Agreement of parent-reported cognitive level with standardized measures among children with autism spectrum disorder / Chimei M. LEE in Autism Research, 16-6 (June 2023)  

Public ISBD [article]  inAutism Research > 16-6 (June 2023) . - p.1210-1224 Titre : Agreement of parent-reported cognitive level with standardized measures among children with autism spectrum disorder Type de document : texte imprimé Auteurs : Chimei M. LEE, Auteur ; LeeAnne GREEN SNYDER, Auteur ; Laura A. CARPENTER, Auteur ; Jill HARRIS, Auteur ; Stephen M. KANNE, Auteur ; Cora M. TAYLOR, Auteur ; Dustin E. SARVER, Auteur ; Kevin G. STEPHENSON, Auteur ; Lisa H. SHULMAN, Auteur ; Ericka L. WODKA, Auteur ; Amy N. ESLER, Auteur ; THE SPARK CONSORTIUM, Auteur Article en page(s) : p.1210-1224 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  cognitive ability  intellectual disability  parent report  standardized measure Index. décimale : PER Périodiques Résumé : Abstract Assessing cognitive development is critical in clinical research of autism spectrum disorder (ASD). However, collecting cognitive data from clinically administered assessments can add a significant burden to clinical research in ASD due to the substantial cost and time required, and it is often prohibitive in large-scale studies. There is a need for more efficient, but reliable, methods to estimate cognitive functioning for researchers, clinicians, and families. To examine the degree to which caregiver estimates of cognitive level agree with actual measured intelligence/developmental scores and understand factors that may impact that agreement, 1,555 autistic individuals (81.74% male; age 18 months 18 years) were selected from a large cohort (Simons Foundation Powering Autism Research for Knowledge, SPARK). Results suggest that querying parents about recent testing results and developmental diagnoses can provide valid and useful information on cognitive ability. The agreement of parental estimates varied with age, measured cognitive ability, autistic traits, and adaptive skills. In the context of large-scale research efforts, parent-reported cognitive impairment may be a good proxy for categorical IQ range for survey-based studies when specific IQ scores are not available, circumventing the logistical and financial obstacles of obtaining neuropsychological or neurodevelopmental testing. En ligne : https://doi.org/10.1002/aur.2934 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=507 [article] Agreement of parent-reported cognitive level with standardized measures among children with autism spectrum disorder [texte imprimé] / Chimei M. LEE, Auteur ; LeeAnne GREEN SNYDER, Auteur ; Laura A. CARPENTER, Auteur ; Jill HARRIS, Auteur ; Stephen M. KANNE, Auteur ; Cora M. TAYLOR, Auteur ; Dustin E. SARVER, Auteur ; Kevin G. STEPHENSON, Auteur ; Lisa H. SHULMAN, Auteur ; Ericka L. WODKA, Auteur ; Amy N. ESLER, Auteur ; THE SPARK CONSORTIUM, Auteur . - p.1210-1224. Langues : Anglais (eng) in Autism Research > 16-6 (June 2023) . - p.1210-1224 Mots-clés : autism spectrum disorder  cognitive ability  intellectual disability  parent report  standardized measure Index. décimale : PER Périodiques Résumé : Abstract Assessing cognitive development is critical in clinical research of autism spectrum disorder (ASD). However, collecting cognitive data from clinically administered assessments can add a significant burden to clinical research in ASD due to the substantial cost and time required, and it is often prohibitive in large-scale studies. There is a need for more efficient, but reliable, methods to estimate cognitive functioning for researchers, clinicians, and families. To examine the degree to which caregiver estimates of cognitive level agree with actual measured intelligence/developmental scores and understand factors that may impact that agreement, 1,555 autistic individuals (81.74% male; age 18 months 18 years) were selected from a large cohort (Simons Foundation Powering Autism Research for Knowledge, SPARK). Results suggest that querying parents about recent testing results and developmental diagnoses can provide valid and useful information on cognitive ability. The agreement of parental estimates varied with age, measured cognitive ability, autistic traits, and adaptive skills. In the context of large-scale research efforts, parent-reported cognitive impairment may be a good proxy for categorical IQ range for survey-based studies when specific IQ scores are not available, circumventing the logistical and financial obstacles of obtaining neuropsychological or neurodevelopmental testing. En ligne : https://doi.org/10.1002/aur.2934 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=507

Caregivers' views on cannabis use for their children with autism / Taylor T. SIVORI in Research in Autism Spectrum Disorders, 102 (April 2023)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 102 (April 2023) . - p.102130 Titre : Caregivers' views on cannabis use for their children with autism Type de document : texte imprimé Auteurs : Taylor T. SIVORI, Auteur ; Maclain CAPRON, Auteur ; Daniel GRAVES, Auteur ; Jill HARRIS, Auteur ; Roseann C. SCHAAF, Auteur Article en page(s) : p.102130 Langues : Anglais (eng) Mots-clés : Autism  ASD  Cannabis  Caregiver  Knowledge  Survey Index. décimale : PER Périodiques Résumé : Background Autism is a neurodevelopmental disorder impacting 1 in 44 children that is characterized by decreased social communication and problem behaviors. Despite the increasing accessibility of cannabis, there is limited guidance about its use and usefulness for autism. The purpose of this study is to query caregivers of autistic children about their experience, knowledge and interest in medical cannabis use for their children. Method Survey methodology was used to query caregivers of autistic children between ages five to ten years. Informants recruited through a large children s hospital in New Jersey and the Autism Speaks website. Descriptive analyses of frequencies and percentages are reported and relationships among socio-demographic variables and survey responses were conducted. Results Of the 4385 surveys sent, 568 responded. Informants were primarily white or Latino, female, and without a college education. Most were not familiar with cannabis use in autism; 7.2 % had experience providing their child with cannabis. Information about cannabis was drawn mainly from the Internet. Eighty-five percent of participants reported that they were willing to try cannabis for their child with ASD to address difficulty focusing, hyperactivity, sensory sensitivities, and anxiety. About half of those respondents were concerned about interactions between cannabis and current medications. Conclusions Findings suggest a willingness among caregivers to use cannabis for their children with ASD, but a need for more informed guidance on this topic. More studies are needed to understand the utility of cannabis for autistic individuals; clear and reputable information about cannabis and ASD is needed. En ligne : https://doi.org/10.1016/j.rasd.2023.102130 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=501 [article] Caregivers' views on cannabis use for their children with autism [texte imprimé] / Taylor T. SIVORI, Auteur ; Maclain CAPRON, Auteur ; Daniel GRAVES, Auteur ; Jill HARRIS, Auteur ; Roseann C. SCHAAF, Auteur . - p.102130. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 102 (April 2023) . - p.102130 Mots-clés : Autism  ASD  Cannabis  Caregiver  Knowledge  Survey Index. décimale : PER Périodiques Résumé : Background Autism is a neurodevelopmental disorder impacting 1 in 44 children that is characterized by decreased social communication and problem behaviors. Despite the increasing accessibility of cannabis, there is limited guidance about its use and usefulness for autism. The purpose of this study is to query caregivers of autistic children about their experience, knowledge and interest in medical cannabis use for their children. Method Survey methodology was used to query caregivers of autistic children between ages five to ten years. Informants recruited through a large children s hospital in New Jersey and the Autism Speaks website. Descriptive analyses of frequencies and percentages are reported and relationships among socio-demographic variables and survey responses were conducted. Results Of the 4385 surveys sent, 568 responded. Informants were primarily white or Latino, female, and without a college education. Most were not familiar with cannabis use in autism; 7.2 % had experience providing their child with cannabis. Information about cannabis was drawn mainly from the Internet. Eighty-five percent of participants reported that they were willing to try cannabis for their child with ASD to address difficulty focusing, hyperactivity, sensory sensitivities, and anxiety. About half of those respondents were concerned about interactions between cannabis and current medications. Conclusions Findings suggest a willingness among caregivers to use cannabis for their children with ASD, but a need for more informed guidance on this topic. More studies are needed to understand the utility of cannabis for autistic individuals; clear and reputable information about cannabis and ASD is needed. En ligne : https://doi.org/10.1016/j.rasd.2023.102130 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=501

Development and implementation of health care transition resources for youth with autism spectrum disorders within a primary care medical home / Jill HARRIS in Autism, 25-3 (April 2021)  

Public ISBD [article]  inAutism > 25-3 (April 2021) . - p.753-766 Titre : Development and implementation of health care transition resources for youth with autism spectrum disorders within a primary care medical home Type de document : texte imprimé Auteurs : Jill HARRIS, Auteur ; Leigh P. GORMAN, Auteur ; Aditi DOSHI, Auteur ; Shannon SWOPE, Auteur ; Shayleigh D. PAGE, Auteur Article en page(s) : p.753-766 Langues : Anglais (eng) Mots-clés : adolescents  autism spectrum disorder  health care transition  young adults Index. décimale : PER Périodiques Résumé : As adolescents become adults, they typically change from seeing a pediatric health care provider to seeing a health care provider who specializes in working with adults. Adolescents with autism spectrum disorder may have more difficulty finding an adult health care provider who is trained to address the varied needs and medical and mental health issues that often are seen with autism spectrum disorder. Without careful planning for transition to adult health care, patients may continue to be seen by pediatric providers who may not be familiar with adult health needs. This quality improvement project focused on improving transition to adult health care by creating varied supports for the patient, family, and the health care team and putting them into action within a pediatric medical practice that serves over 250 adolescent and young adult patients with autism spectrum disorder. Before the supports were put into place, patients and families received limited and inconsistent communication to help them with transition. While the supports helped increase the amount and quality of help patients and families received, medical providers skipped or put off transition discussion in approximately half of well visits for targeted patients. Challenges in implementing the transition process included finding time to discuss transition-related issues with patients/families, preference of medical providers to have social workers discuss transition, and difficulty identifying adult health care providers for patients. This suggests more work is needed to both train and partner with patients, families, and health staff to promote smooth and positive health transitions. En ligne : http://dx.doi.org/10.1177/1362361320974491 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Development and implementation of health care transition resources for youth with autism spectrum disorders within a primary care medical home [texte imprimé] / Jill HARRIS, Auteur ; Leigh P. GORMAN, Auteur ; Aditi DOSHI, Auteur ; Shannon SWOPE, Auteur ; Shayleigh D. PAGE, Auteur . - p.753-766. Langues : Anglais (eng) in Autism > 25-3 (April 2021) . - p.753-766 Mots-clés : adolescents  autism spectrum disorder  health care transition  young adults Index. décimale : PER Périodiques Résumé : As adolescents become adults, they typically change from seeing a pediatric health care provider to seeing a health care provider who specializes in working with adults. Adolescents with autism spectrum disorder may have more difficulty finding an adult health care provider who is trained to address the varied needs and medical and mental health issues that often are seen with autism spectrum disorder. Without careful planning for transition to adult health care, patients may continue to be seen by pediatric providers who may not be familiar with adult health needs. This quality improvement project focused on improving transition to adult health care by creating varied supports for the patient, family, and the health care team and putting them into action within a pediatric medical practice that serves over 250 adolescent and young adult patients with autism spectrum disorder. Before the supports were put into place, patients and families received limited and inconsistent communication to help them with transition. While the supports helped increase the amount and quality of help patients and families received, medical providers skipped or put off transition discussion in approximately half of well visits for targeted patients. Challenges in implementing the transition process included finding time to discuss transition-related issues with patients/families, preference of medical providers to have social workers discuss transition, and difficulty identifying adult health care providers for patients. This suggests more work is needed to both train and partner with patients, families, and health staff to promote smooth and positive health transitions. En ligne : http://dx.doi.org/10.1177/1362361320974491 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Pre-pulse inhibition and antisaccade performance indicate impaired attention modulation of cognitive inhibition in 22q11.2 deletion syndrome (22q11DS) / Kathryn L. MCCABE in Journal of Neurodevelopmental Disorders, 6-1 (December 2014)  

Public ISBD [article]  inJournal of Neurodevelopmental Disorders > 6-1 (December 2014) . - p.38 Titre : Pre-pulse inhibition and antisaccade performance indicate impaired attention modulation of cognitive inhibition in 22q11.2 deletion syndrome (22q11DS) Type de document : texte imprimé Auteurs : Kathryn L. MCCABE, Auteur ; Rebbekah Josephine ATKINSON, Auteur ; Gavin COOPER, Auteur ; Jessica L. MELVILLE, Auteur ; Jill HARRIS, Auteur ; Ulrich SCHALL, Auteur ; Carmel Maree LOUGHLAND, Auteur ; Renate THIENEL, Auteur ; Linda E. CAMPBELL, Auteur Article en page(s) : p.38 Langues : Anglais (eng) Mots-clés : Antisaccade  Neurocognition  Ppf  Ppi  Startle modification Index. décimale : PER Périodiques Résumé : BACKGROUND: 22q11.2 deletion syndrome (22q11DS) is associated with a number of physical anomalies and neuropsychological deficits including impairments in executive and sensorimotor function. It is estimated that 25% of children with 22q11DS will develop schizophrenia and other psychotic disorders later in life. Evidence of genetic transmission of information processing deficits in schizophrenia suggests performance in 22q11DS individuals will enhance understanding of the neurobiological and genetic substrates associated with information processing. In this report, we examine information processing in 22q11DS using measures of startle eyeblink modification and antisaccade inhibition to explore similarities with schizophrenia and associations with neurocognitive performance. METHODS: Startle modification (passive and active tasks; 120- and 480-ms pre-pulse intervals) and antisaccade inhibition were measured in 25 individuals with genetically confirmed 22q11DS and 30 healthy control subjects. RESULTS: Individuals with 22q11DS exhibited increased antisaccade error as well as some evidence (trend-level effect) of impaired sensorimotor gating during the active condition, suggesting a dysfunction in controlled attentional processing, rather than a pre-attentive dysfunction using this paradigm. CONCLUSIONS: The findings from the present study show similarities with previous studies in clinical populations associated with 22q11DS such as schizophrenia that may indicate shared dysfunction of inhibition pathways in these groups. En ligne : http://dx.doi.org/10.1186/1866-1955-6-38 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=346 [article] Pre-pulse inhibition and antisaccade performance indicate impaired attention modulation of cognitive inhibition in 22q11.2 deletion syndrome (22q11DS) [texte imprimé] / Kathryn L. MCCABE, Auteur ; Rebbekah Josephine ATKINSON, Auteur ; Gavin COOPER, Auteur ; Jessica L. MELVILLE, Auteur ; Jill HARRIS, Auteur ; Ulrich SCHALL, Auteur ; Carmel Maree LOUGHLAND, Auteur ; Renate THIENEL, Auteur ; Linda E. CAMPBELL, Auteur . - p.38. Langues : Anglais (eng) in Journal of Neurodevelopmental Disorders > 6-1 (December 2014) . - p.38 Mots-clés : Antisaccade  Neurocognition  Ppf  Ppi  Startle modification Index. décimale : PER Périodiques Résumé : BACKGROUND: 22q11.2 deletion syndrome (22q11DS) is associated with a number of physical anomalies and neuropsychological deficits including impairments in executive and sensorimotor function. It is estimated that 25% of children with 22q11DS will develop schizophrenia and other psychotic disorders later in life. Evidence of genetic transmission of information processing deficits in schizophrenia suggests performance in 22q11DS individuals will enhance understanding of the neurobiological and genetic substrates associated with information processing. In this report, we examine information processing in 22q11DS using measures of startle eyeblink modification and antisaccade inhibition to explore similarities with schizophrenia and associations with neurocognitive performance. METHODS: Startle modification (passive and active tasks; 120- and 480-ms pre-pulse intervals) and antisaccade inhibition were measured in 25 individuals with genetically confirmed 22q11DS and 30 healthy control subjects. RESULTS: Individuals with 22q11DS exhibited increased antisaccade error as well as some evidence (trend-level effect) of impaired sensorimotor gating during the active condition, suggesting a dysfunction in controlled attentional processing, rather than a pre-attentive dysfunction using this paradigm. CONCLUSIONS: The findings from the present study show similarities with previous studies in clinical populations associated with 22q11DS such as schizophrenia that may indicate shared dysfunction of inhibition pathways in these groups. En ligne : http://dx.doi.org/10.1186/1866-1955-6-38 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=346

Screening for autism spectrum disorder in underserved communities: Early childcare providers as reporters / Yvette M. JANVIER in Autism, 20-3 (April 2016)  

Public ISBD [article]  inAutism > 20-3 (April 2016) . - p.364-373 Titre : Screening for autism spectrum disorder in underserved communities: Early childcare providers as reporters Type de document : texte imprimé Auteurs : Yvette M. JANVIER, Auteur ; Jill HARRIS, Auteur ; Caroline N. COFFIELD, Auteur ; Barbara LOUIS, Auteur ; Ming XIE, Auteur ; Zuleyha CIDAV, Auteur ; David S. MANDELL, Auteur Article en page(s) : p.364-373 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  early childcare providers  preschool children  screening  underserved Index. décimale : PER Périodiques Résumé : Early diagnosis of autism typically is associated with earlier access to intervention and improved outcomes. Daycares and preschools largely have been ignored as possible venues for early identification. This may be especially important for minority children in the United States who are typically diagnosed with autism later than White children, limiting their access to early specialized interventions and possibly resulting in poorer outcomes. Early childcare providers within underserved communities completed autism screening tools for a sample of low-risk young children (n = 967) in their programs. Early childcare providers returned screening tools for 90% of the children for whom parental consent had been received. A total of 14% of children screened positive for autism spectrum disorder and 3% of the sample met criteria for autism spectrum disorder. Among those who screened positive, 34% were lost to follow-up. Findings suggest that early childcare providers can effectively screen young children for autism spectrum disorder in preschool/daycare settings, thus improving access to early diagnosis and reducing potential healthcare disparities among underserved populations. En ligne : http://dx.doi.org/10.1177/1362361315585055 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=285 [article] Screening for autism spectrum disorder in underserved communities: Early childcare providers as reporters [texte imprimé] / Yvette M. JANVIER, Auteur ; Jill HARRIS, Auteur ; Caroline N. COFFIELD, Auteur ; Barbara LOUIS, Auteur ; Ming XIE, Auteur ; Zuleyha CIDAV, Auteur ; David S. MANDELL, Auteur . - p.364-373. Langues : Anglais (eng) in Autism > 20-3 (April 2016) . - p.364-373 Mots-clés : autism spectrum disorders  early childcare providers  preschool children  screening  underserved Index. décimale : PER Périodiques Résumé : Early diagnosis of autism typically is associated with earlier access to intervention and improved outcomes. Daycares and preschools largely have been ignored as possible venues for early identification. This may be especially important for minority children in the United States who are typically diagnosed with autism later than White children, limiting their access to early specialized interventions and possibly resulting in poorer outcomes. Early childcare providers within underserved communities completed autism screening tools for a sample of low-risk young children (n = 967) in their programs. Early childcare providers returned screening tools for 90% of the children for whom parental consent had been received. A total of 14% of children screened positive for autism spectrum disorder and 3% of the sample met criteria for autism spectrum disorder. Among those who screened positive, 34% were lost to follow-up. Findings suggest that early childcare providers can effectively screen young children for autism spectrum disorder in preschool/daycare settings, thus improving access to early diagnosis and reducing potential healthcare disparities among underserved populations. En ligne : http://dx.doi.org/10.1177/1362361315585055 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=285

Screening Options in Autism Telediagnosis: Examination of TAP, M-CHAT-R, and DCI Concordance and Predictive Value in a Telediagnostic Model / Amy S. WEITLAUF in Journal of Autism and Developmental Disorders, 55-9 (September 2025)  

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