339 recherche sur le mot-clé 'Parents'

Parents’ experiences of an early autism diagnosis: Insights into their needs / Aspasia Stacey RABBA in Research in Autism Spectrum Disorders, 66 (October 2019)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 66 (October 2019) . - p.101415 Titre : Parents’ experiences of an early autism diagnosis: Insights into their needs Type de document : Texte imprimé et/ou numérique Auteurs : Aspasia Stacey RABBA, Auteur ; Cheryl DISSANAYAKE, Auteur ; Josephine BARBARO, Auteur Article en page(s) : p.101415 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Parents  Parental experience  Early diagnosis  Coping  Support Index. décimale : PER Périodiques Résumé : Background Little research has directly examined parental needs following their child’s early diagnosis of autism. Method The experiences and support needs of 13 mothers and fathers who had a young child diagnosed (<36 months) were explored via a series of semi-structured interviews and a focus group. Results Thematic analysis identified four key themes: emotional response to diagnosis, ability to manage the uncertainty post-diagnosis, resourcefulness, and experiences of sharing the diagnosis. Conclusions Parents highlighted that receipt of an early diagnosis triggered an array of emotions, which influenced their coping. Charting parents’ lived experiences following an early diagnosis provides valuable insights that have important implications for the development of resources and supports for families at this time. En ligne : https://doi.org/10.1016/j.rasd.2019.101415 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=4041 [article] Parents’ experiences of an early autism diagnosis: Insights into their needs [Texte imprimé et/ou numérique] / Aspasia Stacey RABBA, Auteur ; Cheryl DISSANAYAKE, Auteur ; Josephine BARBARO, Auteur . - p.101415. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 66 (October 2019) . - p.101415 Mots-clés : Autism spectrum disorder  Parents  Parental experience  Early diagnosis  Coping  Support Index. décimale : PER Périodiques Résumé : Background Little research has directly examined parental needs following their child’s early diagnosis of autism. Method The experiences and support needs of 13 mothers and fathers who had a young child diagnosed (<36 months) were explored via a series of semi-structured interviews and a focus group. Results Thematic analysis identified four key themes: emotional response to diagnosis, ability to manage the uncertainty post-diagnosis, resourcefulness, and experiences of sharing the diagnosis. Conclusions Parents highlighted that receipt of an early diagnosis triggered an array of emotions, which influenced their coping. Charting parents’ lived experiences following an early diagnosis provides valuable insights that have important implications for the development of resources and supports for families at this time. En ligne : https://doi.org/10.1016/j.rasd.2019.101415 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=4041

Parents on the autism continuum: Links with parenting efficacy / Winnie Yu Pow LAU in Research in Autism Spectrum Disorders, 26 (June 2016)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 26 (June 2016) . - p.57-64 Titre : Parents on the autism continuum: Links with parenting efficacy Type de document : Texte imprimé et/ou numérique Auteurs : Winnie Yu Pow LAU, Auteur ; Candida C. PETERSON, Auteur ; Tony ATTWOOD, Auteur ; Michelle S. GARNETT, Auteur ; Adrian B. KELLY, Auteur Article en page(s) : p.57-64 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder (ASD)  Autism  Parents  Parenting  Autism Spectrum Quotient (AQ)  Parenting efficacy Index. décimale : PER Périodiques Résumé : The extent to which parental traits of autism are related to parenting efficacy has yet to be explored. Parents of children with Autism Spectrum Disorder (ASD) were studied in three groups: (a) families in which both the parent and the child had a DSM-IV-TR ASD diagnosis (n = 109); (b) families in which only the child had a DSM-IV-TR ASD diagnosis (n = 128); and (c) families in which no member had ASD (n = 109). Each subject completed the Autism Spectrum Quotient (AQ) and a measure of parenting efficacy. Fathers with ASD had the lowest parental efficacy, but mothers with ASD had comparable levels of parental efficacy to parents without ASD in the family. Results suggest that screening and intervention to build fathers parental efficacy may be a useful adjunct to therapy. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.02.007 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=2855 [article] Parents on the autism continuum: Links with parenting efficacy [Texte imprimé et/ou numérique] / Winnie Yu Pow LAU, Auteur ; Candida C. PETERSON, Auteur ; Tony ATTWOOD, Auteur ; Michelle S. GARNETT, Auteur ; Adrian B. KELLY, Auteur . - p.57-64. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 26 (June 2016) . - p.57-64 Mots-clés : Autism Spectrum Disorder (ASD)  Autism  Parents  Parenting  Autism Spectrum Quotient (AQ)  Parenting efficacy Index. décimale : PER Périodiques Résumé : The extent to which parental traits of autism are related to parenting efficacy has yet to be explored. Parents of children with Autism Spectrum Disorder (ASD) were studied in three groups: (a) families in which both the parent and the child had a DSM-IV-TR ASD diagnosis (n = 109); (b) families in which only the child had a DSM-IV-TR ASD diagnosis (n = 128); and (c) families in which no member had ASD (n = 109). Each subject completed the Autism Spectrum Quotient (AQ) and a measure of parenting efficacy. Fathers with ASD had the lowest parental efficacy, but mothers with ASD had comparable levels of parental efficacy to parents without ASD in the family. Results suggest that screening and intervention to build fathers parental efficacy may be a useful adjunct to therapy. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.02.007 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=2855

Parents Suggest Which Indicators of Progress and Outcomes Should be Measured in Young Children with Autism Spectrum Disorder / H. MCCONACHIE in Journal of Autism and Developmental Disorders, 48-4 (April 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1041-1051 Titre : Parents Suggest Which Indicators of Progress and Outcomes Should be Measured in Young Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : H. MCCONACHIE, Auteur ; N. LIVINGSTONE, Auteur ; C. MORRIS, Auteur ; Bryony BERESFORD, Auteur ; A. LE COUTEUR, Auteur ; P. GRINGRAS, Auteur ; D. GARLAND, Auteur ; G. JONES, Auteur ; G. MACDONALD, Auteur ; K. WILLIAMS, Auteur ; Jeremy R. PARR, Auteur Article en page(s) : p.1041-1051 Langues : Anglais (eng) Mots-clés : Consultation  Measurement  Outcomes  Parents  Young children Index. décimale : PER Périodiques Résumé : Evaluation of interventions for children with autism spectrum disorder (ASD) is hampered by the multitude of outcomes measured and tools used. Measurement in research with young children tends to focus on core impairments in ASD. We conducted a systematic review of qualitative studies of what matters to parents. Parent advisory groups completed structured activities to explore their perceptions of the relative importance of a wide range of outcome constructs. Their highest ranked outcomes impacted directly on everyday life and functioning (anxiety, distress, hypersensitivity, sleep problems, happiness, relationships with brothers and sisters, and parent stress). Collaboration between professionals, researchers and parents/carers is required to determine an agreed core set of outcomes to use across evaluation research. En ligne : http://dx.doi.org/10.1007/s10803-017-3282-2 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=3516 [article] Parents Suggest Which Indicators of Progress and Outcomes Should be Measured in Young Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / H. MCCONACHIE, Auteur ; N. LIVINGSTONE, Auteur ; C. MORRIS, Auteur ; Bryony BERESFORD, Auteur ; A. LE COUTEUR, Auteur ; P. GRINGRAS, Auteur ; D. GARLAND, Auteur ; G. JONES, Auteur ; G. MACDONALD, Auteur ; K. WILLIAMS, Auteur ; Jeremy R. PARR, Auteur . - p.1041-1051. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1041-1051 Mots-clés : Consultation  Measurement  Outcomes  Parents  Young children Index. décimale : PER Périodiques Résumé : Evaluation of interventions for children with autism spectrum disorder (ASD) is hampered by the multitude of outcomes measured and tools used. Measurement in research with young children tends to focus on core impairments in ASD. We conducted a systematic review of qualitative studies of what matters to parents. Parent advisory groups completed structured activities to explore their perceptions of the relative importance of a wide range of outcome constructs. Their highest ranked outcomes impacted directly on everyday life and functioning (anxiety, distress, hypersensitivity, sleep problems, happiness, relationships with brothers and sisters, and parent stress). Collaboration between professionals, researchers and parents/carers is required to determine an agreed core set of outcomes to use across evaluation research. En ligne : http://dx.doi.org/10.1007/s10803-017-3282-2 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=3516

Parents' views and experiences of talking about autism with their children / L. CRANE in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.1969-1981 Titre : Parents' views and experiences of talking about autism with their children Type de document : Texte imprimé et/ou numérique Auteurs : L. CRANE, Auteur ; L. JONES, Auteur ; R. PROSSER, Auteur ; M. TAGHRIZI, Auteur ; E. PELLICANO, Auteur Article en page(s) : p.1969-1981 Langues : Anglais (eng) Mots-clés : acceptance  autism  awareness  diagnosis  disclosure  parents Index. décimale : PER Périodiques Résumé : The way an autism diagnosis is disclosed to parents has been found to play a crucial role in their acceptance of, and the way they cope with, their child's diagnosis. Yet, research into parents' subsequent experiences of disclosing a diagnosis to their children, and talking to their families about autism more generally, is limited. Using an online survey, the current study examined 558 parents' experiences of talking about autism with their autistic and non-autistic children. Results demonstrated that most parents (n = 379, 67.9%) had told their autistic children about their diagnosis. Despite few parents (n = 163, 20.4%) receiving advice or support regarding the disclosure of the diagnosis, those that had disclosed felt satisfied with the process (n = 319, 84.2%) and felt confident in talking about autism with their children (n = 339, 92.4%). Those who had not told their autistic children about the diagnosis largely planned to discuss this with their child in the future (n = 100, 73.5%), felt confident in doing so (n = 95, 70.9%) and were satisfied with their decision (n = 95, 70.4%). Analysis of open-ended data, using thematic analysis, highlighted the importance of openness and the need to tailor explanations to individual children's needs, while acknowledging that disclosure could often be challenging for parents. En ligne : http://dx.doi.org/10.1177/1362361319836257 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=4078 [article] Parents' views and experiences of talking about autism with their children [Texte imprimé et/ou numérique] / L. CRANE, Auteur ; L. JONES, Auteur ; R. PROSSER, Auteur ; M. TAGHRIZI, Auteur ; E. PELLICANO, Auteur . - p.1969-1981. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.1969-1981 Mots-clés : acceptance  autism  awareness  diagnosis  disclosure  parents Index. décimale : PER Périodiques Résumé : The way an autism diagnosis is disclosed to parents has been found to play a crucial role in their acceptance of, and the way they cope with, their child's diagnosis. Yet, research into parents' subsequent experiences of disclosing a diagnosis to their children, and talking to their families about autism more generally, is limited. Using an online survey, the current study examined 558 parents' experiences of talking about autism with their autistic and non-autistic children. Results demonstrated that most parents (n = 379, 67.9%) had told their autistic children about their diagnosis. Despite few parents (n = 163, 20.4%) receiving advice or support regarding the disclosure of the diagnosis, those that had disclosed felt satisfied with the process (n = 319, 84.2%) and felt confident in talking about autism with their children (n = 339, 92.4%). Those who had not told their autistic children about the diagnosis largely planned to discuss this with their child in the future (n = 100, 73.5%), felt confident in doing so (n = 95, 70.9%) and were satisfied with their decision (n = 95, 70.4%). Analysis of open-ended data, using thematic analysis, highlighted the importance of openness and the need to tailor explanations to individual children's needs, while acknowledging that disclosure could often be challenging for parents. En ligne : http://dx.doi.org/10.1177/1362361319836257 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=4078

An Australian Cross-Sectional Survey of Parents' Experiences of Emergency Department Visits Among Children with Autism Spectrum Disorder / Alice GARRICK in Journal of Autism and Developmental Disorders, 52-5 (May 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-5 (May 2022) . - p.2046-2060 Titre : An Australian Cross-Sectional Survey of Parents' Experiences of Emergency Department Visits Among Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Alice GARRICK, Auteur ; Marie L. LEE, Auteur ; Carrington SCARFFE, Auteur ; Tony ATTWOOD, Auteur ; Kirsten FURLEY, Auteur ; Mark A. BELLGROVE, Auteur ; Beth P. JOHNSON, Auteur Article en page(s) : p.2046-2060 Langues : Anglais (eng) Mots-clés : Australia/epidemiology  Autism Spectrum Disorder/epidemiology  Child  Cross-Sectional Studies  Emergency Service, Hospital  Humans  Parents  Attention deficit hyperactivity disorder  Autism spectrum disorders  Comorbidity  Emergency department  Survey Index. décimale : PER Périodiques Résumé : Parents of children with ASD who had attended an Australian emergency department (ED; n=421) completed a questionnaire relating to their experiences in the ED, including (1) child's reason for presentation and existing comorbidities, (2) quality of care during the visit (3) child's behaviour during visit, e.g. sensory responses to the ED environment, and disruptive behaviours. Children with comorbid ASD and intellectual disability were more likely to present with gastrointestinal issues and seizures, while those with comorbid ASD and oppositional defiant disorder were more likely to present with self-injury. ED staff awareness of ASD-related issues, including communication and expression of pain, were common difficulties for parents. The ED environment (e.g. lights, sounds, waiting areas), exacerbated child anxiety and led to disruptive behaviour. En ligne : http://dx.doi.org/10.1007/s10803-021-05091-9 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=4762 [article] An Australian Cross-Sectional Survey of Parents' Experiences of Emergency Department Visits Among Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Alice GARRICK, Auteur ; Marie L. LEE, Auteur ; Carrington SCARFFE, Auteur ; Tony ATTWOOD, Auteur ; Kirsten FURLEY, Auteur ; Mark A. BELLGROVE, Auteur ; Beth P. JOHNSON, Auteur . - p.2046-2060. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-5 (May 2022) . - p.2046-2060 Mots-clés : Australia/epidemiology  Autism Spectrum Disorder/epidemiology  Child  Cross-Sectional Studies  Emergency Service, Hospital  Humans  Parents  Attention deficit hyperactivity disorder  Autism spectrum disorders  Comorbidity  Emergency department  Survey Index. décimale : PER Périodiques Résumé : Parents of children with ASD who had attended an Australian emergency department (ED; n=421) completed a questionnaire relating to their experiences in the ED, including (1) child's reason for presentation and existing comorbidities, (2) quality of care during the visit (3) child's behaviour during visit, e.g. sensory responses to the ED environment, and disruptive behaviours. Children with comorbid ASD and intellectual disability were more likely to present with gastrointestinal issues and seizures, while those with comorbid ASD and oppositional defiant disorder were more likely to present with self-injury. ED staff awareness of ASD-related issues, including communication and expression of pain, were common difficulties for parents. The ED environment (e.g. lights, sounds, waiting areas), exacerbated child anxiety and led to disruptive behaviour. En ligne : http://dx.doi.org/10.1007/s10803-021-05091-9 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=4762

From 'Parent' to 'Expert': How Parents of Children with Autism Spectrum Disorder Make Decisions About Which Intervention Approaches to Access / A. G. EDWARDS in Journal of Autism and Developmental Disorders, 48-6 (June 2018)  

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Longitudinal psychometric evaluation of the developmental disorder parenting stressor index with Japanese parents of children with autism / T. YAMANE in Autism, 25-7 (October 2021)  

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Longitudinal psychometric evaluation of the developmental disorder parenting stressor index with Japanese parents of children with autism / Takahiro YAMANE in Autism, 26-7 (October 2022)  

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A non randomized mentalization intervention for parents of children with autism / Y. ENAV in Autism Research, 12-7 (July 2019)  

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Parenting matters: Parents can reduce or amplify children's anxiety and cortisol responses to acute stress / Anna M. PARENTEAU in Development and Psychopathology, 32-5 (December 2020)  

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