Interviews with parents of boys suffering from Duchenne muscular dystrophy / Melinda FIRTH in Developmental Medicine & Child Neurology, 25-4 (August 1983)

Public ISBD [article]  inDevelopmental Medicine & Child Neurology > 25-4 (August 1983) . - p.466-471 Titre : Interviews with parents of boys suffering from Duchenne muscular dystrophy Type de document : Texte imprimé et/ou numérique Auteurs : Melinda FIRTH, Auteur ; David GARDNER-MEDWIN, Auteur ; Elizabeth WILKINSON, Auteur ; G. P. HOSKING, Auteur Année de publication : 1983 Article en page(s) : p.466-471 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Parents from 53 families of boys with Duchenne muscular dystrophy were interviewed to explore their reactions to the diagnosis and the effects of the disease on family life. The findings are discussed in terms of the problems reported by the parents, their experiences at the time of diagnosis, their views on neonatal screening, the effects on the marital relationship, on siblings and on the affected boys themselves, and the parents' need for better information about the disorder. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=566 [article] Interviews with parents of boys suffering from Duchenne muscular dystrophy [Texte imprimé et/ou numérique] / Melinda FIRTH, Auteur ; David GARDNER-MEDWIN, Auteur ; Elizabeth WILKINSON, Auteur ; G. P. HOSKING, Auteur . - 1983 . - p.466-471. Langues : Anglais (eng) in Developmental Medicine & Child Neurology > 25-4 (August 1983) . - p.466-471 Index. décimale : PER Périodiques Résumé : Parents from 53 families of boys with Duchenne muscular dystrophy were interviewed to explore their reactions to the diagnosis and the effects of the disease on family life. The findings are discussed in terms of the problems reported by the parents, their experiences at the time of diagnosis, their views on neonatal screening, the effects on the marital relationship, on siblings and on the affected boys themselves, and the parents' need for better information about the disorder. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=566

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