Agreement of parent-reported cognitive level with standardized measures among children with autism spectrum disorder / Chimei M. LEE in Autism Research, 16-6 (June 2023)  

Public ISBD [article]  inAutism Research > 16-6 (June 2023) . - p.1210-1224 Titre : Agreement of parent-reported cognitive level with standardized measures among children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Chimei M. LEE, Auteur ; LeeAnne GREEN SNYDER, Auteur ; Laura A. CARPENTER, Auteur ; Jill HARRIS, Auteur ; Stephen KANNE, Auteur ; Cora M. TAYLOR, Auteur ; Dustin E. SARVER, Auteur ; Kevin G. STEPHENSON, Auteur ; Lisa H. SHULMAN, Auteur ; Ericka L. WODKA, Auteur ; Amy ESLER, Auteur ; Spark consortium THE, Auteur Article en page(s) : p.1210-1224 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  cognitive ability  intellectual disability  parent report  standardized measure Index. décimale : PER Périodiques Résumé : Abstract Assessing cognitive development is critical in clinical research of autism spectrum disorder (ASD). However, collecting cognitive data from clinically administered assessments can add a significant burden to clinical research in ASD due to the substantial cost and time required, and it is often prohibitive in large-scale studies. There is a need for more efficient, but reliable, methods to estimate cognitive functioning for researchers, clinicians, and families. To examine the degree to which caregiver estimates of cognitive level agree with actual measured intelligence/developmental scores and understand factors that may impact that agreement, 1,555 autistic individuals (81.74% male; age 18?months?18?years) were selected from a large cohort (Simons Foundation Powering Autism Research for Knowledge, SPARK). Results suggest that querying parents about recent testing results and developmental diagnoses can provide valid and useful information on cognitive ability. The agreement of parental estimates varied with age, measured cognitive ability, autistic traits, and adaptive skills. In the context of large-scale research efforts, parent-reported cognitive impairment may be a good proxy for categorical IQ range for survey-based studies when specific IQ scores are not available, circumventing the logistical and financial obstacles of obtaining neuropsychological or neurodevelopmental testing. En ligne : https://doi.org/10.1002/aur.2934 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=507 [article] Agreement of parent-reported cognitive level with standardized measures among children with autism spectrum disorder [Texte imprimé et/ou numérique] / Chimei M. LEE, Auteur ; LeeAnne GREEN SNYDER, Auteur ; Laura A. CARPENTER, Auteur ; Jill HARRIS, Auteur ; Stephen KANNE, Auteur ; Cora M. TAYLOR, Auteur ; Dustin E. SARVER, Auteur ; Kevin G. STEPHENSON, Auteur ; Lisa H. SHULMAN, Auteur ; Ericka L. WODKA, Auteur ; Amy ESLER, Auteur ; Spark consortium THE, Auteur . - p.1210-1224. Langues : Anglais (eng) in Autism Research > 16-6 (June 2023) . - p.1210-1224 Mots-clés : autism spectrum disorder  cognitive ability  intellectual disability  parent report  standardized measure Index. décimale : PER Périodiques Résumé : Abstract Assessing cognitive development is critical in clinical research of autism spectrum disorder (ASD). However, collecting cognitive data from clinically administered assessments can add a significant burden to clinical research in ASD due to the substantial cost and time required, and it is often prohibitive in large-scale studies. There is a need for more efficient, but reliable, methods to estimate cognitive functioning for researchers, clinicians, and families. To examine the degree to which caregiver estimates of cognitive level agree with actual measured intelligence/developmental scores and understand factors that may impact that agreement, 1,555 autistic individuals (81.74% male; age 18?months?18?years) were selected from a large cohort (Simons Foundation Powering Autism Research for Knowledge, SPARK). Results suggest that querying parents about recent testing results and developmental diagnoses can provide valid and useful information on cognitive ability. The agreement of parental estimates varied with age, measured cognitive ability, autistic traits, and adaptive skills. In the context of large-scale research efforts, parent-reported cognitive impairment may be a good proxy for categorical IQ range for survey-based studies when specific IQ scores are not available, circumventing the logistical and financial obstacles of obtaining neuropsychological or neurodevelopmental testing. En ligne : https://doi.org/10.1002/aur.2934 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=507

Child Behavior Problems and Parenting Stress in Underserved Families of Children with ASD: Investigation of Family Resources and Parenting Self-efficacy / Kevin G. STEPHENSON in Journal of Autism and Developmental Disorders, 53-10 (October 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-10 (October 2023) . - p.3787-3798 Titre : Child Behavior Problems and Parenting Stress in Underserved Families of Children with ASD: Investigation of Family Resources and Parenting Self-efficacy Type de document : Texte imprimé et/ou numérique Auteurs : Kevin G. STEPHENSON, Auteur ; Rachel M. FENNING, Auteur ; Eric A. MACKLIN, Auteur ; Frances LU, Auteur ; Megan NORRIS, Auteur ; Robin STEINBERG-EPSTEIN, Auteur ; Eric M. BUTTER, Auteur Article en page(s) : p.3787-3798 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Behavior problems in children with autism spectrum disorder (ASD) may exacerbate parenting stress. Parenting self-efficacy and family resources may influence this association. We examined cross-sectional statistical mediation effects of parenting self-efficacy on the relationship between child behavior problems and parenting stress and hypothesized that family-level resources moderated this indirect effect. Participants included 132 underserved (Medicaid-eligible) children with ASD (ages 3-13) with racial/ethnic diversity; many (63%) had intellectual disability. Greater externalizing problems were linked with lower parenting self-efficacy, which in turn was associated with increased parenting stress. A larger mediation effect was observed for families with fewer resources. A plausible alternative model (parenting stress mediating parenting self-efficacy) exhibited poorer fit. Implications for family supports and benefits of longitudinal follow-up are discussed. En ligne : https://doi.org/10.1007/s10803-022-05681-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=511 [article] Child Behavior Problems and Parenting Stress in Underserved Families of Children with ASD: Investigation of Family Resources and Parenting Self-efficacy [Texte imprimé et/ou numérique] / Kevin G. STEPHENSON, Auteur ; Rachel M. FENNING, Auteur ; Eric A. MACKLIN, Auteur ; Frances LU, Auteur ; Megan NORRIS, Auteur ; Robin STEINBERG-EPSTEIN, Auteur ; Eric M. BUTTER, Auteur . - p.3787-3798. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-10 (October 2023) . - p.3787-3798 Index. décimale : PER Périodiques Résumé : Behavior problems in children with autism spectrum disorder (ASD) may exacerbate parenting stress. Parenting self-efficacy and family resources may influence this association. We examined cross-sectional statistical mediation effects of parenting self-efficacy on the relationship between child behavior problems and parenting stress and hypothesized that family-level resources moderated this indirect effect. Participants included 132 underserved (Medicaid-eligible) children with ASD (ages 3-13) with racial/ethnic diversity; many (63%) had intellectual disability. Greater externalizing problems were linked with lower parenting self-efficacy, which in turn was associated with increased parenting stress. A larger mediation effect was observed for families with fewer resources. A plausible alternative model (parenting stress mediating parenting self-efficacy) exhibited poorer fit. Implications for family supports and benefits of longitudinal follow-up are discussed. En ligne : https://doi.org/10.1007/s10803-022-05681-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=511

Cognitive defusion for reducing distressing thoughts in adults with autism / Max E. MAISEL in Research in Autism Spectrum Disorders, 59 (March 2019)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 59 (March 2019) . - p.34-45 Titre : Cognitive defusion for reducing distressing thoughts in adults with autism Type de document : Texte imprimé et/ou numérique Auteurs : Max E. MAISEL, Auteur ; Kevin G. STEPHENSON, Auteur ; Jonathan C. COX, Auteur ; Mikle SOUTH, Auteur Article en page(s) : p.34-45 Langues : Anglais (eng) Mots-clés : Autism  Inflexibility  Cognitive fusion  Anxiety  Depression  Acceptance and commitment therapy Index. décimale : PER Périodiques Résumé : Background Cognitive fusion occurs when people over-identify with their thoughts, leading to a strong emotional response and a narrowed behavioral repertoire. Cognitive defusion (CD) is a technique used in acceptance and commitment therapy (ACT) to teach people how to pay attention to the process of thinking, thereby reducing the negative effect of over-identification and allowing people to behave in more adaptive ways. CD has been widely studied in neurotypical (NT) samples, but there is little research on cognitive fusion and related interventions for people diagnosed with autism (AS). Method Sixty-eight adult participants (AS group n?=?27; NT group n?=?41) answered questionnaires measuring psychological distress and dispositional levels of cognitive fusion. In a lab setting, participants next identified a personal distressing thought, then were randomized into a brief (5-minute) cognitive defusion technique or an equally-brief active distraction technique. Before and after the intervention, participants completed measures assessing the believability of their distressing thought and how much discomfort the thought caused. Results The AS group reported higher overall trait levels of cognitive fusion than the NT group. Cognitive fusion was moderately- to strongly-related with psychological distress in both participant groups. The brief interventions worked equally well in immediately reducing thought believability and thought discomfort for AS and NT groups. Conclusions The current study provides support for cognitive fusion as a contributing factor to the psychological distress experienced by people with AS, and that a brief intervention technique can effectively reduce fusion at least in an immediate context. More work is needed to explore the specific short-term and long-term efficacy for interventions aimed to reduce cognitive fusion. En ligne : https://doi.org/10.1016/j.rasd.2018.12.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=379 [article] Cognitive defusion for reducing distressing thoughts in adults with autism [Texte imprimé et/ou numérique] / Max E. MAISEL, Auteur ; Kevin G. STEPHENSON, Auteur ; Jonathan C. COX, Auteur ; Mikle SOUTH, Auteur . - p.34-45. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 59 (March 2019) . - p.34-45 Mots-clés : Autism  Inflexibility  Cognitive fusion  Anxiety  Depression  Acceptance and commitment therapy Index. décimale : PER Périodiques Résumé : Background Cognitive fusion occurs when people over-identify with their thoughts, leading to a strong emotional response and a narrowed behavioral repertoire. Cognitive defusion (CD) is a technique used in acceptance and commitment therapy (ACT) to teach people how to pay attention to the process of thinking, thereby reducing the negative effect of over-identification and allowing people to behave in more adaptive ways. CD has been widely studied in neurotypical (NT) samples, but there is little research on cognitive fusion and related interventions for people diagnosed with autism (AS). Method Sixty-eight adult participants (AS group n?=?27; NT group n?=?41) answered questionnaires measuring psychological distress and dispositional levels of cognitive fusion. In a lab setting, participants next identified a personal distressing thought, then were randomized into a brief (5-minute) cognitive defusion technique or an equally-brief active distraction technique. Before and after the intervention, participants completed measures assessing the believability of their distressing thought and how much discomfort the thought caused. Results The AS group reported higher overall trait levels of cognitive fusion than the NT group. Cognitive fusion was moderately- to strongly-related with psychological distress in both participant groups. The brief interventions worked equally well in immediately reducing thought believability and thought discomfort for AS and NT groups. Conclusions The current study provides support for cognitive fusion as a contributing factor to the psychological distress experienced by people with AS, and that a brief intervention technique can effectively reduce fusion at least in an immediate context. More work is needed to explore the specific short-term and long-term efficacy for interventions aimed to reduce cognitive fusion. En ligne : https://doi.org/10.1016/j.rasd.2018.12.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=379

Common Threads, Age-related Differences, and Avenues for Future Research: Response to Heaton / Kevin G. STEPHENSON in Journal of Autism and Developmental Disorders, 46-4 (April 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-4 (April 2016) . - p.1494-1497 Titre : Common Threads, Age-related Differences, and Avenues for Future Research: Response to Heaton Type de document : Texte imprimé et/ou numérique Auteurs : Kevin G. STEPHENSON, Auteur ; Eve-Marie QUINTIN, Auteur ; Mikle SOUTH, Auteur Article en page(s) : p.1494-1497 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1007/s10803-016-2750-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=284 [article] Common Threads, Age-related Differences, and Avenues for Future Research: Response to Heaton [Texte imprimé et/ou numérique] / Kevin G. STEPHENSON, Auteur ; Eve-Marie QUINTIN, Auteur ; Mikle SOUTH, Auteur . - p.1494-1497. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-4 (April 2016) . - p.1494-1497 Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1007/s10803-016-2750-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=284

Comparative effectiveness trial: Modular behavior approach for young autistic children compared to comprehensive behavioral intervention / Cynthia ANDERSON in Autism Research, 17-11 (November 2024)  

Public ISBD [article]  inAutism Research > 17-11 (November 2024) . - p.2430-2446 Titre : Comparative effectiveness trial: Modular behavior approach for young autistic children compared to comprehensive behavioral intervention Type de document : Texte imprimé et/ou numérique Auteurs : Cynthia ANDERSON, Auteur ; Samantha HOCHHEIMER, Auteur ; Zachary WARREN, Auteur ; Eric BUTTER, Auteur ; Susan L. HYMAN, Auteur ; Hongyue WANG, Auteur ; Lisa WALLACE, Auteur ; Lynne LEVATO, Auteur ; Ryan MARTIN, Auteur ; Kevin G. STEPHENSON, Auteur ; Megan NORRIS, Auteur ; Wynn JACQUELINE, Auteur ; Tristram SMITH, Auteur ; Cynthia R. JOHNSON, Auteur Article en page(s) : p.2430-2446 Langues : Anglais (eng) Mots-clés : applied behavior analysis  autism  behavioral intervention  comprehensive behavior intervention (CBI)  discrete trial training (DTT)  early intensive Behavioral intervention (EIBI)  naturalistic developmental Behavioral interventions (NDBIs)  noninferiority design  randomized clinical trial (RCT) Index. décimale : PER Périodiques Résumé : Abstract This 24-week single-blind trial tested a modular approach for young autistic children (MAYAC) that was delivered for fewer hours per week and modified based on child progress and parental input compared to comprehensive behavioral intervention treatment as usual (CBI, TAU). Participants were autistic children, ages 18?60?months of age. MAYAC was initially 5?h of intervention per week, one of which was parent training and the other four direct therapy focusing on social communication and engagement, but additional modules could be added for up to 10?h per week. Comprehensive behavior intervention was delivered for ?15?h per week. Outcome measures included the Vineland Adaptive Behavior Scales; VABS, the Ohio Autism Clinical Improvement Scale ? Autism Severity; OACIS ? AS and the Pervasive Developmental Disorder Behavior Inventory ? Parent; PDDBI-P. Implementation and parent satisfaction measures were also collected. Fifty-six children, mean age of 34?months, were randomized. Within-group analysis revealed significant improvements from baseline to week 24 for both MAYAC (p?95%) as was parent satisfaction. Findings from this small trial are promising and suggest MAYAC may be an alternative for some young autistic children and their families to CBI, TAU. En ligne : https://doi.org/10.1002/aur.3240 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=542 [article] Comparative effectiveness trial: Modular behavior approach for young autistic children compared to comprehensive behavioral intervention [Texte imprimé et/ou numérique] / Cynthia ANDERSON, Auteur ; Samantha HOCHHEIMER, Auteur ; Zachary WARREN, Auteur ; Eric BUTTER, Auteur ; Susan L. HYMAN, Auteur ; Hongyue WANG, Auteur ; Lisa WALLACE, Auteur ; Lynne LEVATO, Auteur ; Ryan MARTIN, Auteur ; Kevin G. STEPHENSON, Auteur ; Megan NORRIS, Auteur ; Wynn JACQUELINE, Auteur ; Tristram SMITH, Auteur ; Cynthia R. JOHNSON, Auteur . - p.2430-2446. Langues : Anglais (eng) in Autism Research > 17-11 (November 2024) . - p.2430-2446 Mots-clés : applied behavior analysis  autism  behavioral intervention  comprehensive behavior intervention (CBI)  discrete trial training (DTT)  early intensive Behavioral intervention (EIBI)  naturalistic developmental Behavioral interventions (NDBIs)  noninferiority design  randomized clinical trial (RCT) Index. décimale : PER Périodiques Résumé : Abstract This 24-week single-blind trial tested a modular approach for young autistic children (MAYAC) that was delivered for fewer hours per week and modified based on child progress and parental input compared to comprehensive behavioral intervention treatment as usual (CBI, TAU). Participants were autistic children, ages 18?60?months of age. MAYAC was initially 5?h of intervention per week, one of which was parent training and the other four direct therapy focusing on social communication and engagement, but additional modules could be added for up to 10?h per week. Comprehensive behavior intervention was delivered for ?15?h per week. Outcome measures included the Vineland Adaptive Behavior Scales; VABS, the Ohio Autism Clinical Improvement Scale ? Autism Severity; OACIS ? AS and the Pervasive Developmental Disorder Behavior Inventory ? Parent; PDDBI-P. Implementation and parent satisfaction measures were also collected. Fifty-six children, mean age of 34?months, were randomized. Within-group analysis revealed significant improvements from baseline to week 24 for both MAYAC (p?95%) as was parent satisfaction. Findings from this small trial are promising and suggest MAYAC may be an alternative for some young autistic children and their families to CBI, TAU. En ligne : https://doi.org/10.1002/aur.3240 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=542

Corrigendum to “Cognitive defusion for reducing distressing thoughts in adults with autism” [Res. Autism Spectrum Disord. 59 (2019) 34–45] / Max E. MAISEL in Research in Autism Spectrum Disorders, 65 (September 2019)  

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Optimizing Parent Training to Improve Oral Health Behavior and Outcomes in Underserved Children with Autism Spectrum Disorder / Rachel M. FENNING in Journal of Autism and Developmental Disorders, 53-9 (September 2023)  

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Preliminary Validation and Feasibility of the Autism Detection in Early Childhood-Virtual (ADEC-V) for Autism Telehealth Evaluations in a Hospital Setting / Elizabeth M. KRYSZAK in Journal of Autism and Developmental Disorders, 52-12 (December 2022)  

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Relationship between brain stem volume and aggression in children diagnosed with autism spectrum disorder / Rebecca A. LUNDWALL in Research in Autism Spectrum Disorders, 34 (February 2017)  

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Symptom overlap on the srs-2 adult self-report between adults with asd and adults with high anxiety / Mikle SOUTH in Autism Research, 10-7 (July 2017)  

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