Clinical pathways from the perception of the first signs to the diagnosis of autism spectrum disorder in Portugal: A brief report of a survey of parents / Daniela FOLHAS ; Tatiana PEREIRA ; Marisa LOUSADA in Research in Autism Spectrum Disorders, 114 (June 2024)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 114 (June 2024) . - p.102382 Titre : Clinical pathways from the perception of the first signs to the diagnosis of autism spectrum disorder in Portugal: A brief report of a survey of parents Type de document : Texte imprimé et/ou numérique Auteurs : Daniela FOLHAS, Auteur ; Tatiana PEREIRA, Auteur ; Marisa LOUSADA, Auteur Année de publication : 2024 Article en page(s) : p.102382 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  First signs  Diagnosis  Clinical pathways  Parents Index. décimale : PER Périodiques Résumé : Background Data from prevalence studies indicate an increase in the number of children diagnosed with autism spectrum disorder (ASD). Despite this, there are few studies analysing the clinical pathways from the first signs to diagnosis. This study aims (1) to identify the most common first perceived signs of children with ASD, the persons who perceived them, and the age at which they were perceived, and (2) to analyse the clinical pathways from the first signs to diagnosis, based on parents' information. Method A self-administered questionnaire purposefully created for this study was used to collect data from parents of children with ASD, between April and June 2023, in Portugal. Results A total of 26 parents of children with ASD completed the questionnaire. Many signs were identified but the most common among the respondents was speech and language delay (n = 23; 88.5%). This sign was mostly perceived by parents (n = 24; 88.9%), between one and two years of age (n = 17; 65.4%). Fifteen (57.7%) of the respondents revealed that it took up to six months to seek help from a health professional and mostly two (n = 9; 34.6%) to three (n = 8; 30.8%) professionals were consulted before diagnosis. Conclusions This study reinforced the divergent paths across the ASD population, highlighting the heterogeneity of the condition from a very early stage. Future studies should analyse whether variables such as socioeconomic status, and the service where the children were followed (public or private) could influence the clinical pathway. En ligne : https://doi.org/10.1016/j.rasd.2024.102382 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=529 [article] Clinical pathways from the perception of the first signs to the diagnosis of autism spectrum disorder in Portugal: A brief report of a survey of parents [Texte imprimé et/ou numérique] / Daniela FOLHAS, Auteur ; Tatiana PEREIRA, Auteur ; Marisa LOUSADA, Auteur . - 2024 . - p.102382. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 114 (June 2024) . - p.102382 Mots-clés : Autism spectrum disorder  First signs  Diagnosis  Clinical pathways  Parents Index. décimale : PER Périodiques Résumé : Background Data from prevalence studies indicate an increase in the number of children diagnosed with autism spectrum disorder (ASD). Despite this, there are few studies analysing the clinical pathways from the first signs to diagnosis. This study aims (1) to identify the most common first perceived signs of children with ASD, the persons who perceived them, and the age at which they were perceived, and (2) to analyse the clinical pathways from the first signs to diagnosis, based on parents' information. Method A self-administered questionnaire purposefully created for this study was used to collect data from parents of children with ASD, between April and June 2023, in Portugal. Results A total of 26 parents of children with ASD completed the questionnaire. Many signs were identified but the most common among the respondents was speech and language delay (n = 23; 88.5%). This sign was mostly perceived by parents (n = 24; 88.9%), between one and two years of age (n = 17; 65.4%). Fifteen (57.7%) of the respondents revealed that it took up to six months to seek help from a health professional and mostly two (n = 9; 34.6%) to three (n = 8; 30.8%) professionals were consulted before diagnosis. Conclusions This study reinforced the divergent paths across the ASD population, highlighting the heterogeneity of the condition from a very early stage. Future studies should analyse whether variables such as socioeconomic status, and the service where the children were followed (public or private) could influence the clinical pathway. En ligne : https://doi.org/10.1016/j.rasd.2024.102382 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=529

Exploring the effectiveness of the Pragmatic Intervention Programme (PICP) with children with autism spectrum disorder and developmental language disorder: A non-randomised controlled trial / Tatiana PEREIRA in Autism, 29-3 (March 2025)  

Public ISBD [article]  inAutism > 29-3 (March 2025) . - p.726-739 Titre : Exploring the effectiveness of the Pragmatic Intervention Programme (PICP) with children with autism spectrum disorder and developmental language disorder: A non-randomised controlled trial Type de document : Texte imprimé et/ou numérique Auteurs : Tatiana PEREIRA, Auteur ; Ana Margarida RAMALHO, Auteur ; Pedro SÁ COUTO, Auteur ; Marisa LOUSADA, Auteur Article en page(s) : p.726-739 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Using language for social purposes can be a real challenge for children with autism spectrum disorder (ASD) and developmental language disorder (DLD). Despite the positive effects of the Pragmatic Intervention Programme (PICP) already known in both ... En ligne : https://dx.doi.org/10.1177/13623613241287017 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=550 [article] Exploring the effectiveness of the Pragmatic Intervention Programme (PICP) with children with autism spectrum disorder and developmental language disorder: A non-randomised controlled trial [Texte imprimé et/ou numérique] / Tatiana PEREIRA, Auteur ; Ana Margarida RAMALHO, Auteur ; Pedro SÁ COUTO, Auteur ; Marisa LOUSADA, Auteur . - p.726-739. Langues : Anglais (eng) in Autism > 29-3 (March 2025) . - p.726-739 Index. décimale : PER Périodiques Résumé : Using language for social purposes can be a real challenge for children with autism spectrum disorder (ASD) and developmental language disorder (DLD). Despite the positive effects of the Pragmatic Intervention Programme (PICP) already known in both ... En ligne : https://dx.doi.org/10.1177/13623613241287017 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=550

Psychometric Properties of Standardized Instruments that are Used to Measure Pragmatic Intervention Effects in Children with Developmental Language Disorder: A Systematic Review / Tatiana PEREIRA in Journal of Autism and Developmental Disorders, 53-5 (May 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-5 (May 2023) . - p.1764-1780 Titre : Psychometric Properties of Standardized Instruments that are Used to Measure Pragmatic Intervention Effects in Children with Developmental Language Disorder: A Systematic Review Type de document : Texte imprimé et/ou numérique Auteurs : Tatiana PEREIRA, Auteur ; Marisa LOUSADA, Auteur Article en page(s) : p.1764-1780 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : This review aimed to analyze the psychometric properties of standardized instruments that are used to measure pragmatic intervention effects in children with developmental language disorder. Following PRISMA structure, a comprehensive literature research was conducted in five electronic indexing databases: Central, PubMed, Medline, Web of Science and Scopus. Six studies between 2005 and 2019 were included and seven standardized instruments have been analyzed. All instruments present some evidence of validity and reliability, but none reported responsiveness. The instruments reviewed were not used for their original purpose, which may explain the results. The small number of studies prevent drawing clear conclusions. Future studies should focus on appropriate, valid, reliable, and responsive measures. Research focusing on psychometric properties is crucial, mostly about responsiveness. En ligne : https://doi.org/10.1007/s10803-022-05481-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500 [article] Psychometric Properties of Standardized Instruments that are Used to Measure Pragmatic Intervention Effects in Children with Developmental Language Disorder: A Systematic Review [Texte imprimé et/ou numérique] / Tatiana PEREIRA, Auteur ; Marisa LOUSADA, Auteur . - p.1764-1780. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-5 (May 2023) . - p.1764-1780 Index. décimale : PER Périodiques Résumé : This review aimed to analyze the psychometric properties of standardized instruments that are used to measure pragmatic intervention effects in children with developmental language disorder. Following PRISMA structure, a comprehensive literature research was conducted in five electronic indexing databases: Central, PubMed, Medline, Web of Science and Scopus. Six studies between 2005 and 2019 were included and seven standardized instruments have been analyzed. All instruments present some evidence of validity and reliability, but none reported responsiveness. The instruments reviewed were not used for their original purpose, which may explain the results. The small number of studies prevent drawing clear conclusions. Future studies should focus on appropriate, valid, reliable, and responsive measures. Research focusing on psychometric properties is crucial, mostly about responsiveness. En ligne : https://doi.org/10.1007/s10803-022-05481-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500

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