Brief report: A policy Delphi study of expectations on resource groups in autism mental healthcare / Rinske M. VAN DEN HEUVEL in Research in Autism, 132 (April 2026)  

Public ISBD [article]  inResearch in Autism > 132 (April 2026) . - 202842 Titre : Brief report: A policy Delphi study of expectations on resource groups in autism mental healthcare Type de document : texte imprimé Auteurs : Rinske M. VAN DEN HEUVEL, Auteur ; Michel WENSING, Auteur ; Suzan EENINK, Auteur ; Hilde M. GEURTS, Auteur ; Jan-Pieter TEUNISSE, Auteur Article en page(s) : 202842 Langues : Anglais (eng) Mots-clés : Autism  Mental healthcare  Network involvement  Integrated care  Recovery Résumé : Background There is a growing emphasis on what autistic individuals need to flourish. A similar trend is observed in general mental health services through personal recovery approaches, which aim for a meaningful life and increasing well-being rather than merely a remission of symptoms of psychological conditions. One practical application of this recovery-focused approach is the Resource Group (RG) method, which emphasizes empowerment with a focus on client chosen goals, integrated care, and involving close persons. The RG method has been shown to increase quality of life and empowerment in clients of not-autism specific mental healthcare settings and can potentially improve mental healthcare services which are currently insufficiently tailored to the needs of autistic people. Stakeholder views regarding this method need to be determined before implementation. This brief report aimed to investigate expectations regarding potential effects and barriers for implementation from the perspectives of autistic clients, healthcare professionals, and network members of clients. Methods Autistic clients (n = 9), network members chosen by the clients (n = 7), and mental healthcare professionals (n = 10), participated in three separate policy Delphi procedures, which aimed to identify and elaborate on the various perspectives on RGs. Results Expected benefits and barriers differed between stakeholder groups, with healthcare professionals anticipating most benefits compared to autistic clients and network members. Most expected benefits were increased interprofessional coordination, and increased client empowerment, although the latter was not strongly expected by clients. Barriers that were most expected were related to the long-term continuation of the RG, difficulties in scheduling RG meetings and the energy- and time demands. Conclusion The results highlight which aspects of the RG methodology need to be adjusted to make it feasible and beneficial for autistic individuals in mental health settings before testing its efficacy. En ligne : https://doi.org/10.1016/j.reia.2026.202842 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=583 [article] Brief report: A policy Delphi study of expectations on resource groups in autism mental healthcare [texte imprimé] / Rinske M. VAN DEN HEUVEL, Auteur ; Michel WENSING, Auteur ; Suzan EENINK, Auteur ; Hilde M. GEURTS, Auteur ; Jan-Pieter TEUNISSE, Auteur . - 202842. Langues : Anglais (eng) in Research in Autism > 132 (April 2026) . - 202842 Mots-clés : Autism  Mental healthcare  Network involvement  Integrated care  Recovery Résumé : Background There is a growing emphasis on what autistic individuals need to flourish. A similar trend is observed in general mental health services through personal recovery approaches, which aim for a meaningful life and increasing well-being rather than merely a remission of symptoms of psychological conditions. One practical application of this recovery-focused approach is the Resource Group (RG) method, which emphasizes empowerment with a focus on client chosen goals, integrated care, and involving close persons. The RG method has been shown to increase quality of life and empowerment in clients of not-autism specific mental healthcare settings and can potentially improve mental healthcare services which are currently insufficiently tailored to the needs of autistic people. Stakeholder views regarding this method need to be determined before implementation. This brief report aimed to investigate expectations regarding potential effects and barriers for implementation from the perspectives of autistic clients, healthcare professionals, and network members of clients. Methods Autistic clients (n = 9), network members chosen by the clients (n = 7), and mental healthcare professionals (n = 10), participated in three separate policy Delphi procedures, which aimed to identify and elaborate on the various perspectives on RGs. Results Expected benefits and barriers differed between stakeholder groups, with healthcare professionals anticipating most benefits compared to autistic clients and network members. Most expected benefits were increased interprofessional coordination, and increased client empowerment, although the latter was not strongly expected by clients. Barriers that were most expected were related to the long-term continuation of the RG, difficulties in scheduling RG meetings and the energy- and time demands. Conclusion The results highlight which aspects of the RG methodology need to be adjusted to make it feasible and beneficial for autistic individuals in mental health settings before testing its efficacy. En ligne : https://doi.org/10.1016/j.reia.2026.202842 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=583

Social Network Types in Autistic Adults and Its Associations with Mastery, Quality of Life, and Autism Characteristics / Rinske M. VAN DEN HEUVEL in Journal of Autism and Developmental Disorders, 56-6 (June 2026)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 56-6 (June 2026) . - p.2408-2419 Titre : Social Network Types in Autistic Adults and Its Associations with Mastery, Quality of Life, and Autism Characteristics Type de document : texte imprimé Auteurs : Rinske M. VAN DEN HEUVEL, Auteur ; Jan-Pieter TEUNISSE, Auteur ; Tulsi A. RADHOE, Auteur ; Wikke J. VAN DER PUTTEN, Auteur ; Carolien TORENVLIET, Auteur ; Si WEN, Auteur ; Michel WENSING, Auteur ; Hilde M. GEURTS, Auteur Article en page(s) : p.2408-2419 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Research shows heterogeneity in experiences of social contact and social networks in autistic adults. In this study, we aim to identify clusters of social support networks and investigate associations of clusters with mastery, quality of life, and autism characteristics. Autistic adults (N = 381; 45.7% female) aged between 30 and 90 years completed questionnaires on social support characteristics, mastery, autism characteristics, and quality of life. A two-step cluster analysis was used to identify clusters based on social support network items. The cluster analysis revealed three clusters: Cluster 1 (n = 238) with two or more close persons, sometimes including a romantic partner; Cluster 2 (n = 102) with solely a romantic partner as close person; and Cluster 3 (n = 41) without any close persons. Level of emotional support was the most important clustering indicator. People in Cluster 3 reported lower quality of life regarding social relationships and mastery, autism characteristics, and other quality of life scales were similar across clusters. Absence or presence of close persons significantly impacts quality of life regarding social relationships in autistic adults, which highlights the importance of addressing (satisfaction with) social support. In order to enhance quality of life, offering social network interventions to increase social support seems especially relevant for autistic people belonging to Cluster 3. En ligne : https://doi.org/10.1007/s10803-025-06722-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=588 [article] Social Network Types in Autistic Adults and Its Associations with Mastery, Quality of Life, and Autism Characteristics [texte imprimé] / Rinske M. VAN DEN HEUVEL, Auteur ; Jan-Pieter TEUNISSE, Auteur ; Tulsi A. RADHOE, Auteur ; Wikke J. VAN DER PUTTEN, Auteur ; Carolien TORENVLIET, Auteur ; Si WEN, Auteur ; Michel WENSING, Auteur ; Hilde M. GEURTS, Auteur . - p.2408-2419. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 56-6 (June 2026) . - p.2408-2419 Index. décimale : PER Périodiques Résumé : Research shows heterogeneity in experiences of social contact and social networks in autistic adults. In this study, we aim to identify clusters of social support networks and investigate associations of clusters with mastery, quality of life, and autism characteristics. Autistic adults (N = 381; 45.7% female) aged between 30 and 90 years completed questionnaires on social support characteristics, mastery, autism characteristics, and quality of life. A two-step cluster analysis was used to identify clusters based on social support network items. The cluster analysis revealed three clusters: Cluster 1 (n = 238) with two or more close persons, sometimes including a romantic partner; Cluster 2 (n = 102) with solely a romantic partner as close person; and Cluster 3 (n = 41) without any close persons. Level of emotional support was the most important clustering indicator. People in Cluster 3 reported lower quality of life regarding social relationships and mastery, autism characteristics, and other quality of life scales were similar across clusters. Absence or presence of close persons significantly impacts quality of life regarding social relationships in autistic adults, which highlights the importance of addressing (satisfaction with) social support. In order to enhance quality of life, offering social network interventions to increase social support seems especially relevant for autistic people belonging to Cluster 3. En ligne : https://doi.org/10.1007/s10803-025-06722-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=588

The Social Support Network of Adults with an Autism Spectrum Condition: An Exploration Using the Network in Action-Questionnaire / Rinske M. VAN DEN HEUVEL in Journal of Autism and Developmental Disorders, 53-5 (May 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-5 (May 2023) . - p.1974-1988 Titre : The Social Support Network of Adults with an Autism Spectrum Condition: An Exploration Using the Network in Action-Questionnaire Type de document : texte imprimé Auteurs : Rinske M. VAN DEN HEUVEL, Auteur ; Michel WENSING, Auteur ; Hilde M. GEURTS, Auteur ; Jan-Pieter TEUNISSE, Auteur Article en page(s) : p.1974-1988 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Actively involving the network during treatment, as recommended in Autism Spectrum Condition (ASC) guidelines, can be facilitated with the Network in Action-Questionnaire (NiA-Q), which identifies the current and potential sources of social support. The aims of this study were to (1) examine the factor structure of the NiA-Q and (2) to explore the self- and proxy-report on the social network. Before the start of treatment in a mental health institution, 193 adults with an ASC diagnosis and 84 proxies completed the NiA-Q. Factor analysis showed two factors: positive social support and interpersonal distress. Self- and proxy-report on the NiA-Q did not differ for most variables, except for social network wishes. The NiA-Q provides a basis for network involvement and strengthening. En ligne : https://doi.org/10.1007/s10803-022-05467-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=501 [article] The Social Support Network of Adults with an Autism Spectrum Condition: An Exploration Using the Network in Action-Questionnaire [texte imprimé] / Rinske M. VAN DEN HEUVEL, Auteur ; Michel WENSING, Auteur ; Hilde M. GEURTS, Auteur ; Jan-Pieter TEUNISSE, Auteur . - p.1974-1988. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-5 (May 2023) . - p.1974-1988 Index. décimale : PER Périodiques Résumé : Actively involving the network during treatment, as recommended in Autism Spectrum Condition (ASC) guidelines, can be facilitated with the Network in Action-Questionnaire (NiA-Q), which identifies the current and potential sources of social support. The aims of this study were to (1) examine the factor structure of the NiA-Q and (2) to explore the self- and proxy-report on the social network. Before the start of treatment in a mental health institution, 193 adults with an ASC diagnosis and 84 proxies completed the NiA-Q. Factor analysis showed two factors: positive social support and interpersonal distress. Self- and proxy-report on the NiA-Q did not differ for most variables, except for social network wishes. The NiA-Q provides a basis for network involvement and strengthening. En ligne : https://doi.org/10.1007/s10803-022-05467-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=501

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