rather than by diagnosis. Discussion The results of this study provide support for two developmental profiles for adaptive functioning in children with ASD: an average to borderline delayed profile and a borderline to more severely delayed profile that may remain stable or worsen over time. They additionally highlight the importance of delivering early targeted interventions to children with ASD who have greater deficits in adaptive functioning due to their association with poorer long-term outcomes. En ligne : https://doi.org/10.1016/j.rasd.2017.09.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=327

ADOS-2 Toddler and Module 1 standardized severity scores as used by community practitioners / Darren HEDLEY in Research in Autism Spectrum Disorders, 32 (December 2016)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 32 (December 2016) . - p.84-95 Titre : ADOS-2 Toddler and Module 1 standardized severity scores as used by community practitioners Type de document : Texte imprimé et/ou numérique Auteurs : Darren HEDLEY, Auteur ; Rose NEVILL, Auteur ; Mirko ULJAREVIC, Auteur ; Eric BUTTER, Auteur ; James A. MULICK, Auteur Article en page(s) : p.84-95 Langues : Anglais (eng) Mots-clés : Autism diagnostic observation schedule  Autism spectrum disorder  Calibrated severity score  Diagnosis  Severity  Toddler Module  Externalizing  Internalizing Index. décimale : PER Périodiques Résumé : AbstractBackground The Autism Diagnostic Observation Schedule, 2nd edition (ADOS-2) is a diagnostic instrument which forms part of the recommended “gold standard” for the assessment of Autism Spectrum Disorder (ASD), however raw scores are affected by age, development and language level. Standardized calibrated severity scores (CSS), unlike raw scores, provide a relative metric of the severity of autism-specific symptoms. A CSS has recently been developed for the ADOS-2 Toddler Module, which can be used in children aged 12–30 months. The utility of this new algorithm has yet to be examined in an independent sample, and few studies have examined the ADOS-2 as used by community practitioners, rather than in a research environment. Method Total and domain standardized CSS for the ADOS-2 Toddler Module and Module 1 were examined in an independent, community based sample of 125 young children aged 20–47 months with a diagnosis of ASD, and in a comparison sample of children with nonspectrum diagnoses. Results The CSS was more uniformly distributed when compared to raw scores across age and language groups, and less influenced by participant characteristics, including verbal DQ. Younger non-verbal participants returned higher CSS, suggestive of overlap with developmental and language level. Increased CSS in younger, nonverbal children may also reflect greater severity, thereby leading to earlier referral. The Child Behavior Checklist externalizing score emerged as an independent predictor of ASD symptom severity. Conclusions These results offer tentative support for the introduction of the Toddler Module CSS into community practice; however caution in the interpretation of the score in younger, nonverbal children is urged. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.09.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=296 [article] ADOS-2 Toddler and Module 1 standardized severity scores as used by community practitioners [Texte imprimé et/ou numérique] / Darren HEDLEY, Auteur ; Rose NEVILL, Auteur ; Mirko ULJAREVIC, Auteur ; Eric BUTTER, Auteur ; James A. MULICK, Auteur . - p.84-95. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 32 (December 2016) . - p.84-95 Mots-clés : Autism diagnostic observation schedule  Autism spectrum disorder  Calibrated severity score  Diagnosis  Severity  Toddler Module  Externalizing  Internalizing Index. décimale : PER Périodiques Résumé : AbstractBackground The Autism Diagnostic Observation Schedule, 2nd edition (ADOS-2) is a diagnostic instrument which forms part of the recommended “gold standard” for the assessment of Autism Spectrum Disorder (ASD), however raw scores are affected by age, development and language level. Standardized calibrated severity scores (CSS), unlike raw scores, provide a relative metric of the severity of autism-specific symptoms. A CSS has recently been developed for the ADOS-2 Toddler Module, which can be used in children aged 12–30 months. The utility of this new algorithm has yet to be examined in an independent sample, and few studies have examined the ADOS-2 as used by community practitioners, rather than in a research environment. Method Total and domain standardized CSS for the ADOS-2 Toddler Module and Module 1 were examined in an independent, community based sample of 125 young children aged 20–47 months with a diagnosis of ASD, and in a comparison sample of children with nonspectrum diagnoses. Results The CSS was more uniformly distributed when compared to raw scores across age and language groups, and less influenced by participant characteristics, including verbal DQ. Younger non-verbal participants returned higher CSS, suggestive of overlap with developmental and language level. Increased CSS in younger, nonverbal children may also reflect greater severity, thereby leading to earlier referral. The Child Behavior Checklist externalizing score emerged as an independent predictor of ASD symptom severity. Conclusions These results offer tentative support for the introduction of the Toddler Module CSS into community practice; however caution in the interpretation of the score in younger, nonverbal children is urged. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.09.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=296

An ecological systems model of employee experience in industry-led autism employment programmes / Simon M. BURY in Autism, 28-6 (June 2024)  

Public ISBD [article]  inAutism > 28-6 (June 2024) . - p.1457-1470 Titre : An ecological systems model of employee experience in industry-led autism employment programmes Type de document : Texte imprimé et/ou numérique Auteurs : Simon M. BURY, Auteur ; Rosslynn ZULLA, Auteur ; Jennifer R. SPOOR, Auteur ; Rebecca L. FLOWER, Auteur ; David B. NICHOLAS, Auteur ; Darren HEDLEY, Auteur Article en page(s) : p.1457-1470 Langues : Anglais (eng) Mots-clés : autism employment  autistic adults  ecological systems  supported employment Index. décimale : PER Périodiques Résumé : Industry-led employment programmes have emerged to transition autistic people into employment and meet industry labour needs. However, theoretical research is limited in this area, often failing to appreciate the influence of the broader employment ecosystem. In this study, we interviewed 33 autistic employees (n = 29 males, Mage = 29.00?years) from two industry-led employment programmes regarding their experience of the programme?s supports, relationships and impact. We used qualitative content analysis to identify five themes: (1) working involves multiple job tasks that evolve as the employment context changes; (2) workplace relations are diverse and shaped by the type of work and the work environment; (3) workplace needs evolve as autistic individuals navigate the work environment; (4) developing a professional identity in the workplace through mastery and integration; and (5) recommendations for the development of supportive workplace environments for autistic individuals. We describe the way that factors within (e.g. training) and outside the two employment programmes changed and interacted over time to contribute to the participant?s work experience and professional identity. Building on ecological systems theory, our unique contribution to the literature is a new model capturing individual and workplace factors that contribute to the work experience of autistic people who participate in industry employment programmes. Lay Abstract We asked 33 autistic adults from two industry-led employment programmes about their experiences in the programmes. These are programmes started by companies to recruit and support autistic people in work. We also asked about their workplace supports, relationships and how they thought the programme had impacted their life. Understanding the experiences of people in these industry-led employment programmes is important as the information can help to improve the programmes and participants' experiences. After reviewing the interviews, we found five themes that best described the employee?s experience: (1) working involves multiple job tasks that evolve as the employment context changes; (2) relationships in the workplace are diverse and are influenced by the type of work participants do and the work environment; (3) workplace needs change as the autistic employees learn to navigate their work environment; (4) autistic employees develop a professional identity in the workplace as they master work and feel more integrated in the workplace; and (5) recommendations for the development of supportive workplace environments for autistic people. We explored the way that aspects of the two employment programmes (e.g. training) and factors outside the programme changed with time and contributed to the participant?s experience. We developed a new model to capture individual and workplace factors that contribute to the experience of autistic people who participate in industry employment programmes. En ligne : https://dx.doi.org/10.1177/13623613241241574 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=529 [article] An ecological systems model of employee experience in industry-led autism employment programmes [Texte imprimé et/ou numérique] / Simon M. BURY, Auteur ; Rosslynn ZULLA, Auteur ; Jennifer R. SPOOR, Auteur ; Rebecca L. FLOWER, Auteur ; David B. NICHOLAS, Auteur ; Darren HEDLEY, Auteur . - p.1457-1470. Langues : Anglais (eng) in Autism > 28-6 (June 2024) . - p.1457-1470 Mots-clés : autism employment  autistic adults  ecological systems  supported employment Index. décimale : PER Périodiques Résumé : Industry-led employment programmes have emerged to transition autistic people into employment and meet industry labour needs. However, theoretical research is limited in this area, often failing to appreciate the influence of the broader employment ecosystem. In this study, we interviewed 33 autistic employees (n = 29 males, Mage = 29.00?years) from two industry-led employment programmes regarding their experience of the programme?s supports, relationships and impact. We used qualitative content analysis to identify five themes: (1) working involves multiple job tasks that evolve as the employment context changes; (2) workplace relations are diverse and shaped by the type of work and the work environment; (3) workplace needs evolve as autistic individuals navigate the work environment; (4) developing a professional identity in the workplace through mastery and integration; and (5) recommendations for the development of supportive workplace environments for autistic individuals. We describe the way that factors within (e.g. training) and outside the two employment programmes changed and interacted over time to contribute to the participant?s work experience and professional identity. Building on ecological systems theory, our unique contribution to the literature is a new model capturing individual and workplace factors that contribute to the work experience of autistic people who participate in industry employment programmes. Lay Abstract We asked 33 autistic adults from two industry-led employment programmes about their experiences in the programmes. These are programmes started by companies to recruit and support autistic people in work. We also asked about their workplace supports, relationships and how they thought the programme had impacted their life. Understanding the experiences of people in these industry-led employment programmes is important as the information can help to improve the programmes and participants' experiences. After reviewing the interviews, we found five themes that best described the employee?s experience: (1) working involves multiple job tasks that evolve as the employment context changes; (2) relationships in the workplace are diverse and are influenced by the type of work participants do and the work environment; (3) workplace needs change as the autistic employees learn to navigate their work environment; (4) autistic employees develop a professional identity in the workplace as they master work and feel more integrated in the workplace; and (5) recommendations for the development of supportive workplace environments for autistic people. We explored the way that aspects of the two employment programmes (e.g. training) and factors outside the programme changed with time and contributed to the participant?s experience. We developed a new model to capture individual and workplace factors that contribute to the experience of autistic people who participate in industry employment programmes. En ligne : https://dx.doi.org/10.1177/13623613241241574 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=529

Anxiety and Depression from Adolescence to Old Age in Autism Spectrum Disorder / Mirko ULJAREVIC in Journal of Autism and Developmental Disorders, 50-9 (September 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-9 (September 2020) . - p.3155-3165 Titre : Anxiety and Depression from Adolescence to Old Age in Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Mirko ULJAREVIC, Auteur ; Darren HEDLEY, Auteur ; Kitty ROSE-FOLEY, Auteur ; Iliana MAGIATI, Auteur ; Ru Ying CAI, Auteur ; Cheryl DISSANAYAKE, Auteur ; Amanda RICHDALE, Auteur ; Julian TROLLOR, Auteur Article en page(s) : p.3155-3165 Langues : Anglais (eng) Mots-clés : Adolescence  Adulthood  Age trends  Anxiety  Autism  Depression Index. décimale : PER Périodiques Résumé : This study examined age trends in anxious and depressive symptoms, from older adolescence to old age, and explored the association between anxious and depressive symptoms with gender, ASD severity, and socio-economic factors. Two hundred and fifty-five individuals with ASD (151 males, M(age)?=?33.52 years, SD(age)?=?14.98) took part. More than one-third of participants reported clinically significant anxiety (38.4%) or depression (38%). A slight trend for an increase in the severity of both anxiety and depression from adolescence to middle adulthood, and then a slight decline in older adulthood was found. Female gender and higher ASD severity predicted more anxiety and depression symptoms. Our findings emphasise the need to provide timely assessment and treatment of anxiety and depression in ASD. En ligne : http://dx.doi.org/10.1007/s10803-019-04084-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=430 [article] Anxiety and Depression from Adolescence to Old Age in Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Mirko ULJAREVIC, Auteur ; Darren HEDLEY, Auteur ; Kitty ROSE-FOLEY, Auteur ; Iliana MAGIATI, Auteur ; Ru Ying CAI, Auteur ; Cheryl DISSANAYAKE, Auteur ; Amanda RICHDALE, Auteur ; Julian TROLLOR, Auteur . - p.3155-3165. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-9 (September 2020) . - p.3155-3165 Mots-clés : Adolescence  Adulthood  Age trends  Anxiety  Autism  Depression Index. décimale : PER Périodiques Résumé : This study examined age trends in anxious and depressive symptoms, from older adolescence to old age, and explored the association between anxious and depressive symptoms with gender, ASD severity, and socio-economic factors. Two hundred and fifty-five individuals with ASD (151 males, M(age)?=?33.52 years, SD(age)?=?14.98) took part. More than one-third of participants reported clinically significant anxiety (38.4%) or depression (38%). A slight trend for an increase in the severity of both anxiety and depression from adolescence to middle adulthood, and then a slight decline in older adulthood was found. Female gender and higher ASD severity predicted more anxiety and depression symptoms. Our findings emphasise the need to provide timely assessment and treatment of anxiety and depression in ASD. En ligne : http://dx.doi.org/10.1007/s10803-019-04084-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=430

Autistic adults' subjective experiences of hoarding and self-injurious behaviors / Yael GOLDFARB in Autism, 25-5 (July 2021)  

Public ISBD [article]  inAutism > 25-5 (July 2021) . - p.1457-1468 Titre : Autistic adults' subjective experiences of hoarding and self-injurious behaviors Type de document : Texte imprimé et/ou numérique Auteurs : Yael GOLDFARB, Auteur ; Osnat ZAFRANI, Auteur ; Darren HEDLEY, Auteur ; Maya YAARI, Auteur ; Eynat GAL, Auteur Article en page(s) : p.1457-1468 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder  Autistic Disorder  Cognition  Hoarding  Humans  Self-Injurious Behavior  Repetitive and Restrictive Behaviors and Interests  adults  self-injurious behaviors  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : Hoarding and self-injurious behaviors are relatively common in autism, but knowledge about their expressions in adulthood is scarce. Through interviews collecting subjective experiences of autistic adults, these behaviors were explored, and categorized to their underlying purposes. Findings portray the occurrence of these behaviors in the lives of autistic adults, their self-regulatory purposes, and their relationship to other behaviors in the domain of Restrictive and Repetitive Behaviors and Interests. En ligne : http://dx.doi.org/10.1177/1362361321992640 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] Autistic adults' subjective experiences of hoarding and self-injurious behaviors [Texte imprimé et/ou numérique] / Yael GOLDFARB, Auteur ; Osnat ZAFRANI, Auteur ; Darren HEDLEY, Auteur ; Maya YAARI, Auteur ; Eynat GAL, Auteur . - p.1457-1468. Langues : Anglais (eng) in Autism > 25-5 (July 2021) . - p.1457-1468 Mots-clés : Adult  Autism Spectrum Disorder  Autistic Disorder  Cognition  Hoarding  Humans  Self-Injurious Behavior  Repetitive and Restrictive Behaviors and Interests  adults  self-injurious behaviors  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : Hoarding and self-injurious behaviors are relatively common in autism, but knowledge about their expressions in adulthood is scarce. Through interviews collecting subjective experiences of autistic adults, these behaviors were explored, and categorized to their underlying purposes. Findings portray the occurrence of these behaviors in the lives of autistic adults, their self-regulatory purposes, and their relationship to other behaviors in the domain of Restrictive and Repetitive Behaviors and Interests. En ligne : http://dx.doi.org/10.1177/1362361321992640 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

Autistic adults' subjective experiences of hoarding and self-injurious behaviors / Yael GOLDFARB in Autism, 26-5 (July 2022)  

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Brief Report: Learning About Autism: Is the Source of Autism Knowledge Associated with Differences in Autism Knowledge, Autism Identity, and Experiences of Stigma / Simon M. BURY in Journal of Autism and Developmental Disorders, 54-11 (November)  

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Corrigendum to “ADOS-2 Toddler and Module 1 standardized severity scores as used by community practitioners title of article” [Res. Autism Spectr. Disord., 32 (2016) 84–95] / Darren HEDLEY in Research in Autism Spectrum Disorders, 43-44 (November 2017)  

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Cost-benefit analysis of a non-government organization and Australian government collaborative supported employment program for autistic people / Darren HEDLEY in Autism, 27-5 (July 2023)  

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Cross-Cultural Evaluation of the Autism Detection in Early Childhood (ADEC) in Mexico / Darren HEDLEY in Autism, 14-2 (March 2010)  

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Developmental delays in emotion regulation strategies in preschoolers with autism / Heather J. NUSKE in Autism Research, 10-11 (November 2017)  

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Efficacy of the ADEC in Identifying Autism Spectrum Disorder in Clinically Referred Toddlers in the US / Darren HEDLEY in Journal of Autism and Developmental Disorders, 45-8 (August 2015)  

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Employment profiles of autistic people: An 8-year longitudinal study / Darren HEDLEY ; Mirko ULJAREVI? ; Xia LI ; Mark A. STOKES ; Sander BEGEER in Autism, 28-9 (September 2024)  

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Employment programmes and interventions targeting adults with autism spectrum disorder: A systematic review of the literature / Darren HEDLEY in Autism, 21-8 (November 2017)  

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Face recognition performance of individuals with Asperger syndrome on the Cambridge face memory test / Darren HEDLEY in Autism Research, 4-6 (December 2011)  

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