Agreement of parent-reported cognitive level with standardized measures among children with autism spectrum disorder / Chimei M. LEE in Autism Research, 16-6 (June 2023)  

Public ISBD [article]  inAutism Research > 16-6 (June 2023) . - p.1210-1224 Titre : Agreement of parent-reported cognitive level with standardized measures among children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Chimei M. LEE, Auteur ; LeeAnne GREEN SNYDER, Auteur ; Laura A. CARPENTER, Auteur ; Jill HARRIS, Auteur ; Stephen KANNE, Auteur ; Cora M. TAYLOR, Auteur ; Dustin E. SARVER, Auteur ; Kevin G. STEPHENSON, Auteur ; Lisa H. SHULMAN, Auteur ; Ericka L. WODKA, Auteur ; Amy ESLER, Auteur ; Spark consortium THE, Auteur Article en page(s) : p.1210-1224 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  cognitive ability  intellectual disability  parent report  standardized measure Index. décimale : PER Périodiques Résumé : Abstract Assessing cognitive development is critical in clinical research of autism spectrum disorder (ASD). However, collecting cognitive data from clinically administered assessments can add a significant burden to clinical research in ASD due to the substantial cost and time required, and it is often prohibitive in large-scale studies. There is a need for more efficient, but reliable, methods to estimate cognitive functioning for researchers, clinicians, and families. To examine the degree to which caregiver estimates of cognitive level agree with actual measured intelligence/developmental scores and understand factors that may impact that agreement, 1,555 autistic individuals (81.74% male; age 18?months?18?years) were selected from a large cohort (Simons Foundation Powering Autism Research for Knowledge, SPARK). Results suggest that querying parents about recent testing results and developmental diagnoses can provide valid and useful information on cognitive ability. The agreement of parental estimates varied with age, measured cognitive ability, autistic traits, and adaptive skills. In the context of large-scale research efforts, parent-reported cognitive impairment may be a good proxy for categorical IQ range for survey-based studies when specific IQ scores are not available, circumventing the logistical and financial obstacles of obtaining neuropsychological or neurodevelopmental testing. En ligne : https://doi.org/10.1002/aur.2934 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=507 [article] Agreement of parent-reported cognitive level with standardized measures among children with autism spectrum disorder [Texte imprimé et/ou numérique] / Chimei M. LEE, Auteur ; LeeAnne GREEN SNYDER, Auteur ; Laura A. CARPENTER, Auteur ; Jill HARRIS, Auteur ; Stephen KANNE, Auteur ; Cora M. TAYLOR, Auteur ; Dustin E. SARVER, Auteur ; Kevin G. STEPHENSON, Auteur ; Lisa H. SHULMAN, Auteur ; Ericka L. WODKA, Auteur ; Amy ESLER, Auteur ; Spark consortium THE, Auteur . - p.1210-1224. Langues : Anglais (eng) in Autism Research > 16-6 (June 2023) . - p.1210-1224 Mots-clés : autism spectrum disorder  cognitive ability  intellectual disability  parent report  standardized measure Index. décimale : PER Périodiques Résumé : Abstract Assessing cognitive development is critical in clinical research of autism spectrum disorder (ASD). However, collecting cognitive data from clinically administered assessments can add a significant burden to clinical research in ASD due to the substantial cost and time required, and it is often prohibitive in large-scale studies. There is a need for more efficient, but reliable, methods to estimate cognitive functioning for researchers, clinicians, and families. To examine the degree to which caregiver estimates of cognitive level agree with actual measured intelligence/developmental scores and understand factors that may impact that agreement, 1,555 autistic individuals (81.74% male; age 18?months?18?years) were selected from a large cohort (Simons Foundation Powering Autism Research for Knowledge, SPARK). Results suggest that querying parents about recent testing results and developmental diagnoses can provide valid and useful information on cognitive ability. The agreement of parental estimates varied with age, measured cognitive ability, autistic traits, and adaptive skills. In the context of large-scale research efforts, parent-reported cognitive impairment may be a good proxy for categorical IQ range for survey-based studies when specific IQ scores are not available, circumventing the logistical and financial obstacles of obtaining neuropsychological or neurodevelopmental testing. En ligne : https://doi.org/10.1002/aur.2934 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=507

Caregivers' views on cannabis use for their children with autism / Taylor T. SIVORI in Research in Autism Spectrum Disorders, 102 (April 2023)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 102 (April 2023) . - p.102130 Titre : Caregivers' views on cannabis use for their children with autism Type de document : Texte imprimé et/ou numérique Auteurs : Taylor T. SIVORI, Auteur ; Maclain CAPRON, Auteur ; Daniel GRAVES, Auteur ; Jill HARRIS, Auteur ; Roseann C. SCHAAF, Auteur Article en page(s) : p.102130 Langues : Anglais (eng) Mots-clés : Autism  ASD  Cannabis  Caregiver  Knowledge  Survey Index. décimale : PER Périodiques Résumé : Background Autism is a neurodevelopmental disorder impacting 1 in 44 children that is characterized by decreased social communication and problem behaviors. Despite the increasing accessibility of cannabis, there is limited guidance about its use and usefulness for autism. The purpose of this study is to query caregivers of autistic children about their experience, knowledge and interest in medical cannabis use for their children. Method Survey methodology was used to query caregivers of autistic children between ages five to ten years. Informants recruited through a large children?s hospital in New Jersey and the Autism Speaks website. Descriptive analyses of frequencies and percentages are reported and relationships among socio-demographic variables and survey responses were conducted. Results Of the 4385 surveys sent, 568 responded. Informants were primarily white or Latino, female, and without a college education. Most were not familiar with cannabis use in autism; 7.2 % had experience providing their child with cannabis. Information about cannabis was drawn mainly from the Internet. Eighty-five percent of participants reported that they were willing to try cannabis for their child with ASD to address difficulty focusing, hyperactivity, sensory sensitivities, and anxiety. About half of those respondents were concerned about interactions between cannabis and current medications. Conclusions Findings suggest a willingness among caregivers to use cannabis for their children with ASD, but a need for more informed guidance on this topic. More studies are needed to understand the utility of cannabis for autistic individuals; clear and reputable information about cannabis and ASD is needed. En ligne : https://doi.org/10.1016/j.rasd.2023.102130 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=501 [article] Caregivers' views on cannabis use for their children with autism [Texte imprimé et/ou numérique] / Taylor T. SIVORI, Auteur ; Maclain CAPRON, Auteur ; Daniel GRAVES, Auteur ; Jill HARRIS, Auteur ; Roseann C. SCHAAF, Auteur . - p.102130. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 102 (April 2023) . - p.102130 Mots-clés : Autism  ASD  Cannabis  Caregiver  Knowledge  Survey Index. décimale : PER Périodiques Résumé : Background Autism is a neurodevelopmental disorder impacting 1 in 44 children that is characterized by decreased social communication and problem behaviors. Despite the increasing accessibility of cannabis, there is limited guidance about its use and usefulness for autism. The purpose of this study is to query caregivers of autistic children about their experience, knowledge and interest in medical cannabis use for their children. Method Survey methodology was used to query caregivers of autistic children between ages five to ten years. Informants recruited through a large children?s hospital in New Jersey and the Autism Speaks website. Descriptive analyses of frequencies and percentages are reported and relationships among socio-demographic variables and survey responses were conducted. Results Of the 4385 surveys sent, 568 responded. Informants were primarily white or Latino, female, and without a college education. Most were not familiar with cannabis use in autism; 7.2 % had experience providing their child with cannabis. Information about cannabis was drawn mainly from the Internet. Eighty-five percent of participants reported that they were willing to try cannabis for their child with ASD to address difficulty focusing, hyperactivity, sensory sensitivities, and anxiety. About half of those respondents were concerned about interactions between cannabis and current medications. Conclusions Findings suggest a willingness among caregivers to use cannabis for their children with ASD, but a need for more informed guidance on this topic. More studies are needed to understand the utility of cannabis for autistic individuals; clear and reputable information about cannabis and ASD is needed. En ligne : https://doi.org/10.1016/j.rasd.2023.102130 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=501

---

1 (1 - 2 / 2)